Celiac.com Sponsor (A1):

Join eNewsletter

Celiac.com Sponsor (A1-m):

Join eNewsletter

Welda Johnson

Advanced Members
  • Content Count

  • Joined

  • Last visited

1 Follower

About Welda Johnson

  • Rank
    Star Contributor

Profile Information

  • Gender
  • Location
    Escondido, California

  1. Hi,

    I have serious problems with all grains, all milk & dairy, egg whites, yeast, casein, whey, maltodextrin, modified food starch, and msg. I avoid all those foods and ingredients, and I've been on the diet for quite a few years, and feel great. I hesitate to suggest any kinds of doctors for further evidence, since I gave most of my income and money to doctors, specialists, hospitals, and pharmacists for many years, and they gave me a lot of care but few answers about why I was so sick. Elimination diets work great, as well as keeping a journal of foods eaten and responses to those foods. If you have family members who are just beginning to consider whether they have Celiac or dairy intolerances, I have used Enterolab.com for testing my family members, and was quite satisfied with their home tests. Also, I had a cat and had to eventually keep him outside so I could breathe. Best wishes to you as you discover more each day. Welda

  2. Hi,

    I know how you feel, concerning pizza and cheese! I used to really like them too, especially cheese. For quite a few years now I have been on a stringent diet of fruits, vegetables, legumes, and sometimes meat, though that, too, often gives me problems now. All grains, all milk & dairy, egg whites, yeast, casein, whey, maltodextrin, modified food starch, and msg all give me severe problems, so I NEVER eat those foods or additives if I can help it.

    Here's the funny thing--I could care less now about those foods I used to eat. My focus is on my regained health, on how much better I feel all-around, on how well I sleep, on how my weight stays around 100 pounds (which for me at five feet tall is great), on how much happier I feel, and on how much energy I have (I exercise 3-5 miles just about every day, and I'm 64 years). I have enough energy and good health to take care of my grandchildren, to visit family members and friends, to study for a Real Estate Broker's License, to research and write books, and I'm in the process of setting up a non-profit corporation to help others who are in need of and want help in a variety of areas.

    So, please know that your whole outlook will change as each day goes by and you feel so much better. Instead of seeing the foods you used to eat, you'll be reading labels and ingredient lists for foods you know you CAN eat. It takes some time and energy to research how to best institute the Celiac diet, but once you're on the path, it does get easier. I bet you'll love the soy ice cream bars that are covered in chocolate, and the casein/whey-free soy cheese, Monterey Jack, made by Vegan Gourmet. Namaste Foods makes a really great pizza crust--the best I've tried yet. I eat lots of fresh pineapple, oranges, strawberries, green salads and vegetables, and really like tamales, corn tortillas, refried beans, rice, etc. when I go to restaurants, all without cheese of course.

    Gosh, I hope that you will keep on with your newfound successes, and I wish you all the joy and blessings in the world, as you continue on this pathway of good health. Best wishes, Welda

  3. Hi Landon,

    Welcome to the site! I am glad that you learned so young that you have Celiac. I am 64, and started having symptoms at age 8 (severe asthma, bronchial infections, pneumonia, whooping cough, etc.). When I was 19 I was diagnosed with food allergies and told that I must take the allergy shots for 3 years or I would most likely be bedridden by the age of 25. Like you, I already had 2 babies, so I was pretty sick and pretty scared. I took the shots, with no relief.

    By the time I was 21 I had a third baby, and I was so ill that I was really having trouble functioning. Doctors, specialists, medications--they became a way of life, but no one could really say how to get well. I finally started eliminating foods in my 30s and learned that I could not tolerate any grains or milk & dairy. I cut them out, felt so much better, but then, alas, I would think I could go back to eating them when I felt better. Not so. It was an up and down existence, with lots of depression thrown in as I worked to complete college, began teaching school at age 27, went through a divorce, lived life as fully as I could, and tried to learn what would make me healthier. Also like you, I have a strong faith in God, and that is truly what carried me through.

    Finally, a few years back I went for a colonoscopy (my father had died of colon cancer) and the nurse read my chart and said, "Oh you must have Celiac." I had vaguely heard that term before, and a light went on, as I said, "Oh, that's the name for it." I went home, got on the original glutenfreeforum.com website, which existed before this one, and, like you, began to research and learn as much as I could, since although I was gluten and milk & dairy free, I was still having problems with my health.

    I learned to check all ingredients very carefully, and I discovered that the soy cheese I was eating contained casein and whey, milk derivatives. Hmmm. The chili beans I was eating didn't have wheat, but did have maltodextrin or modified food starch. For some reason those things bother my breathing. I realized that I got a severe headache when I ate most chinese food--msg bothers me. I learned that egg whites and yeast bothered me. I started feeling so much better, that I really found keeping a stringent diet to be to my advantage. The results were great!

    As I began feeling better, I began using my breathing machine twice daily, took my asthma medication religiously, exercised nearly every day, began sleeping soundly, experienced no more ulcer symptoms, and my blood sugar levels and mood seemed to stabilize. I got away from processed foods in cans and packages, and started eating more fruits and vegetables, even going vegan for long periods of time if it made me feel healthier. Now I'm 5 feet tall and weigh about 100 pounds, which is remarkable, because stabilizing my weight used to be a real problem. I start each day with one fresh pineapple, wait 2 hours for other fruits or vegetables, and continue on with soy protein, tamales, refried beans, corn tortillas, corn spaghetti, green salads, all kinds of vegetables, or whatever sounds good. Sometimes I'll eat chicken or fish, but I seem to do well with lots of fruits, vegetables and legumes.

    I have an aunt in Texas (my father's sister) who is 99. She is my role model. With 3 grown children and 10 grandchildren, I am always busy, and know that to enjoy my family I have to take care of myself. I am also a retired school teacher and a writer, and am studying for a Real Estate Broker's License, so you can see that life gets better as you get your health under control. My faith is stronger than ever, and I am richly blessed, as I know you are.

    I hope that you will be able to spend some time just browsing through the aisles reading labels at whatever health food stores or even plain markets are in your area. It is easy to get lost in thought there, as you learn what is really in the foods we have eaten, and what is in the foods you are allowed. Soon you will have a long list of good-tasting foods that you can call your own. My grandson and sister also have Celiac, and they were tested through Enterolab.com. I wish you well on this journey. Welda


  4. Hi,

    I hope you're feeling better! I've been glutten-free and milk & dairy free for many years, and feel so much better. I also never eat egg whites, yeast, casein, whey, maltodextrin, modified food starch or msg, since when I do, I always end up having an asthma attack, which is one of the symptoms that plague me when I eat any of the items listed above. I agree with Yolo that stress plays a tremendous part in our health, and I, too, sleep soundly now, something I really treasure. Sometimes meat, fruits & vegetables are all I can tolerate, and at other times I have to discontinue the meats. That is somewhat of a mystery to me, as to why I have trouble with meat, poultry or fish, but I have learned to listen to my body and just go along with whatever it is telling me. I now feel great, and I hope that you will soon experience this good health too. Best wishes, Welda

  5. Hi,

    I hope that you are adjusting well to your new diet--it sounds as though it has been life-changing for both you and your daughter! Have you heard of Enterolab.com, through whom you can get home testing kits for Celiac and milk intolerances? I ordered a full spectrum test for my newly-born grandson to verify that his diarrhea and vomiting were caused by his milk formula, and he was also gluten intolerant. It was a simple stool sample test, and really gave me a lot of information for dealing with his diet, since I was his primary daycare provider at the time. I also ordered gluten testing for my sister, brother, and children, but only my sister and brother used them. My sister has gluten intolerance and my brother doesn't (I am intolerant of all grains, all milk & dairy, egg whites, yeast, casein, whey, and some other food additives). I wish you the best as you learn what works for you.

    Takala--I agree wholeheartedly with your message. I'm so glad I read it, because it reminds me that we need take no baloney from anyone, especially those who have never tried to discipline themselves stringently to the Celiac diet, which is definitely a challenge. I applaud your gumption, and I really enjoyed reading your message.

    Always, Welda

  6. Hi,

    I hope you're feeling better. It is pretty daunting when you first start this diet, especially because so many of the foods out there contain some form of gluten or dairy. I've learned that all grains, all milk & dairy, egg whites, yeast, casein, whey, maltodextrin, modified food starch and msg upset my system, but what you probably need to do is follow the advice of those in the previous messages and keep a journal of the foods you eat and how your body responds.

    I always eat fruit for breakfast, then soy protein powder made into a cookie dough (I add a sweetener called Stevia, cinnamon and vanilla) a couple of hours later. For lunch I usually have a green salad filled with green onions, tomatoes, red onions, red bell pepper, and sometimes cooked cauliflower, asparagus, and broccoli, or I just eat the cooked green vegetables without the salad. I've been craving potatoes, so I'm eating baked potatoes with margarine that is made of soy or vegetable oils, because butter contains milk or milk derivatives. I also eat refried beans, rice, tamales, and corn tortillas.

    How do you do with meat, poultry and fish? I don't eat them often because sometimes they give me problems, but occasionally I eat chicken or fish. Steak, chicken, salmon, filet of sole, tuna--all those might be good to try.

    Maybe you could try some Mrs. Leeper's corn spaghetti, corn lasagna, or corn noodles, as well as the pastas made from rice. They're pretty basic, and I've found that Hunt's Spaghetti Sauce is good on them, as well as Dennison's Chili. Vegan Gourmet Monterey Jack cheese has no milk derivatives, and you can also find ice cream made of soy that you could mix with soy milk & chocolate for a shake, or with strawberries, etc. for a smoothie. There are lots of new crackers and cookies out now that are gluten free/milk & dairy free. Some stores have special GLUTEN-FREE tags sticking out of the shelves where those items are. That really helps.

    Have you looked on the internet for gluten-free, milk & dairy free products? There are so many places on the web now that will deliver items right to your door, and you can spend all the time you want browsing their aisles. It is so convenient to just place your order, then have it arrive at your door a couple of days later.

    I wish you well as you continue on your new journey toward renewed health. Always, Welda

  7. Hi,

    My name is Welda, I'm 64 years young, and I've had Celiac symptoms since age 8, though at that time doctors didn't identify Celiac, just asthma, then food allergies, bronchitis, and sometimes pneumonia, as well as colitis, ulcer, etc. At age 19 they gave me the dire warning that if I didn't have allergy shots for 3 years I would most likely be bedridden by the time I was 25. Since I already had 2 babies, I was in misery, trying to breathe and take care of my kids. I did all the skin tests, took the shots for 3 years, was often at the doctor's office, and eventually spent all my money on office visits, testing, medication, and specialists, without little change in my health.

    Finally, at age 36 I started eliminating foods from my diet, starting with all grains, moving to milk & dairy, then eggs, sugar, etc. I would begin feeling better and would return to my old ways of eating. Oohhh, it was such a long process of learning what I could and couldn't tolerate, but I continued to contract pneumonia, be in the hospital, have breathing and digestive problems, and on and on and on. However, just as stubbornly, a part of me wanted to be healthy, and I continued to study nutrition and to learn what I could.

    Sometime around 2000 I went for a colonoscopy (my father died of colon cancer) and the nurse looked at my list of food intolerances and told me I must have Celiac. I had vaguely heard that term before, but this time the knowledge took hold, and I went home and began learning everything I could about Celiac. Now, in 2009, I have been totally gluten free, milk & dairy free, egg white, yeast, and a few other ingredients-free for a LONG time, and I would never knowingly eat any of the aforementioned items. My health is top-notch, and at 5 feet tall I weigh about 100 pounds, sleep like a baby, have long, thick hair, clear skin, and lots of energy. I think "the best is yet to come..."

    I like to eat at home, because then I know my food is safe, but when I do eat out, it is usually at a Mexican restaurant, because I sometimes eat vegan and avoid chicken, fish and meat (but sometimes I will eat chicken or fish if I feel I need the protein). I may order tamales, refried beans, rice, and green salad, all with no cheese, and do fine. If I'm eating chicken, that makes restaurant eating pretty simple, because you can order chicken, green salad, vegetables, etc. When I'm eating vegan and go to a "regular" restaurant, I might order a baked potato with green vegetables and green salad. That seems to work pretty well.

    So, I avoid all grains, all milk & dairy, egg whites, yeast, casein, whey, maltodextrin, modified food starch, and msg. Those are the things that bother me. It may take awhile for you to learn what YOUR body thrives on, but please, stick with this diet, and I know that you will feel better. We are all here to support you. Welda

  8. Hi,

    I've had Celiac since the age of 8 and am now 64 (though I didn't know for many years that it was Celiac causing my health problems), so I hope that what I share will help you. At first I used to rely on the kindness and compassion of others when having family gatherings, hoping that eventually "they" would get it right. It usually didn't work out that way. I would be frantically searching for something I could eat, asking questions of course, and would finally be looked at as "finicky" or a "picky eater." Often I would leave the gathering hungry, and often I would leave with my feelings hurt and feeling overly-sensitive as well.

    Then I started taking my own food along! Aha! It didn't really matter what anyone else was ordering or eating--I was perfectly prepared. It didn't matter what anyone else thought. I was a capable, independent person, quite able to take care of myself. No matter what anyone else said or thought, I had all the food I could possibly need, and it was special food that I loved. Problem solved.

    Today I gathered with some women from my high school class of 1962 for a reunion lunch at a Mexican restaurant. I decided to test out a new way--going without taking my own food. I ordered a green salad with chicken, cucumbers and tomatoes. Yes--that should work. Wrong! They delivered the salad inside a large fried flour tortilla. Can you imagine? I hadn't anticipated that. So, I picked at a couple of greens from the middle, then ate my own food (better anyway) after I got home.

    So, maybe you can adapt some of this for your situation. It is amazing how relieved family members seem to be when you take care of yourself. Sure, they'd like to lavish food on you, but look at how hard it has been for US to decipher this diet, and it's OUR health. No one said it would be easy, but it does feel good when we get to the place where we know that we can survive. I hope that you and your mother-in-law can work this out peacefully. Maybe she would feel relieved to know that you, too, can take good care of yourself. I am wishing you the best. Please keep us informed about what happens. Always, Welda

  9. I think all the suggestions are great, and I want to add, as a 64 year old woman who has had Celiac since age 8, though of course I didn't know that's what was going on--eventually you get to the point where you think about what is going to be good for YOU, and what is going to contribute to YOUR health and well-being. I always just simplify when people ask me about my special diet, and tell them I have "food allergies," which most people these days are beginning to understand, because almost every family has someone with special needs. It might be interesting for you to begin taking some of your own food along, or maybe you already do, because I've found that employers and others find it noteworthy when a person is taking good care of himself or herself. As we all know, it is a real challenge to be able to take care of ourselves in this day and age. And, being open about your food tolerances and intolerances let's you have a brief view of the attitudes of those you are contemplating perhaps working with or for. I've found that job interviews go both ways--you are deciding whether you want to join this group, just as much as they are deciding if they want to invite you in. I wish you the best with your interviews! Always, Welda

  10. Thank you CeliacMom2008 for those inspiring words! Reading your post uplifted me, and I was getting ready to tell how much better life is on a gluten free, dairy free diet too. When I read your message, I felt extremely hopeful, because so many of our young family members have Celiac and may not even realize it. Your son is proof that life does get better when we take good care of ourselves and each other.

    I stay away from all grains, all milk and dairy, egg whites, yeast, maltodextrin, modified food starch, casein, whey, and msg and my life is so much different now. I've stopped most of my asthma medication, I sleep better, have more good energy, have fewer mood swings, and have been able to adopt a healthy lifestyle where I walk almost every day and maintain a proper weight for my height.

    Life is so much better! This diet really works. Welda

  11. Hi,

    I hope that you all have a great time on your roadtrip. I'm thinking that your children being so young is a distinct advantage, as well as the fact that you all live so far away from the popular "fast food" restaurants, so that perhaps your kids haven't gotten as enmeshed in that way of eating as some families have.

    I'm not sure what is allowed on your diet, but I've lived with eating only meats, fruits and vegetables for years, and though I prefer to eat at home, I also have learned what to eat when out. I always have a container in my car filled with foods that I'm allowed, so that is a thought.

    Markets can provide corn chips, potato chips, beef jerky, dried fruit snacks, corn tortillas, nuts, luncheon meats, soy yogurts, etc., while restaurants that serve refried beans, tacos, tamales, chicken, hamburger patties, etc. would also work, along with french fries, salads, and the insides of sandwiches from Subways, Carl's Jr., Burger King, etc.

    I want to offer encouragement to you, because now, at 64 years of age, I've dealt with Celiac symptoms since age 8, and finally feel well because I stick stringently to the diet. I am confident that your children will rise to the occasion, once you show them that you can have a fun trip regardless of what foods you're all enjoying. Best wishes. Welda

  12. Hi,

    I'm feeling for you and what you're going through. I'm 64 and have had Celiac symptoms since age 8, long before anyone ever thought of Celiac as a reason for my illnesses. Since I was getting help from no one else, I started elimination diets during my thirties, and continued throughout my forties and fifties. Now I know that all grains, all milk & dairy, egg whites, yeast, maltodextrin, modified food starch, casein, whey, and msg are foods to which I am intolerant. With you being newly-diagnosed, I would suspect that time will tell which other ingredients you might be intolerant of, since our systems seem to get more sensitive as we take good care of them.

    Is there any way you can graciously accept what someone has brought you, somehow making an excuse to not eat it at that moment? My 82 year old neighbor gave me a box of chocolates for Valentine's Day, and I never mentioned that to eat them would be the death of me. I simply made him a thank you card and wrapped up some of the candy for him to enjoy, thanking him over and over again for his thoughtfulness.

    There's one thing I've learned throughout these many years of dealing with Celiac--when I began taking great care of myself, making sure I always had what I needed for my diet, and always taking my own food along, no matter where I was going, everyone else just seemed to relax and take deep breaths, assured that I could figure out for myself what to eat and when. That's the same point at which my anger, rage, disappointment, anxiety and depression over being "different" started to dissipate. Even now I don't really like eating out, because I have an eating schedule at home that allows me to eat just exactly what I need and want at that particular time, and we all know that we can't say that about eating out at restaurants.

    I hope that as you traverse this path to recovery, you find it easier and easier to deal with these issues. Welda

  13. Hi,

    Here at this site, we UNDERSTAND. I can relate to the person who cried over a sandwich in front of 3000 people, since I, too, have sprinkled some of my foods with tears as I sat in a restaurant and realized the frustration of working so hard to find healthy foods.

    But today, after many years of being on this diet, I realized something important. My family and I went to a pancake restaurant after church, because that's what they usually do, and I had been invited along as a guest. I have this strange thing about not wanting to steer people toward any certain restaurants, preferring instead to face the challenge of selecting from the menu wherever we end up, so, I gleefully looked at the menu, didn't want sausage or bacon since it wasn't yet noon, and spied orange juice, which sounded so good. It was hand-squeezed, cold and luscious, and I said to my family as they partook of the pancakes and I drank my juice, "It's become all about the company, not the food!" I really meant that. It felt so good to feel that way.

    I now have a couple of restaurants that I can safely frequent, and since I usually prefer to eat at home, since as you said, you know what is in the food, I feel I have the best of both worlds. I'm learning to take good care of myself, and that feels good. I wish you all the best as we travel this road together. Welda

  14. I love the responses to your blog! At age 64 I've had a lot of years to get used to peoples' sometimes rude, sometimes just uninformed comments, but believe me, reading the responses you got has given me a whole new outlook on how to explain to people just why I have brought my own food. I'm with jestgar that you should just put your salesmanship talents to work full force, and sweep them away with the thought that they proabably have Celiac too. I think most people got so tired of me trying to explain why I was trying all these innovative recipes and new foods, that they finally just withdrew any comments they might have had. Now I see them straining to see what I brought this time, and what I'm going to eat, as opposed to what they are eating each and every day.

    I'm wishing you smooth sailing and hoping that you have the perfect response whenever anyone gives you "the business" about what you're eating, or why you've brought your own food. It gets better everyday. Welda

  15. Hi,

    I'm in California, and heard recently that we should be prepared for potential earthquakes, so I am doing a mental checklist right now, as I respond to your query.

    I order Genisoy protein powder over the internet, and have an extra supply of that, which just takes water and anything you want to add, like vanilla or cinnamon or sweetener. I make a cookie dough and add nuts. I also have a supply of unsweetened chocolate that I could add to it. I order corn spaghetti and Stevia herbal sweetener over the internet and keep extra packages of those in the cupboard too.

    I keep quite a few bags of Doritos, the original "corn" chips, not any with cheese or anything, along with cans of Rosarita Refried Beans, and also I always have fresh fruits and vegetables in great supply, as well as bottled water (I use the 25 cent machine to refill the plastic bottles). I usually have fresh yams and potatoes here, and have stocked up my freezer with gluten free bread and waffles, so I would use those too if the power went off.

    Add to the list several boxes of gluten-free granola and some rice cookies. I used to keep Soy Ice Cream in my freezer, but I haven't been eating that lately, but that reminds me that boxed mixes of gluten-free brownies, cakes, etc. might be good to have around. They would only take water if you were in a pinch.

    I'll be checking back to see what others suggest. This is a great topic. Thanks for starting this thread! Welda

  16. I am age 64 and have had symptoms since age 8, though, of course, doctors never mentioned Celiac Disease. My symptoms presented as asthma, bronchial infections, pneumonia, colitis, an ulcer, anxiety, and depression. I began eliminating foods in my 30s, after allergy testing and shots that didn't work. I started with grains, then milk & dairy, and eventually egg whites, yeast, casein, whey, maltodextrin, modified food starch and msg. In my late 40s, while having a colonoscopy, the nurse attached a name to these symptoms, and she called it Celiac Disease. That's when I learned more, got more stringent with my diet, and began to have improved health. Now I eat mainly fruits, vegetables, legumes, and every now and then a little turkey, chicken or fish. Hope you're doing great. Welda

  17. Hi,

    I certainly feel for you all, since you are working so hard to find out what is happening. I suffered from Celiac symptoms starting at age 8, and now at 64 I feel pretty good, but only because I drastically changed my lifestyle. Doctors in 1952 didn't seem to have a clue about why I kept wheezing with asthma, getting bronchial infections, later contracting pneumonia several times, and just plain being sick most of the time. Your story of working to solve your mystery reminds me very much of my journey with Celiac, and, sad to say, doctors never did really come up with the answers that worked for me.

    At age 19 I was told I would be bedridden by the age of 25 if I didn't begin allergy shots, but taking those for 3 years didn't help at all. In my 30s I was still ill and started eliminating foods on my own, which proved that I was intolerant of all grains, and all milk and dairy. In my 40s I eliminated egg whites, and in my 50s yeast, casein, whey, maltodextrin, modified food starch, and msg. I diligently read labels before I eat any food. I take food with me when I know I'm going to be away from home. I only eat out at restaurants where I know I can tolerate the food. I think that the purer our systems become, the more sensitive we are, because lately I can't tolerate beef either, and I rarely eat chicken or turkey, because I find it hard to digest. I also eat my fruits in the morning, and never mix them with other foods. That has helped a lot where digestion is concerned.

    Before I retired, I was an elementary school teacher, and I wanted to mention to you that it could be what your school is using to clean the carpets that may be causing problems. I once had to take my class outside after returning from a school vacation, because they had cleaned the carpets with something very powerful. For days I felt sick, and they finally re-shampooed the room, thank Heavens. Also, some of the older schools have serious mold problems, or problems with fumes coming through the heating or air conditioning systems. Have you made a general query of other parents or students, to see if anyone else is having problems? Maybe a generalized flyer, asking questions, would open up your eyes and that of other parents or students, who may not realize that the problem is affecting more than their own family.

    Ever since I read your post a couple of days ago, I have been thinking of you, and please know that those of us who come to this site want so much for you to find the answers that you need. We, too, have been on this quest to learn what is bothering us, and, together, perhaps we can help others. I wish you the best. welda@att.net

  18. Hi,

    I hope you're still checking in with this site. I totally agree with Lori's comments about taking care of yourself while you're still young. I'm 64 and have had symptoms since age 8, but my sister is a year older, and after being tested for Celiac and the results being positive, she still won't change her diet. She has had thyroid cancer and was told there was a 99% chance that she had a cancerous polyp in her colon. Thank God the polyp was benign, but she still eats foods which should be avoided when one has Celiac.

    I suffered for so many years with asthma, bronchial infections, pneumonia, depression, anxiety, colitis, an ulcer, digestive upsets, constipation, and on and on. When I finally eliminated all grains, all milk and dairy, egg whites, yeast, casein, whey, maltodexrin, modified food starch and msg I got healthy and well. Thank Heavens!

    I hope that you will stick to the diet, no matter what, because your body MAY eventually speak to you via symptoms, and that is a hard way to go also. I'm grateful that I get early warning signs within minutes of eating the foods to which I'm intolerant. I want you to be healthy and happy too. Please know that we all want the best for you. We have struggled and suffered with endless symptoms trying to warn us away from foods which for all of us are like poison. They are no less so for you too. Keep on the path! Welda

  19. Hi Jason,

    May I ask if you are young? I am 64 and have dealt with the symptoms of Celiac since age 8. What is great about being young, is that you have a natural ability to "bounce back" when you ingest something to which you are intolerant. As the body ages, it seems to take things more seriously, and, thank God, our bodies are faithful to let us eventually know exactly what is going on. Doctors apparently don't study gluten intolerance or Celiac extensively. I've had the same doctor since 1965 and am always the one teaching him about this disease.

    I've learned that if I want to be happy, I will take my dietary needs into strict account. I usually read each and every label, and when I don't, I pay the price. I've learned which restaurants are safe to eat at, and which aren't. I've learned to eat before going out, or take my own bag of food with me, and to ALWAYS be prepared, whether its keeping food in the trunk of my car, or making sure that I have what I need in that bag of food I mentioned.

    By the way, I am intolerant of wheat, oats, barley, rye, all milk & dairy, egg whites, yeast, casein, whey, maltodextrin, modified food starch, and msg. Why would I live life any other way than taking good care of myself? Oh yes, I remember when I was young. I was more concerned with other things. Then during my early 30s I was so sick that I felt I couldn't keep going on. That's when I started eliminating foods, but it took years before I truly decided to stick to this diet conscientiously. Now I have 3 grown children and 10 grandchildren. If I intend to be around to get to know all of them well, then I need to be healthy. What could be more important? Nothing that I can think of.

    I wish you well on this journey. Please email me at welda@att.net if you'd like. Always, Welda

  20. Hi,

    I can relate with what you're going through. Each issue you mentioned has been one that I, and most likely each person on this site, has had to deal with. The tiredness can be unbelievable, especially when you're the mom of the house, having to deal with all that involves. Being a newlywed, this must be a difficult change to institute in your life. Whomever suggested having your whole family tested offered great advice. Enterolab.com has provided me with tests for my closest family members.

    As a 64 year old mom and grandma, with intolerances to all grains, all milk & dairy, egg whites, yeast, casein, whey, maltodextrin, and modified food starch, I would like to add that the issues we've been discussing are mostly physical, but, we have to consider our emotional needs too. Do your nerves feel as though they are on the top of your skin? Are tears creeping up more and more frequently? Does some type of anxiety or depression want to intrude into your newfound joy at being married? I think that often we forget that we need to find time and stillness in order to absorb the news that we are "unique" in our dietary needs and our needs for learning who we really are. Does a mom ever find that quiet time, unless they just grab it for themselves, knowing that they can only help others if they are healthy themselves?

    I am more than amazed that you were diagnosed so quickly, since I've read that the average time for diagnosing Celiac is ten years. It took a lot longer than that for me to learn what was going on. I started having symptoms at 8, which would have been 1952. Even now, most doctors have little inkling of what is going on with gluten intolerance.

    How can I help? I want to help. I long to prevent you from having to suffer the long, painful journey that so many of us have gone through, so that you, too, can soon help others. Please email me at welda@att.net if you'd like to. Always, Welda

  21. Hi,

    Oh my gosh! You must be inside my head, reading my mind. My 18 year old granddaughter has been in and out of the hospital for the past couple of months, with diarrhea, anemia, stomach pain, nausea, etc. rather than constipation, and I kept trying to find out if she had Celiac, since I have it, my sister and cousin have it, and my youngest grandson has had it. Doctors didn't pick the ball up even when my son mentioned that we have Celiac in the family. This was in San Diego County, but I've found that very few doctors know much at all about Celiac. I've been with the same physician since 1965 and I always end up telling HIM about this condition. Doctors finally decided she has ulcerative colitis, so she's following their instructions.

    Like you, my symptoms included constipation, and once I got on the Celiac diet, it subsided. However, I had to switch to natural foods, turn away from canned and processed foods, and read labels intensively, which I still do. Drinking lots of water always helps, of course, but I also eat a fresh pineapple almost every morning, and eat frozen orange juice by the spoonful, as well as indulging in fruits of all kinds. Even when eating raw green vegetables I have a problem with digestion, as well as with legumes and proteins, and must make sure to drink a lot of water afterward.

    I have to chuckle at your question about what we think of the expertise of doctors, since I spent so much time and money going to doctors, trying to discover what was causing my health problems, before I finally just dedicated myself to learning what was going on, without counting on doctors to give me the answers. I highly respect doctors, in that they often have answers that we are not aware of, and they spend all their time and money going to school so that they can help us, but, unfortunately, Celiac just wasn't included in their lesson plans. Only by having Celiac, apparently, can you actually learn what it is all about, then, hopefully, share that knowledge with others.

    Hope you find your way on this path. Our bodies are so faithful to help us learn what is going on. Welda

  22. Hi,

    I'm 64 and had bronchial problems and asthma starting at age 8, which landed me in the hospital so many times, and doctors never could quite get me well, even with allergy shots, medicines, specialists, etc.

    Now that I've been on the Celiac diet for quite a few years, I'm always healthy. I still use a breathing machine and take a couple of pills a day to keep the asthma at bay, but that's all.

    Here's my diet: fruits, vegetables, salads, legumes, soy, sometimes meat protein every once in awhile

    As you can see, I'm intolerant of all grains, all milk & dairy, egg whites, yeast, casein, whey, maltodextrin and modified food starch. I begin almost every day with a fresh pineapple. Lots of good solid sleep at night also helps metabolism and digestion.

    Hope this helps. Welda

  23. Hi,

    I worked two jobs at one time, one at a bakery and one at an ice cream parlor (I am intolerant of wheat, oats, barley, rye, all milk & dairy, egg whites, yeast, casein, whey, maltodextrin and modified food starch). I felt fine, though I was totally exhausted from leaving the bakery then going to work until near midnight at the ice cream parlor. I had really good experiences see people happily eating their treats, and I was able to speak with a lot of people who were having digestive troubles or who were overweight, telling them about Celiac and my long journey of learning what it is and how it affects us so drastically. I hope this helps you. Always, Welda