HelpinOhio

I don't know the answer to your question, but do you really want to put all that sugar and chemicals into your body?

I guess not, but I dont have much of a choice because theres nothing else in our house to drink on a hot day. Im a teenager by the way, I dont have the option (or ability) of going out all the time and getting things for myself at this time and the way I feel now.

Water is always good but sometimes you need something more.

Does anyone know if the ALDIs "Infuse Thirst Quencher" is gluten free? Its basically ALDIs version of gatorade (I think actual gatorade is gluten free).

Here are all the ingredients of the 2 I have,

Extreme Grape- water, glucose syrup, sucrose, citric acid, natural and artificial flavors, salt, sodium citrate, potassium phosphate, ester gum, blue 1, red 40.

Lemon-Lime- water, sucrose syrup, high fructose corn syrup, citric acid, natural lemon and lime flavors with other natural flavors, salt, sodium citrate, monopotassium phosphate, gum arabic, glycerol ester of wood rosin, yellow 5.

What do you think?

Say you got the blood test for Celiac disease done 3 times, twice with added gluten for 2-5 weeks prior, and they all came back negative. Then you got the upper endoscopy after eating added gluten for 2 months (normal diet for 6 months), and it came back negative as well. But you still suspect Celiac Disease since you had a mystery illness for 7 years and you have a family member with it and a lot of the symptoms match up.

You still want to try the gluten free diet after all that.

How long should you stay on the gluten free diet before quitting (if you see no changes)?

I've been on the diet for about 7 weeks and I don't really notice any changes so I'm wondering how long I should wait before just going back on the normal diet, or how long it could take for me to see some changes (if it is Celiac Disease).

How hard is it to eliminate Casein, Dairy, Soy, and Gluten at the same time?

Ive noticed that a lot of the gluten free food Ive been eating has either Casein, Dairy, or Soy in it so Im guessing it will be incredibly difficult to eliminate all of those at the same time.

I already know for a fact that I have some lactose intolerance, so Ive been staying away from most dairy products, but if something just has a small bit then I still eat it.

Ahh this is so frustrating. Im willing to try almost anything though.

What are your symptoms?

I posted the link to the thread I made with all my symptoms in my last post.

Here it is again: https://www.celiac.com/gluten-free/index.php?showtopic=56173

Just click that link and it will bring you to the thread where I wrote down 90% of my symptoms.

Momma Goose, yes I have been tested for Lyme Disease. I was just tested for it about 6 weeks ago along with many other things. I think Ive been tested for it in the past as well.

GFresh404, here is a topic I made with a list of about 90% of my symptoms: https://www.celiac.com/gluten-free/index.php?showtopic=56173 .

I don't think Ive been tested for food allergies, and haven't went on an elimination diet yet.

If you have read my other threads you know that Ive been dealing with some mystery illness for the past 7 years, if not more. Im only 18 years old so thats a large portion of my life. About 2 years ago I had to quit high school and go to a different place and later onto the computer classes, I cant concentrate enough to even do them. Ive been stuck in my house most the time for the past 10 months because I feel and look too bad to do anything. Its horrible. I try to do stuff and have an normal life buts its impossible and I fail horribly.

I was tested many times for many different things including being treated for possible mental disorders, and nothing ever worked out. They never really found anything in those 7 years. My mom was diagnosed with Celiac Disease many years ago, and I didnt learn she had it until about 1 1/2 years ago (she doesnt follow the diet). I thought that Celiac Disease might be it. Over a year ago I got the blood test for Celiac Disease done twice at different doctors, it came back negative both times. I thought it may have been because I had already started on a majority gluten free diet before that. I was tested again about 2 months ago after eating gluten regularly for many months and added gluten for a month prior. It came back negative again. I got the endoscopy done about 1 month ago, and again it came back negative. My main symptoms are similar to a serious disease like Lupus, but Ive got my ANA tested and it came back negative no signs.

Now Ive been on a 100% (at least 99.9% incase I missed a tiny bit) gluten free diet for almost a month now and Im seeing no improvements. My stomach felt funny at first, but since then there has been no change. Im so disappointed because I thought I had finally found out what was wrong with me and what had ruined my life and my childhood. I thought this was going to be some miracle cure and everything was going to be all right and my new life would start and I would finally be able to live. I guess its not that simple. The only other things that it could possibly be are not curable.

Im going to continue on the gluten free diet for at least another month if not two just to give it more of a chance and make sure. Thats all...Thanks for everybody that tried to help me on here but it looks like this is not it.

What about the "questionable" ingredients that might be gluten free?

Do you find that all of them are gluten free? some of them?

(the 2nd list on this page: https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html )

None of the food or items that I use for cleaning or anything I put on me has any of the gluten containing ingredients in it, but many of them have the questionable ingredients.

Namely: Artificial Color, Caramel Color, Coloring, Flavoring, Food Starch, Maltodextrin, Modified Food Starch, Natural Flavoring, Natural Flavors, and a few others.

Will these always be safe in the US? How great is the chance that they would contain gluten? Thanks.

I started on a gluten free diet about 2 days ago, after eating gluten while possibly having Celiac Disease for 7 years straight, if not my entire life of 18 years. I was having the mainly auto-immune symptoms similar to Lupus rather then D or stomach problems (other then discomfort and constipation).

When should I start improving and feeling better?

The 1st day of going gluten free my stomach felt different, I cant pin what it was but I wouldnt say it felt better or worse. You can check my other threads to see my whole story. I took the blood test for Celiac Disease 3 times and had the upper endoscopy done recently, all which came back negative, but my mom has Celiac Disease and I had a mystery illness that ruined my life for the past 7 years, the past 2 years Ive barely been able to do anything. Ive been tested many many times over the years for many many different things and they never found anything really wrong with me.

I guess Im just a little worried because Ive heard some people start feeling better after the 1st day, but then again Ive heard other people who didnt start feeling better for weeks or months, then they really started to notice that they were improving. Any help is appreciated, thanks.

So Jiff Peanut Butter isnt gluten free? I thought it was.

What are some peanut butters that are gluten free?

I noticed that some of those lists have products that they said were gluten free going back to 2002 (those are the dates they posted them on).

Will most of these products still be safe?

I need some more help. Im trying to start the gluten free diet as all my testing is done, and getting the gluten free food is the only thing holding me back.

I heard someone mention something like a list of "90 gluten free things you can eat right away" or something similar to that. Does anyone have that list or that link? or anything similar to it?

Im having a very hard time finding a list of things that are gluten free. I need some food to start out with and then maybe after Im on that a while and start to feel better I can concentrate more on getting the food. This has just really taken all the energy and concentration out of me and its hard to do this. Its a vicious cycle.

Thanks if you can help.

Is there anything gluten free that I could eat for breakfast that doesnt require any (or very little) preparation?

Thank you all for the replies so far.

To ranger, I live around Cleveland.

Its finally about time for me to go on the gluten free diet. I got the blood tests done (which came back negative) and now I got the upper endoscopy done, and the results for that should be back in a few days. I said after I got the tests done that whatever the results were I would go on the gluten free diet regardless, it is now about that time.

(Check my other topics/threads if you want to know my whole story.)

How do I go about starting the gluten free diet and getting all the food?

Right now Im thinking about just ordering a box of gluten free food from over the internet, and gradually learning what food is gluten free in normal stores and eating more raw fruits/vegetables/meat.

Thanks if you can help. This could be the biggest turning point of my life thus far. Exciting times.

Thank you for all the replys so far. You all have helped and I will look into them further when its time to go out and get the gluten free foods.

Im just going through so much right now, and its been 7 years Ive had this and I look around now and into the past and I see so many things that have went wrong. I blamed mainly myself for many years, but now Im starting to understand that none of it was my fault. Im not putting all the blame on my family, friends, doctors either because they really didnt know. But it seems like none of them understand my situation at all, or even care to understand it. Every little flaw about myself they either blamed on me, or the depression.

I did have depression, but it was so much more and caused by something else. Most of my symptoms are physical, and I have many mental symptoms that arent depression as well. I live in a single parent household with my mom. I dont see my dad much, but I do know him and he would be even less helpful with this than my mom. When I got all the new symptoms and panic attacks that ruined my life about 1 1/2 years ago and stopped me from going to school, my dad told me and everyone else he thought I was making it up to get out of school. Im past the point of being able to be mad at that. Im giving up on him, at least for now until I get better. If only people could go through 1 day feeling like I feel, then maybe they would understand. I do have many family problems and just life problems all together, but I wont bore you all or push them on any of you. Another thing I will say is that my mom has an okay job, but we dont have much extra money left for anything.

As far as what foods I like, Im not really picky at all. Ill eat just about anything as long as its gluten free. When Im further into the diet/lifestyle and my symptoms go away, then Ill start worrying about getting the stuff that tastes better to me. Just about anything now will do, but Im having lactose intolerance symptoms. Most days my mom doesnt cook, she works most the day so we have to either cook for ourselves, or if theres something to make in the microwave. I dont have a problem cooking if I have to, I know a little bit and am willing to learn more and do it. Oh yes, Ive also been tested for thyroid disease, lyme disease, rheumatoid arthritis, lupus, heart problems, chest problems, fibromyalgia, low vitamins, pretty much everything came back normal.

First and foremost, I have to worry about my health. Im getting the endoscopy in a couple days, and as soon as I get the results back I will be going gluten free whether its negative or positive for Celiac. After that Ill worry about getting my life back together and everything worked out. Ill probably try to get my family to go gluten free shortly after that. I dont have much patience or energy, but Ill deal with this just like I did everything else. I went through 7 years with no hope, and now I actually have hope of getting better soon so it shouldnt be too hard.

One frustrating thing about this site is that most people dont remember me from previous threads, so I have to write all this again and again. Its not your fault, but it gets kind of old after Ive explained my situation about 10 times already.

Basically, Im an 18 year old guy, my mom has had Celiac Disease diagnosed around 1980, but I had no idea she had this until about a year ago. My mom hasnt followed the diet in 20 or so years. A mystery illness has ruined my life for the past 7 years, Ive been very sick and like in a bad dream for all that time. I went to doctors many times and they always came up with nothing. It continued to get worse until I went through another bout of new symptoms and horrible panic attacks that ended the little life I had left, this was about 1 1/2 years ago. Ive been stuck in my house most the time since then. I started to research what diseases run in my family and match my symptoms since then, it came down to SLE Lupus and Celiac Disease, Ive had blood tests for both and they came back negative. But now Im 95% sure I do have Celiac Disease. I have an endoscopy in a few days.

I live in the Cleveland area. Supposedly my mom started eating gluten again within a few years of the diagnosis, and didnt have D or the other symptoms. She told the doctor this and supposedly the doctor said it was okay for her to eat gluten if it didnt cause symptoms. I know now that it was incredibly stupid for him to say that to her. My mom doesnt know about Celiac Disease and doesnt understand it at all. I see obvious signs of Celiac Disease in my mom and at least 1 other family member. I told this to my mom, but nobody ever listens to me or takes me serious. My family are the same people that made me go through hell for 3 years forcing me to take anti depressants, go to counselors, psychologists, and psychiatrists, and even sending me to mental hospitals twice, because they thought I was depressed. That entire time I told them I didnt have depression, but no, nobody ever listens to me. Along with all that I still had to go to school and do everything a pre teen and teenage boy has to. Its ridiculous. Now I see Celiac Disease and everything adds up now.

Like I said, Im very frustrated and these people never listen to me. I barely have enough energy to type this up so I dont see how I can find the time and energy to sit every one of my family members down and explain all of this to them. Im sorry, Im just extremely annoyed and frustrated at this point. 7 year of hell and a life-sucking mystery disease will get you exhausted. I need a vacation from all this.

Well, here is another problem.

Im an 18 year old guy. Im still in school and cant get a job because of my illness. I dont have any money, and I can barely cook. I cant even go out shopping with people because of how bad I feel and look.

The person that would be doing all of the shopping and most the cooking is my mom, and in all honesty she has no clue what shes doing. My mom and the rest of my family think that anything that doesnt say "wheat" or "gluten" in the allergy ingredients area is gluten free.

There is 5 people in our house. All of which eat gluten, and Im guessing at least 3 of us have some degree of Celiac Disease. My mom has already tested positive for it, but has never really followed the diet. Im just very frustrated at the moment.

I dont even fully know what Im doing, and I feel like I have to walk everyone everystep of the way like Im babysitting them, and since Im still effected by the disease I dont have nearly enough time or energy to do that. Ughh...Ill be glad when this whole thing is over and when everything is worked out and calmed down.

If youre on a gluten free diet, how do you manage to get all the food thats gluten free?

Do you have a list of gluten free foods that you can get at a normal store?

Do you have to keep ordering boxes of gluten free food over the internet?

Do you have a special Gluten free food store in your area that you go to?

It seems difficult, I have no idea how Im going to do this or even begin to get all the food.

For those who are wondering, Im going to be eating gluten at least until I get the last test done. Its the upper endoscopy in a few days.

I felt like I would give the official diagnosis one real try before going completely gluten free. I feel the actual diagnosis would make things a lot easier for me as far as it being official and people believing me and supporting me. Ive been eating a lot of gluten for nearly 2 months now (before that I had still been eating gluten normally for 6 months), and I got the blood tests for Celiac Disease done about a month ago, it came back negative. I have an upper endoscopy about 4 days from now.

Im hoping to get the positive diagnosis for that, but if I dont theres nothing else I can do get the actual diagnosis because I would have already had the blood tests done and the endoscopy. Whether it comes back positive or negative, I will be going gluten free as soon as I get the results back from it. So if all goes well, I should start my gluten free diet within 1 month from now. Im very much looking forward to it, getting the actual diagnosis would have just been a bonus for me, but I dont really need it. Im 95% sure that I do have Celiac Disease.

Before you were diagnosed with Celiac Disease and went on a gluten free diet, did you ever feel like you were in a dream? or that life just didnt feel real?

Im not talking about a good feeling, Im talking about like in a bad dream or a nightmare that you cant wake up from while your life wastes away. I havent been officially diagnosed yet, so Im still eating a lot of gluten and I feel like this sometimes. Its like sleepwalking, or being half asleep.

Its almost all the time for me, but sometimes more intense than others. Theres a lot of times specifically that I remember when I actually thought I was dreaming, I thought I was going to wake up and never did. I remember I went on a supposed vacation, and the whole time I was there it felt like I was dreaming, but no matter how hard I tried I couldnt wake up or shake that feeling. Then theres the times that I felt like I was the only real person, and everybody else was fake and just put there for me to test me maybe. I find myself shocked at my life thinking things like "Who am I?", "How am I 18 already?", "Everybody looks different", "This cant be real", "Is this really me?". A lot of times when I wake up I forgot who I am or am shocked when the memories come back and think this must be a dream.

Anyone ever feel like that before or have a similar experience? Did it go away after you went on a completely gluten free diet?

Did anyone here get a negative blood test for Celiac Disease, but a positive Upper Endoscopy/biopsy?

My blood tests came back a few days ago, and they were negative for Celiac Disease.

I have an upper endoscopy scheduled about a week from now.

Are we talking seriously GREEN sweat here? If so, check this out: Open Original Shared Link

No, its nowhere near that green. And Im not even sure if its the sweat thats green, its something coming out of my body. It could be toxins, sweat, maybe something else, Im not sure.

I'm not ruling out a disease process, but what about a chemical reaction from a lotion you are using. I discolored several shirts when I was a teen/early 20's with a acne medication for my back.

Wishing you the best figuring out the mystery.

I dont use any lotion. When I do use lotion its only on my hands in the winter.

My sheets have green stains on them. Just where my body and head touches the sheets and pillow case. There is something coming out of my body that is green and stains my sheets and pillow case when I sleep. It doesnt come out in the wash, it has ruined a few pillow cases. I thought it was just recently, but I look at my sheets from up to 6 years ago, and they are all stained green where my body was. Ive never seen this with anybody before. I am a very clean person, so its even more odd.

Has anyone ever heard of this before?

Im a 18 year old male and have had a mystery disease for nearly 7 years now, Ive been to doctors many times and they cant find out what it is. Ive had horrible symptoms for the past 1 1/2 years that has mostly kept me from even leaving my house. I finally think that I know what it is...Celiac Disease. Ive noticed that the more gluten I eat, the worse I feel. My mom was diagnosed with Celiac Disease years ago, but she never told me that she had it until 1 year ago. Most my symptoms match up.

I have 2 theories on this green stuff. 1. Something with the celiac Disease is doing something with my sweat glands to put a green tint to it. 2. The green stuff is excess toxins from my body that are coming out when I sleep. Im constipated, and I feel that my kidneys arent functioning properly to get all the toxins out because of Celiac Disease. Its a very weird symptom.