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billy

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About billy

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  1. thank you for your replies! i can't believe how familiar they all sound to my own story. i'm still on the diagnosis...
  2. has anyone suffered or is suffering from a neuromuscular disease as a result of or in addition to celiac or gluten intolerance...
  3. oats and amaranth bother me, not as bad as gluten, etc., but enough not to eat them for a long, long time (i'm gluten...
  4. it's nice to know i'm not alone! thank you for your take on the two. the consensus seems to be that both cause the body...
  5. sometimes i'm gluten-free, sometimes i'm not. i'm one of those stubborn patients who need to hear a diagnosis with the...
  6. i had a biopsy and blood test about 1.5/2 years ago, which came back negative (i believe because i had been gluten free...
  7. thanks for your comments. my gi doc is doing the colonoscopy next week. i've had the endoscopy (negative) and the blood...
  8. has anyone heard of being tested for celiac disease in a colonoscopy?
  9. i'm 5' (used to be 5' 1/2" but am shrinking from severe osteoporosis). i haven't grown since i was 14 or so and was always...
  10. my gi doctor also said i had ibs and was probably gluten intolerant because my biopsy and bloodtest were negative; however...
  11. It's mentally comforting to hear everyone's responses. I've been fighting this phantom celiac disease for the past four...
  12. Anyone out there diagnosed with IBS or another GI-related disorder instead of celiac disease when you thought you had...
  13. how accurate are blood tests? i just had my second negative test in two years even though i've tested myself through...
  14. thank you for your opinions! i'd say i'm about 50 percent gluten-free now (it's hard being a vegan with the intolerance...
  15. what is the consensus on going back on gluten before visiting a gastroenterologist for diagnosis? this will be a first...
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