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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests...
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You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance"...
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Do you consume oats? Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You...
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Cross-contamination?
Scott Adams replied to Matt13's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
No, small amounts of cross-contamination won't instantly cause villi damage. In fact the protocol for getting an endoscopy for celiac disease requires people to eat at least 2 slices of wheat bread per day for 2 weeks before the procedure, otherwise any damage done might not be detected. Small amounts of gluten on a daily basis, however, may lead to severe... -
Still unsure.....
Scott Adams replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It sounds like you're navigating a challenging and frustrating situation, and it's understandable why you'd seek clarity. Based on what you’ve described, it’s possible to have gluten sensitivity without the hallmark villous atrophy seen in celiac disease. This condition is often referred to as non-celiac gluten sensitivity (NCGS). Unlike celiac disease, NC... -
Certified gluten free oats
Scott Adams replied to Matt13's topic in Gluten-Free Foods, Products, Shopping & Medications
Gluten-free oats can cause villous atrophy in people with celiac disease who are sensitive to oats (~10% of celiacs). While oats are naturally gluten-free and often safe for most individuals with celiac disease, a small percentage of people with the condition are sensitive to avenin, a protein found in oats that is structurally similar to gluten. For these... -
Gluten-Free Yakitori: A Delicious Twist on a Japanese Classic
Scott Adams posted an article in Chinese & Asian
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Yes, gluten-free oats can cause villous atrophy in people with celiac disease who are sensitive to oats. While oats are naturally gluten-free and often safe for most individuals with celiac disease, a small percentage of people with the condition are sensitive to avenin, a protein found in oats that is structurally similar to gluten. For these individuals...
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Product: Light Tuna Flakes in Hot & Spicy Sauce, Flaked Light Tuna Hot & Spicy Style Issue Food - Allergen - Wheat Food - Allergen - Gluten What to do Do not consume recalled products to which you are allergic or sensitive. Do not consume the recalled products if you have celiac disease or other gluten-related disorders. ...
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Gluten Ataxia and Malabsorption
Scott Adams replied to Soleihey's topic in Related Issues & Disorders
Hi @Soleihey, it looks like you are making great progress. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the... -
Conflicting results
Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, low IgA, even if it's just above the cut off at times, will affect the test results of any IgA tests. In your case it means that his scores would have likely been even higher if he had "normal" levels of IgA. -
Conflicting results
Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
One study showed that up to 44% of first degree relatives also have celiac disease, so his odds of having it are quite high. Also, if he were not IgA deficient his celiac disease test scores would likely have been much higher because they were based on the IgA antibodies. -
Conflicting results
Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As the article mentions: EMA-IgA (endomysial antibodies IgA) Blood Test for Celiac Disease: tTG-IgA (tissue transglutaminase IgA) Blood Test for Celiac Disease: So the likelihood is very high he has celiac disease, and even if the biopsy results turn out negative, I would still consider a gluten-free diet. -
Conflicting results
Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
PS - I forgot to mention, was he eating a lot of gluten daily for 6-8 weeks leading up to all blood tests? If not, this can cause lower than normal antibody results. -
Conflicting results
Scott Adams replied to Jy11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It looks to me like he's IgA deficient, or borderline IgA deficient, which means that his TTg-IgA test results for celiac disease will be lower than they actually should be. His first celiac disease test was still highly positive, even though he is IgA deficient, and this is a strong indication that he has celiac disease. The fact that he's IgA deficient... -
Stagnating recovery
Scott Adams replied to Eric.C's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...