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stef-the-kicking-cuty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Posts posted by stef-the-kicking-cuty

  1. Also the other thing I wanted to say that while EnteroLab is STILL a test, even if it’s not considered a gold standard. It will still show results and the results are not wrong. It’s be enough for me to stick to the glutenfree diet. That alone together with your reaction to gluten should be enough to convince you. Because why would the test show something, if there is nothing? I mean, it’s not gonna be positive for nothing. And a gold standard just means there are a bunch of head honchos, who have decided at some point that this is the gold standard. It means nothing in my opinion. Go by what EnteroLab says.

  2. I still remember you from back when. I think, I joined the forum in 2004 and after it worked for me I stopped commenting. That was roughly around 2008, so we cross crossed. Anyways, since then I’ve been doing well. However I’ve had something you’ve been describing whenever I’ve had accidental glutening and these last two weeks (which is why I came here today, to look for others, who might have this due to gluten) I had a real emergency situation with muscle weakness, several damaged discs and nerve pain shooting down my leg. Since I’m now a ninja warrior and do have a strong core, this shouldn’t even be an issue. I have 2 doctors now on my page that this is indeed a nerve issue that is exacerbated by eating gluten and the night before this blew out of proportion I actually think I had some gluten. So now I will be scheduled with a celiac rheumatologist and possibly a neurologist to get to the bottom of this.

  3. Hi Aleka,

    I'm not diagnosed with CKD (yet), however I've been coming back to this forum (I've been one of the major contributing members here 9 years ago) for the last week and lurking around for more information on what my new problem is. I've also been doing my own research for about a little more than a month now, because the dark circles under my eyes kept bothering me. In addition to that 2 years ago i started getting a dull pain in my right lower back, where the kidney is supposed to be and when I drank, it disappeared. Sometimes I didn't notice it for weeks or months and then it came back again and it always disappeared with drinking some fluid. The only exception, milk seemed to aggravate it. I found an article about a month ago that said, that a dairy allergy (not a lactose intolerance, a dairy allergy... there is a difference) can cause the kidneys to have major problems in certain people in addition to dark rings under the eyes, so I thought to myself. Hm, that could be me, so let's do a challenge, which I did. I haven't had any dairy in addition to no gluten for about 3 weeks. Then I drank a cup of hot cocoa and ate a Nutella bread and wouldn't you think, the kidney pain came back. Not only that, but this time it stayed, even though I am now again not having any dairy. It gets better with more drinking, but it seems that the intervals between it disappearing and coming back get shorter. And for the first time tonight (that's why I'm up) I can feel it a little, so I came here and that's when I saw your article and now I'm wondering, if I may have this, too?

  4. I walked into one of those doctor centers for poor people two years ago for a nasty flu. The doc n I got to talk and I asked her, if the medicine was glutenfree. She asked, if I had celiac. I said, yes, and that it was not heal able. She said, yes it is. I said, no it isn't. She said, yes it is, they have things you can take for it. 8-(

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