terribeth07

I don't know the results but I know that the blood work came back normal.

I have been avoiding all wheat, barley, rye & oats for atleast 2-3 months (I've lost track of time). I don't really have a typical days diet.

I am still getting sick probably atleast once a week. Sometimes just nausea & other times full upset stomach.

I was just hoping if someone could tell me if there's a test they can do for gluten intolerance. The doctors seem to have given up trying to diagnose me & are just saying it's irritable bowel which I don't accept as a diagnosis. I think a lady at work had some test done for gluten intolerance & they had like some cotton swab things that she had to put in her mouth at different times of the day for one day & showed that she had gluten intolerance. My doctor has never mentioned any test for it.

Is there some kind of test for gluten intolerance? I have had a blood test for celiacs & that was normal.

Any help would be appreciated! I have been suffering with problems for 5+ years & don't know how much more I can take. My insurance is aweful so I can't afford to keep going back to the doctor every time I've been sick. I've tried gluten free & can't tell if it's helping or not (could be cross contamination or I could have another food allergy on top of it or could not be gluten at all). Need HELP!

Another question, I have had several people tell me that my sickness after gluten free & then eating gluten doesn't necessarily tell me anything. They said that anytime you drastically change your diet your body will go into shock & will make you sick. Is that true?

Thanks for your reply. I'm going to stick with the gluten free diet & then in about a month try to eat barley & see if that makes me sick. Then I can hopefully see if it's just wheat or all gluten.

Sorry to keep posting this but can anyone help me with this? I'm starting to feel better now but was sick for 1 1/2 weeks after 4 weeks of gluten free & 2 days back on gluten. Should I still be sick from just 2 days with gluten?

My husband and I have looked into it. I just learned about the $11,000+ tax credit for adoptions yesterday. That could be a huge factor for us!!

Is that just for adoptions in the US or for international adoptions also?

Thanks for the info on the gluten testing. I can't afford anymore testing right now. I have had a ton done of the last 5 years & my health insurance skyrocketed in June so I can't afford to have anything else done. That's why I am just doing this on my own now.

How long after going gluten free were you able to get pregnant? I would love to hear from Celiacs, Gluten Intolerant & others... I tested negative for Celiac but after going gluten free for 4 weeks & then eating normal again I have been nauseous for over a week now so I'm assuming my issue is probably gluten or wheat intolerance.

I would love to hear your stories. I would love to get pregnant. I have always had VERY irregular periods unless I was on birth control. I went off birth control in January & they have been irregular again since then. I'm hoping that the gluten free diet will help this.

Sorry I didn't see this reply until today (the email notification must not have been working). I was off of gluten for 4 weeks & went back on it for 2 days & got very nauseous. I never actually got sick but very nauseous & still am now a week later. I haven't eaten any gluten since last Monday morning. Do you think it could still be related to the gluten? It seems like a big coinsidence if it's not related.

During my gluten free challenge I didn't get sick but I hadn't been sick for a couple months leading up to it either. My sickness wasn't constant. It was on & off for 5 years which has made it hard to diagnose. I have had so many other tests done so I don't know what else it could be.

Anyone have any advise? Could it be gluten intolerance? Should I still be nauseous even though I haven't had any gluten in a week?

Please help!!! I can't afford to go to the doctor anymore b/c my health insurance skyrocketed which is why I'm doing this on my own.

I just did a 4 week gluten free trial & then ate just as normal & felt very nauseas the next day. Do you think that is enough of an "unofficial" diagnosis to say I am gluten intolerant? I tested normal on the celiac blood panel & have had several other tests done on me over the past 5 years. The doctor was telling me it was IBS but I was not accepting that as my diagnosis so I decided to try the gluten free diet on my own.

Thank you for all your advise. Like I said before, they have done about every test imaginable over the last 5 years & no results. This is my last resort as my doctor isn't really don't much of anything else. Plus my health insurance skyrocketed June 1st so I'm not able to afford to see the doctor anymore or have anymore tests done so I'm doing this on my own now.

My real question is, how long should I try this gluten free diet before trying to go back on regular food? I had planned on going gluten free for a month & then eat normal & see if I get sick.

Ok first of all I have had the celiac panel done & it came back normal. My doctor is trying to write it off as IBS & I won't accept that as a diagnosis. I have had issues for 5 years now & had just about every test possible & they don't know what the issue is. That is why I'm trying a gluten free diet.

As far as being hungry all the time, I am eating regular meals but I'm still hungry.

Another thing to think about: soft corn tortillas are a brilliant substitute for bread. Cheap, tasty, versatile and available in every store I've looked. Most kids think wraps are fun; I'm a 47-year-old kid, and I do.

Soft corn tortillas? Are you referring to the things you have to fry up before you eat them?

I'm also curious how quickly people have gotten pregnant after going gluten free.

I would love to hear the stories about how long it took everyone to get pregnant.

Ok I am on a gluten free trial to see if this is my issue or not. I started on Saturday. Anyone know how long I need to be off of gluten before I try to eat it again & see if I get sick. My issue is that I haven't been sick in a couple months (my sickness goes off & on) so I really can't tell a difference since I've been gluten free because I wasn't sick already. My plan was to go off of gluten completely for about a month & then eat gluten again & see if it made me sick. Does anyone know if a month is a good amount of time or should I do less or more?

Any advise on a gluten free trial would be helpful!

Thanks!

Tara

ps I'm starving all of the time now.

Does anyone know of any gluten free stores around the Cincinnati, OH area???

You mentioned the dry eyes. Does anyone know if that is related to celiacs or gluten intolerance. I have very dry eyes. I was on restasis for a few years because I was hardly producing any tears but I went off of it because it wasn't helping all that much & I couldn't afford it.

I do have health insurance but my copays & deductibles are extremely high & I can't afford to have anything else done. I plan on starting a gluten free diet soon to see if it helps. The hard part is that I'm not always sick so I don't know if I'll be able to tell if I'm better or just not having an "attack" of sickness.

I did get the celiac panel & it showed normal. I don't have the money for the biopsy. My doctor is trying to say he thinks its IBS. I don't except that as a diagnosis.

I don't plan on going through the BioAllergenix treatment as I don't want to pay for it. The allergy testing was free because I got an add in the paper. I'm just wanting a list of allergies & then I will deal with it on my own & avoid what they say I'm allergic to. Do you think what it says I'm allergic to is correct?

I saw an add about free allergy testing. I went & they used this machine called Bio-Allergenix. Does anyone know if this is for real? It is this new revoluntary allergy testing & treatment. They don't prick the skin or anything, it's like an electric serge that goes through your body to test for all kinds of different environmental & food allergies & sensativities. It came up with several things I may be allergic or sensative to. Some just said multiple responses for the category which he explained as you may be able to eat an apple or an orange & be fine but it you eat them together your body doesn't agree.

Anyways, can someone tell me if they know anything about this & if it really works? I don't plan on going through the treatment as it is expensive & not covered by insurance. I just wanted some answer (the doctors didn't give me anything but IBS) & then I plan on just avoiding the things.

Help!

Thank you both for your advise. I will probably still go through with the allergy test tomorrow since it's free & see if they find any allergies to food or anything.

I have not tried the gluten free diet. I will probably try it either way next time I get sick & see if it makes a difference. My problem is that I'm not always sick. I'm fine for a few weeks/months & then I get sick for a few weeks in a row.

My doctor did bloodwork for celiacs. My family doctor only did the 2 gliadin tests & nothing else so my GI doctor ordered the other test to go with it. HOPEFULLY I will get the results today.

Sorry to be a pest but I am hoping for a reply. I'm having an allergy test done tomorrow, but I wanted to know if they can tell if I have gluten intolerance from the test. It's not an allergist that is doing the test, it is actually a chiropractors office. I saw an add for free allergy testing & that they had a new revolutionary treatment for allergies & food intolerances so I made an appointment. It's free so I didn't think it could hurt to go & check it out. I don't plan on continuing there once they find out if I have any food allergies, I just want an answer & don't have the money to go to an allergist.

Please help!

Hopefully they can help you figure it out. Have they checked for celiacs? Before going through the surgery like I did, I would do that. Obviously the surgery didn't help me. They say a lot of people who just have abnormal gallbladders & not gallstones, the surgery doesn't fix the problem. It may make it better for a little while (like me) but ultimately it won't fix the issue.

Thank you for that link. It is very helpful.

Has anyone else had a link between abnormal gallbladder (not gallstones) & having celiac disease?

I guess I can tell you my 5 year long story (I will try to remember). Everything has been a blurr & I can

Could an abnormal gallbladder be a symptom of celiac disease? I've had problems for 5 years now. Last April I had my gallbladder out & that relieved my problems up until december. My symptoms before surgery were nausea & severe stomach pains. I would have attacks about every 6 months that would last about 3 weeks & then I would be fine again for another 6 months. Now my symptoms are nausea & diahrea on & off. They last about 2-3 weeks at a time, but I also get nausea spells for a day or so off & on in between. Before I had my surgery they did a HIDA scan that showed it was abnormal but I didn't have any gallstones. They said surgery may or may not help. I decided to just have the surgery, hoping that it would solve my problems & it did for about 8 months. I am constantly tired from the time I wake up to the time I go to bed. I've been that way for probably atleast 5 years. I don't think I'm ever not tired.