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  1. I am always exhausted. Always. I rarely feel "rested" - it doesn't matter if I get 3 hours of sleep or 13 hours, I feel exhausted.

    I almost always want to sleep, and when I do get up I don't want to get up becuase I am so tired. Ofcourse, I do get up because I have to, but that only leads to the perpetual cycle of exhaustion. I feel like I am almost always running on empty.

    Also, being that I have Hashimotos and also have ADD and other general anxiety tendencies, I have to "feel" like sleeping, in order to go to sleep (which is so not condusive to feeling well rested!) And, with my energy levels being virtually nil because I feel cruddy all of the time, if I get a burst of energy at 1am, I'll take it when I can get it (also, not condusive to feeling well rested.)

    Sleeping isn't always my problem, sleeping well - is !

    I know this only adds fuel to the fire.

    Anyone relate?

  2. Hey Guys! Wow thanks for your replies, they were very helpful and informative :)

    ShayFL I have mostly hypo symptoms ~

    Fatigued

    Depression

    Exhaustion

    Constipated/Diarrhea

    Dry Skin

    Water retention/weight gain (although some hypos can be thin like me)

    No motivation

    Decreased Libido

    Feel Cold

    .... and more

    I do have some hyper symptoms, but I don't know why, or if they are from feeling miserable or being hyper, or what. They include ~

    Anxiety

    Hot/Cold Flashes

    Insomnia

    Aggitation

    So, I dunno! Any thoughts?

    JerseyGirl Wow, JerseyGirl your explination was awesome! Thanks !!

    nutralady2001 Good question, she keeps decreasing my medication based on my labwork. She keeps saying "your thyroid levels are high" and then shuffles me out of the office like I'm an idiot and I just need to deal with feeling bad and trust her because she's the doctor. Anyway, I started seeing a NEW doctor (long story, but I was beyond unhappy with that endo!) and he INCREASED my Synthroid (I was on 50mcg and now I am on 100mcg) and had me stop the Cytomel all together. He will re-evaluate me in 6 weeks and we'll go from there. He says it takes 6 weeks for the Thyroid to get regulated at all on any dose (which my endo was scheduling bloodwork every 3 weeks, I was seeing her every 4 weeks.) I do have my results, and can post them for you. She did my free T4 but I don't think she did my free T3 (she did my T3 uptake I believe?) and didn't like me asking questions about results or one test over another, etc. It's been a mess, much more than I'm posting about, but yea :angry:

  3. Thanks, Teresa!

    I was originally Dx with "Pre-Diabetes" (shortly after I had my wisdom teeth out) and told that my thyroid levels were "a bit off but nothing to be concerned about." I began feeling a little better after I was put on medication for the insulin resistance, however after I had my tonsilectomy, my life (and my health) completely fell apart. After being Dx with hashimotos several months back, I have started seeing a new doctor at Baylor (I had been completely appaled at the other doctors and their haste to write me off rather than stick with me to help me.) The appointment went well, and I am feeling a bit better about the way in which the course of my treatment is going for the thyroiditis.

    As for Gluten and/or food allergies, I have not had any tests specifically for Celiac (although I have had other tests for autoimmune disorders, and am told that they are all normal, and I had general skin-prick tests for allergies which were also normal) I can post the bloodwork tests I have had and my results (the tests I posted originally were just the ones that read not in the normal range.)

    I have an appointment on Monday afternoon with the GI specialist at Baylor, and I see my new doctor again in 5 weeks (for the Hashimotos.)

    Thanks again :)

  4. I have started reading "Gluten Free Living For Dummies" and so far, I really like it. It's actually made me go from hoping with every fiber in my being that I do NOT need to adhere to any type of gluten free lifestyle, to thinking that maybe it's not as horrible as I am assuming it to be. I am certainly not jumping for joy, but atleast I'm not feeling as frustrated, angry, and resentful as I was before, which is a start I guess :rolleyes:

  5. So I've been playing the yo-yo game with doctors. It's quite frustrating, to say the least. Not only that, but many of my results always come back abnormal [but when I address it, it gets shrugged off as not a big deal OR, in the current case, I have gotten no explination whatsoever.] I have tried to get additonal tests ordered, but I am assured the tests they are ordering are the ones necessary and capable of diagnosing what's wrong with me, but I wonder if they really are! Over the span on 2 years, I have finally been diagnosed with Hashimotos and Insulin Resistance - yet I am not getting better, infact I have been getting sicker [despite treatment.] Most recently I have parasites, I have a history of H-Pylori, and I have blood in my stool [i see a new doctor one Wednesday, so I want to have a feel for what I should ask, what is and is not relevant in being properly treated, and what could possibly be just a waste of my breath.]

    So the tests I have had [in regards to bloodwork/antibodies and GI tests] ~ which really I have no idea if they have any relevance to possibly having Celiac, or gluten sensitivity, or food allergies, but I thought I'd throw it out there anyway ;)

    I had an esophogram and an esophogeal motility test which were both abnormal, showing reflux, below normal LES pressure (lower esophogeal sphincter). My esophogeal motility was "ineffective" and my "bolus transit" was moderately impaired. As for my bloodwork, my thyroid antibodies were high (however they apparently tested for everything, and no other antibodies came back abnormal). My WBC's and Hematocrit were elevated, my carbon dioxide was low and my eosinophils were low.

    Doesn't mean a whole heck of a lot to me, but maybe it means something I just dont have knowlege about?

  6. Thank you again for your helpful and supportive replies, you have no idea how grateful I am :)

    MissysMom ~ I have that site bookmarked on my explorer. I have looked at some of it, and thus far it HAS been helpful, thank you! I'll definitely be referring to it more often (it is so helpful, infact, I haven't been able to sit down and go through it all!) Thanks again!

    Imsohungry ~ I would like you to go into more details, no worries about overhwelming me. Right now, I am so underwhelmed (actually, undereducated) that I could use some detail, maybe that'll give me more of a sense of direction! So, go for it :P

  7. I have not yet been diagnosed with Celiac [but am fairly certain I have it.] I do, however, have an autoimmune disease, as well Diabetes - so, as for the "cheating," I can relate (I do cheat with my sugar and carbs. I justify my cheating because my diabetes is very well managed and I am in the non-diabetic range) and I also have used food for emotional gratification and psychological release/coping, rather than food as a means of bodily nourishment. For me, in the past, it was to the extreme (a full blown eating disorder) however, there is a broad spectrum of the ties between food and feelings, that are not necessarily eating disordered, rather somehow disordered eating.

    I think to a certain extent, everyone in the world has their vice - what they turn to in times of stress, emotional turmoil, etc. Everyone has their "loophole" and for many the "loophole" is not psychologically or physically threatening. For others, however - it is. When that's the case, therein lies the problem.

    And chances are, the problem is not a matter of mere willpower or mere choice. It's something a bit deeper. You certainly are not alone in this, I think it's great that you took the chance and shared with the forum!

    It just so happens that cases like you (and and me) and many others, we literally cannot afford to cheat. We have much less leeway than others who may be able to afford it a bit more :rolleyes:

    Hang in there. I cannot offer you muc advice, but I can offer my own experience and empathy.

    Anyway, below is something I thought you might find of interest, and might help in your not feeling so alone. I tried posting the link, but it did not work, so I am copy/pasting it (the references and copywright info is at the bottom of the article.)

    *************

    Recognizing an emotional eating pattern

    When you are upset, do you reach for food? When you feel down, do you eat more sugar? Do you eat quickly, more than you intend to or mindlessly when upset? If so, you may have an emotional eating pattern.

    It can be difficult to recognize an emotional eating pattern. If you are unsure, consider keeping a food log for a week: whenever you eat, record the day and time, what you were feeling before you ate, what you ate and how you felt after eating. You may notice a pattern of eating cheesecake when upset, for instance, or eating twice as much potato salad at dinner after a stressful day.

    Food is linked to emotions

    Food is closely tied to emotions. Traditional foods may evoke emotional memories or recollections of special occasions. Contentment is common after a good meal, and eating is connected to childhood feeding patterns and relationships with parents.

    Food is also physiologically connected to mood. Carbohydrates trigger the release of serotonin in the brain, which has an anti-depressive effect. Hunger triggers sadness and irritability, which eating can alleviate.

    Problems created by emotional eating

    Emotional eating can have unpleasant side effects that pose challenges to your wellness. These include feelings of guilt after eating too much, for example, or difficulties staying within a desired weight range. Emotional eating may also be part of a disordered eating pattern such as binge-eating or bulimia. Emotional eating may also contribute to stress if it is used as a way to cope. Instead of coping directly with a source of stress, food may be used to reduce stress or deal with negative feelings. This avoidance-coping tends to be ineffective because the underlying problem is not addressed and continues to increase stress.

    Are you concerned about emotional eating?

    Recognizing an emotional eating pattern does not mean you have to address it. This pattern may be acceptable to you. If you eat emotionally only once in a while, eat healthy foods or eat small portions of unhealthy foods when you do eat emotionally, you may feel it does not pose a challenge to your wellness.

    Changing an emotional eating pattern

    Is your emotional eating pattern posing challenges for you? Are the same sources of stress making you feel upset and turn to food over and over again? Are you concerned about gaining weight? Are you ready to change this pattern? If so, consider the following recommendations. Discern true hunger from emotional hunger. Before you grab a bite, ask yourself if you are really hungry by using the H.A.L.T. acronym. Are you physically Hungry? If so, eat. Are you Angry or upset? Write your feelings down instead of eating. Are you Lonely? Call a friend. Are you Tired? Take a nap.

    Eat well. If you are not eating enough calories, or if you are waiting too long between meals and snacks, you are more likely to eat too much of an unhealthy snack. In addition, as noted, hunger can trigger feelings of sadness or irritability which may lead to emotional eating. Aim for three meals and two to three snacks per day.

    Notice when you are eating for emotional reasons. You may find that just recognizing that you are engaging in emotional eating will help you contain the problem.

    Prepare for cravings. Keep healthy snacks on hand to grab when upset. Keep just one serving of sweets on hand for when you have a craving; having large stores of unhealthy items may make it easier to overeat when you are upset. Do not ban a food you crave; this can lead to a feeling of deprivation and to overeating when that food is available.

    Use problem-focused coping. If you are upset, consider addressing the source of the stress directly. For example, what can you do to change a stressful situation with a co-worker?

    Address your feelings. Write in a journal, talk to a trusted friend, talk to your physician about antidepressants, or consider counseling. Relaxation. If you are stressed, consider using a relaxation technique such as deep breathing or meditation instead of eating.

    Mindful eating. In this practice, you focus completely on the full experience of eating a bite of food. Notice how a food smells, feels on your tongue or in your fingers, tastes in different parts of your mouth or sounds as you bite into it. This meditative technique helps you put the sources of stress out of mind for a moment and helps you fully enjoy eating.

    Want more information or support?

    The following books are excellent resources of tips and information about emotional eating:

  8. Thanks for your replies everyone! I am so new to being diagnosed and understanding Hashimotos (and unfortunately the doctors who are supposed to be treating me, aren't aiding in my becoming well) so ... I am not only still sick, I am also really confused and frustrated. What is the correlation between Hashis, Diabetes, and Gluten/Wheat intolerance? And why is it overlooked so easily?

    I have tried being pro-active about my health, researching on my own, and asking questions, yet that has gotten me nowhere but now having a bad rap with my docs for being dramatic and even a hypochondriac <_<

    Despite it all, and things continuously coming up abnormal, I am not getting very far in understanding, being informed, learning, or action towards actually getting better, and I've just been running in circles :huh:

    I am currently on Synthroid and Cytomel, yet my tests keep showing that I am hyperthyroid, so she keeps decreasing my doses, and for whatever reason I am still as sick as ever (and keep getting sicker) and my antibodies have quadrupled. ShayFL, I had talked with her about Armour Thyroid and I had also tried the pro-active stance with her, asking questions, yet that has not gone over well (it hasn't gone over well with many of my doctors thus far, sadly enough) I dont care how I get better, I just care that I DO get better - and I am not getting better, I am getting worse.

    Can you all enlighten me as to the correlation between the three, and kind of how everything goes hand in hand?

    I feel so ill equipped, and am frustrated because those who I pay to give me a hand in that area.... aren't :rolleyes:

  9. I am new to the forum too, and new to the concept of Gluten Intolerance/Celiac [i have not been diagnosed yet, but I am almost certain I'm dealing with it.]

    I empathize with your denial/diagnoses blues - and I haven't even been diagnosed yet, but the whole concept does feel paralyzing, doesn't it? :huh:

    I don't have much advice to offer you, but having read this thread it seems as though it may not be just as limiting as it seems.

    Take care :)

  10. Missy'sMom ~

    Thank you for your reply, I appreciate it :)

    I am [not-so-pleasantly] surprised that doctors are not more thorough. It's indeed a tragedy, as I think there is so much needless suffering that people go through because doctors seem conditioned to focus on a very narrow part of the big picture.

    Your sister's story is amazing, and from what I understand a common one. I have heard good things about Gluten Free lifestyles, and that they often do a 180 on medical problems.

    I would be interested in hearing other stories similar to mine. I have heard a lot about children with Celiac, and I am reading a very good book right now called "Wheat Free, Worry Free: The Art of Happy, Healthy Gluten Free Living" which is by a woman with a Celiac child.

    I do have a few questions, that you may [ or may not ] be able to answer.

    * Is Gluten free the same as white flour/sugar free (I did that for about a week and a half in the hospital, and at first I went through horrible withdrawls. I was also withdrawing from Caffeine. After the first four days, I started to feel better, actually, but I couldn't keep it up for very long after I discharged.)

    *What causes Celiac Disease? What is the damage [and why?] How does it work? Can my past history be an influence to developing Celiac? How should I talk to my doctor about my suspicians?

    * Is a Gluten-Free Diet hard to adhere to/adjust to? It seems so complicated to me, foreign almost! I can hardly understand all the information/terminology, etc., and from what I understand nearly everything has Gluten in it.

    Well, thanks again for all your help!

    Have a great night B)

  11. Hello Board, I am new here, this is my first post. I am a 28 year old female, and I believe I might have celiac disease. I say that with a grain of salt, because after having suffered with a smorgasboard of health problems, I'm not sure what I have (and I'm not confident the doctors know either.)

    Where do I begin? Well, I suppose I'll start from the present - and work my way back a bit :rolleyes:

    Most recently, I have been diagnosed with Hashimotos Thyroiditis, after bloodwork revealed antibodies and my thyroid ultrasound was pretty conclusive. I have been on a combination of Synthroid and Cytomel for several months, and we've been playing the yo-yo game with my doseages. In other words, I am not feeling better and my body is probably much more confused than ever. I had been diagnosed with insulin resistance in May of 2006, and have been on Metformin for that (and I am wondering if the insulin resistance isn't a result of the other medical problems, and once those are cleared up, the insulin insulin resistance would go away.)

    I have had many GI problems, and have a post history with h-pylori; I also have a lengthy past history with Anorexia & Bulimia. While I have been recovered for several years, it's hard to say what is a result of the damage I have done to my body, and what isn't. What is "normal" and what isn't. I have been diagnosed with IBS, and I have also been diagnosed with GERD and Dysphagia (I am currently waiting the results of a recent esophogeal motility test.)

    My GI issues seemed to go hand in hand with the seemingly endless list of symptoms I was exhibiting (from which I am told stems from the Hashimoto's, yet having suffered for almost 2 years, and having been diagnosed for about six months, I continue to suffer, and my GI problems have increased.) Although the abdominal pain began way before I exhibited symptoms of Hashimotos (but it was assumed much of that was due to my having an eating disorder.)

    Most recently, my GERD has gotten out of control, and I have been on Prevacid for several months. I know if I don't have my previcid, I'm sure to be more miserable than usual.

    I have also noticed over the last couple of months my stools have changed drastically. I have never had "normal" stools, even when I was a kid, but it was never really looked in to. Having had an eating disorder for so long, again, "normal" wasn't an appropriate adjective used to describe my bodily functions. However, now - it's pretty safe to say that something is very wrong, something other than the Hashimotos.

    For example, I have noticed (randomly) that my stools can often smell foul. I mean, foul. I have also noticed that intermittently my stools are either a) very strandy and thread-like B) have what appears to have white spaghetti looking things in it c) have occasionally had specks or strands of blood <--- that has only happened like three times d) often have undigested food e) often have fatty or greasy deposits and f) are either very dense or not well formed.

    I have a doctor appointment on July 2nd (seems as though my life is lived in the doctor's office!) This is a new doctor, and internal medicine doctor. I have many things I have to address with him, and this is definitely one of them.

    I guess I could use some direction, because right now the most help I have gotten is from people who have struggled with such health issues, and not the doctors who are supposed to be treating them :huh:

    It really scares me everything that is going on. It terrifies me, actually. I guess I wouldn't be so scared if there were answers, or a set path or know-how; all the questions left unanswered and the suffering left unrelieved, at times, gets the best of me. It's exhausting, and oftentimes a very hopeless place to be at. Even when I get my pro-active "oomph" so to speak, it's hard to keep at it, when it seems all I'm doing is running around in circles.

    Anyone??

    Thanks,

    ~Jessica~

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