I thought I'd take today to introduce myself as I'm off work for prep for my colonoscopy tomorrow. I was first told by my doctor that he was almost positive I had celiac before even running any tests due to the array of symptoms I have. I know I should be asking more questions and getting more concrete answers from him, but the whole thing is so overwhelming and frustrating. I know from research that there are a variety of blood panels they can do, and I have no idea what ones he ran, but he said the tests came back negative. But he also said that he still thinks I have it, and he told me I could choose to go gluten free whenever I wanted. My Vitamin D and B12 levels were incredibly low, but he didn't test for hemoglobin/iron and had to draw more blood for it at my second appointment.
Sorry my thoughts aren't incredibly organized, I guess everything just hit me today because I haven't had time to sit down and think about it until now. I heard the doctor say the test came back negative, but he also said it was still likely that I have it, and it felt so good to have finally figured out what's wrong.
Now I want other people's advice, especially if they're from the Kalamazoo/Southwest Michigan area. My stomach issues started around the time I was in high school (I'm 26 now). I've always been scared to death being somewhere that I can't get to a bathroom quickly, especially if it's unfamiliar surroundings or if I'm driving on a road that I'm not familiar with where I can stop. My stomach issues pertain mainly to severe stomach cramping and chronic diarrea (recently up to 6-12 times per day). I recently started having breathing problems with a swelling of the throat feeling and severe tightening of the chest like someone was sitting on my chest. I also had a period of 2 weeks that I was getting severe chest pains under my left breast typically in the middle of the night. I could only breath shallowly and I couldn't move when I was having the chest pains. For a period of 4 months this winter, I constantly had a canker sore somewhere in my mouth, and I recently had one root canal done, and I'm waiting on 3 more with 4 more cavities to fill beyond that. I'm constantly tired, and I'm exhausted if I don't manage to get at least 10 hours of sleep each night. Lately if I try to walk my dogs the normal mile and a half walk that I take them on, my muscles in my legs will ache like I went on a 20 mile run for at least 3 or 4 days. Rarely do I have the energy to do that, so I'm not exactly in shape, but I don't think that that kind of pain is normal. My skin is also beyond dry, and if I don't want it constantly flaking off, I have to put on lotion at least twice a day. If I wear a black shirt, the inside is seriously almost completely white from the skin that came off throughout the day.
I have no idea if all of these symptoms are caused by celiac, though I've read the majority of them can be caused by celiac. I'd appreciate anyone's input on this.
I started the gluten free diet about 2 weeks ago, and I don't expect immediate results, and although I've referred to myself as feeling a million times better, I still have a long way to go to feel normal. Rather than running to the bathroom every single day multiple multiple times, I've been having more occasional bouts, typically on Mondays so far (2 weeks isn't much to go on though).
Ok, I think I'm done now. I need to get my dogs outside and run some errands before I start the colonoscopy prep at 3pm. I didn't ask a lot of questions about why I'm doing the colonoscopy, and I know normally they would do an endoscopy, but I feel better about making sure there aren't any other issues that they might be able to find. I also know they can't do a confirmatory diagnosis after you go gluten-free, and despite the negative blood panel, I wouldn't mind getting something concrete though I will continue gluten-free if it continues helping. (I already have a little more energy)
Ok, really done now. I needed that time to ramble.