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Voss

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  1. Voss:

    I can’t tell you how much I appreciate your replies and you help with this. Its just been a little overwhelming, I feel also though I’ve already put so much effort into researching celiac disease. Though I’ve learned a lot, I got frustrated when I realized I’d have to research a whole new area to feel healthy again. Thanks for pointing me in the right direction!

    Thanks again,

    David

    You're welcome, I know the feeling. :D

    I have access to doctors (I live in the Netherlands), but they suck at everything which they cant give you some pill for. :angry:

    So I had to diagnose myself, and the results tell me I am correct. :)

    There is another intolerance you can have. This is an intolerance for salicylates and benzoates. This too has to do with Celiac.

    But this is a very rare intolerance, if both avoiding lactose and histamine dont work 100%, you can take a look at that.

    Lots of histamine-rich foods are rich in salicylates/benzoates too by the way. So histamine-low eating will take care of salicylates/benzoates for a great deal already.

    But maybe going lactose-free is enough for you. :)

  2. I have celiac, am histamine-intolerant and salicylate-intolerant.

    I lived a few weeks on only:

    - water

    - iceberg lettuce

    - potatoes which are low in solanine, like Nicola potatoes

    - 100% glutenfree Oatmeal, like Provena Oatmeal from Finland.

    - Organic Turkey breast fillet

    It was not explainable to anybody but I felt like Superman, feeling my body refresh itself. :D

    Now I can tolerate more foods with some supplements im taking.

  3. Also if avoiding milk, cheese and everything else with lactose in it doesnt help you,

    you might consider histamine-intolerance.

    That can cause bad GI symptoms too.

    I have this too and Im 100% sure its because of celiac hurting my gut over the years when I didnt know I had celiac and ate gluten.

    Histamine is found in:

    Cheese, Processed Meats, Bananas, Tomatoes, Tuna, Smoked Fish,Wine, Beer and other things.

    Have a look at this website:

    Open Original Shared Link

    Open Original Shared Link

    Open Original Shared Link

    Open Original Shared Link

    Its a commercial site for a anti-histamine supplement, but it has good info on it.

    I used that suppelment and although it gives realy good relief after eating something rich in histamine it isnt a miracle pill.

    Plus its quite expensive in my opinion.

    So first try eating lactose-intolerant, if thats not enough try eating histamine-low foods for a while to see if that works.

    No need for the expensive supplement if you avoid the foods that have a lot of histamine in them.

  4. Voss:

    Thank you so much for your reply. Do you know of any good, reliable websites that deal with Lactose Intolerance? Sometimes doing a random search on the web turns up unreliable information.

    Thanks again for your help!

    Sincerely,

    David

    My pleasure,

    there is always Wikipedia with a lot of info:

    Open Original Shared Link

    And there are a lot of topics on this celiac.com forum about lactose too, because a lot of celiac have it:

    https://www.celiac.com/gluten-free/index.ph...t=0&start=0

    https://www.celiac.com/gluten-free/index.ph...&hl=lactose

    If you have more questions, just ask. :)

  5. Lactose intolerance can give you bad GI symptoms yes.

    Lot of celiac have it, because when the gut gets messed up by gluten, the gut loses its ability to digest lactose bacause the gut can no longer make lactase.

    If you are gluten free for a while, your gut restores and is again able to make lactase and therefor digest lactose.

    How long that takes on average I dont know.

    Kraft Cheese has a lot of lactose in it, I reckon.

    There are supplements with lactase in it so you can eat lactose after taking such a supplement, but those supplements have sometimes maltodextrin in it, which can come from wheat and therefor cause problems for very sensitive celiacs.

  6. I have celiac and are intolerant to salicylates, histamine, etc.

    I found this research yesterday in my own quest for answers as how this is all related.

    While googling more I also found this topic, so I registered to post this:

    Gilbert's syndrome is caused by approximately 70%-75% reduced glucuronidation activity of the enzyme Uridine-diphosphate-glucuronosyltransferase isoform 1A1 (UGT1A1).

    Open Original Shared Link

    Open Original Shared Link

    Deficient UDP-glucuronosyltransferase detoxification enzyme activity in the small intestinal mucosa of patients with coeliac disease.

    Department of Gastroenterology, Radboud University Medical Center Nijmegen, Nijmegen, the Netherlands

    Background Small intestinal malignancies in humans are rare; however, patients with coeliac disease have a relatively high risk for such tumours. Intestinal UDP-glucuronosyltransferases are phase II drug metabolism enzymes also involved in the detoxification of ingested toxins and carcinogens. As many toxins and carcinogens are ingested via food, the human gastrointestinal tract not only has an important role in the uptake of essential nutrients, but also acts as a first barrier against such harmful constituents of the food. Therefore, the gastrointestinal mucosa contains high levels of detoxification enzymes such as cytochromes-P450, glutathione S-transferases and UDP-glucuronosyltransferases.

    Aim To compare the UDP-glucuronosyltransferase detoxification capacity in small intestinal mucosa of patients with coeliac disease vs. that in normal controls.

    Methods We assessed UDP-glucuronosyltransferase enzyme activities towards 4-methylumbelliferone in small intestinal biopsies of patients with coeliac disease (n = 22) and age- and sex-matched controls (n = 27).

    Results Small intestinal UDP-glucuronosyltransferase enzyme activity in controls was significantly higher than in patients with coeliac disease: 0.55

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