captaincrab55

1 minute ago, kabons said:

Yup, tried that already this summer. Didn't reveal anything. 

So you did a 90 elimination diet and you're positive that you gave it enough time?    Remember it took me 10 years to find relief.    Yes, it took 10 years to figure out 7 foods that are gluten free that were causing GI issues.   It takes a long time when your body has issues with multiple foods.

Sounds like some other food or foods may be bothering you as well as gluten.     It only took 10 years to figure out the 7th food that was bothering me.

1 hour ago, BarbWelch said:

Thank you for responding to my post.  I am completely gluten free.  I buy gluten-free oats and don't eat processed foods.  I too am allergic to bananas, potatos, tomatos, melons, apples, eggs.  I don't know if I am celiac but I won't go back to eating the gluten in order to be diagnosed.  I know for myself that gluten makes me sick.  I just found out two days ago that six of my meds contain some form of corn.  I am also diabetic and my meds for diabeties has corn.

You may consider gene testing to see if you are grouped with those with celiac.    I had a co-worker go gluten free and it changed his life.     He didn't bother getting diagnosed before going gluten-free and it backfired on him down the road.     We both ended up on different job sites and I didn't see him for several years.    When we crossed paths several years later I ask how he was doing on the gluten-free diet?     He answered Great until he did something foolish and ended up in jail.     They refused his gluten-free request for food, because he was never diagnosed.      For me it was necessary to be diagnosed to get name brand medication that are certified gluten-free and corn free, covered by my health insurance.    The savings in medications is more than several thousand dollars per year for me.    Good Luck

1 hour ago, BarbWelch said:

Is there anyone out there that can help support me with more the gluten-free.  I am intolerant to wheat but highly intolerant to soy and corn and eggs.  I am really depressed most days...even though I have found food to eat, it does not always end up being balanced.  I also cannot eat tomato, potatoe, bananas, apples, artichokes...and more.  I am 56 years old and have had digestion problems from birth, it was just recently that they found the other allergies.  I have been gluten-free 10 years now and that is because I found that myself and decided to not eat wheat.  I am amazed how much better I am not eating wheat.  Just wonder how close they are to adding corn to the Big 8 allergens list?  That way the corn would be listed on foos. 

It really would help to know if you have celiac disease.     It was from an infant till age 56 before I was diagnosed with DH/celiac.     It was 10 years ago that I was diagnosed after suffering so many years.     I can't eat the big 4 plus onions, nuts, corn, dairy, bananas or strawberries.   On top of that I'm border line on the sugar and on a low salt diet.     It's not easy being us, but there's a price to pay for an oops or cheating.     Watch your meds for hidden gluten and corn.      Good Luck

Do you eat peanuts without issues?

It's a simple diet change.

Easterlily,   Are you sure you're eating a strict gluten-free diet??

Kam,    Been there.      IMO,   You need a new MD, one that knows how to treat those with Celiac Disease.       I need 5000 ius of D3 daily this time of the year(late fall till early spring).

Good Luck.

One needs to ask their own body what immune diseases, cancers, or other health issues it may decide to bless you with.    The  Medical Science Book for this disease isn't complete and there's no way that we can say what is safe for you.      Don't be foolish with so called, "Cheat Days".....

I second the onion issue!        Read the small print warning on all pain killers.      Some contain small print warning not to take them more than 10 days/month.      Taking them more may cause hearing loss.

IMO, You need to find several new Doctors that understand Celiac Disease.      You need to be seen by a Dermatologist that knows Dermatitis Herpetiformis while you are suffering with a skin break out.

Good Luck

razzle,      Just making skin contact causes a rash and itch for me.

You could have DH.       gluten-free is a strict diet that doesn't allow for an oops.      If you have DH also, it may take a year or so on a strict to get total relief.      Did you get your vitamin levels checked??

I was diagnosed with DH in 09 and I still break out, but not nearly as bad.     I follow a strict gluten-free diet, but who knows for sure about some meds or the small amounts our Government claims is safe for us.      Exposure to spackle dust at work on construction sites seems to bother my skin the most.     I usually get symmetrical breakouts which is a dead give away, according to my Dermatologist.        Aczone cream works great for me on the hot spots.

Mnoosh,    Can you give us a link to the article you read about the increased risk after being diagnosed and maintaining a strict gluten-free diet??       IMO,   You are over reacting to a misprint or most likely a misread article.

 

Take the time to find out how low your Vitamin D was.    

 

Honestly I'm not sure (there's been a lot going on) but the doctor said it was 'in my boots' and low enough to be messing up my parathyroid. 

OK,   How low was your Vitamin D level??

Belle,    Celiac Disease isn't an allergy.      Now a question for you, will an epipen work for intolerances??

Sounds like the OP's Dermatologist tested her in the wrong way.        squirming, Posted some great information on DH.       It wasn't till I found my 4th Dermatologist over 30 years that I was diagnosed on my second visit.     I suffered from an infant till the age of 56.     Most of the many Doctors claimed it was just some type of food allergy.     

IMO,   The OP needs to find a Dermatologist that knows how to do the test and treats other patients.

Make sure you chose a Dermatologist that is actively treating patients with DH.      I saw 4 Dermatologists in 30 years before I found one the would listen to me and knew how to test for it.    The test takes 2 weeks for tissue results.    

Quote

It could be DH.     I have DH, but I started using RESTASIS  several years before I was diagnosed with DH.   Have you tried going gluten free??

 

Prescription eye drops,  RESTASIS twice a day does wonders.

I have DH and itchy skin is a symptom.     Your Dermatologist could write a script for Dapsone, provided you're not allergic to Sulphur.     Expect blood labs to go with using Dapsone.      You need to study everything that goes in your mouth for possible gluten content, including all meds.

When I was diagnosed, it cost me a bit over a $1000 just to make my kitchen gluten-free.     It took another 4 years to zero in on other food issues with  nuts, casein/dairy, corn and strawberries.    Are you taking any generic meds?      Corn starch is used in some meds and the wax coating on supermarket vegetables is also made from corn.        So many foods are sweetened with fructose or corn sugar.      Try eliminating corn and see how you feel.

Sounds like you should visit a Dermatologist.        You could try an Iodine patch test, but it's not accepted as the Gold Standard here n the USA.      I suffered with that itch for over 50 years.