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momxyz

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Latest Celiac Disease News & Research:

Everything posted by momxyz

  1. momxyz
    actually, wheat allergy is something different from gluten intolerance. Gluten intolerance is estimated to affect as many as between 20 and 30% of the population, to varying degrees. Celiac Disease is a subset of Gluten Intolerance with more defined (tho perhaps too narrow) parameters for diagnosis. here are some additional references Open...
  2. momxyz
    I was not able to retrieve your advice before my trip... I wish I had. But, on the other hand, at least now I have no doubt about what is causing the rash; this "gluten challenge" really confirmed for me my self diagnosis. But, in the future, when I stay at my brother's house, I will be bringing gluten free food stuffs with me. I had packed a few...
  3. momxyz
    Well, I've got the answer to my own question! Friday and Sunday I "fell off the wagon" - as I suspected, there were minimal gluten free options, and I was starving. Well Saturday I had some minor itching, but it was so minor I felt it was my imagination. Sunday and Monday I began questioning my self diagnosis. But in the wee hours of this morning...
  4. momxyz
    hi, I am a self diagnosed person .. with DH. I will spare you the details, suffice to say, I have been dealing with this "rash" for 10 months. Once I connected the dots to possible gluten intolerance as the root cause... a combinantion of eliminating gluten from my diet and religious application of hydrocortizone topical cream has calmed the storm. Mind...
  5. momxyz
    hi there, we are the same age and I am curious. Your reply indicates that your presenting symptom was the rash? That mirrors my experience. I have been dealing with a rsah/dermatitis since Oct 08. i have not sought treatment for it - it's been a bad year financially for us - and I would never have connected it to celiac or GI, if it weren't for my daughter...
  6. momxyz
    Gemini and Darlindeb, I almost didn't post this but have thought about it for several hours now. I have to respectfully disagree and assert my opinion that yes, genetics and what you eat do contribute to cholesterol metabolism. You are right, your body does manufacture cholesterol; regardless of what kinds of food you eat. And you are also right...
  7. momxyz
    yes, hypothyroidism can contribute to fat/cholesterol metabolism in such a manner that it will contribute to both a high total cholesterol and a high level of "bad" cholesterol.
  8. momxyz
    Betty Hagaman's cookbook has a great pizza dough. It is nothing like the dough you have known, more like paste, but all the gluten eaters in my extended family prefer it. Mom makes a bunch, par bakes it and you have a crust better than you'll ever find retail, on demand in the freezer.
  9. momxyz
    I think its entirely possible that non celiac gluten intolerance can have a genetic basis... my circumstantial evidence would be my issues, my daughter's problems... and she has two first cousins that have problems that could be related to gluten. (One of the cousins has experienced relief by avoiding gluten.)
  10. momxyz
    this was a good article, thank you. Since reading nutrition labels was already a habit for me, when I was first shopping for gluten free products, one of the first things I noticed was the hi fat content of many of them.... and also that they seemed much more "calorically dense." We are not using that many prepared products - a breakfast cereal, some...
  11. momxyz
    hate to disagree with y'all but... like Celiac, tendency to high cholesterol levels tends to be genetic, but, it's not necessarily a trait linked to gluten intolerance. At least, as far as we know now. Someday maybe, there might be a proven connection that comes to light. But, as far as we know now, looking at the matter objectively, there is no proven...
  12. momxyz
    liked "The Gluten File"!
  13. momxyz
    I like what you are saying here about learning and applying info to your own personal puzzle! But the need to do that speaks to the very question of the original post: "I'm not sure why any of this matters; I'm just wondering if we do ourselves a misservice by "self-diagnosing" celiac rather than accepting the more widespread diagnosis of gluten intolerance...
  14. momxyz
    similar to what justmel74 above, I make my own. I use Kinnickinnick white bread, "toaste" in the oven at a moderate heat (about 300) as I do like the slices to be lightly browned. I did cut off the darker parts of the crust, tore the slices into pieces and used my blender to pulverize them (don't have a food processor yet). Added some basil and a little...
  15. momxyz
    another 10 days down the gluten free trail.... or almost gluten free. I did have a slip up in a social situation where I was starving and gluten free options were slim to none. On the other hand I had a good talk with my husband and he's on board with using the gluten free pizza crust for everybody (not just my daughter). We discovered the Namaste mix...
  16. momxyz
    the breadcrumbs with the Kinnickkinnik bread were a hit! I did not toast them in the toaster, but put the just thawed slices on a buttered pan into a 300 degree oven. I flipped them when the bottoms were golden and did the other side. Let them cool a bit and mashed them in a bowl, added a little oregano and some basil and voila! Grandma wanted to add...
  17. momxyz
    I am new to the diet too and it does feel like I am spending more time in the kitchen. But I do think its worth it. Just go one day at a time and don't let all the details overwhelm you. Just like your car can't go from zero to 60 in 5 seconds, you won't be able to go 100% gluten free in a single day. It's a learning process. In my family's case...
  18. momxyz
    "ditto" on the advice to eat well. You deserve to satisfy your cravings! Gluten free does not equal no carbs! (Ok, probably telling you something you already know, but just in case...) I love brown rice, that's my staple carb. Buttered rice with a nice piece of fish and some green beans...yum! Or brown rice with butternut squash and some chicken...
  19. momxyz
    The anti-gliadin IgG is considered more sensitive than some of the other tests (it will detect a disease state more often than some of the other tests) but, some consider it to be less specific (it may be positive in disease states other than celiac). But I wonder if some of the "false positives" are true positives, because if you read long enough on this...
  20. momxyz
    if the biopsy comes back positive, I agree, then you have a confirmed diagnosis. But since his antibodies were negative, the biopsy could very well come back negative. Some people with celiacs don't present with GI symptoms as their first or main problem...... I think the gene testing would be very useful.
  21. momxyz
    it could be esophageal reflux. I was diagnosed with reflux and treated briefly for it. Once in a blue moon I will have an episode and it feels like the bite I have taken just won't go down. Sometimes I end up regurgitating a lot of mucous. There's probably not any connection to celiac disease, but I have not researched this, maybe someone else knows...
  22. momxyz
    glutenmommy and jshelton - did you ever get a diagnosis?
  23. momxyz
    Try some cortizone cream. I think the strongest strength you can get over the counter is 1%. It will help with the itching, although you make have to reapply it a couple of times throughout the day and evening. Rite aid has a formulation that combines the cortizone with something to relieve pain, that seems to be more soothing than the ointment...
  24. momxyz
    thank you Betty so much! I really do believe in the power of prayer or positive thoughts or good vibes or positive visualization... however and whatever fits your way of thinking. so I appreciate your wishes, and welcome all and any "good thoughts" that anyone else on this board wants to send my daughter. (I will reciprocate the favor if you identify...
  25. momxyz
    ha ha Fluffy! joke well appreciated. Ok so I did have a chance to prowl the local health food store. I do have a Whole Foods in the area, but the local place is just down the street from where I work, plus, I like the idea of supporting local business when I can. Its a small place but really does have a lot to offer. A ton of different gluten free...
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