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About FreyaUSA

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  1. Thank you, Lisa! But, drat, there doesn't seem to be anything in this immediate area. Are there others around here who might be interested in something?
  2. Hi all! My family and I are new to this area and I'm wondering if there is a support group anywhere nearby. All four of us (plus the one child off at college) have celiac disease and have been gluten-free for 4-5 years now. It's be nice to meet others in the area!
  3. FreyaUSA

    Medications That Irritate!

    For me, reactions seemed to get continually worse till about the 7th month of being gluten-free where I seemed to be at peek reactivity to even the tiniest trace of gluten. Since then I seem to be reacting with less and less severity (I'm at 11 months gluten-free now.) One of my children still reacts strongly, but he gets over it much quicker (he's at 8 months gluten-free). One of my other children no longer throws up at trace amounts (yea!) So, if you follow this, it should get better. Btw, one of the ways I react to gluten is with a migraine. (It is heaven not to have to go through these sometimes 2-3 or even more times a week!) My sympathies with the headaches. Hopefully as you get all the gluten from your diet and time goes by, you'll not have so many. Oh, and my kids, who were on allergy meds almost year round, are off them completely now that they're gluten-free. More hope!
  4. FreyaUSA

    I Work In A Clinic

    This is a very interesting discussion! Pertinent to me atm, too. Just recently, on a diet board I frequent, there has been a huge discussion going on about IBS and hypoglycemia. Several of the people discribed their symptoms and, because it sounded so similar to how I'd been before I discovered my problems, I sent them private messages. Basically all I did was ask them if their gi docs had tested them for celiac disease (and mentioned that IBS is often misdiagnosed for people with celiac disease just because doctors are just not that aware of it.) In just the last week, three responded that they'd never heard of it. One even called her doctor and asked to get the test done (and had it done Friday.) The one who had the test done said her doctor told her she couldn't have it, she's overweight which, she said, made her so angry she insisted on it. (I might have mentioned that doctors often have this misconception Hey, it's a diet board afterall!) I feel like I might be annoying some people with this, but if I help any, it will be worth it. (And atm there are two others on this board that have discovered they have celiac disease because of our conversations. Actually, one even found out her daughter has it, too.) I know I'd never have known what was wrong with me if someone -- a stranger, btw -- hadn't taken the initiative to offer their opinion to me! (14 years of having so many odd problems, of having many painful tests done, of feeling miserable are OVER!)
  5. Are the Nature's Path rice crispies more like the regular rice crispies? The Erewhon were a little too different when we first tried them for my kids to accept them (though they'd probably like them now.) Just wondering before I go and buy another box of cereal (so many rejects! )
  6. I've read somewhere that people with celiac disease can also be sensitive to this ingredient (not that it contains gluten, but that we are more likely to just be sensitive to it, like to flavored coffee, which I am very sensitive to.) Anyway, my son is having a "glutened" reaction going right now (actually, just the DH symptoms and not all the GI and neuro ones, strangely enough) and the only thing I can trace the reaction to might be the annatto. Does anyone else have this kind of reaction to this ingredient? My other celiac disease child doesn't seem to be reacting (or isn't overtly enough atm to draw herself away from the GameCube. )
  7. Ugh. Thank you for this information. (Brb, I have to go scream in my pillow now.)
  8. I often substitute all applesauce (natural kind, NO SUGAR ADDED) for the oils in baked goods. Always in muffins (I bake a lot of muffins .) I find that things turn out lighter in texture but will dry out quicker. Usually, nothing lasts that long to worry about the drying out bit, though. I wouldn't do this with things that are supposed to be moist and chewy (chocolate chip cookies, for instance) but anything that bakes up light, why not?
  9. Here's a menu of items that are all available at stores. I make a great deal of our food from scratch, so I thought this would be more helpful in this instance than posting 5 recipes. Also, I'm posting 1's and 2's because my two younger kids nearly never agree on anything, so 10 yr old son is #1, 7 yr old daughter is #2. Btw, I think this is an awesome thread! I've gotten some great ideas so far. Everyone, please post! Breakfast: 1. Gorilla Munch Cereal (EnviroKids) 2. Corn Crunch'ems (Health Valley) w/a little bit of Fruity Pebbles on top whole milk vitamin (Kirkland Signature's Chewable Children's Complete Multi - from Costco) Snack: 1. Genisoy's Xtreme Peanut Butter Fix (Power bar type thing. This is the one all my kids will eat. It's packed with vitamins, minerals, protein and calories. And, it really tastes good!) 2. Crispy Rice Bar, Chocolate only (EnviroKids) Lunch: 1. PB&J sandwich (BH's Sesame Bean Bread Recipe, crusts removed ) 2. Ham or Roast Beef or Turkey and cheese sandwich (same bread, using Hillshire Farms thin sliced deli meats, in the dairy/meat section, in little reusable containers.) Fruit (apples, clementine oranges, pears, grapes, bananas...whatever I have ripe) Chips (Giant brand corn chips, Cheetos, Lays potato chips or Stax) 3 mini candies (Reese PB cups, Snickers, H.Kisses) 100% juice box or Lemonade After School Snack: (This is almost always something I've baked, muffins, cookies, custards, etc. But, if I've nothing around:) 1. Cinnamon Donut or Cinnamon Roll (Kinnikinnick-hmm, can't spell) 2. Cheese (string cheese, babybel cheese, Laughing Cow soft wedges) Dinner: Mac & Cheese (Pastato has the best one we've found!) Chicken Burger (Casual Gourmet, found at Wholefoods, cooked on the Foreman grill for 5 min's are simple and really tasty) Vegi of some sort Milk (often with Nestle's Quik added, I've reluctant milk drinkers) Dessert: 1. Starbucks coffee ice cream 2. Rainbow sherbet
  10. FreyaUSA

    Weight Gain

    Since the holidays I regained a little (5 lbs) I'd lost (I also never had the weight loss though my intestines were a mess ) Now I'm back on the South Beach Diet, Phase 1 (no white crap, whole natural foods, no sugar, no alcohol...) It's a very easy diet for Celiacs. Seems written for us! Anyway, if you're serious about losing weight and changing you way of eating, take a look at It's a great site for recipes (naturally gluten-free) and support. (Phase one is just a "get rid of cravings, big weight loss" boost to the diet that only lasts two weeks. You can skip it and go to Phase two where you eat whole grains and fruit and a little wine and other good foods.) Good luck and send a pm if you want to chat!
  11. I thought others of you might be interested in a frozen dinner (okay, it's just the main course, you have to come up with the sides) that is totally delicious, MAINSTREAM (so it isn't any more expensive just because it's gluten-free) and you can find at Costco/Priceclub. In the frozen food section, it's in a blue box called Seasoned boneless Stuffed Chicken Breasts with Rib Meat, Cordon Bleu, Distinctions by Barber Foods. My entire family likes these, though I buy them mostly for my teenager to have something to throw in the microwave when he gets home from school. I decided to double check the gluten-free status before posting this and, indeed, they are gluten-free (though they have a breaded cordon bleu as well that as not, but I haven't seen that one at Costco's.) This is not listed in the Costco gluten-free lists anywhere you go.
  12. FreyaUSA

    Gf Baking

    I'd recently gotten one of Bette Hagman's newer cookbooks, The Gluten-Free Gourmet Cooks Fast and Healthy. In it is a recipe for a Bean Flour Mix that I've started using with everything. 1 part bean flour (I use chickpea), 1 part tapioca flour and 1 part cornstarch. It's been working as well or better than Bob's, imo. (And cheaper!) There is also a recipe in the book for Sesame Bean Bread that is the best bread recipe I've tried. The bread lasts 2-3 days, staying MOIST and SOFT and has a great texture. (Can you tell I'm excited by this? ) Where I am it takes less moisture than the recipe calls for (calls for "scant 1-1/2 cups water" but I use 1-1/4 cup) other than that, I make it just as written using the regular bread setting (not rapid) on my bread machine, too (made a slight difference.) I've made about 8 loaves since trying it a couple weeks ago. Sandwiches over the holidays were a treat, now they are just normal again. Yea!
  13. FreyaUSA

    Newly Gluten Free - Need Input

    It also took several weeks for my son's DH to clear up once going gluten-free. He also had no GI symptoms. NOW, however, his DH is much worse when he gets into gluten and he's having all the other celiac disease reactions, too. He's 7 months gluten-free with an average of one slip-up a month. I think it's terrible that your doctor took it upon himself to not even let you know about the DH-gluten connection! Welcome to the board!
  14. FreyaUSA


    The little red dots aren't technically DH. It had been diagnosed as keratosis pilaris some years ago. However, since they flare up whenever he eats gluten, they are somehow gluten related (who knows, he may have a wheat allergy on top of celiac disease.) But, he does have the regular DH breakout reactions, too, on his hips, knees and "other areas." (I didn't press for more info, I could see the ones on his hips though, NASTY!) Injury to insult, I suppose. The little dots don't seem to bother him much (except visually.) The DH spots drive him crazy though. I'd be willing to get the dapsone if it wasn't something he had to take all the time, but just during outbreaks. Thanks for the info, Richard! Any shortening of reaction time would be wonderful for him.
  15. FreyaUSA


    AustinDH, do you have to take the dapsone every day even when not having a reaction?