So Confused in Parents, Friends and Loved Ones of Celiacs Posted April 18, 2013 · Report to Admin Not everyone with coeliac will get a noticeable reaction when they eat gluten, but the damage is still done inside, at first i had no reaction, I was diagnosed after recurring aneamia. At the time I also had a negative scope, but now if i eat the slightest trace I feel as though i have a severe flu and my lips and tongue swell up. Reactions can get more severe with each dose of gluten, so its important to keep her off it, she'll thank you for it when she's older and understands more. One reason she may eat less is that when she was eating gluten, her body may have been struggling to absorb what it needed which triggered her to feel more hungry and therefore eat more but now that shes not eating the gluten, her body can begin to heal which will allow her to absorb what she needs more easily. The first few months I was gluten free my weight dropped substantially but over time my appetite picked up and I put the weight back on, If she keeps loosing weight it might be helpful to look into other intolerances, especially dairy, many people with coeliac disease find lactose hard to digest during the first few months/ year due to the damage in the intestine. Over time the majority find they can slowly re-introduce the lactose once they've healed.