mela14

Westie,

thanks for your continued support. You just make so much sense and are very encouraging! we need more people like you ALL around us! I hope that I can be ther for you when you need it.

Hope everyone has a great 4th of July............

I am soooooo convinced that the mold did me in! In fact those nights that I was sick this with abdominal syptoms this week after taking it..... I also had horrible throat itching. It was so bad that it woke me up. My entire head was stuffed and pounding. I could not get any air in or out of my nostrils. It actually started shortly after taking the Beano but I hadn't given it much thought.

so much for what they claim!

Westie,

Thanks for the detailed response. It was very helpful to me. I don't eat anything with preservatives or any type of store bought frosting. My dad had made that...anyway, after much detective work I found that the BEANO that I had ben taking, at my nutritionist's request was causing me to get sick. I am very allergic to molds! I didn't read the fine print on the bottle aobut how it is made.In addtition to the abdominal pain, muscle pain, nausea and bloated tummy I was waking with and tichy throat, terrible sinus congestion (couldn't breathe...Nostrils wre closed shut!) and headache.

after I read the ingredients (with my glasses on this time) ont he back of the bottle I recognized the word Aspergillus Niger from reading it this board so I did a search. I gathered as much info as I could and am now convinced that is what is making me so sick. I've been taking it all week and have gotten so sick all week. I actually started to feel a little better last night......I DID NOT take the

Beano. I did a lot of on line research and found that it as used to ferment citric acid...something else that makes me really sick and I never knew why. it is also used to make enzymes........lactaid was making me sick and I have never been able to take any enzyme supplement (no matter how much I tried at everyone's suggestion).

With my online research I have found so many other sources of it and am keeping a list. skbird form this board has been very helpful and provided me with a lot of info. Others have also emailed me with suggestions, like you that i have found helpful.

Each day I am learning and have realized that I will ahve to be the one to help myself. I can't keep getting the sick the way that I do. The doctors have not been there for me and have not helped at all.........actually in some cases they have made me worse. LIve and learn.

thanks again, I appreciate you help!

What is the SCD diet?

I am sooooooooooo allergic to Mold! I had itching in my throat all last night too! Who knew? I'll never make that mistake again. I am also going to keep away from all citric acid!

I am finally starting to feel a little better now......but it's been over 24 hours! and to think this has been ging on for days!

NO MORE BEANO FOR ME!

I don't think the tiny amount of gluten was as much a problem as the mold was.

thanks for all you help and for this website. When I saw the ingredient on the back of the Beano bottle I decided to investigate. I remember reading something about aspergillus niger here a few months ago and did a search on it. that's how I got all the usefull info.

Hopefully tomorrow will be better and I'll be able to get out!

LUUAP...........thanks for the advise. I will check out mercola.com.

i had another reaction yesterday and actually was up all night again with the same reaction.....flu like symptoms, muscle pain, headache, sick feeling, bloating, etc. so.....I checked everything I put in muy mouth yesterday! I really didn't eat much so it wasn't hard. I started to feel better during the day but the after dinner got so sick again. I found the culprit to be "BEANO"! My nutritionist had me taking it with my dinner to help me digest. I was up to 2 tablets and boy was I getting sick. After researching I found that I must be sensitive to the mold that it is fermented on. I am so allergic to molds! anyway, I did not have it with dinner and am not having a reaction tonight!

I guess I am very sensitive and highly allergic to many things. It is finally STARTING to make sense to me.

thank god for this board. I remember reading somewhere on this board about Apergillus Niger...which coincidentally is listed on the back of Beano as possibly causing and allergic reaction. I researched it and think that was what was making me sick. It's also in a lot of the other things that have been making me ill.

I am going to try to avoid it in other foods by checking for other names that it may be hidden under and hopefully avoid some of these unecessary incident.

thanks again for all your help guys,

Glad to hear you found out what was bothering you. I still haven't gotten my own toaster.....i guess that's next!

Take care,

I used to take Zelnorm for the IBS..but found that after taking it for a while it caused too much movement! I cut the does in half an only took it with my largest meal. It helped me get through some rough patches. I try not to take anything for long periods of time.

thanks for the responses. I think i found the culprit...BEANO!

Coincidentally I've been sick since I started taking it and seem to get more bloated and feel more ill right after I take it. Isn't it supposed to help you digest??? anyway, after doing some research I found that it is made from a fungus and that some may be sensitive or allergic to it. given all my food allergies I'm sure that is what is making me sick. Hopefully by stopping it I will feel better in a few days!

this is soooooooooooo upsetting and crazy. another day in the house feeling awful. I took 2 last night with dinner and was up all night!

I've been really sick lately and didn't know what was wrong with me or where I was getting contaminated from. I checked all my foods an meds and have hardly been eating. but my guts has been blowing up and I've been feeling sooooooo sick. I've been waking during the night sweating, stomach pain,muscle pain, and heachache. Just a really sick feeling. I haven't even been able to get out these past few days.

I noticed that after dinner I've been getting more bloated and that's when I relly start to feel ill. I realized that I've been taking 2 Beano's with dinner (to help me digest) but actually get more bloated and feel sick to my stomach. I did some research this morning after reading the ingredients and found thta the product is derived from Asperigillus Niger. After looking it up I found that it is some type of fungus and it says on the bottle allergy not: if sensitivity occurs discontinue and consult your doctor. I know they write these sort of things to protect themselves but after reading what it is I am pretty sure that it IS making me sick! It' is too coincidental tht I've been getting sick since I started taking it.

I also remember reading on this board that someone else had a problem with Aspergillus Niger but didn't know what it was or that it was in Beano at the time.

any thoughts> anyone else have a problem with Beano? Help>>.........I am at the end of my rope with feeling so sick form this!

I just started taking zantac 150 and think I am OK with it. I've taken it before in the past and don't remember a problem with the brand one.

I have been taking Beano lately too and FINALLY realized that IT is making me sick! make sure it isn't something else making you sick!

I went and bought OTC Zantac 150. Let's hope it helps! the IBS is really bad too but I don't want to take too many different meds! When it rains it pours....My abdomen is soooooooooooo bloated and it hurts!

My entire gut feels like it is inflamed from this gluten incident! I've had 2 sleepless and painful nghts with all the toxic symtpoms. I had to take a zantac during the night to stop the burning> Is there anything better out there that would help the inflamation (short term) while I get this under control again. I'm really sensitive to a lot of meds and of course need a gluten-free one. any ideas or just stick with the zantac?

Westie,

You said that you have a lot of food intolerances. I am in the same boat. I am intolerant to gluten, soy, eggs and dairy. I also have IBS and have a hard time digesting a lot of other foods...especially the starchy ones like rice!

I was working with a nurtionist at Columbia Presbyterian for while but then stopped because of other health problems (also needing dietary restirction).

Lately I have been eating lot of corn but have been having the same familiar allergic like symtpoms. I hope that i am not having a problem with that too!

Any suggestions on where to go or when I can get more information on multiple food intolerances and what to eat?

i've been having a reaction for a few days with abdominal pain, gas, headaches, fatigue, vertigo, muscle pain and muscle cramping.....all the symtpoms of when I eat gluten or soy!

The other night I had some frosting of cake that my dad made...the smallest amount....and have been sick since. I was up all night sweating and feeling like I was poisoned! I didn't think the little bit of dairy would bother me but I guess the gluten form the cake seeped in..yadda...yadda....I konw I shouldn't have....and I've been doing so good! what was I thinking. I'm still feeling sick but not getting better actually worseform Monday night.

I started to think that maybe the corn is getting me sick now too!

I did the york allergy testing and of course all of the above came back high positive and corn was a weak positive.

I just don't knwo anymore.........gotta get this heart to stop beating so fast!

any advise would be welcome!

thanks,

That's terrible about your step sister. i am so sorry.

Thanks,

I will have to do that. All of these fillers are killing me!

do you know of a headache pill that would be safe? I have been taking tylenol because it is gluten-free. I checked the Products and Medication Listing Manual and it wasn't lactose free, casein free, alcohol free or caffeine free. but then I checked the ingredient list online an it didn't show that it had any of those ingredients. Maybe the Medication listing is not up to date. I've been taking tylenol but's not breaking the headache. maybe time will.

thanks for your response.

Hi huys,

It's been a while. I've been doing better with avoiding gluten and actually have not had any gluten incidents. My bladder has kept me aways from here though and I am stuggling with Interstitial Cystitis and the diet for that!

As my diet seems to get more and more restricted I find it harder to discipline myself ALL THE TIME! last night I had some cake frosting that my dad made for his cake. It was soooooooo good. I was up sick all night! I know that I am dairy intolerant as well as soy and eggs but thought a little bit wouldn't hurt. Boy, was I wrong. I was up all night with stomach bloating, pain, sweating, and muscle pain. This morning I am still out of it and weak and dizzy. It was NOT worth it but I didn't think I would react so badly.

I also checked some of the new meds that my dr put me on and sure enough they have lactose in them....hmmmmmmm. I've been checking to make sure they are gluten free and didn't think the little bit of lactose in the pills would make me sick. I guess between the 2 it was too mcuh for my body to handle.

Does anyone else have multiple food intolerances and get these debilitating reactions? Also, what do you do about the meds? they have to be made of something. Maybe I should so what i did a few years ago.....THROW ALL THE MEDS AWAY!!! The thing is my bladder had been getting bac and I've needed to take meds............boy oh boy....talk aobut going aorund in a cricle.

thanks guys! coming along very slowly.....things take forever to get better....as soon as I get my strength back form this bug I have to drive to Philly for a bladder instillation...............

I did the york testing and it took a couple of weeks.

It confirmed my problem foods to me soit was helpful in that respect. I now avoid most of the strong positives on the list.

They did a lap and accidentally severed an artery while they were in there which led to an emergency laporotomy. Everything happened so fast that I never questioned whether they found endo or not. Later....after many laps to repair the damage that was done during that surgery because of severe abdominal and pelvic adhesions....I was able to retrieve all my surgical reports and read ALL the pathology reports. All were negative for endo. I had surgery done by 2 of the top endo drs in THE WORLD and both said that they did not see any endo nor did they think that endo was the real problem. they both felt that it was GI and bladder related.

When I would go into the gyn's office and complain of pain, distention and fatigue they would say that it was endo. After they severed my artery they put me on Lupron to quiet things down and I felt a little better. But...then again I was not ovulating which was another problem for me as I formed large ovarian cysts. So...I think it was a lot of things but....knowing what I know now....my problems then were NOT endo related. I've had life long bladder problems and the diagnosis of Interstitial Cystitis did not come until a few years ago. I was also suffering with gluten intolerance but tht word was not even part of my vocabulary at the time and doctors never mentioned anything of the sort to me. Could the abdominal distention be a GI clue or pelvic pain be a bladder suspiscion????? you bet.....but I was told it was "little islands of endo flaring up!"

Having said that I am still suffering daily with bladder pain.

As for the hysterectomy???? the adhesions were so bad that everything was stuck to my uterus. I could not have bowel movements without having excruciating pain for days. It was horrific! My new gyn thought that I could also have adenomyosis which is endo in the walls of the uterus and the only treatment for that was removing the uterus. I was so digusted and in sooooo much pain that I just wanted everything out.

OH....the pathaology report for the adenomyosis of the uterus (after the hysterectomy) was also negative but they covered themselves by saying they could have just biopsied and area that did not have it as opposed to taking a biopsy of an area that had it.

After the hysterectomy the adhesions came back anyway and I needed another 2 surgeries. I think I am finally adhesions free. i traveled to Germany July 2004 to have adhesion surgery by a world famous dr who uses a technique and Barrier Gel that is not approved for gyn use in this country. I'ts almost a year and they haven't grown back. I feel quite hopeful that they are gone for good!

things aren't always back and white. I guess I learned the hard way.

My fibro came about after a terrible viral infection (Parvo Virus) 8 years ago. I have not been the same since and now have to deal with daily pain. There are times when it flares up and gets worse......like a flu, cold, bacterial infection, stress or just being run down by over doing it. Mornings are usually the worst. I also now get sick a lot as my immune system changed after that illness.

going gluten free has helped as I now know when it is a virus or gluten contamination. Before I would l think I had a virus ALL the time. At least now there is a break between periods of being ill. I also notice that when I accidentaly ingest gluten I actually feel sick with muscle pain...and it cold actually pass for a virus if I didn't know better.

Thanks,

still struggling though. whenver i get a bad virus it affects my fibromylagia and puts me in a flare. I feel like a mack truck ran me over! let's pray it dosn't last toooooooooooo long!

Hi Stef.

It got cold here too in NJ. with me though it's a terrible flu. walking is an effort....all my muscles are screaming and I can't keep my head up...it is pounding. lot's of sneezing and a sore throat. i just can't seem to shake it but i won't take any meds besides tylenol for it as I know it is viral! I got one of those fever blisters above my lip!

oh well........more resting for me today....can't do much of anything else.

glad you are feeling better!

you have to give it time but the bottom line is that you'll only feel better once you stop eating gluten. Hang in there!

well..it's official......I've got the flu!

I tied to fight it off yesterday and went out all day but this morning it hit around 5:00 am. The whole body is screaming! head, muscles, fever blister, tummy.......getting out of bed and walking is an effort.

ok...gotta go back to bed and rest. taking tylenol helps.