OliveBranch

Just to clarify, in case it's not obvious: I only asked them about gluten (not about corn or soy), so presumably these products are indeed gluten free, with the classic caveat that they are not ever able to be 100% sure.

In keeping with the recent spate of makeup threads, I though I'd share this info. I hadn't seen confirmation on the forum about these several Clinique products that I use, so I contacted the company and got the following response:

------------

Thank you for your interest in Clinique.

While a formulation may not contain wheat, oat, barley or rye derivatives, for the benefit of our gluten-sensitive consumers who may have cross-sensitivities, Clinique takes the extra precaution of including corn, rice and soy in our research.

All About Eyes Concealer - contains soy.

Color Surge Eyeshadow - contains corn and soy.

Eye Defining Liquid Liner - contains soy.

Lash Doubling Mascara - contains soy and corn.

Perfectly Real Makeup - contains soy.

Quickliner for Eyes - contains corn and soy.

In addressing your concern about gluten, we would like to explain that a vast number of raw materials from many different suppliers and sources are used in the manufacture of Estee Lauder Companies' products. It is therefore not possible for us to fully guarantee that our products are completely free of ingredients that may elicit an allergic response in highly sensitive individuals who react to gluten. For example, it is possible that small amounts of a wheat sourced ingredient may remain on shared manufacturing equipment even after a thorough cleaning. We therefore recommend that you discuss this with your physician, because consumer safety is of utmost concern to us.

[sERVICETICKETTEXT] We trust that the above addresses your concern. We hope you will look to Clinique for all your skin care and beauty needs

Again, thank you for taking the time to share your thoughts and concerns.

In keeping with the recent spate of makeup threads, I though I'd share this info. I hadn't seen confirmation on the forum about these several Clinique products that I use, so I contacted the company and got the following response:

------------

Thank you for your interest in Clinique.

While a formulation may not contain wheat, oat, barley or rye derivatives, for the benefit of our gluten-sensitive consumers who may have cross-sensitivities, Clinique takes the extra precaution of including corn, rice and soy in our research.

All About Eyes Concealer - contains soy.

Color Surge Eyeshadow - contains corn and soy.

Eye Defining Liquid Liner - contains soy.

Lash Doubling Mascara - contains soy and corn.

Perfectly Real Makeup - contains soy.

Quickliner for Eyes - contains corn and soy.

In addressing your concern about gluten, we would like to explain that a vast number of raw materials from many different suppliers and sources are used in the manufacture of Estee Lauder Companies' products. It is therefore not possible for us to fully guarantee that our products are completely free of ingredients that may elicit an allergic response in highly sensitive individuals who react to gluten. For example, it is possible that small amounts of a wheat sourced ingredient may remain on shared manufacturing equipment even after a thorough cleaning. We therefore recommend that you discuss this with your physician, because consumer safety is of utmost concern to us.

[sERVICETICKETTEXT] We trust that the above addresses your concern. We hope you will look to Clinique for all your skin care and beauty needs

Again, thank you for taking the time to share your thoughts and concerns.

Teemaree--

So glad you've had some good news! I hope that the problems are all manageable and that you will both BE well and FEEL well soon.

Thanks again everyone for your support!

I thought I would update where I at with this....

I've had blood tests and I haven't my results as yet...

Has ultra sound and ct scans...

the ultra sound fount 2.01 lymph node and three other non vascular lymph nodes in right groin

and three non vascular lymph nodes in left groin...

I have the biopsies on these tomorrow.

They found 5 cysts in the liver and cyst on right anexa

bulky uterus with endetrial fluid

BUT NO MASS OF LYMPHADEMOPATHY

So things now really hang on them lymph nodes being begnin ....

but there are no masses of lymphademopathy, which is great news!

if the nodes are malignant, at least we are on top of things , before they could have been far worst!

but Im truly hoping they aren't malignant

That's really interesting--thanks for posting!

About a year when I was in a lot of pain and having many issues my primary doc thought I had RA and suggested we do the test for it which could possibly come back negative which is very common I guess. It did come back negative but she strongly felt I had some kind of autoimmune disease since they run in my family and I already had one. She suggested that if things were getting bad for me...pain wise.. there was this drug called low dose naltrexone which can be given to people with all kinds of autoimmune diseases and cancers and even AIDS. The drug is fairly inexpensive and have been a godsend to many people who are really suffering and the really good thing about it is it is given in such a low dose there is hardley any side effects. I can't personal vouge for this drug but the things I had read have been good. It doesn't suppress the immune system...if I understand the info correctly. Many doctors haven't heard of this therapy yet so if you want to know more go to lowdosenaltrexone.org and read up and print out the info and take it to your doctor. If you are tired of prednisone or other drugs that you have been prescribed take at look at this. There is also stuff on youtube about this drug. Remember if you are interested in this make sure you print out all the info on this drug and take it in to your doc. It seems docs are real quick to shut anything down they didn't discover themselves. Google it, there are many docs and clinics that use low dose naltrexone therapy. Maybe this topic has been brought up before on this site as I'm fairly new to it. I justed wanted to pass this on ......maybe it will help someones sufferring. If anyone has used this I would be very interested to hear there experiences.

lowdosenaltrexone.org

Thanks so much for your response, ravenwoodglass. It's good to hear more of your story (I have noticed your extensive signature on a number of occasions). I am leaving out the enzymes and probiotics for the moment, but I don't really think they are my problem--my downturn occurred significantly after starting both of them--but you never know. I'm keeping close watch of everything, though sometimes I think my extreme paranoia may be doing me more harm than good at this point! I am also investigating my makeup more closely (I replaced my hair products long ago)--maybe some tiny amount of gluten is slipping in there.

Anyway, I really appreciate your writing, and I hope others will share stories as well.

I saw some things that improved quickly but other took longer to resolve. My constant D was actually gone within a week, except for the times that I got glutened early on. Migraines were the same but arthritic pain and balance issues took much, much longer with both being better at six months but not totally resolved.

One thing I noticed was you said you were doing good until you added in the digestive enzymes and probiotics. Might I suggest that perhaps there is something in one or the other that your body doesn't want. You may want to consider dropping them and see if it helps. Also check the ingredients of your gluten-free vitamins. Some that are labeled gluten-free contain barley and or wheat grass, that really isn't safe for us even though it is considered by some to be gluten-free.

Hi all,

I'm at four months gluten-free, and for the first three months I felt a steady, slow improvement in my health: my energy began to improve, rashes began to heal, my breathing improved, gas improved--all slowly but surely. However, in the last month, though I have been even more strict about my diet (having eliminated many potential problem foods, added digestive enzymes and probiotics), everything has gone downhill. It started with a period of extraordinary insomnia, though I seem to be sleeping well again now. I also have been losing weight, feeling weaker, foggier, and achier, and looking and feeling more and more malnourished (despite many gluten-free vitamin supplements).

Anyway, I'm not really looking for advice concerning my own situation, but rather stories from others who have had similar experiences, if there are any. I get discouraged when I read of people who suffered from symptoms like mine, but then were completely healed in a month or two. I was sick for two years before going gluten-free, so the damage might have been extensive, but I don't know. I'm also going to keep looking into other possible sources for my ill health, but all my symptoms seem to match celiac so well...

So, I'd love to hear from any slow-but-successful healers out there.

many thanks!

Thanks for the heads up! Do you know if this affects their nut butters as well? I am quite reliant on their natural peanut butter...

I apologize if this has alredy been discussed. It's been a VERY long time since I've been on the forum and I only have a couple of minutes right now so did not do a search to see if this has been a topic.

To those in the US that have relied on Whole Foods "365" walnuts, almonds, etc. you may have noticed a new packaging. The old packaging made no mention of shared equipment with wheat, in fact it stated that they practiced good manufacturing to segregate, etc. I used some walnuts from the new packaging and got sick, typical gluten symptoms. I questioned Wholefoods Customer Service yesterday in person and they said that these products are now being packaged in a new facility.

I think anyone who has come to rely on these products needs to send an e-mail to Wholefoods and complain about this. Not only do I NOT have a place to buy organic non contaminated nuts now, but I'm concerned about the Whole Food own bakehouse goods! (I assume they use their own products in the breads, etc)

It's super frustrating to get accustomed to a product for YEARS and then have them change it! GRRR.

Just wanted to make everyone aware and try to start a "movement" that maybe will force them to go back to the old ways.

I don't know much about lymphoma, and I don't know if all of those symptoms can come from Celiac (certainly some of them can), but it definitely sounds to me like you should see a doctor. Only that way will you have peace of mind. I can completely sympathize with your fear of not being taken seriously or simply not being listened to--this has happened to me many times, and I wish I could go the rest of my life without ever seeing a doctor again. But if you are looking for a specific diagnosis (or to prove that you DON'T have that disease), only a doctor can do it for you. You shouldn't be embarrassed at all, especially with the specific symptoms--the doctor should at least be able to tell you why your glands are swollen. Good luck to you! I hope you will be blessed with a doctor who will listen better than most of them do.

I have been gluten free now for approx a year,

After a new doctor discovered my gluten intolerance.

The diet helped me so much, it helped with my rashes, anixety and depression, migrains,

and most of stomach pains, and a hored of other minor aliments.

So I have been so gratefull for some respite.

The thing is, I am concerned about somethings that have been happening recently and I am too scared to go to the doctors, in case they think I am an idiot or hypercondriac, and most times doctors just won't listen or look into problems. So I have cut myself off from doctors, because they don't seem to want to help you.. So I always try to cure myself, so I don't have to put up with them.

I had all the pointers of celiac all my life and doctors wouldn't listen to me.. they would always say, it's nothing to worry about, when ever I presented myself to their office wanting help.

Till I changed doctors but they are a natural type doctor, who believes in natural remedies, but I find the natural remedies aren't helping, I feel I may need to go to a normal doctor, but I am really scared, not of what they may tell me... because I feel more empowered with information I just don't want to go to the doctors, because they will rush me in and out and not persue or test what I believe to be wrong...

In a nut shell....

I feel I may have non hodgkins lymphomia

the glands in my the left side of my groin are very very enlarged..

Also just under my jaw and I have a numbness into my jaw and a sort of ache on the left side and swelling around that area in my jaw...

I have been having bad night sweats , which for me is unusual, because I am always cold..even on hot days. (I know the sweats could be due to menopause)

I have itchiness around the lower part of my back and in my left ear...

I am so weak and tired, needing 3 naps at least a day.

My eyes are aching.

And I just feel blahhhhhh

my bowel movements have white mucus, and even a year into gluten free and trying to eat weight gaining foods I still am not gaining and I still have to force myself to eat because I don't have any appetite

I know that if I have non hodgkins, the longer I leave it , the harder it will be to combat and it isn't something I can just cure myself of....

But on the other hand I am so scared of going to the doctors and them not looking into things and I will come out feeling ridiculed and stupid for thinking I needed help.

What do you all think?...

does anyone out there have non hogkins?... and experienced the same thing?

are all the symptoms I have written just all part of celiac and something that will pass with time?

I seriously need some view points on this....

please help me?

Hi ohsroac,

There's a lot of chocolate that's gluten free, and it's not hard to find--just make sure you check the label. I eat dark chocolate, which is very unlikely to contain gluten, but be careful about milk chocolate, which sometimes contains barley malt. But it's almost always clearly labeled--chocolate manufacturers are also good about reporting when the chocolate is made on equipment shared with wheat.

It is a good idea to get new pots if you can, but scrub them like crazy if you can't. And DEFINITELY get a new strainer for gluten-free pastas, etc. We made the mistake of using our old one for a few weeks after going gluten-free, even though it contained visible residue from our old pastas--not good!!

I am on an elimination diet of sorts, and it is helpful--I log everything I eat as well as my symptoms in a food diary, which has helped me determine which foods are a problem right now (unfortunately, it has made me eliminate way more things than I wanted to--but hopefully it will help me heal faster).

good luck!

I was just told last night that vanilla is not gluten free unless a person buys gluten free vanilla.. is this true?

I was also told to get rid of old pots and pans I used prior to going to gluten-free.. why? Please help me understand..

Also was told that chocolate is NOT gluten free and I have been giving my daugter M & M's..

I am going to take myself and daughter on an Elimination Diet. Has anyone done that?

Should one only suspect fluoride problems if one's thyroid is also shown to be not working well, or can it also wreak havoc and leave the thyroid okay? I have pretty major fatigue and neck pain still, but my thyroid has always been normal when checked (many, many times).

This started out as a gigantic email multisend to everyone I know; if I accidentally forget to clean up some of the more obscure personal references, I apologize in advance.

Four months ago, I made a lot of dramatic changes in my diet: gave up soy, dairy, and fruit and fruit juices, replacing the latter with filtered tap water. From this date I started having an array of weird symptoms. Air burps all the time that I couldn't remember doing before, an array of diabetes symptoms (great thirst, making water like Niagara, unexplained weight loss), pins and needles in the hands and feet, and feeling GREAT for two days at a time and then feeling awful for two days at a time. Being a rocket scientist and everything, I kept changing my diet again and again. Every time, when I felt GREAT, I'd ascribe it to whatever change I'd just made, and when I felt bad, I'd make another dopy change.

(The fruit and fruit juices are where the "thinking like an American doctor" part comes in. I was getting the runs every time I ate fruit or drank fruit juice. Rather than wonder what would cause this, I just treated the symptom, like an American doctor would (though s/he would have given me a pill) and cut out fruit and fruit juices, also posting foolish stuff here about being a fructose malabsorber. If I'd worked harder at the time to figure out why, I might have saved myself an emergency room trip, a lot of money and a goodly number of grey hairs.)

By September, the bad days were getting really bad. Really, really bad. Leave a note on my computer for whoever found my body before going to bed bad. I was increasingly convinced that I had diabetes, but had my dad (a doctor and a diabetic) test my fasting blood sugar and it was fine. I went to the emergency room in the middle of the night because I really was convinced that if I went to sleep I wouldn't wake up. Mercifully, it was the quietest wee hours Friday night that any downtown emergency room has ever seen, so they were willing to see me and test me. As I said, they found my thyroid stimulating hormone was high, meaning that I was hypothyroid. The very nice young doctor suggested a clinic I could go to and recommended I do so within the week.

A week turned out to be the soonest that I could get an appointment, so I set to work. I cut out all the goitrogens in my diet (which were many: broccoli, cabbage, kale, turnips, peanut butter, millet), restarted my multi-vitamins which I'd just stopped (they have 100% of the RDA for iodine) and started salting my food. By the time of my appointment, I felt vastly better. My TSH levels came back normal and they declared me cured and sent me along on my way.

Unfortunately, most of my weird symptoms continued, including the uncontrollable weight loss. So I thought back. I thought back to quitting fruit juice in July and substituting tap water. And doing all my cooking, including vast quantities of potatoes, rice and steamed vegetables, all with tap water. Through all the dietary changes, my symptoms had stayed the same and the only other thing that stayed constant was my high tap water use. Crazy people on the Internet (hereinafter CPOTI, present company most definitely excepted) indicated that many people who, like me, have Asperger's are highly sensitive to fluoride. So a month ago, I started buying reverse-osmosis purified water by the gallon, and quit using tap water for anything but washing. And saw a miracle cure. All my weird symptoms went away (except for the pins and needles, which still come and go, but they've certainly become much milder).

I have done other things to get the thyroid going, notably eating much, much more seafood. And I might note that a lot of my lifelong or near lifelong symptoms fit in with fluoride sensitivity, fluoride poisoning or skeletal fluorosis. The spectacular indolence, that other word that starts with 'I' but is usually abbreviated E.D. these days (see? I can be discreet), stiff neck and stiff back making it impossible for me to sit up more than a half hour at a time--all these fit in, and all seem to be getting better already. Puberty at 47 is an interesting experience; second puberty kicks butt all over second childhood anyway. (Well, sort of discreet.)

Current problems are a laugh by comparison to two months ago. Astonishing quantities of earwax and a touch of, uh, let's just say diaper rash. CPOTI suggest that both are associated with candidiasis, which medical science doesn't recognize as something that causes any problems. As the CPOTI have been good to me and as their prescription is cheap and delicious (eat yogurt), I'm inclined to cut them some slack. In general, I'm more inclined to listen to anybody, even the CPOTI, if their suggestions are cheap and easy, preferably delicious, and can't possibly hurt.

What do I bring all this up? A lot of us (me included) post that, "Whatever I eat, I'm still getting sick." (In my case, there are eleven exclamation marks after that sentence, but the rest of you are much cooler.) And what I want to suggest is that if this applies to you, that you think about what you drink, and what you cook with. Because in avoiding gluten, we tend to cook at home much much more than the average person does, and we tend to eat a lot of rice, potatoes and gluten-free pasta. I sense that I'm not the only one here cooking all this stuff using tap water. If you're in the US or Canada, your tap water is probably fluoridated. (Exceptions, if I recall correctly, are San Diego, Santa Cruz and Long Beach.) Though the CPOTI suggest that fluoridated water is the cause of all the world's ills, or at least thyroid problems, I'm perfectly happy with the idea that it's safe for drinking. However, even the sites in favor of fluoridation note that it's safe at the appropriate concentrations. Which suggests that cooking it down, say to make rice, might lead to one getting much more than the appropriate concentrations. (Others including the not particularly CPOTI Natural Resources Defense Council suggest that the greater danger is from fluoride toothpaste. I don't particularly have an opinion on this (though I did throw out mine in favor of Tom's of Maine to be on the safe side), but pass it along as it's certainly possible).

Regardless, you might want to try using purified water for drinking and cooking if you've ever felt low-energy, if you've ever had trouble losing weight, if you've ever had back or neck stiffness (ok, that's everybody, but still). Reverse osmosis filters for home use are said to run $200-300 and also apparently increase your water bill pretty markedly. (Activated charcoal filters are useless at removing fluoride.) So getting the bottled version (labeled Purified Water everywhere I've looked) at $1/gallon might be a better alternative. I get mine from Target because it tastes the best, but you can find it practically anywhere.

Also also, pets have thyroids, too, and a lower tolerance for fluoride, being smaller than us. Giving Amelia the cat, the fluffy assassin herself, purified water has practically rekittenized her. She flies around, she plays with shoelaces, she demands that I throw her her ball. So if you don't get the water for yourself, at least consider getting it for your pet or pets. They will thank you. Granted, they will thank you by keeping you up half the night, but it's a joyous kind of sleeplessness, isn't it?

Not sure I agree that the combination of Celiac and Crohn's is so rare; here's an article posted on this site to the contrary:

https://www.celiac.com/articles/915/1/Celia...ease/Page1.html

I also think it's very likely that many patients already diagnosed with Crohn's would have a hard time getting a celiac diagnosis because doctors tend to attribute ALL symptoms of any sort to the Crohn's (I know this from experience), even when it's completely unreasonable. So there are probably lots of people with Crohn's (or UC) out there with no idea that they have Celiac, too.

But I do agree that the SCD may be helpful one way or the other!

I agree on the SCD she should def try it. Some people with UC or Chrons cannot tollerate gluten simply because it is harder on youre intestines. if your daughter was dx wiht chrons/ UC with a small bowel follow through I cant imagine it being misdiagnosed (meaning celiac would never look like chrons on a small bowel follow through). It is very rare to have both chrons and celiac, but it does happen. You should try out the SCD and see how it goes. It is a very hard diet but it worth it for her health. Good luck!

That does seem strange to me. Had your daughter also started a new medicine shortly before the trip when she ate gluten? If she had just started Prednisone, for example, she could have had sudden improvement despite the gluten. Or, perhaps she is having more mucous in her stool while gluten-free due to something else she's eating (a gluten substitute probably) that her system is not accustomed to. Do you think this is possible? My understanding is that the bowel produces mucous in order to let aggravating items through the bowel more smoothly; it's not such a bad thing in itself.

If it is helpful: I was diagnosed with Crohn's at age 12 (am now 27), and have been through many meds for it. For the past 5 years I have been on TNF-alpha inhibitors--first Remicade and now Humira. Is your daughter on one of these? They are best avoided if possible due to potential side effects, but they do work wonders if you get to that point. My primary Crohn's symptom was frequent, urgent, bloody diarrhea (and all the misery that entails), and these drugs completely eradicate it. In my case, I believe I have developed gluten intolerance on top of the Crohn's (the gluten intolerance presents with non-GI symptoms for me), and the Humira won't help with that.

Sorry not to have more direct advice; hopefully you can get some ideas from my situation. Perhaps you need to find the right drug to handle the UC/Crohn's and induce remission (while staying gluten-free), and after that the gluten-free diet might help to maintain the remission. But I would definitely give the gluten-free diet some more time to work, if the only problem is mucous.

Good luck to you both!

Hi All,

I'm fairly new to this site. Been to so many doctors with my daughter for 2 years and still trying to find answers. As you all are aware, it is so difficult to get a doctor to discuss nutrition and/or supplements. My daughter was diagnosed with Ulcerative Colitis and a liver disease 2 years ago. Since then the diagnosis has gone back and forth from Crohns to UC repeatedly. Tried every medication know for these diseases and sometimes five at a time. At one point she was taking 22 pills a day. Her white blood count is so low due to the imunosuppresents. I started to do my own research on Celiac since the doctors never tested her. The doctor she has now, just did some testing for the first time and it came back negative. From what I've been reading, that is not too uncommon. I have to believe that something must be going on in her body that is continuously aggravating her intestines. Why else would none of these medicines work after two years?

We went gluten free almost 3 weeks ago. She has been coming off of some of her meds and her condition is stable which is a good sign considering at one point she spent a week in the hospital due to dehydration, extremely high fever and bleeding. It's so hard to tell if it is the diet or she is just responding to some medicines. I am a thorough believer that we have to heal the body, not just treat the symptoms and will do anything to help my daughter live an easier life. We're getting used to the gluten free concept.....although it can be a bit challenging to get what you need in your pantry to cook all your meals. Luckily, she loves to cook.

My big question is this. Before we started the diet, she used to have blood and mucus (occasionally) in her diarrhea which has been a permanent thing for two years. Bleeding seems to have stopped, but on the gluten free diet, she has a lot of mucus and things seem to digest less. She went away on a school trip and had to eat some food containing gluten and she found that she had less mucus and more form to her stool. This just seems a little backward to me.

I can't seem to find any answers as to what the diet does to the intestines that may be causing all of this mucus and is this a good thing or a bad thing. We don't want to stop since she has been sticking with it for so long now, but it just doesn't make logical sense to me.

Has anyone had this reaction to the diet change? Are there any resources available to look into this since the doctors don't seem to want to acknowledge diet as possibly the culprit of her problem. I'm considering going back to the naturapth we saw about a year ago.

Any help would be greatly appreciated.

This description is very close to how my brain fog feels. I describe it to my husband as being similar to being drunk, but with absolutely NONE of the pleasant feelings of drunkenness--just the mental impairment. Often I feel like there's a bit of a lag when I turn my head or shift focus; reading and absorbing information visually is particularly hard. I feel toxic in my brain. It's particularly bad when I'm out shopping--the lights seem too bright and it's very difficult to focus on products I'm buying, and it makes reading ingredient labels very difficult!

Well for me the fog is a heavy feeling across my forehead it feels like my thought processes are wading through a bog, you know the sort that holds on to your legs and sucks them in making it difficult to stand up let alone walk, that's what the fog does to my thought processes, i can't function properly when that happens, i just can't get the neurones to fire....

Hmm, I suppose it is a bit subjective, isn't it. I've just measured mine at 3" exactly from my eyebrows to my hairline (I'm actually surprised it's not more)--perhaps we could say 2.5 inches or more would be a high forehead?

Quote name='Jestgar' date='Nov 7 2009, 04:13 PM' post='573666']

How do you define a high forehead?

I read recently on this forum that some people consider a high forehead to be a common celiac trait. There may be little truth to that, but I read it with great interest since my own high forehead has been my least favorite feature since I was a kid -- I would be happy if my hairline were a good 1.5 inches lower. Just curious to see if there really is a high-forehead trend among celiacs, so please chime in.

Thanks!

Forgot to mention that you should stir/flip the pecans a couple times while they are in the oven.

Ahorsesoul--your recipe looks wonderful! I will try that for a more decadent version some time as well

Hi All,

I was trying to come up with more foods to sustain me amidst all my current restrictions, and thought of spiced pecans. I found a recipe at AllRecipes.com and modified it to the following... now I can't stop eating them! Hope the recipe might be of use to some of you--it is really outrageously simple and very festive.

SPICED PECANS

3 cups pecan halves

1 egg white

1/3 cup sugar (though I think it would still be good with considerably less, if you are watching your sugar intake)

1/2 tsp. salt

1 tsp. ground cinnamon

1 tsp. Trader Joe's Pumpkin Pie Spices (cinnamon, nutmeg, lemon peel, cardamom, cloves)

1. Preheat oven to 300 F/175 C

2. Line baking sheet with aluminum foil.

3. Mix sugar, salt, and spices in a small bowl.

4. Beat egg white + 1 tbs water until stiff.

5. Mix in pecans. Add sugar mixture and coat well.

6. Spread pecans out on foil lined sheet; bake for 30-40 minutes, and then transfer to a plate to cool.

Gfresh404--

Thanks so much for posting this link. I think this may finally have solved the mystery of my incredible insomnia for the past 2 weeks. Although I've had problems with insomnia to varying degrees for a long time (and especially since going gluten-free), the severity of it these last two weeks had me completely stumped--it got to the point, the other night, that I actually did not fall asleep at all during the night, despite extreme exhaustion. As a result of all my food restrictions, I had dropped to a weight that was below normal for me, and perhaps my body was getting concerned about that. I am now trying to eat more during the day, and more steadily, and see if I can reassure my body that it is not starving.

I am very convinced that the 'food clock' can, as the article says, sometimes supersede the 'light clock.' Last night was somewhat better, having increased my calorie intake. Let's hope it keeps working!

Anyway, thanks for the article :-)

I posted this as a response in another topic but thought it was important enough that it deserved its own topic. Basically one study found that we have something called a food clock where if you do not get enough calories throughout the day, your body will not let you go to sleep. Your body thinks there is a food shortage and essentially tells you that before you go to sleep, you need to find some food.

I just thought this was interesting and very true. I know when I do not eat enough, I can never fall asleep.

I think this could be a large reason why so many Celiacs have trouble falling asleep.

Here is the whole article if you want to take a look: Open Original Shared Link

It also talks about how to effectively result your body clock. Let me know what you guys think.

Well, actually, I see now that I worded my post inaccurately. We called them back... but this time we got a person who was able to give us info. You know how it is

Nice of the company to get back with you.

I've heard back from the company--they claim that there are 'no gluten ingredients used' in Rozerem, but (like so many companies) they are quick to say they can't promise that they have completely avoided all contact with gluten during the production of the drug. This is good enough for me, though - I'm going to give it a shot. If anyone has had any experience with Rozerem, I would still be interested in hearing it... I may post later to the sleep forum, too.

My doc prescribed me Rozerem for my crazy insomnia, and I see on the label that the ingredients list "starch" -- anyone know what kind of starch it is? I'm currently waiting for a call back from the company, but wanted to check here as well, in case anyone has had experience with it.

It seems like an attractive sleep med, since it isn't supposed to mess up your sleep architecture -- it would be a shame if it's not gluten free.

Thanks for any info!

My doc prescribed me Rozerem for my crazy insomnia, and I see on the label that the ingredients list "starch" -- anyone know what kind of starch it is? I'm currently waiting for a call back from the company, but wanted to check here as well, in case anyone has had experience with it.

It seems like an attractive sleep med, since it isn't supposed to mess up your sleep architecture -- it would be a shame if it's not gluten free.

Thanks for any info!

That's great to know! I think I just might give it a try.

I'm glad it worked so well for you!

I hope its gluten-free, I've been eating it like candy

From the label:

"Candex contains no articifial colorings, flavorings, GMO's, sugar, soy, yeast, dairy, corn, gluten, wheat, or other common allergens. It is suitable for vegetarians, etc..."

I'm very sensative now and I've had zero ill effects from it.

One of the ingredients in Candex is "malt diastase"--is this safe for celiacs? (You probably wouldn't be taking it if it were unsafe, but it always seems smart to check.) Do you know if the enzyme is separated from the malt in a way that makes it safe?

Your post is very interesting--thanks for sharing.

Candex worked, for me at least, fairly quickly.

First thing to go was the brain fog/stuffiness feeling. Then over the course of 2 weeks I felt great.

It also has the added benefit of making an accidentical glutening just the stomach issues, no after effects.

I'd be interested to hear your results. I said everyone is different, it happened to work for me but hopefully it will work for you.

What takes the longest to go away is the high blood pressure/pounding heart feeling. In 3-4 days its down about 80-90 percent, but its all the way out to 2 week for me until it becomes un-noticeable.

I buy it at Whole Foods.

You are supposed to avoid sugars but I do not. Probably takes longer to heal but if I go on Candex and avoid sugar then until the yeast is gone it uses up all the carbs and sugars I take in leaving me feeling worse so I continue to eat sugar and then scale it back. Takes longer but I feel better doing it that way.

Isn't it also possible that the original poster is developing other intolerances in addition to gluten, and that perhaps there is something in the Peter Pan that is not 'glutening' him per se, but still giving him symptoms in its own right? I certainly have found that giving up gluten alone is not enough, at least during the healing process.... right now there are many other ingredients I have to avoid. So maybe this is an issue not of gluten v. no gluten but gluten v. other problem foods.

That said, I believe the other advice given here is valid, too--the shared jar of PB could definitely have been a problem.

By saying you don't get it yourself I assume that means you dipped into someone elses jar. It was not the Pnut butter that got you it was crumbs from others uses before you. You need your own jar.

Thank you for posting that! Really fascinating.

Hi,

I'm posting a link to a fantastic picture of what healthy villi looks like. This picture could be helpful for those times when we are trying to explain celiac disease to someone who doesn't get it. The picture is of mouse villi, but is similar to human.

I thought it was such a striking image, I just had to post the link! When you get to the site, just scroll to the right and look for image number 2.

Open Original Shared Link