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Everything posted by haleym

  1. I have been trying to order stuff off of Triumph Dining for weeks. They don’t return calls and their site seems to be messed up. Did they go out of business??
  2. thanks- read the Chicago center and they say 1/2 piece of bread or cracker a day for 12 weeks before test. Will look at the other centers then decide.
  3. I have Hashimoto's and will be tested for celiac soon... Hope you get some answers!
  4. Hi everyone! It's been a while since I've posted... I have symptoms of gluten intolerance and my doctor wants me to have the celiac panel done to check and see if I have celiac disease, or a non celiac gluten sensitivity. I ate gluten last Wednesday in the form of a glorious baguette and paid dearly for it all weekend. It was a re introduction of gluten after being off for about five weeks as part of a detox/elimination diet to figure out why I have been so tired for so long. Also found out today I have Hashimoto's disease. Nice. I've read that one must be currently eating gluten before getting tested and I want to know how much and for how long before I go and get myself tested. I want the. Test to truly reflect what is going on so I can know if I have celiac or not! Knowledge is power! Thanks!
  5. Just curious to see what you all have for a reaction time on average if you accidentaly eat gluten. I usually feel it gradually build up from within a couple hours with the worst coming the day or two after. What about you all?
  6. Their graham cracker mix is really, really good.... prepare to eat the dough up before even baking it. I love it... just be careful re: cross contamination (see above posts!)
  7. While in Finland and maybe Estonia, look for products from Semper and Finax. Gluten free is ''GLUTEENITON'' in Finnish, and since a lot of things are writting in Swedish also in Finland, GLUTENFRI, GLUTENFRITT and GLUTENFRIA is gluten free in Swedish. Finland, like Sweden, is total gluten free heaven. I lived in Sweden for a while and got to experience this first hand! Happy travels!
  8. Mostly irritated/hot feeling... ice gives relief. Hmmm... have not gone nuts on the nightshades but I will check that out. Thanks!
  9. Hello everyone. Today I woke up and noticed that my thoracic spine/neck feel inflamed and it is kinda freaking me out. That's never really happened to me before and I am wondering if any of you have ever experienced this kind of thing? I've heard that certain foods have inflammatory properties and should be avoided by people who have inflammation issues. Does anyone know of any good resources/books/tips about this? I *may* have gotten glutenized yesterday at a restaurant because I also have some of the familiar GI sx today as well. But ive never gotten a wierd inflammation reaction like that! *sigh of frustration* this is SO hard! Thanks for any ideas y'all might have
  10. Yes, now I seem to get more of a total body reaction- tired, stabbing-like stomach pain, crabby, thirsty and constipation. And it starts as long as 2 days from the time I accidentaly eat gluten. I used to only get really bad bloating and pains before I stopped eating gluten. Those are still there, but with added symptoms now. Glad Im not the only one!
  11. Hello Guys! Thanks for reading this. Some short background before I ask your opinion and advice. A year ago I was suspected of having Celiac, and they ran a blood test and said everything looked OK and did not show evidence of celiac. I was still having really bad digestion issues so my ARNP told me to try the diet, which I did very sloppily and reported back to her that it didn't change my sx. Well, a while later I did my research and saw that I was not being careful at all and tried a month long strict gluten free diet, which TOTALLY helped. I never followed up on it and 9 months later I am still gluten free and doing super well, so much better than a year ago. I'd like to tell my ARNP that the diet worked and that I think she was right about celiac or gluten intolerance, but I am not sure it would be worth getting further evaluated because I think she would make me go on a gluten challenge and then run the tests again. I am curious to hear what you would do. Also, is it standard to run a total IgA when they run the Celiac panel. I've had some issues with skewed allergy test results (skin prick) and wonder if that could be related to having IgA deficiency. I've heard that IgA deficient people will test negative for Celiac even if they really do have it. THANKS very much for your advice, it is very appreciated! Haley
  12. I am going on 9 months gluten-free and would not go back to eating gluten again. I lost persistent stomach pain and bloating, and some other embarassing GI stuff. My acne has started to get better, thank GOD!, and I have saved money because I have been eating home-made lunches for the last months. Ive accidentaly eaten gluten once, and it has been a reminder of what life was like in the past. Im a massage therapist, and it was NO fun to have sudden pain or flatulence (!) in the middle of a session. That SUCKED. No more of that! YAY!
  13. Interesting, and great topic! I ate some questionable pasta salad after 8 months of strict gluten-free-ness. I had no immediate reaction but the next day I had some cramping and feel that typical scratchiness-sand paper in gut type feeling. I guess that each person reacts slightly different, but that doesnt mean that we can cheat on our diets if it only hurts a little at first. THANKS very much for bringing this up!
  14. Having been in the same boat, and having had a blood test come out neg. and then reacting very well to the gluten-free diet, I would say that sometimes we know our bodies well enough to know what we should and shouldnt be eating. I would imagine it would be empowering to have a dx because then you have the ''on paper'' factor on your side.
  15. my daily diet (I have very little variety in my diet, I know... I use Kinnikinnick brown sandwich bread- nuke it for 30 sec to make it soft. coffee yoghurt and open sandwiches with pickles, mustard and pastrami or eggs, corn tortilla/polenta, salsa and refried beans last nights leftovers coffee apple or gluten-free granola bar possibly som popcorn open sandwiches/grilled cheese and some kind of soup and salad dessert- yoghurt with blurberries, or if Ive baked any dessert (usually crustless apple pie) I'll have that.
  16. I have hypothyroid, very low bp and ALWAYS cold hands and feet! Im on meds for the thyroid and I am still cold, but Im not so dang tired as I was before I was dx'd with thyroid issues. Ha ha people always say it's because Im thin, but that's not true! Ive talked with people of all builds who have cold hands and feet. But its especially troublesome for me... Im a massage therapist and it drives my patients nuts! LOL
  17. Hello! Im traveling Icelandair in a few weeks and since I chose to have the rock bottom cheap tickets, they dont come with a meal like they usually do when flying to Europe. Has anyone got any suggestions for items to take on board for dinner/breakfast. Im worried about the liquid issue, because Id would like to bring some of those Allergaroo spaghetti pouches or something with me, or at least a jar of peanut butter/almond butter to go along with my bread that Im bringing.. Please suggest anything and everything that you may have found useful! Thanks! Haley
  18. Well, theres whole grain teff, corn, rice, and other gluten free grains. Not all grains have gluten- for example, buckwheat, quinoa, corn, teff, rice, millet and others are gluten free! Yes, buckwheat has a name that may put us off but it has no gluten... I think buckwheat is actually a seed! Its confusing at first but keep researching things and the fog of uncertainty will clear.
  19. Well, Id say that I get a lot of satisfaction from making all of my food from scratch at home, especially bread. There is a lot to be said for bringing a sandwich to work and eating it and remembering that it is home made, and high quality, without additives, and perfectly tailored to what your body needs. Its not something I would be saying had I not found out that I am gluten intolerant. Its also been a great joy to have an excuse to not eat the cupcakes and cookies everyone brings to work. No one gets gluten free ones, so I cant be tempted!
  20. Hi there! I have experienced a couple of glutenings since first starting, and I am wondering if the following is anything any of you have had also. Ive noticed that the ''form'' of gluten I get seems to affect the symptoms I have. I had soy sauce in some thai food last week and I think it caused me to have a horrible headache for days. Other times I accidentaly had a couple spoonfulls of some barley soup before I realized it was that and had a burning pain in the upper GI tract a few hours later. Do any of you get different symptoms depending on what the form of gluten you eat is? THANK!
  21. Yeah, I am with you on the lining things with parchment and tin foil! You dont want cross contamination. And good for you for wanting to introduce people to gluten-free food. My family used to be afraid of it but now my mom and sister and friends think ''my'' food tastes better than a lot of what they have! LOL! OR perhaps you could preorder some of your bakeware and have your gluten free ones to bake on when the party comes! Good luck! Let us know how it goes down! Ive heard that the Chebe bread mixes are quick and could approximate those little crescent rolls from a tube they always use... maybe give that a shot, or just come up with some easy flatbread of pizza recipe!
  22. Hello all! Im going to Iceland for the first time in April and will be staying a couple of days in Reykjavik before heading on to Sweden. Have any of you gluten-free-ers ever been to Reykjavik? Anyone know what to look for in the grocery stores as far as gluten free. I am thinking they will have a lot of stuff similar to the Scandinavian countries. But any input would be sooooo appreciated! Thank you!
  23. OMG I just had a major realization about how serious this whole gluten thing is. I ate some soup the other day and after seeing that it was gluten-free (ingredients in the list were gluten-free and it was at a health food store, so they are aware of gluten issues), I start eating it and taste something mildly crunchy-chewy that had a familiar taste of wheat/barley! HOLY COW was I upset! At first I had no reaction and thought, OK maybe it was a piece of something else, but NO!!! about 5 or so hours later, I felt the stupid inflammation/pain feeling come on in the upper GI area and it lasted me into the next day. It wasnt an extreme reaction, but it was enough to make me think about how hard we work every day to feel good! Not to feel sorry for myself, but this feels hard sometimes! Thanks guys!
  24. I remember that when my gluten problems were coming to a head I could not even have yoghurt without some repercussion. Now I can have straight milk in smaller quantities a couple times a week without too much issues. I just think I am a slow lactase producer and have to pace myself with the dairy now.
  25. My sister and I get that also, and my sister says that it can be related to hypoglycemia, so you may want to watch that. I am a massage therapist, and I got a horrid dizzy spell in the middle of working with one of my patients... it's a good thing I was sitting on my stool because I really could have fallen on my patient, the room was spinning so much! Good luck, keep us posted!
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