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Emilysmomma

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  1. Thank you both! I have information printed out for both Emily's teacher, and the school nurse. Since her doctor has ordered that she uses the bathroom for 10 minutes after lunch each day, she will need to go to the school nurse to do this - they gave me a note, I figured I would get more cooperation that way.

    I have offered to supply playdoh for the classroom, I found a 5 1/2 lb bucket in 8 different colors for $23, I thought that was a pretty good price. Every time I email the teacher I stress that I want to make this as easy on her and Emily as I possible can. I am planning on being a room mom, and volunteering in the classroom as often as possible.

    We have an orientation on Wednesday, the day before school starts, so I am planning on talking to her teacher then, even if I have to wait until the very end. And I will also talk to the school nurse as well. I am also hoping to touch base with the art teacher as well, because she is another one that will need to keep her enviroment safe for Emily. Lunch, I am having her just eat with the rest of the kids since the allergy table is for the Peanut Allergy kids, and she can still eat peanut butter. I have been working with her throughout the last few weeks eating right out of her lunchbox, and not placing anything on the table. We also talk about not eating anyone elses food. I will put her snacks in a big ziplock baggy in little snack baggies, so she can reach in and get her own snack out of the bag. Am I covering all the bases? Anything else I haven't thought of?


  2. A week and a half ago I called the school and ask if I could set up an appointment OR talk to the school nurse and my daughters teacher. I got the school principal and she asked me what my concerns were, she seemed a little put out by my call. I said that my daughter was recently diagnosed with Celiacs and I wanted to talk to them about some of my concerns, such as is there playdoh used in the classroom, do they do crafts with cereal and pastas. She said, and quite abruptly, 'I don't think they even use playdoh in the Kindergarten classrooms. Then she said for me to call back when I got my daughters' teacher assignment.

    So I called when I got her teacher assignment and the principal answered again, I RSVP'd for the Kindergarten orientation, and then asked about setting up a meeting with the school nurse and her teacher. She said that they would not be available until the start of school. She acted as though we never had the first conversation, and like I was being a nervous Nellie!

    Am I over-reacting, am I right to worry about the playdoh with the cross contamination. She has had a few symptoms after playing with playdoh this summer that I am pretty sure were cross contamination - so I have thrown all the playdoh out, and put all the cookies cutters, rolliing pins, and playdoh scissors through the dishwasher. Sending your child to kindergarten is hard enough without Celiacs. I am going to have a short time at Orientation to address my concerns (not scheduled), what should I concentrate on?


  3. I just bought some today, read the ingredients, but with the natural flavoring I'm not sure that it's safe for my daughter to eat or not. Does anyone know? It's made with chicken breast and ribmeat, enhanced with up to 15% chicken broth and natural flavoring (these are all of the ingredients listed), and it's distributed in Illinois. I just don't want to give it to her if it's not safe!


  4. We want to get a new breadmaker since there is no way to really get all the flour out of the current one we have. But I keep reading about the breadmaker needing a special gluten-free setting - is that for the dough making process or the baking process or both. Because I plan to use mine only to make the dough, and then I'll bake it in the oven - I just like the size of the loafs better that way. I was hoping to get away with purchasing the $49 Breadman at Targets instead of the more expensive version of the Breadman. How do I know if that will do what I need it to do? Is there something on the box?


  5. Thank you so much, I really need to find some way to print this thread, is that an option on here, I am looking but i can't find it. You have all given me some great suggestioins! And the chocolate chip cookies I made turned out delicious, they taste just like tollhouse with a different texture. I will post the recipe sometime over the next few days. What I loved about it is it only calls for sweet rice flour and rice flour, and corn starch, everything else were things I had in the house already. I didn't get as lucky on making bread from scratch,, that turned out terrible. I think I will end up purchasing a new bread machine since there really is no way to get the flour out of my current one. Thanks again for all of the good ideas. And those meals on the run ideas will help me when school starts back up and we are on the run in the Fall!! Thanks again!!


  6. I just wanted to let you know that we just did this a week ago, last week on Monday in fact. The doctor, which by the way we saw for all of 5 minutes before the procedure for the first time, came out and talked to us afterwards and said everything went well and it all looked good. He also told me to call in 4 days for the results, I think he really thought Emily didn't have Celiacs. Then the Nurse Practitioner who is who we have dealt with the whole time called Wed, which was 2 days afterwards and confirmed that Emily has Celiacs. I said to her, well at least she doesn't have any damage yet, she responded 'Yes she does have damage, it shows up in the pictures - flattening of the villis, she just doesn't have any lesion yet.' From what she said they can't see things as well with the scope as they can with the pictures that are taken. Just sit tight and wait for the results, I bet you will hear something sooner than Friday if she has it though!


  7. Again, thank you so much!! I have taken a lot of notes from all of you!! We had our appt with the dietician yesterday, and that was very informative and helpful. We are going to join a support group that specializes in kids with Celiac. I learned a lot yesterday, we stopped at a Oriental Grocery store and bought rice flour both reg and sweet. I have a recipe for choc chip cookies that Em and I are going to make today. I have to first wash both of our aprons because we've baked with them prior to her being diagnosed, and I don't want to cross contaminate with any flour residue that might be leftover from the last time we baked. This forum has been so helpful, I have been mostly reading and not responding to other post, but I will start to contribute as I can. Thank you all so much!

    For me I feel relieved to finally know why my daughter has been sick - the Celiacs affected such a big part of her life, and I am so glad to be on the road to making her well again. Growing up I had a friend with Muscular Dystrophy (sp?), when I met him he was able to walk, as we got older his muscles began to waste, and by the time we moved away when I was 9 he was not longer able to walk, he was in a wheel chair. I remember as a child realizing that as I gained more freedom, he lost his - it was so sad. He died when he was 16. So I keep that in my mind when I think about this being life long, that my Emily will live a long life, and though this will limit what she can eat, it won't be life altering for her, she will still be able to do all the things she wants to do, just with a few modifications!


  8. Thank you for all your replies. I guess since my daughter was having the issues, I was more focused on dealing with her symptoms. But my son is so much like my BIL that has Celiacs when he was younger he was skinny just like Tyler, we'd joke that he could eat everything and not gain an ounce, Tyler is the same way. He's 11 1/2 and weighs 70, all of his friends weigh more than him. I am going to ask about getting him tested, at least the blood test, to see what it shows. I know, at 11, he won't be happy about it, he really likes his food!!! But, I want us all to be healthy. We are pretty sure it is my husband that is the carrier since there isn't any Celiacs on my side of the family.

    Again, thank you for your replies, it just confirms what I already knew in my head, he should be tested!


  9. Should I be concerned about him, since my daughter was just diagnosed with Celiacs? The only sign he shows is he's skinny, and has a hard time gaining weight - other than that, he doesn't have bowel issues or stomach problems. He is 11 years old. I'm just wondering if we should all be tested for it. Our dinners will all be Gluton free because I don't want my daughter eating something different from us - I will make her pizza seperate from ours with gluton free crust from the store, and spaghetti, I will get the gluton free pasta.

    I just started wondering if my son should be tested as well?


  10. Thank you so MUCH!! That was such a big help! I am going to look that over, I also saw on another post how to make my own gluten free chicken nuggets - she LOVES those, so I will be trying that out! School lunches will likely be my biggest challenge, between what she doesn't like and can't have. She is already on a dairy free diet, that was initially what the pedi thought the issue was, when she didn't get better I pushed him to send her for more testing, so he sent us on to a pediatric gastro doc.

    You are right, this is all VERY overwhelming, I'm not even really sure where to start! But you have given me some good ideas!


  11. Thank you for your quick response! Her normal diet is pretty typical:

    She loves cereal for breakfast, but sometimes eats waffles, and sometimes toast. She has fruit for a mid morning snack which won't be a problem, she sometimes has fruit cups (Dole) those should be okay right?

    Lunch she really eats one of two things peanut butter sandwich or grilled cheese sandwich with lactaid cheese because she is also Lactose intolerant.

    Dinner we eat all different things like Taco salad, spaghetti, grilled chicken, hotdogs, hamburgers, turkey burgers, lots of salad, she just likes the lettuce though, quesidillas, Fajitas

    Snacks she loves her animal crackers, cheese crackers, and pretzels. She also eats popcorn

    Like any kid she likes candy, but I know there will be a lot of that she can't have, and we limit it anyways to a treat every now and then.

    Thanks again for you quick response!!


  12. My name is Lia (Leah) and my daughter Emily is 5 years old and we have just gone through the process of getting her diagnosed with Celiacs. Two of my BIL have it, so we suspected she might have it as well. She had the blood test last month and her Celiacs came back highly elevated. Her endoscopy was this past Monday, and the office called yesterday afternoon and confirmed that she does have Celiacs. This is all new to me, though I know some from my BIL's experience, I feel very unequipped to deal with all of this. I have a lot of research ahead of me. At the same time I am glad to finally have some answers to why she been having so many stomach aches, bloating all the time, and constipation.

    Any insight you might have would be great!!! Not even sure where to start at changing over her diet.