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still tiredofdoctors!

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About still tiredofdoctors!

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  • Gender
    Female
  • Interests
    gluten-free Cooking (!), Sewing, Gardening, Scrapbooking, Research -- I guess I'm one of those "life-long learners"!!
  • Location
    Southern Indiana

  1. Hi Joyce,

    I agree with Gemini -- your doctor is a moron. Shingles is EXACTLY that -- re-emergence of the herpes virus that causes chicken pox. I had re-emergence last year of mononucleosis (only having found out months before because of a titre done that I had actually HAD mononucleosis in the past) when I was changed from IV Rocephin to IV Doxycyclene due to Lyme, three other tick diseases and mycotoxicosis from toxic mold in our former house.

    Any time your immune system is compromised, the herpes virus takes advantage and rears its ugly head.

    As far as your antibodies? I have Neurogenic Celiac -- it affects ONLY my cerebellum -- and I have only elevated antigliadin antibodies. My endoscopy showed quite a bit of inflammation in my stomach, but my intestinal villi were pink and healthy.

    My daughter had cysts on her liver -- they were attributed to autoimmune hepatitis. This was when she also tested positive for antigliadin antibodies.

    Even in the states, it is incredibly difficult to find a competent physician. Don't give up, and hang tough -- demand that you be heard. Eventually you will be, and you will find a physician who will give you the correct diagnosis and treatment. Best of luck to you.

    (((((hugs)))))

    Lynne


  2. I had the same great effects when I chose to let the derm put my son on Accutane. I didn't realize at the time what it was doing to his self esteem -- when I look back at pictures of him, I notice that at the time his acne was so pervasive and inflammed, he did not raise his head for a single picture. It is strikingly different than the others I have.

    We ended up having to use Ayr nasal saline gel with Vaseline over that because of the dryness. He did, however, have a history of nosebleeds prior to going on the Accutane, so this was more preventative. I think he had probably 15 different tubes or tubs of Carmex for his lips - but since then has said that Blistex would have been better. He plays saxophone and said that he found out through other players that there is something (and I do NOT know whether this is true or not!) in Carmex that tends to be addictive. He said that Blistex does NOT contain that. Again -- it's just what he said, and I have NO idea!

    He wears contact lenses, and we ended up needing to supplement with hydrating eye drops for contact lenses. When it got particularly bad during the winter, we used Genteal Gel at night when his lenses were out. I think Opti-Free also makes a hydrating solution, and CIBA just came out with lenses that are incredibly hydrating (both my husband and I just got them).

    He did have some difficulty with his mouth and tongue being particularly dry, but the saliva substitute made him gag! :rolleyes: We ended up giving him lemon drops as well as Lemon Glycerine Swabs as they make your salivary glands excrete more saliva. The swabs were nice because the glycerine somewhat "coated" his mouth afterward.

    He DID have to go back on the Accutane about a year and a half after he had completed his course of treatment. It was unusual, according to the derm, but just wanted to let you know that it can happen -- and once he took a very SHORT round, has had no problem since.

    I certainly think I did the right thing.


  3. Welcome to the board. I was originally a member beginning in 2005, and I can tell you that I have encountered some of the most supportive, kind, intelligent people through this forum with whom I worked through things just like this. I met some very good friends -- and my best friend -- on here.

    I have been fortunate that my dietary limitations haven't been this stringent. My home health nurse, however, DOES have these same restrictions. She has a diet that is incredibly similar to Jestgar's. She also carries it in stride just as Jestgar does. While I thought the gluten-free learning curve was large (of course that was WAY back in the day!), listening to how she has lived this lifestyle for three years now made my "hurdle" seem like a small bump.

    I wish you so much good fortune while you are eliminating these things from your diet, and I hope you start to feel much better very soon.

    Lynne


  4. I believe the most common usage of "bless her/your/his heart" is while one is saying something nasty about someone else. For instance: "Mary, bless her heart, is getting quire a butt, isn't she?" That's the context I always heard my Granny, Mom, Aunts using it <_<

    I just read through this thread, and at this point I am literally laughing out loud! My son calls us "The Grammar Police"!

    Being Southern, I can attest that "bless her/your/his heart", at least when referring to an adult, is frequently nastiness made more "palatable"! When regarding children it is more often than not conveying sympathy. It is usually then said as "Well, bless his / her little heart."

    There is the joke about the three women who received anniversary presents . . . the Southern woman receiving etiquette lessons. The phrase she acquired? "You don't say . . . ?" which actually means "Kiss my arse."

    There are so many things listed here that are my "pet peeves", as well! "Irregardless"? Drives me insane!

    I think it is very irresponsible on the part of television. particularly respected news programs, allowing poor grammar skills displayed frequently by "anchors". If the people who are supposed to be more knowledgeable with regard to history as well as current affairs model such poor grammar, who are the up-coming generation's role models? (Other than rap stars!)


  5. I agree with Mtndog. It's a definite read.

    I DID just post on a thread regarding POTS (Postural Orthostatic Tachycardia Syndrome) - the "root cause" of my sero-conversion to true autoimmune celiac. It may or may not be removed, but if it is there, might be worth reading.

    The prednisone I took for YEARS along with Methotrexate and Enbrel for Rheumatoid (another autoimmune disease) actually caused my Lyme, et. al, to proliferate, and DEFINITELY skewed the tests.


  6. I have had autonomic dysfunction for five years now. I was also diagnosed with celiac five years ago. Two and a half years ago, a cardiologist -- knowing that I have had was was diagnosed as "autonomic heart dysfunction" by her -- decided to perform a tilt-table test. My neurologist attempted to contact her numerous times to coordinate information, but his calls were declined.

    After having a fairly normal test, while I was in "almost standing" (15 degrees shy of upright), I was given nitroglycerine. To put it mildly, all He** broke loose. My blood pressure - which is now low anyway (usually 90/54), went down to 50/14. My heart rate went up to 186. The nurse called for the crash team, and the amytryptilline (think "Pulp Fiction") injectable was open and ready to go. I sustained minimal consciousness during this and remember at one point when the nurse asked me if I was still with her, I whispered, "Barely." I was fortunate that everything started resuming toward normal prior to the initiation of these interventions.

    All of that being said, I have to say that I agree with LymeToo. I was MIS-diagnosed for six years with Lyme, Babesia, Bartonella and Erlichia. These are all tick-borne diseases that I incurred through ONE BITE when I was hiking in the White Mountains in New Hampshire.

    Please don't get me wrong -- the type of celiac I have has wreaked havoc with my cerebellum. It destroys once protein on ONE CELL (the Perkinje cell) of the cerebellum. This particular protein so strongly mimics gliadin that when you have elevated antigliadin antibodies, it begins attacking your body, as well. The interruption of transmission because of that is tremendous. It IS a type of celiac, and it IS an autoimmune disease. It is also what caused my autonomic dysfunction, as the cerebellum - as the "Grand Central Station" of your body - regulates that, as well.

    The MD who correctly diagnosed me said that the "watershed" of autoimmune diseases I developed -- including celiac -- is one of the common manifestations of Lyme.

    I realize that this is NOT a Lyme forum, not a topic for such. I just know that the "root cause" of my sero-conversion to true autoimmune celiac disease is this.

    Best of luck to you with this. I know -- too well -- what an awful condition it is to live with.


  7. I am so sorry that you are going through this. Although awareness of celiac disease in general has increased dramatically since I was diagnosed in 2005, I think the actual understanding of it as an autoimmune disease -- and some of its ramifications -- still has a way to go.

    I have "Neurogenic celiac" -- or "Sprue-Related Ataxia" -- or "Gluten Ataxia" . . . depending upon the physician with whom you speak! Basically, it it destroys one protein of the Purkinje cell in the cerebellum. Unfortunately, it wreaks havoc with my autonomic nervous system.

    My son is 27 years old and lives in Houston. While he had an endoscopy and colonoscopy, and we THOUGHT the physician who was in the process of diagnosing him was being very pro-active with regard to possible celiac, we found out that no blood work or testing of any other kind was done concerning it.

    It just happened that this MD was out and his partner "filled in" during my son's visit. He "went off" was my son's description when he found out that nothing was done with regard to celiac despite my confirmed diagnosis. Because his villi were healthy, no lab work was completed. It is definitely a BACKWARD way to diagnose.

    My son is now being tested for celiac as well as a plethora of metabolic disorders. I do have "malabsorption syndrome" as well as some metabolic syndrome. Both of these started AFTER I sero-converted to true celiac. He was told that often celiac patients DO have metabolic changes, and was told to start taking an Omega-9 supplement (we laughed - I was finally told last year that I needed that!) and was also told to take a tablespoon of olive oil prior to each meal. This was on Wednesday of last week, and I haven't heard whether he has had any success! If you'd like, I'll keep you posted through PM's . . .

    Additionally, yeast issues -- according to my pharmacist who also got a doctorate in homeopathy -- abound in celiacs. He recommends taking an acidophilus / lactobaccilus (sp?) supplement daily. My personal physician has me take four times the recommended amount (I also have several other conditions that require me to be on a LOT of antibiotics right now). I take Culturelle IgG -- two capsules two times daily. It has made a real difference with regard to clogging.

    I also forgot this part -- because of the autonomic component that I have with the celiac . . . and oddly they found this with my son during his colonoscopy -- we both have issues with large intestine "spasm", and mine has been diagnosed also as "spasticity". He was given .5 mg of Klonopin to take 1/2 hour prior to eating to reduce that. I take 1 mg three times per day (also to control seizure activity as well, though), and I also take 20 mg of Baclofen as needed for either gut or skeletal muscle spasticity. I still find it unbelievable that one hour after taking the Baclofen, even if it has been DAYS that I have been "clogged" -- I will begin to have very normal movements. SEVERAL very normal movements that are . . . . ummm . . . . well--- toilet-clogging. (So make sure that you are at home if your MD starts you on this!)

    I hope that I have not provided WAY too much personal information(!), but I also know that it appears, at least with both my son and me, that celiac sometimes isn't an "isolated" diagnosis.

    I hope this issue resolves as quickly as possible for you. Please know that living a gluten-free lifestyle doesn't mean bland food forever . . . it gets better and better.

    Best of luck,

    Lynne


  8. How many years have you been trying to live a gluten-free life?

    How often or many times do you think you've been hit with wheat?

    Anyone been diagnosed with cancer, kidney or liver problems?

    Have you ever said "what the hell" and just ate something you aren't supposed to?

    What is your age?

    I've lived a gluten-free life for four and a half years.

    My antibodies are checked fairly frequently, so I'd say it's less than five.

    The only liver problem I have had was just recently - I'm being treated for a variety of diseases and developed Mononucleosis on top of it -- it makes your liver enzymes skyrocket.

    No. Won't do it. The damage it does to my cerebellum is not worth ANY cheating. There is a woman who lives in our city who has neurogenic celiac. It was before they discovered there is such a thing. She is bedridden and on a ventilator because her cerebellum can't coordinate her breathing. I want to live too badly to EVER cheat.

    I'm 47


  9. If this diet is a marketing fad, it's a cruel joke. After all we have to give up in our diets and alter in our social lives just to be healthy, it better NOT be! :ph34r:

    Isn't that the TRUTH?????!!!!

    I want a Krispy Kreme doughnut so badly right now I can hardly stand it :rolleyes:

    Or a REAL pizza -- or that Hawaiian bread with the Knorr soup mix dip . . . the list continues :P

    Marketing fad? Since my celiac is neurogenic, it must be marketing for the wheelchair that ended up costing over $7k.


  10. Tell me about it. Denial is thick in many families etc. Boyfriends too in my experience--as well as the AMA.

    Meanwhile, what happens to the "UBO's" after one has been on an anti gluten diet after a while. Do they stay or go away? Are they in any way significant? Any body know??

    Bea

    Just before I got online, I heard my mother talking with my daughter. She is going BACK to the GI doctor. She has been tested for everything from A to Z. I asked her if she had told the GI doc that I had celiac disease. She said, "No." I said, "Have you been tested for it?" She said, "No." She has the big D all night long -- but didn't disclose to the GI doc the FIRST time she saw her that her daughter has Celiac and hasn't been tested . . . .

    Sheesh . . . .


  11. What those white spots likely are is 'UBO's, or unidentified bright objects. My neuro was clueless about them also. If he hadn't been I would have been diagnosed celiac years sooner. UBO's are recognized as being associated with neuroimpact celiac disease, especially when there is ataxia. When my neuro saw them he just shrugged his shoulders and said they meant nothing after he had done a spinal tap on me to make sure it wasn't MS. Finding UBO'S is diagnostic of celiac, in some other countries and in particular in children.

    Kristi --

    Thanks for the information! You are the FIRST person who has actually informed me about that. The primary neurologist I saw for the longest time DID note the cerebellar degeneration. The neurosurgeon he sent me to said that there wasn't.

    I saw another neurologist for a second opinion because my sister -- a workers' comp adjuster - didn't like my primary. THAT neurologist was the one who eventually fired me! He told me that there was no cerebellar degeneration and he was the one who yelled at me about the MS. Also, I had nuchal rigidity from the lyme -- couldn't put my chin to my chest -- and he INSISTED that I was trying to be diagnosed with MS. I told him that I didn't WANT to have MS -- but I DID want a correct diagnosis.

    The last neurosurgeon I saw was one I shadowed during my last clinical at the children's hospital here. He actually SHOWED me= placing ALL of my MRI's up - the chronological cerebellar degeneration from the Celiac. He didn't know about the UBO's, though. I will give him a call tomorrow and tell him this. He's VERY open to learning from his patients. I'm fortunate.

    You are so well-informed. I really appreciate you. While I'm NOT happy that I have the spots on my brain (that DID keep getting bigger -- the last neurosurgeon mentioned that, as well), I AM happy to know WHAT they are, WHY they are there and that they won't get any larger because I've been gluten-free for so long now.

    Thank you VERY much.

    ((((((((hugs))))))),

    Lynne


  12. In retrospect, it is hysterically funny that I DID say that to my veterinarian! At the time, though, I was so frustrated, so angry and so TIRED of being treated as though I was a hypochondriac Physical Therapist with too much knowledge.

    Now? I do laugh that I told him that. Every time I see him with one of our dogs, I say, "Are you willing to take me up on my offer yet?" We both laugh! :lol:

    Glad I could help you laugh, too :P I think every now and then we ALL need some comic relief B)

    Take care of yourself,

    Lynne


  13. I had debated as to whether I was going to post this, but as a lot of people know -- I can't control my impulsive fingers!

    Approximately 20 years ago, I had a friend whose two year-old was diagnosed with Celiac disease. It was confirmed with all three blood tests, endoscope and diet elimination.

    With ALL OF THAT, the pediatrician diagnosed my FRIEND with Munchausen's by Proxy!

    My friend was divorced, her husband would NOT recognize the pediatric GI's diagnosis, refused to adhere to the gluten-free diet and reported her to Child Protective Services. At one point, they took this child away from her and gave full custody to her father.

    After much legal involvement -- and a LOT of money -- she was able to regain custody and her ex-husband then had to have supervised visitation because he endangered the health of the little girl.

    We may -- or may not -- have come a long way since those days.


  14. I was doing some research re: gluten-free hair-care products. I found an ingredient I didn't recognize, researched it, and found this in the Journal of Pharmacology and Experimental Therapeutics:

    http://jpet.aspetjournals.org/cgi/reprint/317/3/1320

    I found this website that publishes products containing Methylisothiazolinone

    http://www.cosmeticsdatabase.com/browse.ph...ntaining=703935

    It's worth looking into, I think. Given that I have neurologenic celiac as well as other neurological complications, I'm going to need to be a better consumer.


  15. Gemini,

    I started on this forum back in 2004. I was in denial of "Neurogenic Celiac" until August of 2005. The people who were on this forum were the most loving, kind, caring supportive folks I had ever met. I met my best friend on here. I live in Louisville, KY -- she lives in Ontario, Canada!!

    The frustration you are feeling is so natural -- also the feelings of helplessness, confusion and anger. Those all rear their ugly heads at some time. I'm just glad that you have gotten some comfort and solace. I'm also THRILLED that you were able to have a loving, heart-to-heart talk with your husband about this. That is so important.

    Best of luck to you -- and please take care of yourself,

    Lynne


  16. 10 years ago, it would have been ridiculous to think that ulcers were caused by anything other than stress, where we know that the vast majority of the cases are bacterial.

    Tiffany, you are SOOOOOO right! Did you know that ten years PRIOR to "people" physicians finally acknowledging that h. pylori causes ulcers, veterinarians were already treating cattle with antibiotics for ulcers? Veterinarians ALSO knew for years prior to "people" physicians that gluten caused gut difficulty AND neurological symptoms. My Erlichia (which I know is a tick disease) was actually diagnosed by my veterinarian YEARS before I finally found an MD that would do the correct testing. My vet even went so far as to call Johns Hopkins when I was there and tell them that neurologically I was presenting EXACTLY as the animals were here that had Erlichia and insisted that I needed to be tested. Guess what they did with THAT???!!!

    If you research valid journals in both Physician-based and Veterinarian-based, you can find a LOT of good information with regard to Celiac. When the valid, significant statistics are staring you in the face, it's hard to ignore.

    I also like that you mentioned to the effect of "taking ten years off his life (not to mention QUALITY of life)" -- how true is that? Who WANTS to live their life feeling rotten if you have a choice and can change that?

    Gemini -- you sound like you're a fairly headstrong, equal partner in your marriage. Tell your husband to drop his father's "old-fashioned" thinking, suck it up, and go to the doctor to be tested! My guess? He isn't going to divorce you!! B)


  17. The antibiotic was worse than the infection! I am still recovering, almost a month later... He faked me out since he seemed charming and said his best friend has celiac...

    Bea

    PS--it would be great for you to write a humorous short story (or more) about some of these experiences...

    Bea,

    I have had some pretty awful experiences with physicians. The reason I sero-converted to the neurogenic celiac vs. gluten sensitivity (which I didn't know I had) was because in October of 2002, while hiking in New Hampshire's White Mountains I was bitten by a tick. Evidently, I must have looked like a delicacy! AND a good place for this little bug to purge Lyme, Babesia, Bartonella and Erlichia. FOUR TICK-BORNE DISEASES!

    These predisposed me to developing what I NOW know is the very COMMON "watershed" of autoimmune diseases (I have a bunch , , , ) and the neurogenic celiac was the third one I think. It also predisposed me to being susceptible to the mycoplasm that is a bacteria that emerges after TOXIC MOLD spores burst. Yep -- we had that in our house, and had to move. I have "mycotoxicosis" -- and it has caused damage on several parts of my brain that show up as "white spots" -- 'BUT DON'T LOOK LIKE MULTIPLE SCLEROSIS!" (direct quote from one MD). I have actually been fired from a doctor because I told him that "I couldn't give a rat's (arse) if I ever saw HIM or another doctor again IN MY LIFE." He punched my buttons -- long story.

    I am on 15 prescription medications regularly -- daily. I also receive IV meds through the port in my heart twice daily. When I am given a prescription, I INSIST that the pharmacist either a) call the manufacturer of the company that produces the medication or B) hey -- that was supposed to be a "B"! give ME the phone number so that I can call. The experiences I have had with my medications, at least, is that the manufacturers of their generic "knock-off" use gluten-containing ingredients as the binding substance because it is less costly. I check the manufacturer of the name-brand as well as the manufacturer of the generic that the pharmacy carries. If the generic brand's representative even WAFFLES when I am talking with them, I call my doctor and ask they add "Dispense As Written" or "Name Brand Only". Legally, you can also insist on the name brand, as well. Don't let the pharmacy fool you. You have that right. In my case, however, if I insist on name brand vs. my doctor, my co-pay is a LOT more.

    I also have to take 12 different supplements and the other occasional prescription meds brings the scripts up to 23. I try to stay diligent about continuing to call the manufacturers to ensure that they are still NOT using gluten as a binder. Sometimes it feels like a full-time job . . . but, because I don't have a GI reaction, I won't know I've been "glutened" until more damage is done to my cerebellum -- as diagnosed by further degeneration on an MRI. It takes about 9 months before that appears.

    I have "weeded out" the physicians that I don't care for. I have decided that I am not going to waste my insurance benefits nor my money going to someone who isn't helpful and supportive. I see my "tick" doctor (!) in NYC -- and give regular updates via email and my primary care doctor who is teetering on the edge of being replaced!

    We are consumers, whether it's groceries, medication, take-out food, dining in or physicians. We deserve respect and dignity throughout all those arenas. If we do not get it, we need to graciously insist upon it. I used to be the most passive person I knew. When I was in PT school, it was DRILLED into us that WE had to be the advocate for our patients with physicians -- and that we WOULD do battle with them. (I nearly pooped my pants when they first said that!)

    Through advocating for my patients, though, I learned to advocate for MYSELF. It isn't easy, and every now and then it isn't very pretty -- but I do it because it is necessary. When you think of it in those terms, it gets a little easier . . . and a little easier . . . and a little easier.

    Please take care of yourself,

    Lynne

    P.S.: Mtndog has been after me for years to write a book . . . :lol:


  18. Magnesium REALLY helped me. More than probiotics, actually. It took about two weeks for the magnesium to kick in, but once it did, there was marked difference in the size of my belly AND in my BMs (I have chronic constipation). I think it is worth a shot, but that is just my 2 cents :)

    Because of several diseases I have, my MD (prescribed) -- although it is OTC -- Magnesium Taurate. The company that manufactures it has been able to incorporate the benefits of magnesium as well as taurine and compound it into an entirely NEW supplement.

    I have found that it has really helped the bloating my upper (because of other issues) and lower abdomen encounter. If you would like more info, please let me know.

    Please take care of yourself,

    Lynne


  19. I'll be honest, if my husband had good reason to believe he was gluten intolerant (or especially if he were celiac) and he decided to keep eating gluten, I would sit him down and say "Your life is tied to mine. I love each other very much, and I'll be dam**d if I'm going to sit back and watch you harm yourself. I sure as he** won't take care of you when you've brought on a horrid complication on yourself. And I expect you to make healthy choices to not leave me to raise our kid(s) by myself, leaving him/her/them without a father. You're an adult; start acting like a responsible one."

    Yes, I know it seems heavy handed. And yes, I know he is an adult free to make his own decisions. But when we got married, we agreed that our decisions have a larger than normal influence on each other - a very significant, personal impact. That means that the other person's opinion is NOT moot in the issue, and that his decision has to very carefully include other people. Sure, I would offer to do *whatever* I could reasonably do to make the "right" decision easier on him, but I'd still expect him to make the right decision for *everyone* involved, not just himself.

    Sure, the approach won't work for everyone, but I expect my marriage to be more of a cooperative partnership rather than two individuals.

    Here, here! I agree completely. I posted about my son -- who began experiencing some EXTREMELY similar "gut" difficulties that I had --- but also some neurological symptoms that are VERY new. Thank goodness, he found a GI doc who, when he mentioned that I had neurogenic celiac -- knew exactly what it was and initiated what can only be considered "Project: Celiac". He didn't rule out OTHER diseases, but certainly has that in the forefront of his thinking.

    At 27, my son is a grown man. I can't tell him what to do, he is in Houston so I can't fix his meals, etc. He cooks for himself, but because of my illness he is VERY educated with regard to living a gluten-free lifestyle (vs. just eating gluten-free food). Should he have ANY hint of Celiac or Gluten Intolerance or Sensitivity, he has already said that his house will be gluten-free. Without sounding like I am bragging, I am so PROUD of him. His decision -- UP FRONT -- to change his current lifestyle and eating habits should he have any of the above proves to me his dedication to being healthy. I am sad that I had to be sick in order for him to have learned so much about it, but proud and happy that he CHOSE to learn, and is willing to incorporate it into his life.


  20. Roda,

    I think we are limited as to how many personal messages we can send per so many hours! I just sent one, so I'm cut off at the knees right now! If you would like some information which is a little more . . . ummmm . . . graphic in nature, please let me know via personal message.

    I am a Physical Therapist, and when I was able to practice, I treated women's health. There are things to avoid, things to use, etc., that could help.

    I hope you're feeling better. Please take care of yourself,

    Lynne


  21. Given that my reputation somewhat precedes me :rolleyes: , I simply tell it like it is.

    If someone says, "Oh, you have that food allergy." I say, "No, actually, it is an autoimmune disease. Like Rheumatoid Arthritis or Lupus. It is very serious and potentially very dangerous."

    If they say it is a fad, I say, "Yes . . . Like Diabetes."

    When I asked my sister to please NOT cut angel food cake around the strawberries that I could eat, she rolled her eyes and said, "Oh yes -- I forgot -- no GLUTEN for you." I swiftly smacked her at the bottom of her skull -- where the cerebellum is. She said, "What was THAT for?" I said, "Why don't I continually smack you there until you sustain the same damage to your cerebellum that gluten has done to mine. Then, when you can't coordinate your movements and you need to be in a wheelchair like me, I will ask you if you want me to hit you there some more. Do you now understand WHY I don't want more gluten?"

    My answers are swift and to the point. At times they are educational, and at times they are mean-spirited -- depending upon the first comment's delivery.

    What I have found in the years that I have been gluten-free is that the general population -- by and large -- does not WANT to know about Celiac, Gluten Intolerance or Gluten Sensitiviy. There are a few wait staff that I have encountered that have been outstanding -- and certainly gone the extra mile. Subsequently, I ask for their manager, tell him/her what an outstanding employee they have -- and tip 25%. When the wait staff then thanks me for doing that, I tell them that they are one of the rare type of people I encounter, and I appreciate them very much. It works well for me.

    Celiac has definitely gotten more attention since I first began living a gluten-free lifestyle. While by and large it has so VERY much helped us, occasionally it does work against us. That's just how it is, though.

    Another thought: I do carry with me the cards from GIG -- that explain to wait staff and management what Celiac is, why it is important that I do not ingest gluten and the dangers of cross-contamination. They are handy for those who don't know about Celiac but are interested.

    Hope this isn't too harsh an approach, but I also hope it helps! ;)


  22. From what I have learned, yeast is a very hardy organism! Even introducing sugars that aren't refined can cause them to proliferate. If there is just one little bugger hanging around, feeding it with any type of "sugar" can cause it to multiply.

    I am on VERY long-term antibiotics. At one point, my DH and I were passing yeast back and forth to one another. I asked my MD about this. Both he and his PA (and my gynecologist) said that it is entirely possible for this to continue. Their explanation is that the yeast can enter the male's urethra during intercourse. It is a warm, dark, moist place -- need I say more?

    My husband began taking probiotics, reduced his sugar intake (especially refined), and if I'm not mistaken, did take Diflucan (can't remember -- it was several months ago).

    Neither of us have displayed symptoms of yeast infection since.

    I was tested a few months ago -- when I had actually developed mononucleosis and they weren't sure WHAT was happening -- for not only systemic yeast infection, but also yeast infection in the port that I use for my IV medication. Both were negative.

    Hope this helps somewhat.


  23. I can't remember which newscast aired this, but researchers have discovered ANOTHER gene that when tested showed significant implication of its contribution to Celiac. I'll have to do more research to find the journal citation. Wish me luck, because I am NOT the master of the internet that Beverly, Karen, Patti, Peter et al are!

    From what I remember, they are trying now to determine whether it alone can predispose an individual to celiac or if it has to work in concert with one of the HLADQ genes . . .