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debnak

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About debnak

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    Female
  • Location
    Wasilla, AK

  1. I was diagnosed with Celiac a few years ago but have not been strict with my diet. My symptoms have been more or less "silent" until yesterday. The area around my mouth is red, cracked and on fire. My lips feel like they are extremely chapped and nothing will relieve the pain. Could this be a new symptom of being a Celiac?

    I know I should follow the diet but it's just SO hard and I don't do well with change AT all. Please help!?

    Thank you,

    Deb


  2. I'm going to try to scare you straight. You MUST stop eating gluten. For celiacs gluten is poison. It's not LIKE poison it IS poison. Every time you eat gluten your immune system goes into overdrive and causes destruction in your intestintes which further destroys other parts of your body.

    There is a member on here who was undiagnosed for years and wanna know what finally happened to her? Her intestines blew a hole in them and she ended up flailing on the floor in a restaurant. Good thing she found out what it was causing it because otherwise she wouldn't be with us. She now has an ostomy bag attached to her side to collect her bowel movements and it's hell to live with. Hopefully it will be removed because for some people it's permanent.

    Another of our beloved members go lesions on her brain similar to MS and she now has ataxia due to untreated celiac. This means she stumbles when she walks like a "drunk person" in her words.

    If you do a search on here for neurological effects of celiac it will scare the crap out of you.

    And then there's the higher risk of cancer and other autoimmune disorders. Many of us have hypothyroid, etc because of our undiagnosed celiac disease.

    Now for the pep talk. YOU CAN DO THIS. Get gluten free substitutes. Betty Crocker makes amazing brownies, cookies and cake mixes. Ghirardelli cocoa powder is gluten free and the frosting recipe on the back of the can is to die for.

    Gluten Free Pantry makes a Basic White bread mix that is so "normal" and yummy. It's easy to make too. Their French Bread and Pizza crust mix makes pizza that my gluten eaters LOVE.

    Glutino makes amazing pretzels and gluten free candy bars. Their chocolate wafer cookies taste like Twix.

    Look at old threads here on this site. Read in Coping With and Restaurants and Post Diagnosis. Use the search function to find old threads on questions you may have. Read as much as you can on here. Then go out and investigate your local stores. If you have Whole Foods or Sprouts nearby go see what's out there.

    You won't know what to do with all the energy you have once you are healed. I wrote a novel after getting better from this diet!!!! It will change your life in profound ways. I just posted a thread in Coping With about how it has changed my personality for the better.

    Now go do this!!!!!!

    Thank you SO much for your scary pep talk. I was diagnosed a few years ago but can't seem to stop eating gluten. I always tell myself that I've hurt for 43 years and that I wouldn't know any different so why stay off gluten...?? You're post really snapped me into reality. Thanks again!!


  3. I'm so thankful for everyone's posts about depression. I have suffered from depression my entire life. I was diagnosed with Celiac's in 2004 but when I try to follow the diet I get so angry and depressed that I cave in and eat gluten because it's easier. I'm not sure which depression is worse, the kind I'm used to or the new feeling when I know I can't have what I want to eat....UGH!


  4. Hi!

    So I know there are quite a few of Celiacs that put ON weight instead of losing it. One theory I heard is that the body is so malnourished of vitamins that it holds on to every calorie and the metabolism slows down. For those of you who were undiagnosed and overweight, did you deal with anemia issues?

    Let me know what you think, it's very interesting to me.

    Thanks!

    Hi there,

    That is how I was diagnosed with Celiacs. I was very anemic and the doctor kept digging and digging and finally found out the cause.