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Emsstacey

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About Emsstacey

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  1. We actually sound very similar! I had (and still do have some minor) neuro issues... tingling hands, leg, etc... and...
  2. I am wondering if anyone has "flare-ups" before getting a diagnosis? My story is basically that I have had mouth sores...
  3. Wow. It sounds like a lot more people with only the positive DGP. I guess that I need to go retest and find a GI. I would...
  4. gfcolorado, are you saying that only your deamidated gliadin was positive and your biopsy was positive, too? I ask...
  5. I get something similar. It often happens after eating but I never narrowed it down to one thing in particular... pizza...
  6. Oddly, my daughter has worsened since we made the appointment. She is going to the bathroom an average of 5 times/day...
  7. Thank you! I am hopeful that they will be up to speed on current research. Our ped wanted us to go to this doctor who...
  8. My dd has complained of stomach aches for a couple of years. She never complains for long, tends to forget and continue...
  9. Yeah, he is no longer my doc. He also said, "I guess I can refer you to a GI if you really want to," Uh no, at the time...
  10. I have suffered with canker sores for as long as I can remember. Mine had gotten almost continuous when I had a positive...
  11. I had a similar result. My dr. said my celiac panel was negative and I expressed that I was surprised. He then added...
  12. Thank you! It seems that I have so many of the symptoms but not so many of the immediate symptoms. It's the delayed symptoms...
  13. I have posted several times over the past few years about my history. I had aches/pains and osteopenia at 30 years old...
  14. I have a great-aunt on the other side with confirmed celiac from Mayo. I have ITP and my family has lots of autoimmune...
  15. I posted a couple years ago with a high positive deamidated gliadin, osteopenia, chronic mouth sores, fatique, headaches...
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