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celiacsista

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  1. You need to make sure they "get it". If you feel uneasy or they seem annoyed or confused....go hungry and eat when you get home. I travel for work too. I usually just but some fruit and veggies, cheese and crackers. I used to get sick way too often. It is so not worth it.

    I went out with a group last night. It was a set menu because of the size of the group. My sister and I both have celiac and called several days ahead to discuss the menu. We were presented with a gluten free menu that they had altered from the set menu. They seemed really on the ball. The side dishes were served seperately for everyone but the waiter assured us they were fine. I had an uneasy feeing when I saw the rice and green beans. Looked like there was soy sauce on them. So I asked. And there was. It is kind of scary to think they seemed so confident and sure our meal was gluten free but didn't even know there was wheat in soy sauce. It was a very high end restaurant too. If in doubt always, always ask.

    I never even thought that vegetables would be cooked in pasta water. Wow! Scary.

  2. Oh my! Eating gluten on purpose is crazy! I mean that nicely. It is very hard to give up the things you used to love. I just hate the way I feel after an accidental glutening. A very good gluten-free brownie mix is "Pamela's" I have served it to gluten friends and they didn't notice. That is always the true test.

    Hope you feel better soon. Remember how awful you feel, that is how I got over wanting gluten treats.

  3. My first question to you would be - How long have you been gluten free? And have you had any accidental glutening during that time? For some of us withdrawl is a very real aspect of starting the gluten free diet. That could be what you are experiencing and it will lift. Also to try and improve you energy levels and also your mood you should take a sublingual gluten-free B12. That will help you a lot through the transition period and beyond.

    I have been gluten free for 2 years but have had a couple of accidental glutenings along the way. I am definitely going to try the B12. Thanks for your reply. It's nice to know I'm not alone with all of this!

  4. Along with B12...Your Vitamin D levels might be low. You can get them checked or it is perfectly safe to take 1000 - 2000 IU daily and GET SOME SUNSHINE which naturally relieves depression. If you are able.....a little exercise can go a long way too. Just a stroll if it is all you can muster.

    THanks for the tips. I have recently been forcing myself to get some exercise. I think I will try the vitaminD and B12.

  5. I know someone posted he had depression and wondered if he had celiac. I know I have Celiac and now am wondering if I have depression. Any tips? I thought gluten free would make me feel better.

    I recently went to the dr to have blood work done because I was so tired all the time. I have no energy or desire to do anything. He gave me a questionaire about depression. I kind of feel embarrassed to talk to anyone I know about it. Any advice would be much appreciated.

  6. I know this is totally disgusting, but if I know I have just eaten something with gluten I actually have made myself throw up and seems to help. I accidently ate flour tortillas in mexico instead of the corn. I couldn't believe how good these mexican corn tortillas were, then I realized they were so good because they were flour!! I decided to get it out of me before it had its revenge. It seemed to help. Of course this is for accidents only, I would never intentionally eat something with gluten and do this. So not worth it.

  7. I totally relate to this. I feel like a slug most of the time. It is hard to get the energy to do anything. It is so frustrating. I think I will try that vitamin b12 tip.

    I find I wake up all night long. Never get any "deep" sleep. It is taking it's toll on me.

  8. I have celiac disease and my 6 year old son is in the process of being tested. He just saw a fabulous dr who explained that the genetic testing is very imortant. If you don't have the genes, you can pretty much rule out celiac diease. The blood tests are not always accurate. With your family history it would be worth checking out.

    But if you have tried gluten free and feel better, that is your body telling you what it doesn't want!

    Oats are generally not tollerated. Try Quinnoa. It is tasty, can be prepared many ways and is gluten free.

    Hope you feel better!

    PS- your symptoms were exactly like mine.

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