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Scott Adams

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  1. Like
    Scott Adams
    Scott Adams reacted to Beverage in Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?   
    Tums is an antacid.  Calcium (also vitamin D) need it acidic for absorption, so you're not really getting any calcium benefit.  Try DGL, it coats rather than counteracts acid. You need acid anyway to digest and get those vitamins. It's usually not too much acid that causes heartburn, it's not enough acid which causes food to rot and ferment in the stomach. Try DGL, everyone I've gotten to actually try it has had great relief.
    https://www.amazon.com/dp/B001IAJW0K
     
  2. Like
    Scott Adams
    Scott Adams reacted to ARSTONE in Feel Good gluten free chicken soup dumplings   
    The issue is I'm not actually celiac but gluten intolerant. So do t know why I am so sick from this. It's been two days. 
  3. Like
    Scott Adams
    Scott Adams reacted to Manaan2 in Hidden Gluten in distilled vinegar   
    Thank you for posting this and for all of the ongoing information you provide on this site.  Our stress level with managing our daughter's celiac disease would be much higher without this site as a resource.  
  4. Like
    Scott Adams
    Scott Adams reacted to DebJ14 in Royal Caribbean Only, Please   
    We are off next week on our 9th RCCL cruise since our diagnoses.  I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free.   Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu.  Instead of having a dedicated person take gluten-free orders, it now falls to your regular wait staff.  Some have been great and some not so good. 
    We had a great cruise in May and hit it off with our head waiter.  She went the extra mile and ordered gluten free desserts that were not on the menu.  My problem arises from other food allergies.  I am allergic to dairy, beef, and several types of fish.  On those days my husband is a happy camper with a steak or salmon, veggies and a baked potato.  I end up not getting enough protein, so I bring protein bars.  I also bring snacks for the room. As long as the food is commercially prepared and unopened, you can bring it. Often the only dessert choices that are gluten free contain dairy, so I am out of luck.  But, if you are just gluten free, they have plenty of choices.  See the head chef in the Windjammer buffet and he will give you a tour of the gluten-free choices.  They usually have 2 gluten free desserts out at lunch and they are labeled gluten free.
    We have found that it works best to have assigned dining rather than anytime.  That way the waiters learn from the get go what our needs are, and we don't have to explain ourselves every night.  We also get a private table for 2.  I frankly got sick and tired of tablemates telling me a little bit of gluten would not hurt me.
  5. Like
    Scott Adams
    Scott Adams reacted to Wheatwacked in Not sure if this is Celiac or just a gluten-free intolerance   
    Are You Confused About Your Celiac Disease Lab Results?
    Some people test negative but have a positive biopsy, others test positive but negative biopsy.  This is why it can take years and misdiagnosis of other diseases that Celiac Disease can mimic. The above link is a good read with real life examples.
    Something I find interesting is that in 1980 or so a new diagnosis was created, Non Celiac Gluten Sensitivity, only 10 years after Norman Borlaug won the Nobel Peace Prize for creating our modern wheat and the Green Revolution.
     
     
  6. Like
    Scott Adams
    Scott Adams reacted to Sandi20 in Gluten Free Daily Vitamins for Kids w/ Celiac   
    I really like Thorne!  I've researched thier products.  Thank you so much.
  7. Like
    Scott Adams
    Scott Adams reacted to Marie70 in My Adult daughter is blaming me for her "possible" Celiac disease.   
    Wow!! Scott, Trent and Christiana thank you so much for your fast replies!! The information you have shared with me has helped me tremendously.   Thank you for all the articles.  I appreciate you all so much!! I’ll keep you posted in this post.  I will encourage her to get tested.  I feel a little better!
  8. Like
    Scott Adams
    Scott Adams reacted to Klsdurbin in Did I outgrow celiac   
    No!!! Celiacs disease does not go away. You can’t outgrow it, and if all proper diagnostic procedures (blood test and endoscopy) were followed when you were 8, it’s almost impossible to be mis-diagnosed. 
     
    stoms and reactions to gluten do change over time, but the fact you have celiacs does not. 
     
    I think that a lot of people misunderstand that the goal to managing your celiacs is to eventually test negative for celiacs. This does not mean it went away, it means that your gluten-free diet is working and you’re no longer producing the anti-bodies that will wreak havoc on your health. 
     
    if you can access the medical records from when you were 8 and have a GI doctor review them, I would highly recommend you do this. 
  9. Like
    Scott Adams
    Scott Adams reacted to trents in My Adult daughter is blaming me for her "possible" Celiac disease.   
    Welcome to the forum, @Marie70!
    The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of  the general population carries one or both of these genes. However, only about 1% of the general population ever develops celiac disease. So, we know that in addition to possessing the genetic potential to develop celiac disease, there has to be some triggering environmental or medical "stress" factor (or factors) that switches the gene or genes on such that they are awakened from their latent condition and become active. What may be the triggering factor (or factors) is the subject of much debate. Here is an article that discusses this subject:
    Second, what will your daughter have to say if her testing for celiac disease is negative? She may have to add crow to her diet.
    Third, and this is what I really want to focus on because my wife and I are dealing with something similar in our relationship with our own adult daughter: the real problem is not whatever shortcomings you, as the family cook, may have had when providing meals, the real problem is with your daughter's heart/soul/attitude. If it turns out to be true that she has celiac disease, it is likely she would have developed the condition sooner or later even if her diet had been healthier while growing up. She is angry about the prospect of having to deal with the dietary and social limitations that having celiac disease would impose upon her. She doesn't want to face up to the fact that this may be a new reality that will dramatically changer her life and she is looking for someone or something to blame. And she has conveniently turned her wrath on you rather than saying to herself, "Okay, this is what it is. Now what can I do to make adjustments in order to with it the best way I can?" 
    When faced with a life-changing reality, people will either accept it for what it is, make adjustments and move on or they will become angry and look for something or someone to blame and get stuck. For now, at least, your daughter has chosen the latter option. Don't let her problem destroy both of you.
  10. Like
    Scott Adams
    Scott Adams reacted to cristiana in My Adult daughter is blaming me for her "possible" Celiac disease.   
    Hi Marie
    Welcome to the forum.
    I am so sorry your daughter is pointing the finger at you like this.   I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them.  Sometimes people just need a safe place to vent, and unfortunately having a go at one's parents is the all too easy option.  If she is anything like me, she will regret what she says one day.  (Oh... if only I had the chance rewind the clock!)
    I just wanted to add one more thing to Trent's and Scott's excellent posts and that is regarding diet:  I have to say, not one person  (my nutritionist, my gastroenterologist or GP) has EVER suggested that a poor diet was the cause of my coeliac disease.   
    In all the various clinics I have attended these past nearly 12 years no-one has ever asked if I was brought up on processed food, or questioned if I eat 5 fruit and veg a day. 
    Sure, unfortunately I am only too well aware that I could do a lot better with my diet and it's a constant challenge for me not to give into what I like (unfortunately I've always had a sweet tooth).   But I know some super healthy 10 fruit and veg a day types who still got coeliac disease, and equally, a lot of people who eat all the wrong stuff and they still have cast iron stomachs.
    Do encourage her to get checked though - it may be that she hasn't got coeliac disease at all.
    Come back to us if you need any more support through the process.
    Cristiana
  11. Like
    cristiana
    Scott Adams got a reaction from cristiana in My Adult daughter is blaming me for her "possible" Celiac disease.   
    It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own.
    This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten.
     
     
     
  12. Like
    Scott Adams
    Scott Adams reacted to AuntieAutoimmune in Royal Caribbean Only, Please   
    Thanks,Scott. Yes, I had already seen those 
  13. Like
    Scott Adams
    Scott Adams reacted to cristiana in Getting rid of the belly bloat   
    Karen, welcome to the forum.
    Another thing to add:  Belly bloat can persist if you are lactose intolerant, a situation caused by coeliac disease or it can simply be a stand alone condition.  In the case of coeliac disease, it could be your damaged gut cannot break down lactose efficiently but, in time, once the gut heals, your lactose intolerance and bloating should improve. 
    You might also find it helpful to stay clear of certain high fibre foods for a while, perhaps keeping a food diary to see if any are causing you to bloat a lot or give you stomach pain.  Lentils and soya were an issue for me in the short term, while I was recovering.  Also, are you taking iron - that can really hurt your belly and in my case it added to the bloating.
    The other point I wanted to make is has your doctor looked into any other reasons for your belly bloat.? There are a number of other gastric conditions that can result in a bloated belly.  A blood test and an ultrasound to check for possible gynaecological issues could also be something to speak to your GP about. It took me a few months for my bloating to subside, but the journey which involved a few tests along the way to ensure nothing else was was worth it.  
    Cristiana
  14. Like
    Scott Adams
    Scott Adams reacted to cameo674 in Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?   
    Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains.   An MD told her to avoid eating fortified grains.   My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020.   Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it.  Low folate absorption impacts serotonin and dopamine production.  My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq.  The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels.  
    My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken.  Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways.  
     
     
    If my brother had not gotten his testing through work, he would never would have started his supplement journey.  His testing is what triggered my getting functional health testing that tested similar biomarkers to his.  Again the celiac testing was an add-on test that I did off the cuff.  
  15. Like
    Scott Adams
    Scott Adams reacted to Brook G in Not sure if this is Celiac or just a gluten-free intolerance   
    Years ago when I told my GI specialist that I'd like to be tested for Celiac he told me that being I had been gluten-free for over a year, I would test negative.  In order to get an accurate reading I would have to eat a full gluten diet for 5 weeks.  I agreed to do it and on the way home I stopped at the grocery store and stocked up on my favorite breads, deserts, and every other gluten product that I love and hadn't eaten for over a year.
    Five days later I was in agony!  I was bloated, I stopped going poo, I could barely move my joints and I felt like my hands had been crushed in a car door.  I was bent over and couldn't stand straight, and I moaned constantly.  I had a very difficult time sleeping because of the pain. I lost nearly 20lbs that I didn't need to loose, and I had to go on a liquid diet to reset my digestive track.  I was sick for weeks.
    Because of this experience, I can't recommend that anyone put themself through the change of eating a gluten free to eating a full gluten diet.  For me, it wasn't worth getting an official diagnoses.  I'm assuming that I'm probably extremely gluten intolerant because QUINOA gives me a gluten reaction.
    Most of us have similar symptoms, but they do vary.  I'm not qualified to diagnose your daughter, but some of her symptoms fit the diagnoses.  She may be getting gluten from somewhere and not realize it.  I do recommend a good GI specialist and testing other than the blood test which she would have to eat gluten for.
  16. Like
    Scott Adams
    Scott Adams reacted to Richardo in dermatitis herpetiformis outbreaks while on strict gluten-free diet   
    I never eat oats, haven't for years because of the possible cross contamination. I know the difference in my.body's reaction to the big 3 vs corn or rice. Vomiting was always  an issue if I wasn't careful.with wheat, rye or barley but rhe only issue I had with corn was the dermatitis herpetiformis.  I'm not a dermatologist but I know how certain foods affect me and I just hope my story can offer others an alternative hope to try that isn't dangerous to their health.
    As for me... I'm grain free LOL and loving the freedom from dermatitis herpetiformis.
  17. Like
    Scott Adams
    Scott Adams reacted to James47 in Long term recovery   
    Aw thank you that's really helpful.. thanks to everyone who posted back 
     
    James 
  18. Like
    Scott Adams
    Scott Adams reacted to trents in Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?   
    Welcome to the forum @cameo674!
    First, let me correct a misconception you have about celiac disease and intestinal anatomy. Celiac disease does not affect the colon. It damages the lining of the small bowel which is on the other end of the intestinal track from the colon. The small bowel, the duodenum, is the part of the intestines right below the stomach. So, your colonoscopy would not have been examining that area. The scope just won't go up that far. Examination of the small bowel is done with an endoscopy, not a colonoscopy. The go in through the mouth, the stomach and into the upper part of the intestines. 
    People with celiac disease experience an autoimmune response when gluten is consumed that generates inflammation in the lining of the small bowel which, over times, wears down the millions of tiny finger-like projections that constitute this lining. We call those finger-like projections "villi" and the lining is termed the "villous lining" of the small bowel. The inflammatory response by the immune system perceiving gluten to be an invader threat produces antibodies that can be measured in the blood. This is what was what those tests were done for that you posted in your opening narrative. The villous lining of the small bowel is where all of the nutrition is absorbed from the food we eat. The constant inflammation of celiac disease over time wears down these millions and millions of tiny finger-like projections and greatly reduces the efficiency of nutrient absorption. Hence, it is common for those whose celiac disease has been undiagnosed for a long time and who continue to consume gluten develop health problems that are related to nutritional deficiencies, even though they may be eating well.
    Your test results do indicate you have celiac disease. The most important of those tests you listed is the Tissue Transglutaminase (IgA) - 44.0 U/mL and it was "out of range". We abbreviate this as tTG-IGA. I take "out of range" to mean it was elevated. You did not include the reference ranges used by the lab for the tests so I am assuming "out of range" means positive or high. There are no industry standards for reference ranges for these tests. Each lab uses their own because they each build the tests a little differently or may use different units to express the results.
    Normally, if any of the celiac blood antibody tests are positive, a GI doc will want to perform an endoscopy with biopsy of the small bowel lining to microscopically check for damage to the villous lining. This is confirmation of the blood antibody testing. Sometimes they will forego the endoscopy/biopsy if the tTG-IGA score is very high. But it is very important that you not begin to cut back on gluten until all testing is complete. Doing so will allow healing of the small bowel lining to begin and will likely invalidate the testing. It is recommended that people consume at least 10g of gluten daily (about the amount in 4-6 slices of wheat bread) in the weeks leading up to the endoscopy/biopsy. 
    Finally, it sounds like your middle child also needs to be tested for celiac disease. A couple of studies done with rather large sample sizes in the last couple of years showed that almost 50% of first degree relatives of those with celiac disease, when tested, also had celiac disease. Many of them were "silent". That is, they were largely asymptomatic.
  19. Like
    Scott Adams
    Scott Adams reacted to pplewis3d in Citracal Petite supplements   
    Thanks, Scott! I appreciate you looking that up for me. Perhaps that will be good enough for someone but not for me...super sensitive dermatitis herpetiformis here. I don't take any chances that I can avoid. ~Pam
  20. Thanks
    Barbra S
    Scott Adams got a reaction from Barbra S in Supplements for those Diagnosed with Celiac Disease   
    I am often asked about which supplements I take, so I'm sharing it here.
    I think you'll find a big variation of what supplements different people on this forum take, but here is a breakdown of the many I take. This regimen has worked well for me, but it has take many years for me to add and remove different ones. Also, all of this list may not apply or be helpful for everyone here, but it may work for many people so I'm sharing it.
    Before I list them I am also now exploring ways to cut my costs down on supplements, and have discovered that old stand byes like One A Day (with or without iron, depending on your needs), Geritol Multivitamin, or Costco's Mature Multi do contain many of these so you may want to first start with one of those, and then add supplements aren't included, or that you may need higher levels for. In general I follow the directions on the bottle, and take 1 or 2 a day depending on the recommendation. I the majority after breakfast, and if a supplement calls for 2 a day, I take the 2nd dose after dinner.
    I break these down in groups, and I personally have to avoid iron, so be sure to know your iron levels as this can build up in your system and cause issues if it gets too high. Likewise, you may want to check all of your levels before starting supplementation, and vitamins D and B6 can also build up in your system and have toxic effects.
    CORE SUPPLEMENTS (maybe every celiac needs)
    (Kirkland Signature) Adult 50+ Mature Multi Vitamins & Minerals (Costco) (Nature Made) B-Complex (Costco) Citracal Maximum Plus (Costco) (Nature Made) Fish Oil 1,200 MG (Costco) (Nature Made) Magnesium 400 MG (Costco) (Kirkland) D3 (2,000 IU) - Optional as Citrical has 1,000 IU 2x Daily = 2,000 IU. I've stopped and started this one several times  and noticed that I just feel a lot better taking 4,000 IU daily (Costco) BRAIN FOG, MEMORY ISSUES and/or ATAXIA (below helped greatly with these issues which I've had on and off since my diagnosis in 1994)
    (Horbaach) Choline Bitartrate 100mg (Amazon) (Kirkland) B12 1,000 IU - Optional as the B-Complex includes B12. Even though my blood levels of B12 are always high, I've noticed increased memory & brain fog issues whenever I've stopped this for a week or more (Costco) (Zenavea) Benfotiamine 300 MG (Amazon) (Finest Nutrition) DHEA 25 MG - Optional and usually for Males only, a natural testosterone booster that helped improve my concentration (Amazon) It's a lot, and not recommended for everyone, and, as mentioned, I'm now working on a way to reduce the cost and number of pills I am taking.
     
    Vitamins and Minerals Generally Safe in Excess of Recommended Daily Allowance (RDA):
    Vitamin C (Ascorbic Acid): Excess vitamin C is usually excreted in the urine and is considered safe in higher doses. However, very high doses may cause digestive upset in some individuals. Vitamin B1 (Thiamine): Water-soluble, excess thiamine is generally excreted through urine. It is considered safe in higher doses but consult with a healthcare professional. Vitamin B2 (Riboflavin): Water-soluble, excess riboflavin is excreted in the urine and is generally safe in higher doses. Vitamin B3 (Niacin): Water-soluble, niacin has a well-defined upper limit, but moderate excess is often excreted. Consultation with a healthcare professional is advisable. Vitamin B5 (Pantothenic Acid): Water-soluble, excess pantothenic acid is generally excreted through urine and considered safe in higher doses. Vitamin B7 (Biotin): Water-soluble, excess biotin is typically excreted and is considered safe in higher doses. Vitamin B12 (Cobalamin): Water-soluble, excess B12 is typically excreted in the urine and is considered safe in higher doses. Consultation with a healthcare professional is advisable. Choline: While not a true vitamin, choline is water-soluble, and excess is usually excreted. It's considered safe in higher doses but consult with a healthcare professional. Vitamins and Minerals with Potential for Toxicity in Excess of Recommended Daily Allowance (RDA):
    Vitamin A (Retinol): Excessive vitamin A intake, especially from supplements, can lead to toxicity, causing symptoms like nausea, dizziness, and, in severe cases, organ damage. Vitamin B6 (Pyridoxine): Long-term use of high doses of Vitamin B6, typically above 200 mg per day, can lead to toxicity. Symptoms of Vitamin B6 toxicity include nerve damage (neuropathy), which can cause pain, numbness, and difficulty walking. The condition is usually reversible once supplementation is stopped, but in severe cases, nerve damage may be permanent. Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated. This is because folic acid supplementation can correct anemia caused by B12 deficiency without addressing the underlying neurological damage. Some studies suggest that excessive folic acid intake might increase the risk of certain cancers, such as colorectal cancer, particularly in individuals who have precancerous lesions. Vitamin D -  While moderate excess may be excreted, prolonged high doses can lead to vitamin D toxicity, resulting in hypercalcemia, kidney damage, and other complications. Vitamin E (Tocopherols): Excess vitamin E is usually excreted, but high doses from supplements may have adverse effects. Obtaining it through a balanced diet is preferable. Vitamin K: Excess vitamin K from supplements can interfere with blood thinning medications and cause issues in some individuals. Iron: Excessive iron intake, especially from supplements, can lead to iron toxicity, causing symptoms like nausea, abdominal pain, and, in severe cases, organ failure. Zinc: While zinc is essential, excessive intake can lead to zinc toxicity, affecting the immune system and causing digestive issues. Copper: High copper levels, often from supplements, can lead to toxicity, causing symptoms such as nausea, vomiting, and liver damage. Selenium: Excessive selenium intake, especially from supplements, can lead to selenosis, causing symptoms like hair loss, gastrointestinal issues, and neurological problems. It's crucial to note that individual tolerances can vary, and supplementation should be done under the guidance of a healthcare professional.
  21. Like
    Scott Adams
    Scott Adams reacted to Liamclarke in Not sure if this is Celiac or just a gluten-free intolerance   
    I was diagnosed with celiac and basically had stunted growth because my body wasn’t taking In nutrients which may explain the weight loss I would take this seriously and get tested
  22. Like
    Scott Adams
    Scott Adams reacted to MomofGF in Not sure if this is Celiac or just a gluten-free intolerance   
    Thanks for your response Scott.
    They don’t immediately go away. If she consumes gluten on accident, then she is sick for a couple to a few days.
    She worked at a summer camp and this summer the chef contaminated the food and that one incident landed her in the infirmary for 2 days. She couldn’t stay longer because her cabin didn’t have a replacement councillor. Not to mention it affected her skin and the other person who had celiac offered her his cream he uses!! It helped but she still has the scarring from all the scratching. 
  23. Like
    Scott Adams
    Scott Adams reacted to trents in New and Frustrated   
    @Tracey Thomas, Is that the only celiac test that was run? From the magnitude of the reference range, that looks like it was the "total IGA" test to check for IGA deficiency. It is not checking for celiac disease per se. If you are IGA deficient, it can cause false negatives in the individual IGA celiac antibody tests. Were there any other celiac antibody tests run?
  24. Like
    Scott Adams
    Scott Adams reacted to ElisaAllergiesgluten in Brasswell marmalade and jellies are gluten free?   
    Thank you! Yes I think is best to call. I tried another brand with similar ingredients but the different thing is that second brand did emphasize they were gluten-free. I will post here if they say anything in return.
  25. Like
    Scott Adams
    Scott Adams reacted to trents in Pathology results - coeliac positive?   
    I would suggest you ask your doctor to order a "total IGA" test to check for IGA deficiency.
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