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Live2BWell

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  1. It was suggested to me to have a Cortisol Test run (Cortisol is an Adrenal hormone); Apparently it's not a routine test, but it can be requested - and that is often how doctors test for adrenal problems (adrenal fatigue, addison's etc.) Adrenal problems, from what I understand, run hand in hand with Celiac and, interestingly enough - Hashimotos (I am guessing they all work on similar levels, which is why they often run together?)

    I am probably going to look into the adrenal capsules, what is your overall experience on them? How did you know how much to take? When did you notice a difference? What differences did you notice?

  2. Are Tony Chachere's rice mixes and seasonings gluten free? They were already closed when I tried calling, and I couldn't find the info anywhere on their website. Tonight we're planning on having the Tony Chachere's Creole Dirty Rice Dinner Mix, but I wanted to make sure it's ok ...

    Anyone know?

    p.s. here's the ingredients

    Enriched parboiled long grain rice, (niacin, reduced iron, thiamine mononitrate, riboflavin, folic acid), dehydrated vegetables (onion, bell pepper) salt, paprika, garlic, autolyzed yeast, soy sauce, caramel color, partially hydrogenated soybean oil, silicon dioxide (flow agent) disodium inosinate and disodium guanylate (flavor enhancer).

  3. I think I've been accidentally glutened. I've been really sick today - sick like I used to get sick. Actually I had a horrible headache last night, like debilitating (i had to lay down in the dark and my TMJ has been really bad as well.) Today I've been in the bathroom several times, and having a lot of stomach pain. I have a bit of a headache but not like last night.

    I am a newly diagnosed Celiac, and I have been really careful (or so I thought) at being gluten free, but I think I've been glutened. How do you trace it back?

    Yesterday I had -

    * Gluten free cereal

    * 2% milk

    * Popcorn

    * Ground Turkey Soft Tacos (corn tortillas)

    --->Toppings: bell/yellow/red pepper, cheese, salsa, dab of Rotel, Sour Cream

    --->Seasonings: dash - ground cumin, minced garlic, ground chili pepper

    * 1 Kinnikinick Chocolate Chip Muffin

    * Vanilla Carnation Instant Breakfast

    * 1 Redbridge Beer

    * Diet Rootbeer, Diet Arizona Iced Tea, Water, Coke Zero

    Anyone see anything that could be the culprit?

  4. veggienft, thanks for the explination! Wow, you guys understand this very well! To me, it sounds like a foreign language, but you helped translate, so thanks :)

    happygirl, Hi Happygirl... I had four biopsies during a Colonoscopy, that came back with several abnormalities but nothing conclusive one way or another. I have not had an endoscopy, and as of now I don't know if I'm going to have one or not. I have not heard from my doctor since receiving the tests results (via mail), but I also am torn on weather I want to have it (if he suggests it.) I do have several issues other than the celiac that could benefit from an endoscopy, though. So... I'm just kind of sitting on it for now (I am gluten free though.)

  5. I actually was strictly gluten free for over a week when I had the tests done (I know, not reccomended, but it just happened that way.) Two of the four tests on my Celiac pannel came back elevated, despite being gluten free. My doctor said my results are indicative of Celiac (and I am officially gluten free now). However, I don't understand what the tests themselves, are, so maybe you guys can help. I have had positive response to being gluten free.

    Anyway, my Gliadin IgA was elevated and my Gliadin IgG was also elevated. Both my TTG IgA and TTG IgG were within range. I am diagnosed with Hashimotos, and there is Celiac in my extended family (I think, I'm not positive about that though.)

    Even though I have a diagnosis, I don't understand what those tests measure.

  6. Jenny (AZ via TX), Thanks Jenny! I too am very grateful I found this forum when I did. Although, I've been sick for a long time now, and Celiac is the last of the diagnoses. In a way I wish I would have found this forum sooner, because maybe I would have started getting better sooner than I have, but... there's a reason why things happen the way they do, and whatever that reason is, I am glad I'm on the right path (it seems I am, although, I wish I could trust that without doubt.) Thanks for your support, Jenny :)

    lovegrov, Thanks, grov!

    lizard00, Yes, Yes, & Yes! It is very weird indeed! It's such a good (and bad) feeling all wrapped up in one, I so relate. I too often question why I'd want to have an illness, but then I think it's not that I want to have an illness, it's that since I have an illness anyway I want to have a name for it, because if there's a name then there's a way to deal with it. That is the good feeling. Ofcourse, the sinking feeling is that it exists at all ... but what is, is .... Thank you for your reply and support :P

  7. Hey Guys, thanks for the replies.

    TrillumHunter, thanks for the support. I am glad that I was able to ease into it, before I found out my results, because I was prepared (somewhat) so that helped atleast a little bit.. It's a lot to wrap my brain around though.

    Kitt1027, (( Hugs )) I so hear you! Hang in there, I know what a futile process it can be. FYI: It took about a week and a half to get my results back. I had been through the ringer up until that point, and actually wasn't expecting them to be positive because I had already been gluten free for 2 weeks (and my doctor told me that in order to get accurate results, if I am Celiac, I need to be glutened.) I was frustrated and impatient though, so I had them draw the labs anyway :rolleyes:

  8. I was diagnosed with Hashimotos (Autoimmune Thyroiditis) in March. It's been a long road, and things are just now starting to get better - I didn't have great luck with doctors, but luckily I see a doctor now that is good, and things are stabling out. I am on Synthroid, and yes it does make a difference and yes I do feel better. I just got my celiac pannel back, and that came up positive, and while I did the gluten free challenge, I am going gluten free for good (started yesterday.)

    I have heard of people using natural thyroid such as Armour, also with good results.

    I really think it depends on the person and how their body reacts, but one thing I know for sure is that being treated for thyroid issues is essential. I never realized just how much a glitch the the thyroid gland can mess with the body, until my diagnosis.

    Best of luck to you!

  9. Hi ! I thought I'd add in my two cents. I used to work at a daycare, and have taught early childhood education in Montessori Schools. I have also been a nanny twice.

    I never had a kid who was Celiac, but I did have kids who were allergic to mix nuts, strawberries, etc. In the daycares/montessori school's, the cook's were always very careful about allergens, and any child that had allergens had a sticker at their place at the table that said what the allergens are, so the teachers could double check if needbe. However, I think that the possibility of cross contamination for gluten is probably much higher and more probable. With that being said, if you get a nanny - I would make sure your daughter has plenty of interaction with other kids and different environments, because that will make starting school easier (on both you and her) :P

    Best of luck with everything!

  10. So, today is day 15 of being Gluten-Free; Well, atleast it's 15 days since I went Gluten-Free. I suppose it was bound to happen but I was mistakenly Glutenated more than once (getting the hang of this is certainly not easy.) I was surprised that after having had the gluten-filled foods, some symptoms came back, and others didn't. Most noticibly was the rash on my arms (red bumps) and the GI problems.

    Last night, I threw in the towel (I hadn't done that the other two times) after having again mistakenly eaten gluten, and had a very "all or nothing" mentality. Probably not a good thing because now it's after 3am and I haven't been able to sleep, and feeling rather icky :o

    I am feeling confused - what does this mean? Does this mean that I've undone the good that being gluten free, began? I know things were going better, I was feeling better - and while I was from from okay, it was atleast a step in the right direction (I have other autoimmune & health issues that are in the process of being sorted out.)

    I think right now, I've kind of been tossed off my gluten-free pink cloud, and I'm feeling a bit discouraged and frustrated :blink:

    I've haven't been able to meal-plan yet, so that's been difficult because I am caught in situations where I end up setting myself up (either due to lack of choice, or lack of knowlege.)

    Any advice or feedback?

    Thanks!

  11. I'm the only gluten-free person in my home, and if ever there is more than just me eating gluten free, it's only two of us. I have been Gluten Free for only 10 days now, and I am finding that meal planning is essential to being successfully gluten free (and not caught in a bind!)

    I am realizing more and more that the "swing by the store to pick something up", does not work for being gluten free :huh:

    I could use some quick, easy, & tasty recipes for one (or two) - and any other advice you all can give me. I'm starting to get tired of veggies, stirfrying meat, and rice noodles ;)

  12. I am feeling frustrated and frazzled, and dumbfounded that Houston - which is a very large city, one of the largest in the US, seems to have very little in the way of gluten free dining (especially at an affordable price.) Surely, there has got to be more than what I've come across. I've gone to the gluten free directory lists, and see that they are 3,4,5 pages long, YET ... the majority of those pages are the same restaurant just the 389472 locations in the city :angry:

    So I am going out tonight, and I get to pick the place (Need it to be cost effective, I'm on a budget. The person I am going with does not want Mexican, we recently had Chili's, and neither of us want Souper! Salad) so... what's a gluten free newbie gal to do?

    Help, anyone?

  13. I'm new to being Gluten Free - so my experience is limited, but .... so far, my list consists of :)

    • Enjoy Life "Not Nuts Mountain Mambo" trailmix
    • Dried Fruit Crisps
    • Dried Veggie Crisps
    • Dried Apples (not crispy)
    • Envirokidz Peanut Butter Flavored Crispy Rice Bar
    • Kinnikinick White Tapioca Rice Bread Toasted with Margarine (gluten-free, ofcourse!) and sprinkled with Cinnamon Sugar
    • Plain Yogurt with Millet
    • Fruit Smoothes with Flaxseed
    • Pamela's Chocolate Chunk Cookies
    • Starbucks Vivanno Nourishing Blends

  14. Today is 9 days Gluten Free, and I have been feeling better - for the most part. BUT, I think I am lacking in nutrients, despite trying to suppliment them.

    • My tummy is happier (which makes me happier) but ... I'm not getting enough fiber b/c my food's not, um... moving outward in a timely fashion :lol:


    • My skin is also significantly drier, which is annoying (to say the least.) I drink a lot during the day, and while I've never been great on drinking water, I drink sugar free fluids like they're going out of style :rolleyes:
    • I'm still really exhausted, and my sleep has been thrown off kilter moreso than it already was. It's a different kind of exhausted though. Before I was depleted of energy - not necessarily *sleepy,* and now I have the internal energy to get-up-and-go, but my body is sleepy. Does that make any sense?

    That's about all I can think of at this moment. Otherwise it's just about establishing a routine, especially when it comes to meal planning :unsure:

    Anyone have ideas/tips/experiences for me?

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