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kayo

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kayo last won the day on December 13 2010

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  1. Aww, Jason, you worry too much! I've dated guys with diabetes, guys who were vegetarian and guys who were kosher and guys who had allergies. It's no biggie and we gals understand. Start off easy, like, I have to follow a specific diet for health reasons, so how was your day? You don't need to go into great detail. She'll probably ask questions and you can say, like diabetics can't have sugar I can't have gluten which is in breads, pasta, etc. Luckily there's lots of gluten free foods I can have.

    I think tell her about Celiac but leave the discussion on parasites until you're engaged, maybe marrried. :P

    Too funny!


  2. I had irregular periods, heavy bleeding, and bad PMS before going gluten free. Now they are relatively light and regular. Bottom line is Gluten can cause many other symptoms besides GI symptoms.

    I really feel as though I have had gluten-intolerance much of my life. For 10+ years I had very heavy periods that would last 2 and sometimes 3 weeks. I had my period more than when I didn't! TMI alert > I passed clots the size of grapes. It was awful and painful. I would wear a super tampon and a giant pad and still bleed through. I had all kinds of tests and everything came back normal. Doc said, I guess this is just the way you are.

    Fast forward to going gluten and soy free and now my periods are a breeze. 1 week, mild cramping for 1 day, no severe bleeding and NO pms. In fact, though I am regular, my period is often a surprise because I have no indication it's coming. No pre-period nausea, cramping, etc.

    So for years there were signs something was wrong but no one, not even me, connected it to diet. The GI issues started 5 years later. And then it would be another 4 before gluten was suspected. Again, did not connect it to my periods until my periods changed for the better.

    So you can see how gluten can have far reaching implications. Not just our guts and our brains but other systems too.


  3. Plums are a stone fruit and should be ok

    Plums and the other stone fruits contain sorbitol which can bother you if you have a fructose intolerance. If you follow the FODMAP diet this is a fruit you'd avoid too.

    FODMAP safe fruits: ripe bananas, strawberries, blueberries, raspberries (but not blackberries), oranges, mandarins, grapefruit, lemon, lime. Avocados and fresh tomatoes (in moderation) are ok too though we tend to think of them as veggies and not fruit.


  4. I know what you mean and I had the same questions too.

    The trick is to establish a baseline diet (they explain this in the book better than me :D ). For me it is lean protein and rice or potatoes, bananas, strawberries, quinoa, cucumbers, leafy greens, tea, etc. You stay on that base diet until you start to feel better. Then you introduce a food you suspect is bothering, like milk. Don't add any other suspects at this time because it will skew the results. If it doesn't bother you then you can add it into your meal rotation, keep an eye on how you feel. If it does bother you wait 2-3 days or longer before trying another suspect food.

    It takes a while but it's worth it. I keep a food diary and a spreadsheet of foods that are 'ok', 'maybe' and 'no'.

    I feel so good on my base diet I have been reluctant to try foods in the 'maybe' column. Fortunately my 'ok' list has nice variety.


  5. I concur, caramel color in the US is not a problem. As a general rule I try to avoid it because it could be made from lactose.

    I won't eat anything that lists an ingredient that I can't have even if it is on the bottom of the list. Easy peasy rule to live by.

    I do go out to eat, not for the food, but for the social aspect. I know it's a risk and I accept that. I don't want to stop living. I tend to go to the same places where they have a gluten free menu. I eat very simply; plain burger and a side of veggies or fries if they have a dedicated fryer. If it's a fancier type place I'll get plain protein (typically salmon) with veggies and rice. I do avoid some places like buffets, Chinese restaurants, and Italian restaurants. Incidentally my two favorite foods. If I want Chinese or Italian I make it myself at home.


  6. It sounds like you have a lot going on. Definitely call your doctors and let them know. It could be bleeding or diet or even supllements, like iron. Meds like Pepto Bismal will also cause dark stools.

    I would also say to skip the brown rice and eat white rice. The bran on the brown rice can be hard to digest. This could be causing you some discomfort while your body is in such distress.

    Good luck!!


  7. I tried a different Whole Foods and they had Udi's! I was feeling hopeful because I saw they carried Udi's granola. This was a WF out in the burbs and I have to say the way they organized their gluten-free items was awesome. It was so well organized. The one I typically go to which is in a city has the gluten-free items all mixed in with the regular items. Well no wonder it takes me forever to shop.

    I bought the Udi's white sandwich bread and noticed they had the whole gran and they also had muffins. They had a quite a good selection and some brands I haven't seen before. Well worth the drive.

    I'll be trying it tomorrow.


  8. You're doing great. The diet changes take time and sometimes healing can be slow but if you stick with it you'll be ok.

    Just an FYI, HFCS does not contain wheat gluten which is called gliadin. This is what we need to avoid. Gliadin is found in wheat, barley and rye. I believe you may be confusing this with corn gluten which is entirely different and not something that has to be avoided unless you have a corn intolerance. Though HFCS is evil in it's own right. :P

    I like PB8 as a probiotic and I buy the Trader Joe's chewable multi-vitamin (like a gummy bear). Whole Foods is a great place to go for vitamins. The staff is very knowledgeable and can point you to the vitamins that are gluten free.

    I'm one of those with extra weight and have found it difficult to lose. Turns out I have SIBO which may be the reason I can't lose the pounds.

    Good luck!


  9. You could have non-celiac gluten intolerance, food allergies (either short or late onset), food intolerances, small intestinal bacterial overgrowth, parasites, malnutrition, etc.

    I agree with the others, 6 hours is not long enough. It's also not a proper elimination diet. You need to establish a baseline for several days, a week would be better and then introduce just one new food every 2-3 days. It takes a long time but without a baseline you're just shooting darts all over the place.

    I highly recommend this book: 'IBS - Free At Last' by Patsy Catsos. It includes info on how to do an elimination diet and introduce new foods, and it includes shopping lists. Makes the experience more tolerable and less overwhelming.


  10. I'm gluten, dairy, soy free too and on a low fructose diet (FODMAP).

    B: tea and a banana or some strawberries or if I need more protein I have quinoa with blueberries, walnuts and cinnamon.

    L: sandwich with kinnikinnik bread, tuna, turkey or ham, mustard with a side of Cape Code chips (100 cal pack) or gluten-free Wylde pretzels. If I go out with coworkers I get a bunless burger and side of veggies or a salad. Diet soda or water.

    (*going out to eat and avoiding soy is trickier than avoiding gluten)

    D: protein (poultry, seafood, pork, eggs, or red meat on occasion) with rice, potatoes, sweet potatoes, quinoa or a veggie (broccoli, corn, mushrooms). Or rice pasta with tomato sauce and Bell and Evans gluten-free breaded chicken patties. We do roasted chicken quite a bit. We have tacos and taco salad often too.

    S: chips (my only vice left!!), gluten-free pretzels, gluten-free cinnamon donut, gluten-free animal crackers, carrots and pb, cucumbers.

    Beverage: ice tea, water, hot tea, diet soda or soda with cane sugar (Hansen, Jones), gluten-free beer, small amt of wine

    On my no list (besides the obvious gluten, dairy, soy) due to the FODMAP diet: no legumes, no onions, shallots or garlic, no HFCS, no honey or agave, I have eliminated all fruits except bananas, strawberries, blueberries, pineapple, lemon, lime, avocado and tomatoes. Still figuring out which veggies are ok/not ok.


  11. I can't seem to pinpoint a specific trigger. I think I have had food intolerances my whole life. My mother tells tales of me projectile vomiting when I was a baby when she started me on food. I was always underweight and stick thin but it was blamed on my RA. I had stomach aches in the morning after eating cereal with milk but my mother said I was making it up since I hated my school (evil nuns). :angry: I struggled with hypoglycemia like symptoms my whole life (never diagnosed). I was always fainting or throwing up. I had bouts of shingles that the docs seemed confused by which I now wonder if they were dh. I remember relatives trying to fatten me up with spaghetti, ice cream and even beer. Oh the irony. People accused me of being anorexic even though I had a ravenous appetite that was never satiated. I used to get up in the middle of the night to eat. The hunger woke me up. In my 20's my weight had even dropped into the 80's. I struggled to get to 100 lbs and managed to get there when I was about 30. Certain foods just turned me off. Looking back I know I had issues with dairy that seemed to come and go. I used to live on crackers, cereal, spaghetti, etc. When I was 35 something changed and I started gaining weight rapidly. I gained about 40 lbs in 3 years after a lifetime of being severely underweight. Doc told me this was normal. Normal??? GI issues arose around this time too. I thought I had an ulcer and went for testing, it was negative. Since I had RA I thought I might have Crohn's. I saw a GI doc and she said, by just looking at me, said I didn't have Crohn's and diagnosed me with IBS but there was no testing. She gave me anti-spasm pills which didn't work. No advice on how to deal with IBS. Needless to say never went back to her. On my own I started eliminating foods from my diet; dairy, coffee, fried foods, etc. Some things made a difference but most didn't. It was trial and error for 4 more years (but mostly error). Years of headaches, GI issues, brain fog, depression, etc. and it was always blamed on the RA or stress. In my heart I knew it was food related. So last year I went gluten free and started feeling better, go a new GI doc, had more tests, etc. Then soy free and now I'm following the FODMAP diet (fructose, fructans, etc.) The rest is history.


  12. For whoever said they did a quick pass through Whole Foods and didn't see Udi's... (I forgot to check the name on the post before I clicked "reply") -- it's in the frozen food section, not on the shelves

    That was me. I just checked Udi's website, punched in my zip code and there's none within 100 miles :-( Which is odd because I live near a major city.

    Next time I'm at While Foods I'll make an inquiry.


  13. I need to find some Udi's after reading the great reviews here. Quick pass through my Whole Foods and didn't see any. I like the Kinnikinnik products (bread, bagels, hot dog rolls) but the trick is to wrap them in a paper towel and microwave them a minute or 2 on 50% power to make them soft. Works like a miracle. I also make Pam's gluten-free mix in my breadmaker and it's awesome.


  14. Now, I have to secretly take gluten-free meals, in case the stuff she bought has gluten, but not show her or else it will hurt her feelings.

    No you don't as she clearly had no problem hurting your feelings by saying yes to your well thought out plans and then changing them. Does she not understand that this is a health issue and not some fad diet? You have offered to bring your own food so do just that for your own piece of mind. Don't hide your food or be ashamed. Own it. The more confidence you show for your health the more others will recognize it's importance. It's nice that your friend thinks she can handle this but she can't. Unless you eat like this day to day it's hard to understand. It's not just buying the right things but it's also being mindful of preparation, storage, and cross contamination. Follow your gut and do what is best for you and your health.


  15. I had one recently and it was called a RAST test. I asked if it was the same or similar to the ELISA and the doc said yes. Doc took 5 vials of blood and is testing about 80 foods. Haven't gotten the results yet. I've been on a low fructose diet in addition to being gluten, dairy and soy free. I hope the results don't come back with too many positives because the list of foods I can eat is already shrinking.


  16. I keep seeing similar posts like this one where friends or family members don't believe in celiac, gluten intolerance and or wheat allergies. They can't accept that this could be the cause of so many symptoms - gi, skin, neuro, etc. despite the overwhelming evidence right in front of them. Even if they're not ones who would sit down and read an article or book on the subject, or you know believe in medical science the fact that the people they presumably love who are right in front of them are getting better should be enough proof. It boggles me. They seem to have an overwhelming need to be right over everything else. Makes me wonder if these folks have a bit of gluten induced cognitive issues going themselves. Maybe you should suggest that to them ;)

    On a serious note since they seem to want to be right over doing what you and your husband have decided is best for your family I would lay down some serious boundaries. They have to be on board with your decisions in order to see the kids and have them in their care. No if ands or buts about it. If your kids were diabetic would they feed them sugar?


  17. Looks very healthy to me. My only suggestion would be to add some grains, gluten-free of course, like quinoa and buckwheat. I make salads like taboule out of them and I also make a breakfast cereal with the quinoa adding blueberries, sugar and cinnamon. Prepped like this it reminds me of oatmeal.

    I'm also lactose intolerant and I use hemp milk. There's also soy milk (chocolate Silk is to die for), coconut milk, and nut milks. I eat a lot of rice already so I didn't want to add rice milk into my diet.