crunchy-mama

Oh, my goodness- you are a superstar! This is - just awesome. The best thing is the possibilities that it opens up. I can now see keeping this prepared and when we go to bar-b-ques or other functions I can have some safe bread for us in a hurry. Luke was so excited and I am beyond tickled that I got to have a blt on actual bread. The ingredients are nice whole ingredients as well- I would like to figure out the oven thing as well as it would be cool to do several at a time (plus I prefer not to use it as well) and have them frozen for quick meals. I used the recipe just as wrote- exactly for 90 seconds and it was perfectly done and popped right out. I got 3 slices out of one- although if my pan had straight sides it might have been just 2- will have to look for some more custard pans as I have broke most of mine.

oh- and I have to link this to another allergy forum- I didn't want to type it up like it was my idea!

Oh, my goodness- you are a superstar! This is - just awesome. The best thing is the possibilities that it opens up. I can now see keeping this prepared and when we go to bar-b-ques or other functions I can have some safe bread for us in a hurry. Luke was so excited and I am beyond tickled that I got to have a blt on actual bread. The ingredients are nice whole ingredients as well- I would like to figure out the oven thing as well as it would be cool to do several at a time (plus I prefer not to use it as well) and have them frozen for quick meals. I used the recipe just as wrote- exactly for 90 seconds and it was perfectly done and popped right out. I got 3 slices out of one- although if my pan had straight sides it might have been just 2- will have to look for some more custard pans as I have broke most of mine.

I am so excited to try this- I am craving a blt-sooooooo very bad and so do not feel like making a whole big loaf of bread and refused to by the overpriced nasty hfs variety.

hmmm, this is all so interesting. I had PUPPPs during my first pregnancy (which seemed to also trigger a gluten intolerance or IMO Celiac's disease that had been latent for a bit). I don't remember the symmetry of it. It started a few weeks before my due date- on my tummy then down my thighs and up my side and under my arms. It didn't go away until at least a month or so after I had my baby. It was so incredibly miserable- much sympathy.

Hi. I am a new member, and am wondering if anyone has dealt with an infant so young with severe food issues. Morgan is soley breastfed. I started noticing increased duration and intensity of crying at 1 month old along with a change in stool to almost watery honey mustard consistency. I began taking things out of my diet, dairy, nuts, tree nuts, egg, soy, & chocolate. Morgan contiued to be extremely "fussy" and now noticed a redness on his cheeks with nursing as well as a rash on face and arms. The only allergenic food left in my diet - wheat. Took wheat out and rash cleared up, redness went away, poop stayed the same. Added oatmeal, within 3 days, rash back, really fussy....Took all gluten out of my diet, Morgan is a different baby. Finally sleeps 4-5 hour blocks (used to be 1 1/2 - 2), no rash, happy, BM every 2-3 days, thicker. Long story to ask if anyone else has ever heard of this in a child so young, especially since the amount of gluten getting through in the breastmilk can't be that much, we have not started solid foods and plan on contacting a pediatric allergist prior to starting solids. Any guidance would be appreciated. Thanks.

I don't have personal experience w/ little ones reacting to gluten- my little ones did react to milk nearly immediately. However, I know many other moms on other boards reacting to any number of foods- including gluten.

My 4y.o. is going on day 8 of being gluten-free/cf. His symptoms (behavioral) are way worse instead of better. He was sporadically peeing the bed when he had something to drink right before bed, now it has been nearly every day. He has also started peeing himself out of defiance and has just been a nightmare. The stools got better and then worse. I am thinking there are other issues going on w/ perservatives and colors etcf(we are going to be starting the feingold diet as soon as it comes in the mail). But I am also wondering what the range is for symptoms to subside. This week has been so hard. I do have to add that it seems we are having a harder issue getting the casein out. We had some chocolate chips for a few days that were marked as cf but then we got a recall notice. He got some gum one day and then yesterday 2 bites of ham w/ trace dairy. Please! Please! Tell me about your child's recovery.

I would say forget the solids for now. If he still has a gag reflex like that it is a sign that he isn't ready. It is a heck of a lot easier to pinpoint the allergens when it is just one diet you are tracking. I would focus on nailing down the allergens/intolerances first. You do not have to introduce solids now, I trust their bodies to tell them when they are ready. When Luke was 15 months I went back to exclusively nursing him as I was having too much difficulty tracking down what was bothering him and it seemed everything bothered him. I exclusively nursed him from 15 to 17 months and until 2 I was 95% of his nutrition. He eats well, even better off of gluten and dairy. He also has a lot more varied palate than any other kid I know and is not like a lot of kids who will only eat certain kiddie foods. I never bought baby foods, just gave him our own. I believe int he principles of self-feeding though. I am staunchly against baby foods. So, that is another point of view. Peds are given little training in nutrition, you are his mom, it is your choice. You do the research and decide what is best for your family.

I am wondering if people could give me an idea when they saw improvement in their kid on the diet. Luke is df/cf. I started him on 10/7- today is day 5. Bowel movements has been down to 1 a day (I think the first time ever). First day it was pretty well normal. Then 2 days of a real messy stool. Yesterday was slightly lose and today was entirely normal!!! His sleep has still been disturbed though, lots of talking and tossing and turning. His appetite has been good.

The thing concerning me the most though is his behavior. He has been atrocious. I don't know how else to say it, he has been NASTY, especially to his little sister, very physical. Also, seems to be having depression issues still. Today he went on again about how he wants to be a new boy and held a knife to his wrist. Seriously. On day 2 he got some gum w/ a milk derivative and yesterday found 1 peanut m&m and had it ate before I could stop him.

I know it showed up as him being gluten and casein intolerant, but I am wondering if there are other issues as well. However, I want to be sure what food is causing what issues.

So sorry, doctors can be so frustrating. I ended up doing enterolab's testing to get some kind of answer as our ped wasn't concerned about any symptoms once he saw that he was still on the charts (although at 10% when he was a BIG baby) and has lost weight- not to mention everything else.

Well, like the others said you don't need anyone's permission to the diet. I would push as hard as I could for testing though. It seems crazy to me that dr's could just treat the symptoms w/o even trying to figure out what is wrong. It is not normal to be constipated. One should not have to take fiber everyday. Follow your instinct.

How great for you to continue nursing, kudos to you! I would vote it is detox or perhaps something else is bothering you more now that you are gluten-free free. Milk seems to cause insomnia for me. I would love to get testing done for myself as well. Dh said maybe we could get %$#& kits for Christmas.

I wouldn't necessarily be concerned about the number, but considering you say you have a high carb/low protein diet I would be concerned. I would focus on upping the protein- aiming for 90g or so a day and also cutting the sugar and carbs way back. Eggs are really good for pregnant women. Also, make sure you are getting in plenty of good fats- especially those Omega 3s- upping your fat and protein should help w/ the sugar cravings. Also, eating so much carbs and sugar puts you body out of whack - making a good ground for candida to take over- which can lead to thrush issues after baBY is born. That being said I followed the Bradley diet w/ number one and ate way carb heavy- thought I was being healthy eating all that whole wheat toast- hah. I did get lots of good food in and good protein, but too much sugar on the side. I gained 55 lbs and had lots of pregnancy pains and tiredness. Second time around I ate mostly gluten-free/cf diet (except for keifir) tried to keep low grains and low, low, low sugar. I exercised my full pregnancy (did the first time too, but was able to keep it much more upbeat this time). I felt great all the time. Seriously wonderful, w/ hardly any pains. Gained 35 lbs. I feel great about that. Normal range from new info I have read suggests 25-35lbs or more if on the smaller side, less on the larger. also, although no one should diet during pregnancy eating healthy is always good and it will make it easier to lose the weight later if you just gain what your body needs!!

thanks so much I have been looking for this!

My first guess would be dairy, that is the #1 problem food. I would eliminate it first. Then I would try gluten-free if that didn't work. However, you have to give it at least 1 month, it takes a while for it to get out of your system. You didn't say exactly what foods you eliminated, but if dairy was on the list you have to make sure you get rid of ALL traces and hidden amounts- just the same that you would if eliminating gluten. If not you will not get a true answer. I would be very leary of soy as well.

so glad to read this. ds had normalish poo yesterday (first day cf/gluten-free) but it was super light. Today he had real lose stool- but he had got some gum that had a milk derivative that I wasn't aware of- anyone know how long to expect for little ones to straighten out?

I have thought and thought and prayed and prayed some more on this. I really appreciate the input. I had been praying for some signs from God a clear signal that this diet is what he needed. I have my answer. I cannot continue to purposely gluten him for the purpose of getting official approval. The thought is crazy. I think his levels likely wouldn't be picked up on the blood tests and both dh are opposed to the biopsy. I just have peace now that this is the answer I was looking for and wanting. I am starting today to document this journey w/ pics and his height and weight. I will be journalling his mood and behavior, sleep etc. I feel resolve today. I feel sad today as well though. I am grieving, but we will make this.

Here are some more specific questions I have. since he is not showing malabsorption yet does that mean he is less likely to show up positive on mainstream tests? It is my understanding that the stool tests are more sensitive than the blood? Does this also mean that he is more likely to have a negative biopsy as well? Do his numbers indicate that he would be more or less likely to have accurate blood tests? Any thoughts? Pretty, pretty please!

We just received our results for his enterolabs testing:

Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA 30 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 22 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 18 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0302

HLA-DQB1 Molecular analysis, Allele 2 0301

Serologic equivalent: HLA-DQ 3,3 (Subtype 8,7)

Interpretation of Fecal Antigliadin IgA: Intestinal antigliadin IgA antibody was elevated, indicating that you have active dietary gluten sensitivity. For optimal health, resolution of symptoms (if you have them), and prevention of small intestinal damage and malnutrition, osteoporosis, and damage to other tissues (like nerves, brain, joints, muscles, thyroid, pancreas, other glands, skin, liver, spleen, among others), it is recommended that you follow a strict and permanent gluten free diet. As gluten sensitivity is a genetic syndrome, you may want to have your relatives screened as well.

Interpretation of Fecal Antitissue Transglutaminase IgA: You have an autoimmune reaction to the human enzyme tissue transglutaminase, secondary to dietary gluten sensitivity.

Interpretation of Quantitative Microscopic Fecal Fat Score: Provided that dietary fat is being ingested, a fecal fat score less than 300 indicates there is no malabsorbed dietary fat in stool indicating that digestion and absorption of nutrients is currently normal.

Interpretation of Fecal anti-casein (cow's milk) IgA antibody: Levels of fecal IgA antibody to a food antigen greater than or equal to 10 are indicative of an immune reaction, and hence immunologic "sensitivity" to that food. For any elevated fecal antibody level, it is recommended to remove that food from your diet. Values less than 10 indicate there currently is minimal or no reaction to that food and hence, no direct evidence of food sensitivity to that specific food. However, because 1 in 500 people cannot make IgA at all, and rarely, some people can still have clinically significant reactions to a food antigen despite the lack of a significant antibody reaction (because the reactions primarily involve T cells), if you have an immune syndrome or symptoms associated with food sensitivity, it is recommended that you try a strict removal of suspect foods from your diet for up to 12 months despite a negative test.

Interpretation Of HLA-DQ Testing: HLA-DQB1 gene analysis reveals that you have one of the main genes that predisposes to gluten sensitivity and celiac sprue, HLA-DQB1*0201 or HLA-DQB1*0302. Each of your offspring has a 50% chance of receiving this gene from you, and at least one of your parents passed it to you. You also have a non-celiac gene predisposing to gluten sensitivity (any DQ1, DQ2 not by HLA-DQB1*0201, or DQ3 not by HLA-DQB1*0302). Having one celiac gene and one gluten sensitive gene, means that each of your parents, and all of your children (if you have them) will possess at least one copy of a gluten sensitive gene. Having two copies also means there is an even stronger predisposition to gluten sensitivity than having one gene and the resultant immunologic gluten sensitivity or celiac disease may be more severe.

Now, I see that he for sure has a gluten sensitivity. What I am wondering is whether or not to pursue blood tests to try and get a definitive Celiac diagnosis. Does anybody have any thoughts? I know that if I don't do it now it won't be able to be done later. I am very happy in a way, odd as it sounds to have my suspicions confirmed.

that is awesome! nice not to get sick and not to get harassed is even better.

I would do coconut milk if possible as it has lots of good fats. Or the almond or hemp. Or just skip it, really it isn't necessary.

I did some chicken w/ sorghum and potato starch and they were super yummy (imo)!

My tummy hurts!

I have been gluten free almost three months. At first it was really hard, and I still had the gut wrenching pain. It was terrible. I actually felt worse than I did when I was eating gluten. Now that has passed, but my tummy is totally bloated! What gives? Is it the dairy? That was never a problem before... Is it the soy? I read through some of these posts and get frustrated. I feel like once I feel better and get the hang of something, some other pain begins. My tummy really is pooched out. Not a pretty sight. And it is uncomforatble. It seems to get worse towards the end of the day. Ug! What to do?

Today I had rice waffles that I made and froze a few days ago, with natural peanut butter, a green salad with balsamic vinegar and olive oil, a small cup of yogurt, leftover pork that I made in the crock pot yesterday with some nut thins, and a decaf ice tea. I did have two cups of starbucks coffee this morning, but it hasn't bothered me before. I also drank lots of water today. I am frustrated because I am forced to cook all of my own meals which is hard working full time with three very young children, and I am still getting sick!!!! Dang!

What should I try next?

I would say try the dairy as it seems to be an issue w/ lots of Celiacs (sometimes temporarily, sometimes not). I didn't have a big issue w/ dairy but since going gluten-free it is much more pronounced.

If I remember right the Rice Dream milk is NOT gluten free. Something to look into.

I could really relate to this thread. I have done this many times in the past. I got glutened a few days ago and again I felt it, I wanted to do something, but I couldn't bring myself to even get up, no energy or motivation. I had a vacation in May and decided I would let myself eat whatever. That set off a 3 month long cycle of depression- food binges and lots of laying around on the couch. I stopped working out. I was angry and mean, the house a mess. It was horrible now.

Well, no stores around here carry that! I can find the SOO Delicious Soy that isn't too bad, but would prefer to not have soy.