Celiac.com Sponsor (A1):

Celiac.com Sponsor (A1-m):


Advanced Members
  • Content Count

  • Joined

  • Last visited

  • Days Won


Reba32 last won the day on September 30 2011

Reba32 had the most liked content!

1 Follower

About Reba32

  • Rank
    Star Contributor

Profile Information

  • Gender

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. Oatmeal and brown rice are a good source of fiber and nutrients and are not the type of carbs to worry about, unless you are a diabetic. I can see your point about white rice being a filler with no nutritive value but not the case with the others. They are a good addition to most people's diets, unless you have a medical problem which would prohibit consumption. All carbs are not created equal and there is just too much fear of them out there.

    absolutely, not all carbs are created equal. However, grains, whether oats or rice, are still going to raise your blood glucose levels considerably, and whether or not you're diabetic, this is NOT a good thing. One serving of oats 103.38 grams of carbohydrates with only 16.5 grams of fiber for a net carb impact of 86.88 (or if you prefer the Glycemic Index rating, it's 54, compare it with Betty Crocker vanilla cake at only 42! (source - Harvard medical school))

    I prefer to get my carbs and fiber from vegetables that are not also going to give me blood glucose spikes and crashes. And no, I am not diabetic, and I plan to keep it that way! I firmly believe that everybody could benefit from less grains, more veggies.

  2. depends how much damage was done while she was eating gluten, and what she's eating in place of gluten. Most "gluten free" foods are nutritionless carbohydrates, that are not going to help anyone lose weight ever. They're made from white rice, potato starch, tapioca starch, and copious quantities of sugars. There's no fiber, there's no vitamins, there's no nothing but fattening starches and sugar.

    Get her on a whole foods, natural foods plan. Nothing that comes from a prepared mix, pressed paper box, or shiny crinkly plastic package. Just real food.

  3. [rant] well, the dizziness continues, and I have been for so many tests and appointments at the TGH ENT/Balance clinic at my last appointment the doctor suggested I may need to see a psychiatrist because they just can't find anything wrong with me. I'm about to give up with all medical doctors entirely and maybe just go find a shaman in the jungles of deepest darkest Peru :P

    This dizziness has been going on for a year now, and it started a year AFTER I went gluten free, and I didn't have anythign like this in my laundry list of symptoms when eating gluten. But it could be an additional auto-immune disease, I've got 3 of them diagnosed already. EVERY time I mentioned it to anyone at the ENT clinic or with my GP, they all either brushed it off, or quite literally scoffed at me. If I mention that I've read of several celiac patients with secondary neurological disorders, they say "nope, never heard of it". I can't even get a referral to a neurologist! This is so frustrating! I seriously hate doctors. The closest the ENT would get me to a neurology referral is an appointment with their "balance clinic group" where they have a neurologist, a psychiatrist, and a physical therapist (I think?) in a group therapy sort of thing to help you "live your life with balance issues". What crap.

    My life is completely not my own anymore. I'm unemployed, can't drive, and my Mother is one of the worst drivers ever! She makes me nauseous just driving me to the grocery store to do shopping. I hate going anywhere with her, as I'm quite sure she's either going to have us killed, or I will throw up in her lap one day! [/rant]


  4. I didn't try gluten free oats until more than a year after going gluten free. Two reasons, I couldn't find any certified gluten-free oats anywhere, and they're way too high in net carbs for my liking! Now I eat them only on occasion, and usually only when I'm baking something for Grove feasts, when I can't use nut flours due to other members who have severe allergies.

    I avoid rice also, due to net carb content. It's just filler, with no real nutritive value IMO.

  5. For a recent family lunch, a cousin of mine went to bulk barn, saw some gluten free all purpose flour and decided "oh, I'll make Becky some gluten free bread for our lunch!". Which she was going to go home and make in her bread maker, where she makes her regular bread every day! (I have since educated her on cross contamination from bread machines)

    But then she emailed me and said that her bread maker's user guide suggested that she would need some xanthan gum, so she went back to the Bulk Barn and saw the price of it and said "nope, Becky can make her own bread!" So, she gave me the bag of bulk gluten free all purpose flour. Which I am deathly afraid of! I have avoided the Bulk Barn entirely since my diagnosis!

    Has anyone used the gluten-free bulk products from the Bulk Barn and been ok? Or should I just give it to someone who isn't afraid of it? (plus, I'm also a low-carber, so not only does the cross contamination issue scare me, but the carb count of these flours is frightening!)

  6. I have cold cold cold feet and hands too, feet mostly, and I just can't warm them up, doesn't matter what the temperature is in my house. I went to a rheumaologist with my laundry list of symptoms, and she said it can't be Reynaud's because my feet and hands are not blue <_< I read somewhere that not even half of patients have blue extremities :P I do get the blotchy look though when I go outside and get *really* cold.

    I just wear thermal socks, and big fluffy slippers, I stick my hands in my armpits when they get really cold, and try to get my dog to sit on my feet when I can, his normal body temperature is about 101F ;)

  7. are you sure it's muscle spasm and not acid reflux or hiatal hernia? Just by the area where you say it is primarily makes me wonder.

    200mg might be too much, it might not be enough. Everyone is different. In large doses though, magnesium can cause diarrhea, so be careful.

    If it is muscle spasm, you may also need to manage all your electrolytes, not just magnesium. You should also make sure you're getting adequate potassium and sodium.

  8. if you do in fact have Hashimoto's, as well as Celiac disease, then yes, going gluten free can improve your Hashimoto's, but it's not going to make it go away. I don't know if Hashi's can go into remission, anyone know? I doubt it would so quickly though!

    However, treatment with thyroid replacement meds *can* send your thyroid into hyper, which is what it sounds like you were experiencing. Rather than stopping altogether, a lower dose should have been tried first. It takes a while to get the dosage right, you may need to play with it for a couple/few months. And have regular tests done, every 6 weeks or so, to look not just at the thyroid hormone levels, but at the auto-immune antibodies as well. I was on anti-thyroid meds for 18 months for Grave's disease. And only after 1 year of NO ANTIBODIES did my endocrinologist declare that I was in remission. Regardless of my thyroid levels, (which are regulated by the meds) it's the antibodies that determine whether the disease is still active or not.

  9. My friends who have anaphylactic reactions ask me if Celiac disease is the same thing. I say no, it's not an allergy, it's an auto-immune disease, and will cause a slow painful death if I continue to eat gluten. Which is true. Untreated Celiac disease leads to all sorts of other diseases, up to and including cancer. It's not a visible disease like anaphylaxis, and not as quick, but IMO, it's just as deadly.

  10. going on and off the thyroid medications is certainly NOT helping you in the least! Those are types of medicines that IF your doctor thinks you no longer need them, you need to WEEN yourself from them, not go cold turkey! And certainly don't just start back up again without proper doctor support.

    It could well be BOTH celiac and hashimoto's. They are both auto-immune diseases and are commonly found together in a lot of people. But you really can't keep doing the back and forth, on and off the thyroid meds. This is really messing you up, regardless of your diet!

    Stick to BOTH the gluten free diet AND the thyroid meds, and you'll get better. And check with your pharmacist to ensure that your thyroid meds are gluten free. I seem to recall someone else here in the forum was switched to a new generic and it had gluten in it, so of course it was making her sick.

  11. the eye makeup remover is put to your eye via your fingers, (even if it's on a cotton pad) and then fingers can come into contact with your mouth, so yeah, even if it's not getting into the mucous membranes of your eyelids, it could still very well be getting into your mouth.

    I had a couple of really nice body lotions that had wheat germ in them when I was first dx'd. I gave them to a friend. I'd put the lotion on, then sit and rest my chin in my hand, and fingers would get near my mouth, and boom, I'd be glutened. It's just safer to abstain in all aspects.

  12. when you're grocery shopping, stick to the outside aisles only. Fresh veggies and fruits, meats, and real cheese (not velveeta or processed "cheez food"). Stay away from the inside aisles and the manufactured foods, that come in pressed paper boxes or shiny crinkly plastic. The only "packaged" foods you should have are canned fish, like tuna, or salmon. Cocoa powder, flax meal, and nuts are good gluten free alternatives for baking (grind nuts in a coffee grinder or food processor to keep costs down). Stay away from "seasoned" or marinated meats, and even the stuff in the deli section. Always read the ingredients labels on ANYthing manufactured. Even a lot of salad dressings and BBQ sauces have wheat or barley in them.

    It may seem expensive at first, but it really isn't, once you get the hang of it.

  13. toss this at them next time you see them

    When was celiac disease born?: the Italian case from the archeologic site of Cosa.

    Gasbarrini G, Miele L, Corazza GR, Gasbarrini A.


    Institute of Internal Medicine, Catholic University of Rome, Italy. ggasbarrini@rm.unicatt.it


    A case of a young woman died in Italy during the first century AD is presented. She had short height (140 cm), clinical history of anemia, and a decreased bone mass with evidence of osteoporosis and bone fragility. The archeologic artifacts from the tomb and with the quality of burial architecture suggest that the tomb was built for a rich person in an area with extensive culture of wheat. The wellness of the area is supported by the lack of other bodies found with signs of malnutrition. Clinical presentation and the possible continuous exposure to wheat seem to suggest a case of celiac disease. This case could be the first case of this condition since that one described by Areteus of Cappadocia in 250 BC and could be helpful to clarify the phylogenetic tree of celiac disease.

    source: http://www.ncbi.nlm.nih.gov/pubmed/20631553

  14. it does seem like an awful lot of manufactured foods, which are generally void of nutrients of any kind, and full of preservatives and chemicals and artificial this and that. Stick with whole REAL foods. Nothing that comes out of a pressed paper box, or in a shiny crinkly plastic bag. Nothing with ingredients lists longer than 2 or 3 ingredients. Peanut butter for instance should have one, two ingredients max! Peanuts, salt.

    Avoid even packaged gluten free alternative foods. No breads, no crackers, no pancake mixes, no cake mixes, no cookies, etc etc etc. If you want those things, make them yourself from whole natural foods. Grind up nuts to make nut flour, don't use pre-packaged gluten free "all purpose" flour that have no nutritive value at all.

    Your body's energy comes from the food you feed it. If the food you're eating has no nutrition in it, your body is going to be tired and worn out, no ifs ands or buts about it. Your muscles will waste away, you'll put on fat because your body needs to store energy away during famine, and your brain power dwindles because it needs food.

    Check out some information on low carb whole foods diets like a paleo plan, or Atkins.



    I would also second the suggestion to be tested for additional auto-immune diseases like lupus, multiple sclerosis, Sjogren's, Grave's, Hashimoto's etc etc etc...any or all of these could give you the symptoms you've both been experiencing. So could Lyme disease, which is a tick born virus. Or even heavy metal poisoning from lead or arsenic, or heck even dehydration or sodium deficiency!

  15. why do you say that if you admit you have Celiac disease it would keep you from getting a job there? That seems a bit extreme, unless the company uses gluten in their products, which would be most definitely contributing to your poor job performance, and you're better off NOT working there. At all! Regardless of how well the rest of your family does/did there, if there is gluten floating all over everywhere, it's not the job for you. Find something else, that won't contribute to your ill health.

    Good luck!

  16. ...

    Remember to get a copy of your charts and all labs done, too. That's really important. The doctors often make notes that would surprise you...

    holy geez is that ever true! When I moved from North Carolina back to Ontario, I got a copy of my chart from my GI, and some of the crap that was in there was not even true! She noted in my chart from my first appointment that we had "discussed other options, such as MRI, and CT scan to diagnose Celiac and patient requested endoscopy" Bald faced LIE! For one, the frackin' GI doctor never spoke to me herself AT ALL! For the first 3 appointments in her office, I only ever saw the PA! There was so much more in my chart that made me oh so angry with her, but I didn't even read it until long after I had moved already, so I didn't have opportunity to throw it in her face. She was an arrogant b%$@#, but the only GI in the area that accepted my insurance I was on, so I didn't have much choice. But geez, she sure didn't help me trust doctors of any sort any better, I'll tell you that!

    She also really didn't have a clue about how to tell patients to follow a gluten free diet, so I had the Celiac Association send her an information package. Luckily I already knew what I was doing, but I seriously felt bad for any other Celiac patients she may have had in town!