Killarney

So, my blood test was positive for antibodies.

I just got my biopsy results today by mail (doctor's office didn't even call!) and it says:

"Mild inflammation in stomach. Duodenum does not show Celiac Disease."

So, now what?

I have a theory and I'm wondering if this could be the case. Before I went gluten-free, I ate basically all gluten, all the time. All I ate was bread, pasta, and pizza. Seriously. Pizza, pasta, or a sandwich for lunch and dinner every day and muffins or pancakes for breakfast every morning. Could I have had antibodies because I was getting too much exposure to gluten rather than having Celiac's Disease?

Maybe I should--rather than staying gluten-free--change to a limited gluten diet? Like once a day eat something containing it and then go for another blood test in a few months and see what it says?

Here's an easy gluten-free recipe.

1) Preheat oven to 350.

2) Brown 1 lb hamburger in pan and then drain.

3) Bring water to a boil and then boil 2 cups of Uncle Ben's White Rice for about 5 minutes (it will only be partially cooked). Drain.

4) Combine the browned hamburger, partially cooked rice, and one jar of gluten-free spaghetti sauce (I use Prego Traditional) in a baking dish. Sprinkle grated parmesian over the top.

5) Bake for 35 minutes on 350.

Then serve! Pretty easy and it tastes great.

I bought some Tinkyada pasta and I'm looking for good recipes.

How do you make macaroni and cheese with the Tinkyada elbows? What kind of cheese do you put on it?

Any other good pasta recipes?

You can toss in some fruit, too. An apple or a box of raisins.

I love having peanut butter on a rice cake.

A family friend who is a Celiac told me to read Against the Grain. I'm thinking though, could I learn anything from these books that I don't learn here on celiac.com?

Are there any books you would recommend?

What brands do you use for sauce/tortilla?

Wishbone has three gluten-free Italian ones that are great: Italian, Robusto Italian, and Classic House Italian

The only Ken's one that is gluten-free I think is Italian w/ aged romano.

I emailed them and received this response. It's not a lot, but there are a few options there.

Bacon Burger with no bun, no dill pickles, no mayo

Baked Potato Soup

Chili's Filet Steak - no garlic toast

Chips - No Salsa

Chocolate Shake

Citrus Fire Chicken and Shrimp

Flamed-grilled Ribeye - no garlic toast

Salmon and Rice with Steamed Veggies with no ginger citrus sauce

Kid Burger and Fries - no bun

Margarita-grilled Chicken with no black beans or kettle beans

Mashed Potatoes

Mushroom Swiss Burger with no mayo, no dill pickles, no bun.

Old Timer Burger with or without Cheese with no mustard, no bun, no dill pickles.

Side of Saut

Yes, I have different reactions... sometimes to the same exact foods! One night, a Domino's pizza could give me horrible "D". Another night, just pain, bloating. Another night it could give me constipation. And another night it would cause nothing at all! No problems! That was why I let this go for a year because it was not consistent so I felt like I had nothing to go on. But I eventually went to the doctor and he did blood tests and I came up positive for antibodies. I always figured celiac disease presented the same symptoms. I never figured I would have it because I can eat gluten and many times nothing happens.

Is whey gluten-free?

Also is "glutamate" gluten-free? I would assume it's not because it starts with glut, but I haven't seen it listed anywhere. It seems like every soup has glutamate in it!

Great! Thank you! I thought it was strange that it wasn't listed on that list... how could it be different from Coke? Glad to hear it's not.

I'm 30 years old and was just diagnosed with celiac disease via blood test (endoscopy on Tuesday).

I have read that there is often a genetic link with celiac disease. No one else in my family has it (that they know about).

I have a 2 year old son. Is there anything I can do to prevent him from getting this? Should I make sure he doesn't get over-exposed to wheat? Should I limit gluten in his diet? I know it can already be in his genes right now and there's nothing I can do about that, but is there anything I can do about it "coming out" like it has in me?

Thanks.

The symptom I had at the beginning of pregnancy that would have nothing to do with celiac disease is very very sore breasts. All the other early symptoms of pregnancy (nausea, fatigue) can also be celiac disease symptoms, you're right. But my breasts have never felt the way they did they that first week I found out I was pregnant. I think only pregnancy can give them that feeling.

I had migraines during my pregnancy and sorry but all you can take is Tylenol, nothing stronger. What I found that helped also was these pads you can buy that stick on your forehead and stay cold for 30 minutes.

I was on Tigan for anti-nausea during my pregnancy but cannot say if it is gluten-free or not (I was not diagnosed at the time).

I find it interesting that so many of us that have Celiac's also had severe morning sickness during pregnancy.

Thanks so much for your posts. This is the reality I have to hear.

I think it would be easier for me to go gluten-free if the damage was more tangible. I don't get sick every time I eat gluten. Not even half the time. If I got sick every time, then the temptation to cheat wouldn't be there because I would know that I would be "punished" every time I ate gluten. But, it's harder to imagine giving up pizza, bread, pasta, etc because of damage that I can't see or feel. You know?

What makes it worse is that I'm a very picky eater. Basically all I eat is pasta, bread, and pizza. I don't like meat or vegetables. I guess fruit, yogurt, and salad are ok but I can't live on those three things. The thought that I'm most likely going to have to start eating meat and other boring things like rice makes me sick. It's really so depressing.

Half of me thinks, why should I live my life miserably, denying myself the only food I like just because some day I might get cancer if I don't? I could eat 100% gluten-free and then get hit by a car or get breast cancer. So, shouldn't I just be happy and eat what I want within reason?

But, then the other half of me says that--yeah, I could die any day from something else, but if I don't go gluten-free my chances for cancer are increased and if I ended up with stomach cancer because I didn't want to give up the foods I liked, that would be very selfish of me because I have a son and I wouldn't want to leave him motherless.

I'm just so depressed.

A little background on me. I've had problems (diahrea, cramping, bloating, constipation, pain) for about a year and finally went to the doctor about 3 weeks ago. He said he wanted to rule out a few things and gave me a blood test--turned out positive for gliadin antibodies. So that positive blood test along with symptoms makes him think I have Celiac's. I have my endoscopy/biopsy on Tuesday.

But the thing is... I don't get sick every time I get in touch with gluten. I can have pizza 5 times and only get sick 3 out of the 5 times. I had waffles today--nothing happened.

So, I'm thinking... what happens if I don't stick to the diet 100%? I mean... if you don't have horrible, painful symptoms every single time, then the tempation to cheat is there, know what I mean? What would happen if I had pizza once a month or went to the Olive Garden on my birthday every year? Would it really do that much damage to cheat on the gluten-free diet every once in a while?

This is all just so sudden for me and I'm in the depression/denial stage I think in regards to giving up all this food for the rest of my life.

I noticed that Coke is listen on here, but not Pepsi. ???

https://www.celiac.com/st_prod.html?p_prodi...-55104176262.24

I have an appt for my endoscopy (biopsy) on Tuesday.

What is it like? Are you awake? It says I will be given medication to make me "sleepy and relaxed"... but that means I'm awake right? Do you feel anything going on during it?

Afterwards... do you feel any discomfort? When will I be "back to normal?"

Thanks. Kind of nervous.

I had a positive blood test for the antibodies a couple weeks ago. I haven't had my biopsy yet.

Anyhow, my father was visiting his gastro (for a regular colonoscopy) and he brought up that his grown daughter (me) might have Celiac's. The doctor asked how he knows and he mentions that I had a positive blood test. The doctor asked if I had the biopsy done and my father said not yet. Then the doctor said something strange.

He said, "your wife (my mother) is from Ireland, right?" My father said yes and the doctor said, well make sure your daughter gets that biopsy because 1 in 5 people of Irish descent will have a fake positive blood test for Celiac's.

Has anyone heard that before?

I was kind of surprised at that.

I would be happy to find that it was a false positive and that I don't have Celiac's. But, on the other hand, then why I'm having these problems (diahrea, pain, conspitation, etc) would still be a mystery then.

My son was born 1 month early and I hemorrhaged and then had trouble producing enough milk to nurse him. (Lack of absorbing nutrients?)

This happened to me, too. My son was born two weeks early and about two hours after his birth, I hemorrhaged badly. My milk did not come in for five days due to that and I had trouble nursing.

I think the blood test results should be able to tell you a lot. I had my blood tests done two weeks ago. My doctor called with the results one week later. He said I had a positive to the test for gliadin antibodies. So, now I go to see a gastroentologist for a biopsy as the next step.

Since it's in your family, it seems like that might be what you have as it can be genetic.

Hopefully you'll only have to wait a few days for results and then you'll know.

What concerns me, though, is that your doctor never thought to do a blood test for celiac on his own. You had to tell him to do it. I'd get a new doctor. I had never heard of Celiac until a week ago. I went to my doctor two weeks ago to tell him that I've had digestive problems (diahrea, cramping, etc) off and on for a year and he immediately ordered the blood tests.

Also, my problems started a few months after I had my baby. I've read online that pregnancy can trigger this.

Interesting enough, I had hyperemesis gravidarum during pregnancy as you did (severe morning sickness). My anti-nausea medication helped a little bit, but I still threw up about 20 times a day for five months, then once a day until the end when I gave birth two weeks early. I wonder if the two are connected??

I was really sick. I had hyperemesis gravidarum, which is basically severe morning sickness. I was hospitalized for dehydration, on anti-nausea medication, etc. I threw up 20-30 times per day for the first 6 months. The last 2.5 months I was sick probably once a day. But I threw up for the entire pregnancy and during labor. I went into labor 2 weeks early.

I just found out today that I tested positive for Celiac disease so I'm just doing my first research right now. I'm 30 years old and never had any problems until after my baby so I think my pregnancy might have triggered it.

Interesting to think that maybe my severe morning sickness and this problem are related.

I've never had any problems like this in my life. I'm 30 years old. For the last year or so, I've had problems (diahhrea, etc) off and on. I finally went to the doctor about it a week ago and he did blood tests. He called me this morning and told me that I tested positive for Gliadin antibodies and he wants me to see a specialist because I might have Celiac disease.

Would Celiac disease just come out of nowhere like this? Granted, it's been a year, but for the previous 29 years of my life I had no problems like this.

Could it be triggered by something? It all started about a year after I had a baby... could that have triggered it?

Also, I'm a vegetarian and all I basically eat is pasta, pizza, and bread. I don't eat any meat, veggies, and only a little fruit. All I eat is carbos! But I don't have digestion problems every day, just a few times a week. Wouldn't it be much much worse if I had this disease because that's all I eat?

Thanks very much for taking the time to answer. I really appreciate it.