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About Marie2375

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  1. We grew up eating this for dessert. My Grandmother calls it Chocolate Delight. It is really, really, really good! My favorite layer is the one with cream cheese. We never used vanilla pudding though. Our layers are crust, cream cheese/sugar/cool whip, chocolate pudding, Cool whip again. Sprinkle toasted pecans on top. I have not made it gluten-free yet, but I've been thinking about it!
  2. I need them to be egg free/nut free as well. Triscuits!!!! goldfish crackers ritz crackers oreos (Kinnikinick has some that are k, but there is a cc risk with eggs. Jo Sef has some but they aren't sweet enough.) Krispy Kreme glazed doughnuts. saltines yellow cake that doesn't have the consistency of pound cake. Chips Ahoy cookies. (I can make a wonderful chewy choc chip cookie. I want a crunchy one now. greedy, greedy!) croissants phyllo dough I do feel greedy making this list. There are so many things that my family CAN eat, that we all love. This is list is more like icing on the cake!
  3. Barry Farm Foods sells it too. I bought some with my bulk order of sorghum and tapioca. I have used it in pancakes, muffins and graham crackers. Carol Fenster uses it in some of her recipes. I have the 1000 gluten-free recipes cookbook. I borrowed it from my library before buying it. So, check you library and see how you like the recipes.
  4. The manager at our local cheesecake factory has Celiac. She said that the Godiva cake is NOT gluten-free. I think she said that the pan is dusted with wheat flour.
  5. She has a cookbook coming out in May. I have used a couple of her recipes. They were both really good. We love the chocolate chocolate chip cookies.
  6. As far as follow-up frequency goes, Univ MD likes to see you 6 months after dx, then yearly after that. Of course, you can make other appts if needed. They order blood work about 2 weeks before the appt so it will be available when you get there. This is post dx, not screening. Any blood work for screening purposes will be done at your appt. My husband has celiac disease. All 3 of our sons have had the Celiac Panel and the gene test. Two of them tested positive for the gene with mixed results on the panel. My husband sees Dr. Fasano at the U of MD Celiac Center. My sons see Dr. Safta. (She sees kids. I don't think Dr. F does that anymore.) Dr. Safta is very nice. She will listen to your concerns and answer your questions. She also respects your choices as a parent. They do have a very conservative stance on dx celiac disease. My youngest ( 1yr) has the gene and elevated IGA antigliadin antibodies. He also had never had a solid poop. His biopsies came back negative, so she will NOT dx him with celiac disease. She agreed that it is fine for him to be gluten-free though. Her advise was to keep him gluten-free and do a gluten challenge with a repeat biospy when he is between 5 & 7 years old. She also reminded me that a lot of research is being done, so by the time he is 5, there might be other options available. After a lot of discussion, she did agree that based on his family history, symptoms, gene and response to the diet, he probably does have celiac disease, or is developing it. He also has low iron. She said that if his iron goes up on the gluten-free diet, that is another indicator that he has celiac disease. Hopefully that gives you an idea of what to expect if you do go there. They are kind and flexible, but also cautious when it comes to diagnosing. If you do decide to go, expect to wait a while for an appointment. You have to schedule new patient appts about 2 months ahead. Also, they no longer do gene testing through Prometheus labs. They had a lot of problems with billing for them, so they use Quest and LabCorp now. If you get lab work done, they can do the blood draw there. The lab techs are AWESOME. They are nice to the kids and FAST. It takes forever to get the results though. They tell you to wait 3 weeks before calling. I usually call after 2 weeks and they have the results already. It seems to take a while for them to process them though. If you decide to go there, feel free to PM me any questions. I can give you the low down on parking, vending machine locations, etc. LOL
  7. We just had 2 of our 3 boys tested. The other will be tested in January. We used the Celiac PLUS test from Prometheus. If you do that test directly through Prometheus, it costs $799. Our GI has some sort of contract with our insurance so that if our GI does the blood draw, the insurance will pay for some of test. The Celiac Plus is the standard Celiac panel plus the gene test. For one son, the GI sent the entire test to Prometheus. It looks like we will be paying $260 out of pocket for his test. For the other son, they sent the Celiac panel to Quest labs and the gene test part to Prometheus. It looks like we will pay $91 out of pocket to Prometheus and about $25 out of pocket to Quest. I am not sure why they split this son's test. Maybe they did it because he was having some other blood tests done through Quest. The other son was only getting the Celiac Plus. We had to get the blood drawn by our Pediatric GI. If the blood draw had been done by our regular pediatrician, our insurance was not going to cover it. So, the short answer is that it depends on your insurance, your doctor and what lab you use.
  8. They should have the Celiac blood panel done. If it is neg, they should be tested every three to five years. If they do start showing symptoms, get them tested right away. I "needed" to know if my kids have the gene or not, so we have had the Celiac PLUS test (through Prometheus) done on two of them. The third will get his in January. Our insurance is covering most of the cost because we had the blood draw done at our GI's office. One son did NOT have the gene. The other has the gene and elevated antibodies. His endoscopy is scheduled for tomorrow. If the blood panel is negative, they won't do the endoscopy unless they have some other reason to do one.
  9. Check the flouride! I don't know about rinses, but our dental hygienist said that the gel they use DOES contain gluten.
  10. So, HERE is the link: http://www.marylandceliacs.org/ Also wanted to mention that Wegmans in Hunt Valley has an entire aisle of gluten-free products. They sell Mrs. Leepers pasta, which is the best in my opinion. Whole Foods has some things as well. There is a bakery in town, Sweet as Sin that makes gluten-free cakes and cookies. They sell them in Wegmans and a couple of other places. On their website, they state that you can buy a cake from them and have it decorated by Charm City Cakes. I would suspect that cross-contamination would be an issue, not to mention the price, but it is a nice gesture. Also, at the Don Pablo's in White Marsh, there is a manager who's mother has celiac disease. I can't remember his name, but he is usually there at night. Rain Forest Cafe in Towson is very good about checking ingredients. I'm sure it is all pre-packaged. Sorry to all the non-Baltimoreans for the city-specific posts!
  11. I really don't have any advice, but I live in the Baltimore area as well (Rosedale). My husband is a patient of Dr. Fassano and one of my sons is a patient of Dr. Safta. We just joined the Baltimore Celiac Support group. In Sept, Dr. Fassano spoke at their meeting. This month, the speaker was Pam, from Dr.F's office. This group also has a group just for kids. I e-mailed them today to see if they have anything for babies. I know they do activities with the older kids. I have been cooking gluten-free since August, so if you want to PM me, we could exchange e-mail or phone numbers. There are a number of gluten-free cookbooks in the Baltimore County library system. I don't know what is available in the city. Here is the link for the Baltimore Celiac group. The info for the kids group is on that site.
  12. My Dh was recently dx with celiac disease. A couple of months ago, when I went to the Melting Pot, the server said that they dust their cheese with flour to prevent clumping. Not sure why, since they will be melting it! Dh recently read that Melting Pot is developing a gluten-free menu. At our local MP, you can omit the bread, skip the cheese fondue and bring your own broth for the main course. We have discovered that it is pretty safe to eat at our local Don Pablos. (If it is very busy, the servers will bring out the wrong tortillas for Dh's fajitas. We have on ly been there 2x since his dx.) Don Pablos has a gluten-free menu AND the manager at our local DP is related to someone with celiac disease (his mother). So, he totally gets it. He said that their chips are fried in the same oil as wheat items, but they cook the tacos separately. So, they bring out a few tacos for DH to have with the salsa and he gets his own cup of salsa.
  13. Could it be a fructose intolerance? A friend of mine recently told me about this. Apparently it is common in people with IBS. A small number of people with fructose and lactose intolerance also have celiac disease.
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