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  1. IgA - there are four different types of IgA antibodies that are tested when checking for celiac disease

    IgA endomysial antibody (IgA EMA)

    IgA tissue transglutaminase antibody (IgA tTG)

    IgA antigliadin antibody (IgA AGA)

    IgG antigliadin antibody (IgG AGA)

    Elevated levels of any of these means celiac disease is a possiblity. Which ones did she test positive for? How high were her levels. Certain ones are more accurate than others. For example - a positive endomysial marker is 98%-100% accurate for celiac disease without a biopsy.

    I would call and talk to the lab to get the specifics of the test and then ask for someone else to interpret the results. If your child has elevated IgA levels it should be looked into.

    Did you have allergy testing done as well? If not I would do so.

    If you can't get better results get a second opinion. My doctor has very limited knowledge of celiac disease. I was even told that is was up to me whether or not to follow a gluten free diet for them!

    My computer was broke and I finally got a new one and just saw this post. I will try to check back to see if you have more questions.

  2. Three out of four of my children were diagnosed with celiac disease in July. My doctor dropped the news on my head without any teaching, explanation, nothing. I did internet research and my mother ordered Betty Haagman's book for me along with a couple others. That is how I learned to feed and take care of my kids. It has taken a toll on me and has been a huge stress living in constant fear I will make a mistake and "poison" them.

    I recently realized the spaghetti sauce I have been feeding them is not gluten-free. They eat it at least once a week. I am overcome with guilt. It is the first major mistake I have made. I feel so responsible so guilty. They trust me to pick the right foods and make these decisions for them and I have been poisoning them unknowingly week after week as I wonder why they aren't getting better faster.

    I am just in tear over it. That and the fact that I have no doctor support and I just also found out they should have follow checks on certain things and certain labs done after a celiac diagnosis and their doctor hasn't ordered or checked anything. I am worried about their health. I don't know a good doctor to change to that knows about celiac. I am just feeling overwhelmed with the responsibility and my limited knowledge and the guilt of my error.

    There really isn't a point to this post I guess. I just am sitting here in tears and needed to vent.

    Has anyone else been through this? Did you make mistakes in the beginning? Did you feel this guilty?

  3. I saw this on the list of ingredients that are not safe. In paranthesis it says (contains MSG), but then on the safe list is MSG so are products with sodium caseinate gluten-free or not?

    Also I am having a hard time making the decision on products with maltodextrin and dextrin in them and mono & diglycerides. I read that maltodextrin containing products made in the US are gluten-free, is this true and what about dextrin?

    I have had a few companies tell me that because wheat is a top allergen it is listed if it is anywhere in their product. So if I see the above in the list and it is not declared can I consider it safe?

    Any help regarding making decisions on these items would be helpful. I have not found it feasible to call about every single product- also I sometimes have to make a decision at the store whether or not to buy the product.

  4. Three out of four of my kids have celiac and are gluten-free. It hasn't been that long since we found out so they are trying to adjust still. They miss bread but we haven't found anything decent. I was thinking maybe I'd give this a try if someone wouldn't mind posting the recipe for me again. I read about it in another thread but couldn't find a recipe. Thanks so much.