
sunnybabi1986
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I would imagine that the high number of people diagnosed positive through Enterolab is because people with no symptoms aren't likely to send for a $400 test. Probably, nearly all, bar a few, order the test because they are sick and have researched and found that their symptoms match those of gluten intolerance and are curious to know if it truly is the problem. They then test positive because gluten is the problem, just as they suspected. It also helps to have something concrete telling you gluten is making you sick.
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As far as I know (which isn't much!), I was under the impression that gluten intolerance is when your body produces a reaction to the presence of gluten, making you sick. Celiac disease is the point at which the villi in the intestines are actually damaged and it is visible. I may be wrong, correct me if I am, but this is what I had read awhile back. I would tell people that your daughter tested positive to having an intolerance to gluten through lab work. Hopefully that will be enough to convince them? Good luck!
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I bought Cecelia's Gluten Free Guide a few weeks ago and was super excited to have such a long list gluten free items in my hands, but I do want to throw out a caution. There are a few items listed that are NOT gluten free and I'm not sure why they won't remove them. For example, Tylenol Rapid Release Gels are listed as being gluten free in the book, but when I contacted Tylenol, they told me the RR Gels are NOT gluten free and even sent me a list of their gluten free products, with RR gels not being listed as gluten free. I contacted Cecelia's Marketplace about it, but that was a couple weeks ago and they still haven't made any product alerts for Tylenol RR gels. Also, Wonka Nerds are listed as gluten free, but on the package, it clearly states that the product is made on machinery that also produces wheat containing candies. Sooo...I still use my Cecelia's Marketplace Guide, but I still read labels. And I make notes in my book if I call a company and find something different than what's listed. Hope it helps!
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I got sick to my stomach the other day...after drinking Gatorade!! The only thing I can figure that made me sick is the high fructose corn syrup. I stay as far away from it as possible usually, but I was trying to keep myself hydrated (I've had a sinus infection all week). I have definitely noticed that when I drink things with high fructose corn syrup, I get a stomach ache and don't feel well for several hours. Maybe that could be what set you off?
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Yeah, I'm having the same problem here. I've always been very underweight and in the past year, I've dropped several more pounds and I'm afraid to list my weight for fear that someone will send me to the hospital
Rice, potatoes, vegetables, fruits, and nuts just aren't cutting it for me calorie-wise. Unfortunately, for years, the bulk of my calories came from dairy. However, dairy now appears to be a problem, so it's a no go for dairy now. After dropping the dairy, I started eating a large amount of whole grain pasta to try to make up some of the calories I'd lost, and voila, here I am, on a celiac board
I'm curious about the coconut milk...do you drink this plain or put in on cereal or what? Sounds yummy, but I've never tried it. I may have to give it a shot! Any suggestions on how to eat/drink it? And boy, do I love macademia nuts! Expensive, though...
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So I moped most of yesterday and cried a lot last night because I was craving spaghettios so badly and my son was eating them for dinner. But then my mom called me and was telling me about her friend. Her friend has rhuemetoid arthritis and is in severe pain everyday. The meds that she is on are killing her liver, so they're switching her to another medicine that costs $1500/month, and she can barely afford them. Yeah, crazy. So I felt pretty foolish after that. I mean, I'm not in severe pain everyday and I'm not paying $1500/month to try to just manage my condition.
At times it may feel like my world is coming down around me, but in reality, I'm not nearly in the predicament that I imagine I'm in most of the time. The crazy thing is, my mom's friend who has arthritis so badly doesn't even complain about it, yet she suffers everyday. That kind of makes me feel like maybe I should look at this from a different perspective. Yeah, this definitely sucks, but it could be worse. I know that saying is so worn out and doesn't mean much to some people, but when you know someone who does have it worse, it makes sense.
BTW, I had Dinty Moore Beef Stew tonight and it was AMAZINGLY awesome!! I will be stocking up! Such a great comfort food!
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Ever notice how that Pillsbury dough boy is all fat and bloated?
Hahaha! Makes more sense now! This made my day...thank you!
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Wow, I can absolutely identify with this post and with the mention that going through this is similar to the stages of grief when you lose a loved one. I'm having such a hard time giving up so many foods I love. Some days I don't eat anything. Some days I can hardly get out of bed. I can't visit other people right now because I see all the food they're eating that I can't have and I just want to hit people in Wal-Mart with normal cereal and pasta in their carts. I'm definitely going through the entire spectrum of emotions and I really feel so isolated, like nobody around me understands what I'm going through. Like giving up 90% of the food I normally eat on daily basis is not life-changing. I just want to get out of this depression but I'm not sure where to start. I can't exercise, I'm still so exhausted I can barely leave the house. I'm scared to eat anything anymore and so I'm hardly eating, which isn't helping at all. It's encouraging to know I'm not the only one out there feeling like this, but I still feel like I really need some help along the way. My insurance won't cover this, though, since I had symptoms before I applied, and it's a "preexisting condition." Bleh. It does suck.
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If you can get your hands on a bread machine, Pamela's Bread is the BEST I've had so far. I've only been gluten free for a little over a week, but I've tried several breads already, many of them ending up in the trash. When I made Pamela's Gluten Free Bread, I was super excited because I'd read so many great reviews about it, and my house smelled so good like homemade bread while it was cooking. And amazingly, when I cut it and ate some, I honestly couldn't tell it didn't have any gluten...it was delicious!! The bread holds together perfectly and wasn't stiff or crumbly like the premade bread at the store.
As far as pasta, I tried Tinkyada and it was good. I put some oil on it after I rinsed it, and definitely regretted it. The pasta soaked up all the oil and got slimy and pretty gross. However, the pasta without oil is very good. I added tomato sauce and some herbs and it was yummy. Good luck!
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This is a bit confusing for me, because I just contacted Kellogg's last week and they assured me that Eggo Syrup and the fruit snacks are gluten free. I checked the website today and the products are still listed as being gluten free. I don't understand...if they change a product, they should put in on their site or at least let me know on the phone. Gr!
I just stocked up on Eggo Syrup, too.
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Thank you!!
I just bought a box the other day and was wondering how they would hold up in the freezer, since I don't think I'll be eating the entire box at once. Not that I'd not like to...
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Hi,
I'm currently on a gluten-free trial diet to see if my symptoms go away.
I've been researching and contacting companies to make sure products aren't contaminated with gluten, and I've been finding so many companies that list their products as gluten free, but also mention that their gluten free products are manufactured in the same facilities as wheat products, and that a "slight residue" may remain.
So, what to do? Should I avoid these products or give them a try? It's so hard to find products made on dedicated lines, it's very discouraging.
What do you all do in these situations?
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I just purchased a box of chocolate chex yesterday and my box was labeled "gluten free."
I do have an older box from several months ago, though, that still has gluten in the ingredients. Some stores still have the old boxes on their shelves.
I know I am also sensitive to chocolate, and if I have too much chocolate in a day, I get the bloating and nausea I also get when eating gluten. It is possible that chocolate could be a trigger.
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I'm currently trying to go gluten free for awhile to see what happens. You mentioned a month or two...is this how long it will take to start seeing results if gluten is the problem? Or will it just take a week to start feeling better? Thanks!
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Sorry, I worded what I said wrong.
I know it doesn't diagnose celiac, but it would tell me if I have a gluten sensitivity, which would give me some answers as to why I'm sick the way I am. It would give me the information I need to know if I should go on a gluten free diet. I'm afraid the bloodwork wouldn't give me those answers.
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I'm almost certain that I am gluten intolerant. Over the past 8 months I've had:
- Stomach bloating
- Intestinal bloating/gas
- Nausea
- Severe exhaustion
- Inability to concentrate
- Full body aches
- Joint pains
My doctor ran a full panel of bloodwork, minus testing for celiac, and anemia and thyroid problems were ruled out.
My problem is that I don't have insurance, so I really can't afford to have more bloodwork run and a possible endoscopy just to get a negative result when I might actually have celiac.
I've read so many stories about people going through the bloodwork and endoscopy numerous times with negative results each time, only to be tested by enterolabs, come back with a positive, go off gluten, and feel 100% better. Honestly, I'm so skeptical of the bloodwork and endoscopy I don't want to waste my money on it. I'm going straight for the testing through enterolab.
I was just wondering what you guys' take is on this matter. Is it really a waste of time to pay out of pocket for expensive procedures through my doctor when I can just go straight to enterolab and get a more accurate test done? I just don't see the point in even doing bloodwork when so many celiacs test negative with bloodwork anyway, but get positive results through enterolab.
Thanks so much!
- Stomach bloating
What Things Have Gluten In Them That You Would Not Expect
in Gluten-Free Foods, Products, Shopping & Medications
Posted
Haha! You can find me in the supermarket aisles with my cell phone, calling the 1-800 numbers on the back of each label before I put it in my cart...people must think I'm crazy!