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Everything posted by mstroud

  1. I agree that it sounds like she has positive test results and I don't understand why the doctor would hesitate to diagnose her. My son was 7 when he was diagnosed and his results were on the 'mild' side as well. He had definite symptoms (abdominal pain, dark circles, pain in his legs / joints) and they told us that his biopsy results showed early signs of celiac disease and his blood results were 'low positive.' They diagnosed him, but did say that his results were probably on the low side because we caught it early. He did have the genetic test and it came back positive as well.
  2. Grace's Mom, Big hugs to your daughter ... I just about cried reading your post! My oldest son was 7 when he was diagnosed and the first months were the hardest. The end of the year is extra tough with all of the parties and summer birthdays they celebrate. It's so disappointing that your daughter's teacher handled the cake situation like that! I would absolutely tell the principal exactly how you feel and what happened ... hopefully they can pair her with a more compassionate teacher next year!!! One thing we did when my son was newly diagnosed was to host a party ... a 100 % gluten free party where he could have every item on every table. We had chips, guac, and salsa, made tacos, gluten-free brownies and ice cream for dessert. I think that helped a lot and we try very hard whenever we have people over to make sure he can have 90% of what is offered. We do have a gluten-free house now (except some of my husband's breads and cereal) which has helped a lot, but that's also because we now have 4 out of 5 family members eating gluten free!! I am so sorry that your daughter is going through such a tough time. It sounds like you're working hard to help her have her own treats / foods when you're out!! It will get better!! Margaret
  3. We gave up on the frozen gluten free breads and make our own using the Pamela's mix. My 3 sons (3,6, and 9) eat it and love it! It's not crumbly and keeps for days without drying out! We go through a loaf a week, but you could easily make it and then freeze half of it in slices to use later.
  4. I, too, think it's wonderful that you're so concerned about your grandchild and helping keep her healthy! My parents live 3 1/2 hours away so it's a little different from your situation. They bought a new cutting board, toaster, and a pasta strainer (all easy ways to get cross contamination) and only bring them out when we come to town. We do use their metal pots and certain skillets (not the cast iron) without problem. When we get to town, I'll clean a section of the counter and it stays gluten free while we're there. Maybe you could find one part of your counters that could stay gluten free so you don't have to worry as much about cleaning them all the time. And, I like the suggestion of making one cupboard gluten free ... pots, pans, snacks, etc. There are a lot of gluten-free snacks for children that age which are easy to find (tons of ideas on this forum) and it's pretty simple to make any child's favorite meal gluten free! It all take a little time to learn what foods are safe and working with your son and DIL it'll all get figured out soon! Good luck!
  5. There are a couple shopping guides that list Gluten Free products. I used one called Cecelia's Marketplace ( when we got started almost two years ago. It was a life saver! I found that I could buy special pastas, bread mixes, crackers and such at a store like Whole Foods and then shop at my local grocery store for the mainstream foods like pasta sauce, yogurts, chips, and such to safe money. They also email you (if you sign up on their site) when a product changes or loses it's gluten-free status after testing. Good luck!
  6. I haven't tried any recipes in my Zojirushi from scratch, but I do use the Pamela's gluten-free bread mix. I make at least one loaf a week and it comes out perfectly every time! I put it on the Memory 1 setting or I set it to back over night ... both come out great! I've also used the Gluten Free pantry bread mix and that comes out very nicely. I think I just prefer the Pamela's because it seems to keep better without getting crumbly. Good luck!
  7. I think that calling principal is a good idea ... I really don't see what the big deal is about leaving a few minutes early to heat up a lunch! But, maybe the compromise is that she brings a lunch on the days that doesn't need heating when there is a guest speaker and is allowed to leave early the other days. My sons don't have access to a microwave and I wish they did! Every now and again he brings a hot lunch and the thermos doesn't keep it hot for very long. Good luck to you!!
  8. I'm not sure if I'm supposed to post any website names, but I order my break mix (the Pamela's bread mix) through Amazon and get the subscription to it so it comes automatically once a month. It brings the price down significantly (down to around $3.75 a bag). I have 3 children and we all eat gluten free so we go through a lot of bread! Good luck!
  9. Here is the response that I received from Cecelia's Marketplace about Yogos, fruit snacks, and other items .... Thank you for contacting Cecelia
  10. Yesterday I read on the 'gluten free foods, products, shopping, and medication' section of this forum that Kellogg Yogos and Kellogg Fruit snacks are not longer gluten free. Here's a link to the thread (if the link doesn't work, it's the "Celcelia's Gluten Free Product Alert" thread). I know my 5 year old was eating Yogos 2-3 times a week as a treat until last week when I decided he was getting to many treats. There are a lot of items on the list ... they are items that were listed as gluten-free in Cecelia's Marketplace shopping guide, but have now been tested and considered not gluten-free. Just thought I'd pass the info along to others who might give them to your kids as a treat.
  11. I believe Reeses PB cups are gluten free, but there are a couple that have special shapes (like the small holiday bell shapes) that have gluten in them. Did you eat a 'normal' Reeses cup??
  12. This is the Kellogg nutrition statement about gluten and wheat ... it does sound like a CYA comment, but at least it's honest! __________________ Which of your products is gluten- or wheat-free? At this time, we do not offer products suitable for consumers on a gluten- or wheat-free diet. All of our products are produced in facilities that also manufacture wheat-containing products. We cannot guarantee that any products are 100% gluten- or wheat-free. Kellogg's
  13. I'm sorry your daughter was sad about being different! My sons (8 and 5) are very good about being gluten-free, but do feel left out every now and again! I had a wonderful experience with my son's preschool last year. I emailed a list of gluten-free snacks and she ended up writing a letter to the parents saying that there was a student who is gluten-free in the class and, while it is not mandatory, it would be nice to have him included in snack when possible. There were so many times when parents emailed me to see if he could have certain foods or alerted me to what special snack they were sending in for a birthday or party. I even had two moms make an entirely gluten-free Halloween party so my son wouldn't feel left out. So, while I'm not trying to brag about his experience in preschool, I do feel like many parents will try to provide gluten-free snacks if they are aware of the need and what to send. Maybe if they know to bring yoplait yogurt instead of dannon, cool ranch instead of the nacho, tortilla chips, certain puddings, fresh fruits, string cheese, etc they would see it can be easy to include her. Also, do you have a box of back up snacks at school in case someone brings in cookies for a snack or something that might make her jealous? I agree with the poster who said that a little teacher education would help. Our assistant teacher last year knew to call to double check a snack and see if he could have it. Good luck! I hope the rest of her year goes well!
  14. My 8 year old son continued to have stomach pain a year after he went gluten free. I finally took him off of corn and it helped a lot. He can have corn starch or meal in things such as Glutino pretzels, but I really try to keep him off of tortilla chips, corn, and limit the amount of corn based cereal he has (Corn Chex, etc). It really did help a lot and was pretty immediate! Whatever the culprit is ... I hope you figure it out! Good luck!
  15. I don't have much to add, but I do believe that Airhead EXTREMES have wheat in them. I almost bought them for my children once and happened to check the ingredients ... wheat flour was listed twice. I think the airheads are okay. Last year I gave my children the miniatures (not the krackles with rice krispies in them) and I'm pretty sure they made them sick. I guess it's either a cross contamination thing (in the bag or on the lines). The only other thing I have to add is to be careful of the special holiday shapes of some candy that might normally be gluten-free. I know I've seen wheat or malt in Reeses cup in special shapes last year (bells at Christmas time I believe). Just a thought!
  16. I'm so sorry you're going through this with your daughter! I've had a similar experience with my son, 8 1/2, who was diagnosed with Celiac in May 2008. I think others have offered great advice and I'm not sure I have too much more to offer. Was your daughter diagnosed through bloodwork? If so, would it be worth having her rechecked to see if there is in fact gluten in her system which is causing these symptoms? We had to do that for my son when he started to exhibit the same symptoms as before he was diagnosed. They came back 'clear', but his levels weren't off the charts to begin with. Maybe it would help to keep a journal of everything she is eating, playing with, and touching during the day. I'm very careful about what comes into our home (we have a totally gluten-free home) and found that by accident I'd bought a box of corn chex that was an older, not gluten free box. So, maybe just double check everything before it goes into her mouth. I did figure out that my son can't handle corn. His symptoms weren't exactly the same as with gluten, but very similar. He was eating a lot of tortilla chips and salsa, tacos, etc and I finally figured out that he had abdominal pain the mornings after he'd eat a lot of tortilla chips. Because of his stomach pains, he'd act lethargic and drop weight because he didn't want to eat anything else. I hope you can figure out what's getting her whether it's gluten or another food! Margaret
  17. mstroud


    The woman I spoke with at Zyrtec seemed to know what was talking about. She said the chewables DID contain gluten. The explaination she gave for the liquid was a little too vague for me to try it on my son who was already dealing with a strange reaction. I totally agree with the confusion on who to believe! I'll bet there are better websites or books out now that are more accurate about what meds are gluten-free and what are not. At least, I hope so! Good luck!
  18. mstroud


    This summer my 8 year old needed to be put on an allergy med after he broke out with hives. I called to check on Zyrtec after it was prescribed by his pediatrician and was told that all of the children's Zyrtec products contain gluten. The only one she was not sure about was the syrup which was 'purchased from another company and the formula hadn't changed ... if it was gluten-free before, it is now.' We went with Claritin and had no problems. Maybe the adult versions have a different formula?
  19. I'm not sure if this has been posted or not, but I remember seeing a thread about the Vans pancakes this summer and thought I'd post it. I'm pretty sure that there was no question that there was always gluten in the pancakes (or I remember it being discussed in the thread), but I just found it upsetting that the pancakes were recalled for 3 major allergens!! We eat their gluten-free waffles at least once a week ... it makes me question eating them at all. **THE FOOD ALLERGY & ANAPHYLAXIS NETWORK SPECIAL FOOD ALLERGY ALERT NOTICE** EGG, MILK, and WHEAT ALLERGY ALERT August 20, 2009 Van
  20. I'm not sure I have any advice for you as far as testing, but your daughter sounds a bit like my son. He was 7 when he was diagnosed and had the dark circles under his eyes, pale skin, fatigue even though he slept a lot, abdominal pain, and leg /joint pain. He was also starting to show signs of depression. The GI first said he really thought it was abdominal migraines, but the blood work and scope both came back positive. They were both a 'slight' positive and the nurse said we probably caught it early. Maybe that's why your daughters came back negative ... maybe it was early or maybe a false negative. My middle son had his blood work come back negative, but positive for the double DQ2 gene (mine came back that way was well). My doctor and my middle son's doctor both said separately that we should probably just follow the gluten-free diet since we both had what could have been symptoms. So, we're now all 3 on the diet and wouldn't go back! I really hope you find answers. I think one of the toughest times in my life was having my oldest son in pain every day and not knowing how to help him! Keep us posted on what you find out!
  21. That's crazy. It makes me not trust companies that practice that sort of false labeling. Out of curiousity, I got on their website to see if it said anything. In the section that has their alphabet tater tots and the sweet potato fries this is what's written ... Ian's fries are a satisfying, healthy compliment to meals that your whole family will love. Looking for a great alternative to traditional potato fries? Try Ian's Sweet Potato Fries! For a yummy allergen-free option, try Ian's Alphatots. It seems like a CYA comment, but the fact still remians that they've used an ingredient that they didn't report. Thanks for posting that!
  22. I'm very sorry to hear that your wife is not getting better. I'm not sure I have any helpful thoughts, but have feel for you as my son is having a much slower recovery than we thought. He's better in some respects, but still has daily abdominal pain. He's 8 and has been gluten free for 11 months. I do agree that if your wife has been ill for a while it will take more than 3 weeks to heal. I hope the healing starts soon! If your wife is dairy free, what does she use instead of milk? Does she use rice or soy milk? I know we gave my son Rice Dream rice milk for 2 months before I read on this site that it does have a small amount of gluten in it, even though it says 'Gluten Free.' I did see some progress after he went off that! Good luck!
  23. I make gluten-free playdough for my 5 year old son's class. It's very easy ... I double the batch and only make it every 2 months. Gluten-Free Play Dough Ingredients:
  24. I've been worried about my 8 year old son being exposed to gluten at school. I think the idea of asking your son's desk be off limits to other kids / gluten food is a good idea. I asked my son's teacher to do that recently after he said there had been crumbs on it after classroom parties. He knows to ask his teacher to clean it off if he's worried or to use a towel and then wash his hands well. For his lunch, I bought a few of the 'wrap n mats' which wrap sandwiches and then unfold to form a placemat. They're supposed to be great for reducing the amount of sandwich bags used, but they also provide a gluten free spot for his lunch in the lunch room! Good luck! I know you're anxious to hear back about his test results! Margaret
  25. At the Celiac Support group in Raleigh this past week, two reps from Bella Monica Restaurant came and brought samples of their gluten free food. They were wonderful and are very interested in expanding their line of gluten free foods. And, they asked a lot of questions about which pastas they should use and what gluten-free items the members would like to see on the menu. It was wonderful to hear that they wanted to have patrons who can not consume gluten come into their business and feel comfortable eating what they've prepared. Here is a link to their site ... My family is planning to check the restaurant out in the next week or two!