Katrinm

The same thing happened to me. I went to a food allergist and he said because I had weight on that I couldn't be celiac. Even though I told him that the weight gain had happened in the last four or so years with a lot of the other symptoms.

One thing I did after that allergist is keep a food log. Everything that went in my mouth and how much I exercised was put on an excel sheet. This way I could hand it to the doctors and show them my concern.

Its so frustrating but you have to be aggressive with the doctor and do a lot of self help.

Thanks. I don't care how long I have to wait. I just want to speak to someone knowledgable.

Thanks. That makes a lot more sense now.

I am new to this website today. Have so many questions.

Does anyone know a good doctor in NYC that understands celiacs?

It took me 3 years to get diagnosed. I was having joint problems, hair falling out, tired all the time, back pain, and problems seeing at night. Each doctor sent me to a new doctor. Finally a nurse in one of the doctors office noticed I have an Irish accent and asked me if I ever had been tested for gluten intolerance. Said she had it and was popular in people of Irish decent. Love that nurse!!! Went to an allergist he said that I probably wasn't since I was overweight. I told him that the weight thing had recently started and that I ate very healthy. Don't think he believed me and was shocked that I came back allergic to wheat/gluten, and five other foods.

Its been a year since I have been gluten free I am still having some fatigue and trouble losing weight I put on in the last few years. Have an appointment to go to an endirconolgist to have my thyroid and hormone levels checked.

I feel like I am starting the going to a doctor to be told I have to go to another doctor thing again.

Has anyone else had this problem? Does anyone know a doctor in the NYC area that specialize in Celiac Disease and all the problems that can occur due to it?

So frustrating

Hello,

I am was diagnose as a celiac about a year ago and am still having problems with things that I don't know if they are gluten free or not.

Is maltodextrin allowed? I saw a doctor on a TV show say that its not but then some websites say that it ok for celiacs.

Does anyone know?

I have added this into a few different threads but I was impressed with them.

Herbology Beauty Co. is owned by a celiac. All the products in the company are gluten free.

Herbology Beauty Co. is a gluten free beauty company. Owner of company is Celiac.

Saw her speak at health food store in NYC. Good information on reading labels, etc.

I bought this when I was in England. Does anyone know where to get it in the US?

Its made by Kelkin and is called Kelkin Gluten Free Porridge.

Received sample of a Belly Cream from Herbology Beauty Co. Whole company is gluten free because woman who started it is celiac. She said product would be going on sale this month. Had Organic Cocoa and Organic Shea Butter.

I am one of the celiacs whose skin reacts. So happy to find others because I get so frustrated when I buy products, think the labels read free of gluten and an hour after using them I have bumps on my face.

What I have found that is things in the products that are not listed cause me the most problems. For example alcohol in products gives me bumps. So frangrance is ok if it is soy based and contains no alcohol. Also witch hazel (in toners) contains about 40% alcohol but that is not on the label. We really are at companies mercy!!

I saw the woman who started Herbology Beauty speak in a health food store here in NYC. She is a celiac/cosmetic chemist and started her company because she was frustrated with what was available on the market. Said that companies have to make a committment to be gluten free and train all their employees on it. Talked about things like watching who is selling the company ingredients to make sure that they are consistenly gluten free, how to read labels etc. Also she brought up cross contamination. Really interesting.

Does anyone have problems at spas? I went for a facial, asked if the treatment was wheat free....two hours later all broken out.