HippyGirl84

I am a 24 yr old female and through out my youth and especially in the past 2 yrs leading up to my diagnosis of celiac I threw up all the time, had constant nausea and diarrhea on a DAILY basis. My guess as to why the people in your support group didn't deal with this is because they are not as intensely (outwardly) effected by gluten. I can eat food that is gluten free, but if it is cross contaminated I will be sick for a week or more, while my mother can cheat and take bites of cookie here and there and feel fine....different celiac patients react differently. I have been diagnosed and gluten free/lactose light for a yr, but am still having gas, bloating, malnutrition, nausea, blood sugar issues and fatigue so I am looking into other foods being allergens or things like GASTROPARESIS or some other problem. If non of these other things end up being a problem for your daughter i would maybe look into the vomiting and laxatives as a problem with her relationship with food. I know I struggled with eating disorders growing up and now having severe celiac I sometimes think it's just easier to not eat, or when i think i may have been glutened I am so afraid to go through the agony of getting sick that i have wondered if just throwing up would maybe avoid the agony of sickness. I don't know if any of this helps, but it's hard being young with celiac so i hope your daughter starts to feel better soon!

Hi, I have been living in California for about a yr and a half during which I uncovered the devastatingly long and frustrating truth that i had been suffering from Celiac disease. Being 23, and working to just get by in a big city, I didn't have health ins so i paid out of pocket for the blood work....now I have some insurance and want to see a specialist (b/c after a yr of being strictly gluten free i am still having issues)....

so my questions are:

1. Does anyone know of a GOOD Celiac/Gastro Dr. in the L.A./San Fernando Valley area?

2. Can I see a specialist without my insurance co finding out? (b/c they will drop me if they find i have Celiac...it took me a yr to get THIS ins i have now b/c no one would take me that knew of the bloodwork i had done for celiac!)

3. Has anyone else had severe problems like shaking (sometimes as intense as mini seizures), persisting daily nausea, malnutrition (despite the B12 shots i get every 10 days), teeth enamel loss and incredible fatigue even after a YEAR of strictly monitoring their food intake and being as gluten free as humanly possible?

I appreciate the help! thanks in advance!

HippyGirl84

Hi, I have been living in California for about a yr and a half during which I uncovered the devastatingly long and frustrating truth that i had been suffering from Celiac disease. Being 23, and working to just get by in a big city, I didn't have health ins so i paid out of pocket for the blood work....now I have some insurance and want to see a specialist (b/c after a yr of being strictly gluten free i am still having issues)....

so my questions are:

1. Does anyone know of a GOOD Celiac/Gastro Dr. in the L.A./San Fernando Valley area?

2. Can I see a specialist without my insurance co finding out? (b/c they will drop me if they find i have Celiac...it took me a yr to get THIS ins i have now b/c no one would take me that knew of the bloodwork i had done for celiac!)

3. Has anyone else had severe problems like shaking (sometimes as intense as mini seizures), persisting daily nausea, malnutrition (despite the B12 shots i get every 10 days), teeth enamel loss and incredible fatigue even after a YEAR of strictly monitoring their food intake and being as gluten free as humanly possible?

I appreciate the help! thanks in advance!

HippyGirl84

Thanks so much for the help everyone!

HippyGirl84

Celiac

Gluten Free 1 yr

Lactose Sensitive 10 mo

I have been diagnosed with Celiac for a year now, and in that yr have become a new resident of California where i am having extreme allergies for the first time. Last week I started taking the over the counter "compare to Claritan" generic allergy medicine and was terribly sick with "glutened" symptoms all week. Upon glancing at the inactive ingredients I saw one listed as "postgelatinized starch". From what I could find on the internet this looked as though it was a form of Gluten. I was wondering if any one knows for sure? Or what over the counter/or RX allergy meds are gluten free?

Thanks!

HippyGirl84

Celiac 1yr