Doc Wont Say Celiac For Sure...pretty Sure I Am.. in Coping with Celiac Disease Posted March 29, 2012 · Report to Admin Thanks all for the responses....I could have caesin intolerence but I am in denial of to try dairy free ( I LOVE cheese.. ) I did go see an allergist whom did the food scratch testing which came back negative for all so I did the food patch testing which also came back negative...I was basically told that we may never know what causes the EE..along with "I dont think you have both celiac and EE that is rare" so I just take my flovent and hope it doesnt get worse? The only sign of EE I had was a tight feeling in my throat which I have not had since going gluten free..so I dont know if was the gluten that was causing it or what..I wont know until I have a follow up endoscopy.. I am going to beth isreal in boston..they are supossed to have a good celiac clinic..hopefully I will get some answers and a knowledgable doctor..I got scared with my last bx it looked to me like cell changes I thought I was getting cancer or something!!!! So I want to get this gi issue under control and cause no more damage... I have a hard time with gluten free..I am always on the go so getting used to not eating out...it is a very hard change..I go to places I think are gluten free but then I think I get sick..so I dont know if I am completly gluten free....it is a uphill battle I am learning day by day...I give credit to all of you who does this and do it well... but thank you all!