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About SoMuchPaint

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  1. Staying Gluten Free during delievery When I go to the hospital to deliever, I will tell them I want gluten free and corn free food, but will the food service at the hospital know how to do this? Or will they just scrape the canned corn off my plate and serve my food with the bread on the side? I know that IV's can contain dextrin (from corn), and I really don't want my arthritis to come back, so I'll need to ask for straight saline if they insist on one. Are there any other medications I will be offerred/given that they will not know has wheat or corn in them? Sorry, I keep thinking of things to add. I have read extensively on this board and the journal articles I can find online (abstracts, mostly), but I still have so many questions, and I value your experience.
  2. I have been gluten free (to the best of my ability; I am certain I have glutenized myself as I am still new to this) for about two weeks. With the naturopath/MD's blessing, I have discontinued all supplements containing wheat, leaving me with the digestive enzyme, probiotics, and now a gluten-free prenatal. My OB has found me to be low platelet (although not scary low) and low iron (although I take an iron supplement). My biggest reaction to the gluten-free diet has been constipation (I have had d most of this pregnancy) and my daughter says I smile more. I have noticed a return of my sweet "mommy voice," which was getting lost in crankiness and frustration at my inability to get out of my own way. I can't really tell if my stomach feels better, because everything is all squished right now from the baby. Now what? Should I test to see if I am low IgA, since me fecal fat was so high given the relatively low IgA reactions? Should I test for any other food sensitivities? Is there any benefit to blood testing? The false positives are so high... and I don't have the most common Celiac genes, although I am having an autoimmune reaction related to ingesting gluten. Am I better off just staying gluten free and keeping this out of my medical record as much as possible? (My insurance doesn't pay for the naturopath/MD or the acupressurist, and it didn't pay for Enterolab, so is this all outside of my medical record in regards to insurability?) Ought I have any nutritional testing to look for deficiencies, since I'm not absorbing well?
  3. History: I have no gastroenterologist. Looking back, I have had digestive complaints for years and years, feeling gassy/bloated/uncomfortable with alternating d & c for so long that I considered it normal for me and I attributed it to not enough veggies or nervousness, depending on the symptoms. I also have an (undocumented) history of reaction to foods and additivies. As a child, I went literally crazy when given Flintstone vitamins, loaded with so much food coloring that, when my mom made the connection and flushed them, the toilet water turned vibrant. Eating candy like skittles or drinking soda would give me such a high that I never felt the need to experiment with alcohol or illegals. A good student (although terribly disorganized) throughout grade school, by college I was diagnosed with adult ADD and took Ritalin in order to maintain the focus needed to study for organic chemistry. I abandoned the Ritalin when I started seriously considering what it would be like to drive off this particular bridge I drove across on the way home from my college commute, and realized there might be a connection (so I am obviously drug sensitive). Still, my fuzzy-headedness and distractability grew worse and worse, until I ended up dropping out of graduate school, even with all my classes completed and an excellent GPA, because I couldn't write up my thesis (whose research I had already completed and whose data I had already analyzed). I hemorrhaged after the birth of my first child (did not need transfusion, just injections and IV fluids and pitocin to stop bleeding). As the OB gave me a few stitches after the labor, I learned that whatever local anesthesia she used was useless to me. One year later, still exhausted and useless at home -- taking care of my daughter took everything I had, and I don't think I washed a single dish or sock that whole first year -- I was diagnosed with hypothyroid and started Synthroid. Almost 3 years later, immediately after the birth of my second child, I developed stiffness and swelling in my joints, first in my right hand (where a badly placed IV saline lock during the labor started the pain), then in my left hand as well (leading me to believe it was rheumatoid, because of the symmetry). When I went to a doctor (3/4 of a year later, when I started dropping things and was worried I wouldn't be able to take care of my baby) she recommended taking large doses of motrin for a few months, and then scheduling surgery if I was still in pain. I said no, thank you. I went instead to chinese medicine, and used acupressure. Through the acupressure, avoiding corn to the best of my ability (something I read on the internet), and switching from Synthroid to Armour (on the advise of the acupressurist, seeing the naturopath/MD he recommended), within a year my hands were functioning and mostly pain free. Naturopath/MD did testing, and the thyroid condition was definately Hashimoto's (autoimmune). He also put me on digestive enzymes, probiotics, and some supplements that would support my adrenal system (which was sluggish) and my struggling thyroid, but because I was still breastfeeding, neither doctor (acupressurist nor naturopath/MD) could do any detox on me. When I had my wisdom teeth removed, I found I was one of the small percentage that, instead of sleeping when taking Tylenol with Codine, goes a bit crazy, pacing and crying, until the drug wore off. I endured the subsequent dry socket with clove oil. I was weaning my youngest (2 years old) to do the detox when I got pregnant again. And here I am now, due in January. It has been a major concern for me that this pregnancy would lead to another autoimmune condition, so I looked up everything I could find online and discovered the connection between Hashimoto's and Celiac. Not thinking I had Celiac, but seeing many of the atypical symptoms in myself and my oldest child, I had us tested.
  4. Here are my enterolab test results: A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value Fecal Anti-gliadin IgA: 21 Units Fecal Anti-tissue Transglutaminase IgA: 11 Units Quantitative Microscopic Fecal Fat Score: 524 Units Fecal Anti-casein (cow's milk) IgA: 3 Units HLA-DQB1 Molecular analysis, Allele 1: 0301 HLA-DQB1 Molecular analysis, Allele 2: 0501 Serologic equivalent: HLA-DQ 3,1 (Subtype 7,5) Interpretation of Fecal Anti-gliadin IgA (Normal Range is less than 10 Units): Intestinal antigliadin IgA antibody was elevated, indicating that you have active dietary gluten sensitivity. For optimal health, resolution of symptoms (if you have them), and prevention of small intestinal damage and malnutrition, osteoporosis, and damage to other tissues (like nerves, brain, joints, muscles, thyroid, pancreas, other glands, skin, liver, spleen, among others), it is recommended that you follow a strict and permanent gluten free diet. As gluten sensitivity is a genetic syndrome, you may want to have your relatives screened as well. Interpretation of Fecal Anti-tissue Transglutaminase IgA (Normal Range is less than 10 Units): You have an autoimmune reaction to the human enzyme tissue transglutaminase, secondary to dietary gluten sensitivity. Interpretation of Quantitative Microscopic Fecal Fat Score (Normal Range is less than 300 Units): A fecal fat score greater than or equal to 300 Units indicates there is an increased amount of dietary fat in the stool which usually is due to gluten-induced small intestinal malabsorption/damage when associated with gluten sensitivity. Values between 300-600 Units are mild elevations, 600-1000 Units moderate elevations, and values greater than 1000 Units are severe elevations. Any elevated fecal fat value should be rechecked in one year after treatment to ensure that it does not persist because chronic fat malabsorption is associated with osteoporosis among other nutritional deficiency syndromes. Interpretation of Fecal Anti-casein (cow's milk) IgA (Normal Range is less than 10 Units): Levels of fecal IgA antibody to a food antigen greater than or equal to 10 are indicative of an immune reaction, and hence immunologic "sensitivity" to that food. For any elevated fecal antibody level, it is recommended to remove that food from your diet. Values less than 10 indicate there currently is minimal or no reaction to that food and hence, no direct evidence of food sensitivity to that specific food. However, because 1 in 500 people cannot make IgA at all, and rarely, some people can still have clinically significant reactions to a food antigen despite the lack of a significant antibody reaction (because the reactions primarily involve T cells), if you have an immune syndrome or symptoms associated with food sensitivity, it is recommended that you try a strict removal of suspect foods from your diet for up to 12 months despite a negative test. Interpretation Of HLA-DQ Testing: Although you do not possess the main HLA-DQB1 genes predisposing to celiac sprue (HLA-DQB1*0201 or HLA-DQB1*0302), HLA gene analysis reveals that you have two copies of a gene that predisposes to gluten sensitivity (any DQ1, DQ2 not by HLA-DQB1*0201, or DQ3 not by HLA-DQB1*0302). Having two copies of a gluten sensitive gene means that each of your parents and all of your children (if you have them) will possess at least one copy of the gene. Two copies also means there is an even stronger predisposition to gluten sensitivity than having one gene and the resultant immunologic gluten sensitivity may be more severe.
  5. SoMuchPaint

    When Should I Get My Girls Tested?

    I am trying to decide if I should get my just-turned-3 daughter tested. Her 5 year old sister and I were recently tested with Enterolab, and while we were negative for the main celiac genes, we were both making Anti-gliadin IgA and Anti-tissue Transglutaminase IgA. Part of our concern is if these results will affect their future insurability. Have you experienced any problems with this? (We have noticed vast improvements in the 5 year old's behavior, and she wasn't badly behaved to begin with. She notices her tummy hurts her much less than it used to. She and I have been gluten free for about 2 weeks).
  6. I have been gluten free for less than a month, so I was a bit unsure about Thanksgiving. We had an early Thanksgiving, and I had great success with stuffing made from Food for Life Brown Rice Bread; onions, celery and garlic sauteed in butter; homemade turkey broth; chopped apple and pecans; 2 whole eggs; and some herbs. I made a second batch of it, adding chopped turkey to it, and brought it to "real" Thanksgiving dinner at my brother-in-law's house, so my daughter and I didn't have to concern ourselves that their turkey was stuffed with bread stuffing. My second attempt at gravy (brought in a kids' lunch thermos to "real" Thanksgiving) was a success, using both brown rice flour and tapioca flour. I also made a stovetop pudding out of canned pumpkin, egg, milk, and cinnamon that my family enjoyed. My failure: pumpkin pie crust. This was sad, as I've always been the pie maker at family gatherings.
  7. SoMuchPaint

    gluten-free Thanksgiving

    I am glad I read this. This is both my first Thanksgiving knowing about my gluten intolerance AND the first Thanksgiving in my memory not being hosted by my family. I had planned on bringing a gluten free (corn free, soy free) stuffing/dressing and some sort of gluten free (corn free, soy free) desert, with my brother-in-law's blessing, but I guess I need to bring my own turkey meat, too. I'm not even sure I've been gluten free long enough to notice if I get a dose of gluten, especially as I am in my third trimester, and everything in my body feels odd right now, but I'd rather not risk it. I'm really hoping to make it through this pregnancy without developing another autoimmune disorder (which happened with my two previous pregnancies).
  8. My 5 year old daughter and I were recently diagnosed (via Enterolab) as having an autoimmune reaction related to ingesting gluten (if I am understanding the results correctly). My 3 year old daughter has not been tested yet, but we suspect the same will be true for her, once we have saved up enough to run another test. This will be our first Thanksgiving and Christmas season without my baking. Typically, I make homemade dinner rolls for both meals, wreath-shaped cinnamon-raisin tea rings and butterfly-shaped orange rolls for holiday breakfasts, several varieties of cookies (especially butter-sugar and gingerbread people), and at least 5 types of pie -- all made from scratch, often with wheat flour I would grind myself. Now, all of these traditions may be over... Unless someone has some fantastic recipes. I cannot eat soy (as I have hypothyroidism, and soy inhibits thyroid function), and I have arthritis reactions to corn (including, apparently, xanthan gum, as my hands have become stiffer since switching from with-gluten Ezekiel bread to without-gluten rice bread). All of the gluten-free flour mixes I have seen in stores and online have soy flour, cornmeal, corn starch, and/or xanthan gum in them. I would prefer to make something from scratch, but is it even possible? (Just to complicate things, I am pregnant, and even though I am hardly nut-free, I am concerned that eating too many nuts could cause allergies in the baby) Does anyone have any recipes worthy of becoming our new family traditions? We seem to tolerate dairy and eggs just fine. Maybe a rice pudding recipe or a crust-less cheesecake or custard pie that will make me forget all about my artful lattice crust tops? Or a vegetable-based dinner roll?
  9. My daughter isn't much of a complainer, but if you ask her how she is feeling, she will often mention that her stomach hurts, as do the joints in her hands and her knees. The joints in her middle fingers actually lock up -- if she closes her hand slowly, the middle finger seems stuck straight and then jumps into a bent position with a quiet click sound. She has had dark bags under her eyes for more than two years. We looked back at family photos, and the darkness first shows in family photos taken a few months after my grandmother's death. She was really close to my grandmother, who was legally blind and lived with us, and her death, from a fall down the stairs while on vacation with us, was sudden and traumatic. I wonder if that event was a trigger. I seem to remember her being a very healthy baby and toddler, but she had cyclic fevers in preschool (never diagnosed; she started preschool a month after my grandmother's death), and seems to catch everything in Kindergarten this year. I have Hashimoto's thyroiditis (diagnosed when she was 12 months old, probably related to pregnancy) and what was probably rheumatoid arthritis (which started from a badly placed IV line when in labor with my second child), which I treated by eliminating corn and corn products from my diet and undergoing acupressure treatments for about a year. It was really bad, to the point that I was dropping anything I tried to pick up with my right hand, was starting to have trouble using my left hand as well, and was developing stiffness and pain in my left knee. Now my knees are perfectly fine, my hands are mostly pain free, and I get noticeable stiffness and pain in my hands after consuming corn products, like frosting, which is made of powdered sugar (has corn starch). This was before I recently went gluten free myself. I sincerely hope that a gluten-free diet (which she seems to be readily accepting, perhaps because we are doing it together) will make her asymptomatic, but the stiffness in her hands is making me look suspiciously at corn for her as well. I'd hate to further limit her diet, though, without some sort of proof. Enterolab doesn't seem to test for corn sensitivity. Does anyone?
  10. Thank you so much. I wasn't sure just HOW bad the 69 and 24 units are (beyond being a positive test result), but I was thinking that ANY level of autoimmune activity was bad enough to be taken seriously. Does producing antibodies to gluten mean you technically have an allergy to gluten?
  11. I know this is an older post, but these are almost the exact same gene results (by serologic equivalent; my daughter is 501) I just received for my daughter from Enterolab. Are you still doing the gluten free diet with your son? Has it been a positive experience? I am meeting some resistance among my family at my wanting to "control" her diet. They wonder if the occasional slice of delivery pizza or treat at a birthday party would be no big deal, and don't want me "excluding her" from food-related activities "unnecessarily."
  12. Did I post my question in the wrong place?
  13. Recently my kindergarten daughter and I were tested with Enterolab. I am unsure if she needs to be on a STRICT gluten-free diet, or if the occasional cupcake at school or slice of delivery pizza at a party are not really worth the fuss. I think I know the answer already, but am meeting with confusion among the other adults in our family as to how "controlling" I will need to be of her diet, and how much of it can be left to her own paying attention to how she feels, especially as she does not have the most common Celiac genes. Here are her results: Fecal Anti-gliadin IgA: 69 Units Fecal Anti-tissue Transglutaminase IgA: 24 Units Quantitative Microscopic Fecal Fat Score: Less than 300 Units Fecal Anti-casein (cow's milk) IgA: 6 Units HLA-DQB1 Molecular analysis, Allele 1: 0303 HLA-DQB1 Molecular analysis, Allele 2: 0501 Serologic equivalent: HLA-DQ 3,1 (Subtype 9,5) Thank you so much for any insight you can give!