mom2twoangels

Hi,

I may have to put my daughter in preschool soon, I am trying to think of what I should send for her lunches. Any ideas?

Thanks

HI all,

I just wanted to say thanks for the reassurance about plain rice. Sometimes it is hard that it is my 3 yo that is celiac I am worried something may be upsetting her tummy and I won't know. I try to for the most part buy products that state gluten free so I don't have to worry about her.

Thanks!

well, I was at the store and most of the uncle ben's stuff I read didn't look ok, maybe I was just looking at the seasoned ones? Then I started worrying that Rice was processed with wheat (like oat) if not that is great!

Hi,

If anyone has some safe brands of rice I would appreciate it!

Hi,

My dd was 2 1/2 when she had hers. Here blood tests were extremely positive but I wanted to know for sure before making a life long decision for her.

They had her drink some stuff to relax her before they took her back I got to sit with her while it took effect, she got really tired and reallly silly - was kind of odd seeing my 2 year old like that.

They said they weren't going to intubate her but they ended up doing it anyway. We weren't happy about that. When she woke up we got to go back with her - she was calm for a while and then she got pretty crabby for about an hour, after that she seemed fine other than her voice was funny for a few days we figured sore from the tube.

Our GI said it looked enough like celiac to go ahead and go gluten free before we even got the biopsy results - which were also positive

Hi,

so it is my daughter who has celiac and she is ony 2 1/2 so I'm not sure if certain things are bothering her or not.

I was using Mission tortillas as they had a gluten free statement on the label - they just changed their packaging and now that label is missing - has anyone had trouble with these?

Also I purchased Reesers (Baja Cafe) Taquitos as it read safe but I have been worried about giving these to her - has anyone had trouble with these?

Thanks!!!

HI,

Thanks, I think I will call before I give her that kind again.

She had three terrible diapers (won't go into it) and then she started eating again. I guess I'll never know why.

Other than prior to her Celiac diagnosis and when she was little and we discovered a couple of food intolerances she is typically pretty consistant within certain limits.

I guess that is why my brain jumps to foods.

At least she's eating now - thanks again,

Can you list the ingredients on the yogurt?

Cultured Pasturized Grade A Reduced Fat milk, Vanilla bean base (Sugar, Water, Modified Corn Starch, Natural Flavors, citric acid, vanilla beans) Sugar Modified corn starch kosher gelatin.

so maybe natural flavors -

Dr's dont think it is the fork and they don't think it is gluten issue either. Ped thinks constipation - but I just don't think so she is still barely eating 4 days later.

Ug just when her weight was coming up so nicely since our diagnosis...

Is Jello gluten free?

prepackaged kind?

Hi,

For the last 2 days my daughter has refused to eat hardly anything she will drink her milk and juice but that is it she won't even eat her vitamins that she loves.

To confuse the matter about 8 days ago she swallowed a peice of plastic fork. it was a small piece and the ER said it should pass fine. I have tried to "look" for it sorry TMI and haven't seen anything.

Before we were diagnosed she has gotten really ill (from the celiac) and was refusing to eat - however she said her tummy hurt all the time - now she doesn't say it hurts she just won't eat. Behavior wise pretty ok, maybe more sensitive.

So if I did do it how - I do have gluten stuff in the house but only use it for my son's lunches (school here has been out so that stuff hasn't even been out at all) and some things my husband likes for dinner - only prepared in separate pans after the kids food is all cleared up.

She did have 2 new kinds of yogurt - one states gluten free the other does not but reads ok? - could that be a possibility? The other thing she ate more of than usual was the Tomato soup - The one from Heinz that I thought was gluten free? I really don't know what could have done it, worried that if I don't figure it out I will just keep glutening her...

I will be anxious to see others respones on this. I have just started calling preschools for my daughter she is 2 1/2. I talked to one that was saying they don't allow people to bring in their own food when I explained about the wheat they agreed to make an exception. I haven't visited it yet - UG. I do have experience with my older son and his Ige allergies to nuts and his preschool experience. With him we quickly learned we couldn't trust others to remeber or be diligent enough about labels etc. We had to go no food from anyone but us (ie your lunch / snack bag) and thats it no exceptions. Our preschool used mats for food times then also wiped down after eating. Oh and the kids also wash hands before going back to the work / play area.

Can you get them to clean up better? there are reciepes for non-wheat play doh could they try that?

It is a challenge.

Hi,

Wondering if there are any enchilada sauces that are safe? I used to use a can and a powdered variety mix. I tried a new one that seemed to read safe but I didn't like it. (my daughter is Celiac not myself). I would like to find one safe for the whole family and would rather not make it from scratch if I can help it.

Thanks,

My dd had slipped from her usual 50% for wieght down to about 15%. She has gained 3 lbs in three months since going gluten free, she is only two so I think that is great progress. I think her height is up about an inch as well.

For us it seems to be happening quickly

Thanks for the pizza tip and the Chebe tip too, I haven't got to try it yet. My dd's are not Celiacs but are allergic to wheat. I used the above link for restaurants and googled Nampa which Darcy's bakery came up. My 20 yr old just got a great bf so I was glad to know Darcy's does gluten-free wedding cakes....you never know when you might need one and they are pretty hard to find

Sure no problem!

My husband will even eat the pizza crust so it must be ok. I do roll it out super thin. The kids didn't like the foccasia bread though. It is pretty amazing that you found a local bakery that will do gluten free I am definitely going to have to check it out. My son has Ige allergies to nuts so we haven't eaten anything from a bakery in 3 years but if they can do gluten free safely maybe they would have options that would be safe for him as well.

Oh and I forgot to mention Pier 49 pizza says they have a gluten free crust. We are also avoiding Rice so I havn't tried it but thought I would mention it.

Hi,

I was going to respond to this thread and was surprised to see so many folks from the Boise area. I have only been doing gluten-free for about 3 months and it does start to get easier. My 2 year old dd was diagnosed in Oct. It has truely made a world of difference for her. Once your kid starts feeling better it will all seem worth it! We have other food issues and can't use many of the commercially available products. My kids like the Chebe pizza crust though you can find it at Jakes.

I want to say thanks to everyone for all the great info, A BAKERY in nampa wow I'll have to check that out.

I am also on a local support group for kids with food issues. I think I might be the only one on there dealing with celiac but I would be happy to share the group's info with you.

Congrats!

Us too, my dd was about 28 months when she got sick over the course of a a month she lost 2+ lbs I don't have a copy of the growth chart but it didn't look pretty, a straight drop down. Now 3+ months gluten free she has gained about 3 lbs I think she is taller too but don't have an acurate measurement.

It is like a miricle she went from so sick she wouldn't even play, telling me her tummy hurt about 100+ times a day and would only sit on my lap to running around being a regular 2 yo.

I am very thankful everyday

Hi,

My 2 yo was recently diagnosed and I was wondering if there are any fast food items that are safe?

Thanks,

Hi,

So I am pretty new to this still, hasn't been a couple of months yet. My daughter is only 2 1/2. I am pretty carefull but I do allow gluten products in our house (eaten at one spot on the counter). I get so confused when she has anything going on with her tummy. Her poops have changed so much I don't even know whats normal any more. I thought at first she was sensitive to dairy so I changed her to soy. Then she stared having more frequent poops so I reduced that and started her on Lactose free milk. That seems to help. But she is still getting tummy aches now and then, I don't know if it is dairy (letting her have tiny amounts) or soy or if she got gluttened?

I'm so confused,

My son had a reaction to cross contaminated bakery bread that didn't have any nuts on the label. After that I did some research I found there are studies that say up to 10% I think it was of products that say either may contain or manufactured in a facility do contain the allergen although I think the study I read was limited to peanut. Not to meantion that bakeries are a huge source of cross contamination. It really is a huge learning curve.

Until your child has a reaction to such small amounts you really don't know just how vigilant you have to be. Try not to be hard on yourself.

Thanks!

any suggestions on what to sub for the Rice Flour?

Hi,

My 2 1/2 year old has only been diagnosed for about a month. She still misses Goldfish crackers and Teddy Grahams. I was wondering if anyone has an receipes that would mimic these? I was thinking I could try and get some mini cookie cutters for the shape. But neither one of my reciepe books has anything that is chocolaty and a stiff enough texture that I can roll it out etc. I am about a 50% flop on gluten free baking so far as it is - so any tips would be appreciated.

Oh and our other limitations we can't do nuts or Rice.

Even when we are in the gluten free store she wants the shapes cookies but they all seem to have rice....

Thanks,

Hi, I just wanted to say thanks for posting. I have been trying to find foods that are safe to have around my son who has Ige allergies to nuts and that are ok for my Celiac daughter. I was lucky that when I saw these at the store they had the one with nuts stocked right next to it so I didn't go there but I could have it I hadn't notice it. Did the lable say anything about being made on the same equipment or anything? If not I would call the company and complain. I might even call the FDA since your son did have a reaction to it.

I agree it is crazy where foods show up

where do you get dried mushrooms?

Thanks,

Hi,

I agree that it is personal choice. For us I had to be 100% sure before I put her on a lifelong path. We already have several other food allergies and intolerances so to avoid another food is a big deal in our household. That said, our GI was super great about getting us in - we went for the biopsy the day after we saw him - so it was only one day where I really felt like I was poisoning my baby it was hard but worth it. If you do decide to do the biopsy I would call the GI beg for the closest appt. and even ask if they could get you on the biopsy schedule right then. If they have the correct blood work I would hope they would work with you. I did ask how many places he would be sampling I think ours said around 8

It is a bit more complex than it seems at first - for instance is your whole household going gluten free if not many recommend thing like separate toasters and baking sheets etc. Baking, School going out to eat all become a challenge and so on.