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Haylsinator

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Everything posted by Haylsinator

  1. Thank you all so much for your replies, input, andfor sharing your personal experiences with me. I'll try harder to avoid scratched pans and will probably invest in my own cutting board (yes, I've been using a shared wooden cutting board, only wiped down with a shared sponge!). I feel very negligent now and wish I could apologize to my body lol
  2. Oh my gosh! I'm so sorry I'd be beyond upset if someone treated me like that. I was only diagnosed with the blood test and after trying a small bowl of rice crispies a few months ago and then Cap'N Crunch a couple of days ago, thinking they may be safe, I've decided that an endoscopy is not a necessity! I would like to know if I'm just intolerant or do have the disease for health reason, but I'm not in any hurry to dish out so much money for it. Regardless of an official diagnosis, I feel better gluten-free and like you said, that's what matters! Better luck with doctors in the future!
  3. I did not have an endo. My blood test results were so positive that my doctor said an endoscopy wasn't necessary. I wish I had had one, though, just because so many people still use it as a final diagnosis. I had one after being gluten-free since I've still had some issues and it didn't show any signs of celiac disease. I would probably do another one, after eating gluten for a few weeks, but I can't afford the copay at the moment.
  4. Ok, ok, I know they aren't healthy but they are delicious! Thanks for all of the replies I'll, obviously, stay away from them now. I don't seem to have a problem with corn but I'll keep an eye out for the gums, vitamins, and caramel color. The gums and vitamins hadn't occurred to me before. I have sucralose regularly in one of my hot chocolates and don't seem to have an issue with that so I'm pretty sure that's not the issue. I'll see if I can find the contact info for the company. They themselves didn't actually declare it gluten free, it was just me going by the igedients Thank you again!
  5. I love these 4C Totally Light to Go water flavoring packets. However, I'm pretty sure that they upset my stomach and give me "gluteny" symptoms. I can't figure out what the offending ingredient might be. There is also a variety that are energy ones, and those ones are even worse and cause nausea. Could anyone help me try to determine if there is anything specific that may be bothering me? I'd love to know so I could try to pinpoint and avoid it in other foods. I'm getting super sick of my seemingly daily symptoms, water packets or not. Flavoring Packet flavors and ingredients: Wildberry Pomegranate: Citric Acid, Ascorbic Acid (Vitamin C), Natural & Artificial Pomegranate and Wild (Mixed) Berry Flavors, Potassium & Sodium Citrate (Control Acidity), Acesulfame Potassium, Purified Polyphenols (Antioxidants) (One Serving Contains Approximately 20 mg of Antioxidants), Sucralose, Magnesium Oxide (Prevents Caking), Cellulose Gum, Xanthan Gum, FD&C Red 40, Tricalcium Phosphate (Prevents Caking), FD&C Blue 1. Cranberry Pomegranate: Citric Acid, Ascorbic Acid (Vitamin C), Artificial Cranberry Flavor, Potassium and Sodium Citrate (Control Acidity), Acesulfame Potassium, Purified Polyphenols (Antioxidants) (One Serving Contains Approximately 25 mg of Antioxidants), Natural and Artificial Pomegranate Flavor, Sucralose, Gum Arabic, Magnesium Oxide (Prevents Caking), FD&C Red 40, Tricalcium Phosphate (Prevents Caking), FD&C Blue 1. Fruit Punch: Citric Acid, Natural and Artificial Flavors, Ascorbic Acid (Vitamin C), Potassium and Sodium Citrate (Control Acidity), Acesulfame Potassium, Artificial Color FD&C Red 40, Sucralose, Gum Arabic, Magnesium Oxide & Tricalcium Phosphate (Prevent Caking), Titanium Dioxide, Artificial Color FD&C Blue 1. Lemonade: Citric Acid, Natural Lemon Flavor, Sodium and Calcium Citrate (Control Acidity), Ascorbic Acid (Vitamin C), Cellulose Gum, Acesulfame Potassium, Partially Hydrogenated Soybean Oil, Natural Lemon Juice Solids, Sucralose, Magnesium Oxide (Prevents Caking), Artificial Color FD&C Yellow 5. Energy Flavoring Packets: Berry Ingredients: Citric Acid, Taurine, Glucuronolactone, Sodium Bicarbonate, Sodium Citrate, Caffeine, Acesulfame Potassium, Natural (Mixed) Berry Flavors, Sucralose (Splenda Brand), Niacinamide (B3), Calcium Pantothenate (B5), Pyridoxine HCl (B6), Silicon Dioxide, FD&C Red 40 & Blue 1, Folic Acid (B9), Cyanocobalamine (B12). Citrus: Citric Acid, Taurine, Glucuronolactone, Sodium Bicarbonate, Sodium Citrate, Caffeine, Natural Citrus Flavors, Acesulfame Potassium, Sucralose (Splenda Brand), Niacinamide (B3), Calcium Pantothenate (B5), Pyridoxine HCl (B6), Silicon Dioxide, FD&C Yellow 5, Folic Acid (B9), Cyanocobalamin (B12). Orange: Citric Acid, Taurine, Glucuronolactone, Sodium Bicarbonate, Sodium Citrate, Natural Orange Flavor, Caffeine, Acesulfame Potassium Sucralose (Splenda Brand), Niacinamide (B3), Silicon Dioxide, Calcium Pantothenate (B5), FD&C Yellow 5, Pyridoxine HCl (B6), FD&C Red 40, Folic Acid (B9), Cyanocobalamine (B12).
  6. A bit off topic, but my mom bought a cookie from a natural restaurant. It was a ginger cookie with a big "gluten free" sticker slapped on it. As I was chewing (and enjoying!) my first bite, I turned it over and saw that the primary ingredient was barley flour :K I don't get back pain as a symptome myself, but I do believe my symptoms are worsening as I remain gluten-free so I wouldn't be surprised if that one crops up soon.
  7. *sigh* I had a feeling So, all oats are considered non-gluten free? I thought that some people could handle commercial oats and some couldn't. I must have been thinking of the fact that some people can't handle "gluten free" oats. That's so much worse! lol Thank you for your help, I really appreciate it.
  8. I keep seeing things about CC with pots, pans, collanders, wooden spoons, etc. I don't know why but I have so much trouble accepting that I could actually experince symptoms from this. I understand that any small amount can be doing damage to the intestine but could my symptoms, that I can't see to get full relief from, really be because I used a washed pot that once held wheat pasta? I know I should be more considerate of my body and attempt to prevent any damage that may be causedl; I'm trying but I think I'm in a minor state of rebellion. I eat gluten-free but I do use a shared kitchen, pots, etc (all cleaned). What I'd really love to hear is anyone's personal experience where they know that they were glutened from this kind of CC and it couldn't have been anything else. These variations in how long before sypmtoms arise, how symptoms are different for everyone, etc has me completely uncertain on how to know if I've been glutened or have other issues. Thank you for reading and putting up with my grumpiness
  9. Ok, so I had an "I need this!!" attack yesterday and bought Cap'n Crunch. It looked mostly ok but I was wary of the oat flour. I've decided that I'm ok with oats so I thought I should be fine. I'm wondering if the lovely state of discomfort I'm in today is a result of the oat flour or if I should investigate the rest of the stuff I ate yesterday. I know that the cereal can't be considered gluten free since it's processing but I was curious about the ingredient itself. Thanks for the help
  10. Aww, so sorry it didn't go well! I adore PF Changs and have not had an issue there yet, myself. I believe I've been twice while gluten-free. My husband does not eat gluten-free and even though he ordered an item that appeared on the gluten-free menu, when I asked the waitress if it was she apologized and said it was not and would we like one that was. I had only wanted to taste so did refuse but she certainly seemed well trained on the issue. Better luck eating out next time! It's always so frustrating when it doesn't work out
  11. Thank you all so much for your replies I'll have to try to find a nice way of confronting my doctor with this!
  12. I remember trying Amy's pizza once and it was so disappointing! My family was horrified with it. It's a shame because it was one of my first attempts at frozen gluten-free food. Thankfully, I have found one of the yummiest gluten-free pizzas at a restaurant around here for about $8. Also, if you're near an Uno's they have my second favorite crust.
  13. I still experience some symptoms even though I've been gluten free for over 2 years. I never had a positive biopsy since my doctor said that my blood test levels were high enough that there was no denying I have Celiac. I believe it was the Tga test. I had a biopsy while eating gluten free to check for other issues and nothing was found. I visited the doctor the otehr day and asked her if she could write up a blood test to have my levels checked again and she said that there was no point since there wouldn't be any difference. I thought that it was an antibody and that if I was not ingesting gluten I could be tested and it would appear that I don't have Celiac disease. Could anyone shed some light on this? I know my previous reading was >100 and was off the chart so the doctor said I definitely had the disease so that's why I never had the biopsy. I was hoping to see if my levels had dropped to normal or something but does it not work that way? Thank you so much for any clarification.
  14. I've been struggling with gluten-esque symtpoms for quite awhile and have just accepted them. I eat gluten free and I'm pretty careful so I'm not sure what the problem is. However, I was finally able to notice that I have symptoms after drinking 4C Totally Light 2 Go energy drink packets. I've looked thorugh the ingredients, however, and can't seem to locate anything with gluten. I thought perhaps the sucralose was the problem, but I drink Swiss Miss Diet Cocoa with Splenda without issues. Does anyone have any ideas? I'll post the ingredients for the water packets below. Thank you so much! Ingredients Berry Ingredients: Citric Acid, Taurine, Glucuronolactone, Sodium Bicarbonate, Sodium Citrate, Caffeine, Acesulfame Potassium, Natural (Mixed) Berry Flavors, Sucralose (Splenda Brand), Niacinamide (B3), Calcium Pantothenate (B5), Pyridoxine HCl (B6), Silicon Dioxide, FD&C Red 40 & Blue 1, Folic Acid (B9), Cyanocobalamine (B12). Citrus: Citric Acid, Taurine, Glucuronolactone, Sodium Bicarbonate, Sodium Citrate, Caffeine, Natural Citrus Flavors, Acesulfame Potassium, Sucralose (Splenda Brand), Niacinamide (B3), Calcium Pantothenate (B5), Pyridoxine HCl (B6), Silicon Dioxide, FD&C Yellow 5, Folic Acid (B9), Cyanocobalamin (B12). Orange: Citric Acid, Taurine, Glucuronolactone, Sodium Bicarbonate, Sodium Citrate, Natural Orange Flavor, Caffeine, Acesulfame Potassium Sucralose (Splenda Brand), Niacinamide (B3), Silicon Dioxide, Calcium Pantothenate (B5), FD&C Yellow 5, Pyridoxine HCl (B6), FD&C Red 40, Folic Acid (B9), Cyanocobalamine (B12).
  15. How exciting! Congratulations I'm extremely lucky with where I live; I know of two gluten-free bakeries right around my area. From my experience to one though, I can't be trusted! I bought a whole box of goodies (including a cinnamon bun, yum!) and I ate the whole thing within 24 hours...In fact, I'm not even sure it took that long lol Were your purchases yummy?
  16. I think it would be out of line to say anything to the manager - I don't think people should have to not enjoy food just because I can't. Not that I don't really want to have them all try it sometime! That would be so great People would have such a new respect for us. Your feelings were definitely spot on. We're having a potluck at work today and I can eat a soup that someone made and the muddy buddy I made. The soup would not have been gluten free if the woman who made it wasn't so thoughtful. She went out of her way to find gluten-free ingredients for it. I'm super lucky in the support I have from my team here. However, it doesn't usually extend much further than general sympathy which, I won't lie, I definitely appreciate from time to time!
  17. I just bought my first bag of this bread (my grocer carries it, thankfully!) and I'm super excited to try it. Can this be made into loaves for sandwiches or is it just better in roll form?
  18. I would eat the product. I don't believe I'm particularly sensitive and tend to believe companies put that on their products to cover their own bums versus warn us that there's a good chance we'll get CC'd.
  19. I think both of you could have handled the situation differently. We, as caliacs, have to remember that it's a really big pain for otehrs when we always have to order specially. It's obviously worse for us but it can be hard to comprehend and accept all the time when they aren't the sufferers. As a result, sometimes we need to make sacrifices for the ones we love - since they do it all of the time. I probably would have stayed there, tried to be happy, and not eaten anything. Your girlfriend, however, should have tried to be more understanding. It's not your fault that you have the disease and she should be impressed with how well you take care of yourself. She should be on your side, most definitely.
  20. I have major issues with gas and bloating. I'm pretty sure that I've tracked my issues down to sugar free gum. And as far as I can tell it's the sugar alcohols. I tolerate some better than others. Which leads me to believe that it may be another issue, but I definitely have gas and bloating when gum is involved. The sugar alcohols are the ingredients ending on -tol. Are you eating any sugar free foods, by chance? And I'm horrified that Gas-X chewables has gluten! I thought that I had read that they don't. Those were supposed to be my go-to meds! Go figure
  21. I'm 4'11". My mom is 5'3" and dad is 5'6". Sister is 5'2". All are non-celiac. My brother, who I suspect may have celiac, is 5'10".
  22. That's tough! If I were you (and I understand the money situation) I would probably test the son, since he looks like he may actually have the disease. Then I would save up and when you're more financially secure I'd test everyone else. I wouldn't even attempt the gluten-free household- if it's anything like my family there would be cheating galore, to go along with all of the animosity. My boyfriend tried for a few weeks and just couldn't do it. I can't blame them when they don't have the symptoms to encourage them, like we do. Good luck!
  23. They did do a biopsy and I meant to call and get the results again. I'll do that tomorrow as I think they are closed for the rest of today. I was having some syptoms but believe they are attributed to the sugarfree gum I was constantly chewing - since I've stopped I'm feeling much, much better if not completely. I do drink distilled alcohols, and had a drink last night, but don't believe I had any symptoms. As well, most of the food I eat is unprocessed. I did have very mild symptoms today without explanation, unless the drink last night is to blame. It was nothing to bother over though and could have just been normal body functions at work
  24. Thank you both so much for your replies and suggestions LivesIntheSun - when you refer to your blood sugar, have you actually monitored your blood sugar levels or are you just going based on how you feel after eating? I would be very interested if it would be possible to actually track my blood sugar throughout the day. I have a terrible memory and have lots of trouble noticing patterns, etc. Is it possible to get a monitor without having diabetes?
  25. I was talking to my mom regarding the biopsy I had in March. I had been (and still am) gluten-free for over a year up to that point. Apparently the doctor said that he could not see any villi on my intestine when he did the endoscopy. I believe I tested negative for everything (including celiac disease). Is it normal for my villi to remain damaged for so long? I had thought they started healing immediately. Thank you!
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