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Everything posted by jkr

  1. I have a recipe for vegetable beef soup that calls for barley that I used to eat. What can I use to replace the barley? Thanks!
  2. I haven't been taking my B12 & magnesium regularly so I'm going to make sure I do. Thanks for the info.
  3. I have numbness in the thighs also. It comes and goes. I have celiac disease. I have had nerve issues in my thighs for years. I think mine could be from the celiac. I went to a neurologist years ago and he gave me anti-depressants which can help with nerve pain but it didn't help. I take Advil also and it sometimes helps. If I'm walking for long periods of time I get the pain. Hope you can get some relief from the pain.
  4. jkr

    Weight Gain

    I've gained about 12 lbs ever since I went gluten free. Is it because I'm absorbing more fat or maybe because I have gone crazy with sweets! Could be a combination of both I guess. I'm trying to limit sugar and carbs. Hopefully it will help. I've never had to watch my weight ever, so it's weird.
  5. I thought the V8 Butternut Squash soup was gluten free but after seeing some old posts I guess it isn't, correct? My stomach told me it wasn't - I had such pain just like in the the old days.
  6. jkr


    I also have been experiencing a "sensation" like yours. Was it right under your ribs?
  7. The hematologist told me to take Ferrous Sulfate 3 times daily and surprisingly I did not have any side effects from it. I think it's a good supplement. My hgb and hct looked good after taking it for 3 months and my iron stores came up nicely.
  8. I did have severe intestinal damage but the doctor couldn't tell by the pictures. The biospy told the story. Good luck and I hope your damage is minimal.
  9. jkr

    Just Diagnosed.

    There is so much information to obtain on this forum it is wonderful. I have found so many great recipes here and on the internet. Thank goodness mainstream stores carry gluten free foods. When I'm at the grocery, I use my iphone and go on this site and I have the app "Is this Gluten Free" to help me choose wisely. Good luck and happy healing!
  10. I didn't think an elevated ttg could mean gluten intolerance. I thought it was just an indicator of celiac.
  11. For the last few days I've been having a "sensation" to the right of my navel. It's not a pain, and it comes on after eating. I've read older posts similar to this. Has anyone had this issue lately? I wonder if it has to do with the celiac. I will go to the GI if it keeps up. It's very annoying.
  12. Is there a blood test for soy intolerance or is it just a stool test?
  13. My periods came back this summer after not having periods for over a year. I became gluten free this year when I got diagnosed. I think it had something to do with my periods returning. I'm 50 so we will see how long it lasts.
  14. My GI didn't want to do a repeat biopsy. I don't feel the need to have another one anyway. He didn't even tell me to come back for repeat blood tests which I think I should have. I am going to call him in a couple of months (I had the endoscopy in July) and ask him when he wants me to have another blood test. I had forgotten to ask him about this when I was there in August.
  15. jkr

    gluten-free Iphone App

    It's grocery store stuff.
  16. I have a question: When a recipe calls for a certain type of flour, can I subsitute any gluten free flour? Thanks in advance!
  17. The same thing happened to me in regards to the anemia. They thought I was bleeding somewhere in my intestine. I had both colonsocopy/endoscopy and they found celiac with the endoscopy. I had intermittent issues with IBS all of my life, but like a lot of people, I just thought my bowel was irritable. I do feel so much better overall and I didn't realize it until I went gluten free. Good luck to both of you. Even if you don't have celiac, it's better to eat gluten free anyway.
  18. My doctor thought I was in menopause because my period stopped from Sept 2007 until May 2009 except for one period in July, 2008. I went gluten free for good after my endoscopy and official celiac dx in the beginning of August and I started getting regular periods again. I've read posts here about early menopause because of the gluten. I just think there is a correlation. Even my gyne understood and I was shocked. Anyway, I'm going for an ultrasound to check everything out but I really believe going gluten free made a difference. I had the menopausal symptoms, hot flashes, etc before but I don't anymore. I could tell I was ovulating before my periods came. All I know is I feel better now.
  19. jkr

    Dark Circles Under Eyes?

    I've had dark circles under my eyes all of my life. I know I've probably had celiac since I was a child. My dark circles haven't gone away but I've only been gluten free since August 4th. We'll see. I was always sick of people asking me " are you feeling alright?"
  20. jkr

    gluten-free Iphone App

    Yes, I have the "Is that Gluten Free" application. It's very helpful. It doesn't have everyting I have looked for but it's a good basic guide for you when you're at the grocery store.
  21. Hello, A blister formed on my arm, just a single blister that doesn't itch. When I first saw it, I tried to remember if I burned myself, because there was a little rash by it. Now it's just a blister. I've read older posts about it, I don't remember the name of the condition. Has anyone else had this recently? I made an appt with a dermatologist. I wonder if it's another auto-immune condition or because I've been glutened a little lately.
  22. I will remember that if he takes a biopsy. Thanks for your reply.
  23. I don't need any responses to this. I went on-line again and found the exact name of the condition. I'll wait to see what my dermatologisit thinks. The blister broke on it's own last night and looks flat now.