kellylynn

They're amazing!!!

Who dat!

I'm a lifelong member of the Who Dat Nation! Just found out today that Drew Brees is allergic to gluten:

Open Original Shared Link

Geaux Saints!

I take the Ambertose (4xday). My aunt has sold it for a long time and really believes in the research behind it. I take as well as many other supplements in addition to the gluten-free diet, so it's hard to say exactly what has made the most difference in my overall health.

I have at least 1 copy and my dr. put me on the cerefolin nac mentioned above. I'm actually also on a mild chelation treatment for metal toxicity. I didn't know the two were related. Thanks for the info!

I was dx at 25. It was very upsetting for me. Vitamin D is huge! i've been taking 8000iu's of D3/day + Citrical under my dr.'s supervision. Since doing this regimen and being on gluten-free diet, my osteopenia is improving! There is so much out there about the benefits of Vitamin D...it is so important!

I take the generic version of Citrical + Vit D + Minerals from Walgreens. You can order it from their website. It says "gluten free" on the bottle. I too was diagnosed with osteopenia, and at a very young age (25).

I had nothing but tiny pellets every few days for months....it was unbelievably miserable. I tried water, exercise, fiber smoothies, colon-cleansing pills, and drinking prune juice mixed with aloe vera gel and NOTHING worked. I was at my wits end. My doctor recommend this product called Next to Nature Aloe, it worked wonders. I took too much at first, but having D was actually a welcome change. After just 2 weeks, I'm not taking it anymore and am back to normal. It's amazing and quite cheap. I had tired a different and more expensive aloe pill before, so I def. recommend this particular brand. They have a website. Hope this helps!

I just got back from Rome and the Amalfi coast. It was incredible!! We stayed in Sorrento and did day trips to Pompeii, Capri, and Amalfi...absolutely unbelievable. You have to check out Casa Astarita in Sorrento....it's an amazing bed and breakfast. The owner was so kind and was willing to go out of her way to acommodate my gluten free diet. There werea also severeal gluten free diining options in Sorrento...I had pizza, gnocchi, and a gelato with a cone!

Rome is just amazing as well!

I'm happy to give you more specifics if you'd like!

Enjoy!! You'll have an incredible time!

I just got back this evening and had an amazing time!! I made a spread sheet of all of the gluten free friendly restuarnts I could find...(it's almost 50). If you send me your email, I'll send it to you with my top recommedations.

If nothing else...

www.babycakesnyc.com

: )

Thanks for the tips!!!

I am way sad about the gelato!!! It's so amazing!! I'll be checking out the one near the Vatican as much as I possibly can!!!

I will definitely be going to that restuarant in Paris ...maybe multiple times : )

Does anyone have any restaurant recommendations for Paris, Rome, or the Amalfi Coast? My husband and I are going for our anniversary and I have no idea where we can go out to eat.

Any help would be greatly appreciated!

Thanks so much!

Kelly

Thanks so much for coming to visit our city!!

I'm pretty new to the gluten-free thing. Rio Mar in the Wearhouse District is an excellent choice for Latin inspired seafood. Also, there is a restaurant called Casamento's uptown that has all gluten-free fried seafood.

I'm happy to help with suggestions for anything!! We have an excellent zoo, aquarium, children's museum and so many other family friendly things to do!!

I did have a pituitary adenoma....about 2.5 mm, but it did go away about 9mos. later. I think it's a fairly common thing. So sorry that it's gotten larger! You may feel much better by having them go in and take it out. From what I remember reading the procedure is not as complicated or scary as neurosurgeon might sound.

Praying that all goes well!

I also have normal TSH and t4, but really low t3. I have had all of the hypothyroid symptoms for a long time, but always had a normal TSH. Finally a new and wonderful doctor took the t3 level and was surprised I was even able to function. I am now on a combination of Synthroid and Cytomel. I was doing much better for a few months, and then my t3 level got just as low as before starting on the meds. I am now on a higher dosage of each as of just a few days ago, and still adjusting. Being on these meds makes my TSH extremely low, but my dr. says that is normal when on the medication. Apparently my brain thinks I have enough thyroid hormone, when my body clearly doesn't have enough.

I've found this website helpful:

www.stopthethyroidmadness.com

Praying you find a doctor that's willing to work with you. I had no idea how bad this is until I actually starting feeling better....hoping my new doses will get me back there soon.

I have had amenorrhea for over 10 yrs. and recently found out about my gluten intolerance (as of Jan 09). No news regarding a possible connection yet, but I do feel much better overall. I'm thankful that the the amenorrhea has at least kept me pushing to find out other health issues (gluten intolerance, osteopenia, hypothyroidism, etc.).

I'll keep you posted.

From what the doctors can tell, I have hypothalamic amenorrhea as well, although it is an exclusionary diagnosis, so I'm always hesitant since there is no treatment for it. I'd rather something that can actually be treated...as if I have a choice : )

I have been hopeful that the diet would help, but was disappointed that it hasn't made your periods come back CaraLouise. Are you very strict with the diet? Are you underweight? Just curious.

Thanks!

I was told today my the manager of the Zea's at Clearview Mall that they are working on a list of gluten free items and that it should be ready within the next few weeks!!!

I'm so excited. Their Pepper Jelly Vinaigrette is gluten-free and is SO good! : )

I did the enterolab tests at the end of last year. I had a low postitive ttg (somewhere in the teens), but have felt MUCH better since going on the gluten free diet, then I slipped up a few weeks ago and felt horrible again, so I'd definitely try the diet for a few weeks and see if it helps.

Keep in mind the federal tax credit for international adoption is set to expire at the end of 2010. No guarantee it will be reimplemented with the current administration.

Nicole

That's really great to keep in mind. Thanks!!

I received a great email today from Ninja Sushi in New Orleans about gluten free rolls:

We have gone through our menu, and below is the list of our rolls that do not contain gluten. As far as our sushi and sashimi, we can accommodate your diet as necessary.

Tuna Roll

White Tuna Roll

Yellowtail Roll

Miami Roll

Shrimp Roll

Devil's Roll

Cucumber Roll

Vegetable Rool

Fresh Salmon and Avocado Roll

Request the following items to be made with NO Smelt Roe (contains gluten)

Blue Crab Roll

Alaska Roll

Salmon Skin Roll

Atlanta Roll

Shiitake Mushroom Roll

Fresh Salmon Roll

Firefighter Roll

Request the following to be made with NO crab stick

Salad Roll

Also, we do not have any gluten-free soy sauce, so you will need to bring your own if you have any.

My husband and I have looked into it. I just learned about the $11,000+ tax credit for adoptions yesterday. That could be a huge factor for us!!

I was running temperatures lower at night than in the morning, sometimes as low as 94.9. I was put on Thyroid medication for low T3, but didn't start seeing temps that got above 97.0, until I went gluten-free. I still can't really get above 97.5 though.

Weight loss is actually a symptom of hyperthyroid though.

I was diagnosed with gluten intolerance only 2 months ago, but I have had 10 yrs. of amenorrhea starting at age 17.

Because I also have osteopenia and would like to get pregnant, should I, by the grace of God, ovulate and I on a regiment of estrace and prometrium which does cause a withdrawal bleed. I've only been on this for the 2 mos. as well. So, I'm not sure how I'll know whether the diet will cause me to have periods naturally again or not, since the HRT will mask it.

I've had so many doctors in the last 4 yrs. try to push fertility treatments on me. I've thought this is so ridiculous given how terrible I feel....something else was obviously wrong with me! If gluten indeed is the problem, I can't even imagine all of the terrible things that could come from a fertility drug induced pregnancy when your body is totally out of whack.

I've had doctors try to tell me that I have PCOS, but I've never had cysts on my ovaries and I've had at least half a dozen ultrasounds. My current doctor definitely does not think that is this case, but does suspect that in the years that I had periods that endometriosis was an issue and in some ways, the amenorrhea has been a blessing keeping me from the effects of endo.

No one really seems to think amenorrhea is a problem....granted there are many, many worse predicaments in life, but I think it's obvious that something is wrong.

What millet bread where you eating? I've bought the Food for Life loaf several times and really liked it.

I would love to keep each other updated as to what happens and any info we come across.

My mom has been a distributor for over 10 yrs. and I have taken them on and off. If I remember correctly, there is pretty substantial research behind them....independent, from what I recall. They have removed the oats and barley and claim to be gluten free. I have not had a problem with them.

Two of my doctors recommend them as well. It definitely can't hurt....because it's like eating the whole food, you get all of the vitamins, phytonutrients, etc. that God intended us to get from the food itself.

A representative from Kraft called to assure me that they disclose all sources of gluten and require their suppliers to do the same. I thanked her for their commitment to taking gluten seriously.

I'm still not sure what made me sick....