woolster

You may need probiotics. There is a strong relationship between celiac and the buildup of bad bacteria in the gut. Also, many people cannot produce adequate digestive enzymes until the small intestine heals. If you have not read "Celiac Disease: a Hidden Epidemic" by Dr. Peter Green, then try to find a copy. And I second Shay's advice about checking out the Specific Carohydrate Diet, and Deb's advice to stay away from heavy, spicy stuff for a while. Good luck. Things will get better.

I am seeing the dietician tomorrow (at last!) so will definitely ask about probiotics. Thanks for the tip. I have also found the book you refer to on Amazon so will get that ordered!

In response to Janiney - I am actually starting to feel better by the day so hopefully you might too! We have become a gluten-free household and I have really been watching what I eat - so nothing spicy, or too heavy, lots of rice, vegetables and white meat and fish. This is by no means advice because I am a complete novice, but being strict with myself and sticking to a plain diet for over a week now has seemed to help me. In terms of cosmetics, I read that you are okay with them as long as it is not going in your mouth - so check the ingredients of anything you are putting on your lips. I have stopped using a spray for my hair because it has wheat germ in it - I figured that I may breathe it in if it is airborne! You should be able to just check the list on the packaging. I have heard that a tiny amount of gluten can cause symptoms - it depends I guess on how sensitive you are to gluten.

In terms of soy, I realised I had a problem with soy a couple of years ago so haven't touched it since. It might be worth you trying cutting it out for a few days to see what happens? I use rice milk which I find okay.

Good luck with it!

Are you on any meds? If so have you checked the gluten statis of those meds? Are you living in a gluten household? Many of us become more sensitive to small amounts after we have started the healing process. Be sure to check you toiletries like shampoo and lotions they can also be a source of CC.

I'm not on any meds so can rule that out, but I will check toiletries - thanks for the tip. My partner eats gluten so I guess I should look into separating out food and cooking utensils a bit better. I really hadn't realised I could be so sensitive to even small amounts of gluten! This is a steeper learning curve than I thought it would be!

You can also look into the SCD (Specific Carbohydrate Diet) which is gentle on the intestines and can help in the healing. I personally do not believe you would need to be on this diet forever. But if after 2 or 3 months of good results, you can start adding some of the things you like back in (except gluten and maybe dairy).

I haven't heard of the SCD - I'll look into it though. Is this something you tried?

Another question, since the gastroscopy I have developed asthma symptoms - tight chest and a bit of a cough. Has anyone else experienced this? I don't know whether it is something completely different and just a coincidence or whether it is related to cutting out the gluten.

Thanks all for your help!

Thanks for the response and the advice...I have always had issues with dairy in the past, but when I was diagnosed with coeliacs I thought, well all my issues have been with gluton, so I must be able to eat it. So I have had a couple of dairy things in the last month but have had reactions within an hour. I read that new coeliacs can have sensitivity to dairy so figured I would cut it out for a bit. The soya I have always had issues with so I guess thats nothing new. And the sugar and alcohol I just figured it might be a good detox so I could see what was really happening with my energy levels. I have gradually been cutting out more and more as the month has progressed as my stomach has been getting more and more sensitive. Maybe I'll stick with chicken and rice for a few days and see what happens.

Hi, I was diagnosed with coeliacs a month ago, and although I felt a bit better immediately, since then I've just felt worse and worse. My insides seem so sensitive and some days I really struggle to keep food in for very long! I am waiting to see a dietician but don't know what to eat in the meantime - I'm feeling really down and not really wanting to eating at all because it's just making me poorly. Does anyone have any suggestions of what I should be eating to settle my stomach? I have cut out gluton, dairy, soya, sugar, and anything remotely tasty!

Thanks!