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kareng

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kareng last won the day on February 11

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About kareng

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    Female
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    Making teenagers eat vegetables
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    Kansas City area

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  1. I have a "mixed" household.  We do all the dishes together in the dishwasher.  I wouldn't want a pan with a whole bottom of a gluteny burned pizza crust going through  but ....I wouldn't really want a burned stuck-on gluten-free one going in either.   :o

     

     

    We use the same plates, glasses & silverware.  Use the same glass or ceramic pans/bowls.  Mostly at my house, the gluten is bread, crackers, cereal & frozen pizza when a kid is home.  We all eat gluten-free noodles.  They have their own baking sheet for the pizza that we hand wash, but I have always done that.  They have thier own toaster. PB, etc


  2. The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve.

     

     

    http://www.cureceliacdisease.org/living-with-celiac/guide/treatment

     

     

    Sorry.  Tornados coming.  Have to get off computer.  Check that website for good medical info


  3. Diagnosed as NCGI. Two months gluten free. Felt better, but still horrible. So discussions on this board and reading academic papers suggested that oats, milk, and corn can also be a problem, so I cut those out; felt better, but still horrible. Then I found this site: http://www.cornallergens.com/list/corn-allergen-list.phpwhich lists all the ingredients which are derived from corn, and I cut all those out. And I felt immediately... good. Weird. I guess I am gluten/corn/dairy/oats intolerant?

     

     

    Maybe it was corn all along?  Maybe the other things you have cut don't bother you?  Maybe you can try adding something back in to your diets - in a few months.


  4. I think it is an interesting article.  Dr. Jabri is a Celiac expert.  In my family, we have a very strong immune system - if it takes everyone else 24 hours to run through a virus or "bug" - if we actually get it, which is rare, we are over it in 12.  So I have always wondered if my great immune system might have something to do with Celiac.


  5. Why did you go gluten free?  If you have Celiac disease, you can not eat gluten again.

     

    Sometimes, when people cut out something that was a major part of their diet, things get out of whack.  Maybe they aren't eating as much fiber, or more fiber.  Maybe they aren't eating as much fat as they used to.  OR have added a lot of processed gluten-free cookies and breads that have an ingredient that bothers them.  That sort of thing.


  6. These otic products do not contain gluten. The FDA wants to control everything that touches our body. This will just make products more expensive, not safer, as the FDA is in league with Big Pharma. Ear pain drops have helped millions of children over the decades.

    I don't think anyone said they contain gluten - but even if they did, they aren't ingested.

    Knowing Colleen, I think she saw this notice and thought it might be helpful for some people.

    Perhaps some over sight on products marketed as medication or supplements would keep people from wasting money on useless or dangerous cures?

    Please note - this isn't a place to discuss conspiracy theories.


  7. Yes and no.  If it gets in your mouth - it needs to be gluten-free.  So obviously, lipstick, needs to be gluten-free.  I look for gluten-free lotions and shampoos because I seem to get them in my mouth.  I don't worry about mascara or the hair dye at the beauty parlor.

     

    The gluten reaction happens in the small intestine.

     

    "...Because gluten cannot be absorbed through the skin, the use of cosmetic and shampoos containing gluten has not been shown to be detrimental to patients with celiac disease or DH. However, we do recommend gluten-free lip products, hand lotions and other products that may end up near the mouth. And, in the case of children, a gluten-free shampoo would be wise."

     

    http://www.cureceliacdisease.org/archives/faq/what-ingredients-should-i-avoid-in-cosmetic-products


  8. To be a bit gross but - If he has gluten in his mouth, and gives you a peck on the cheek - fine.  But if he or you want a "deeper" kiss, whatever is in his mouth is in your mouth.  So, if you would not  drink the beer or eat the Whole wheat bread -then you have a problem.  

     

    As for eating out - maybe don't for a couple of months?  Give your intestines a good chance to heal.  Even if you knew you got gluten, it would have the same effect.


  9. More advice needed..... what does everyone do when they have a wedding, family reunion, etc. to attend? Do you eat before?  I am very active in many areas in my life and if I have to start carting around a cooler so be it but if there are other options or ideas anyone can offer I would greatly appreciate it.

     

     

    Sometimes I eat first.  Sometimes I bring food.  Sometimes I see if there will be something I can eat. sometimes I bring a dish that I can eat and get the first serving or bring a little bit separate for me.    It depends.  A good caterer may be able to give you gluten-free food.  But I would talk to them first.  If you are going to a restaurant, you might want to call about 11 a.m. and talk to a manager & see what you might be able to get.  

     

    You will figure it out.  Its something that will comes with time.  


  10. The few times this has happened, I put the food aside while they are here. Later my hub can eat it or I have given it to a neighbor.

    If people want to bring something & ask first, maybe you could suggest a treat for overlooked older siblings? Something packaged and specific - " a really nice treat for us would be Izze soda". Or " I have a craving for Jelly Bellys, but it has to be that brand to be safe". Or " we really are set with more food than we can eat, maybe .......something you could play with the kids like sidewalk chalk or bubbles?"


  11. People with untreated Celiac disease can have some major vitamin deficiencies. Those deficiencies can cause a lot of issues like muscle cramps, fatigue, etc. As well as the most well know symptoms like bloating, gas, " brain fog", headaches, etc.

    there are non- Celiac people who go gluten-free to help thier athletic performance. Whether it is really the lack of gluten that helps them, who knows? Maybe it is the fact that they are being more careful with what they eat ( and thus eating a nutritionally better diet)?


  12. I am sorry because your doctor is wrong.  Maybe you could get him to run the basic Celiac blood work before you go off it?  

     

    Give him these links from real docotrs- 

     

    http://www.cureceliacdisease.org/archives/faq/should-someone-with-elevated-liver-enzymes-be-screened-for-celiac-disease

     

    "Elevated liver enzymes are one of the extra-intestinal signs of celiac disease, so patients with elevated liver enzymes should be tested for it."

     

    This list has Anxiety as a common symptom:

     

    http://www.cureceliacdisease.org/archives/faq/what-are-some-of-the-symptoms-of-celiac-disease

     

     

    The problem is, that if you aren't eating gluten, the tests are likely to be negative.


  13. If I remember correctly, you do not have Celiac? Or weren't tested? I am getting dizzy jumping from one topic to another.   :o  Maybe keep some of these questions in one place with all the info we need to know?

     

     

    Maybe it's not gluten but something else? You might need to go to a few basic foods and slowly add things back to see if any food is your real issue.


  14. I write it on my stuff just like Nicole says - Celiac disease - NO gluten - wheat, rye, barley, oats.

    I add oats because non- gluten-free oats aren't OK but a camp or hospital might serve granola or oatmeal.

    When I had a outpatient procedure, the recovery nurse asked what I could have and we settled on Sprite and applesauce - nothing else. There may have been things like jello or juice I could have but it was easier to just list the drink and the food they were going to give me and not give them choices to confuse them.


  15. LOL Oh no, did someone do that to you once?  If not, great example.   :lol:

     

    Yeah,  being glutened varies a lot between people, and symptoms can change over time so this may not be the way it always is.

     

    I also have a theory that getting glutened symptoms become more obvious as we start to recover.  When you aren't sick all the time it is easier to notice when you do feel worse.  LOL

     

    Hope you are better by the weekend.

     

     

    No.  But i have heard about stuff like this - Someone saying that Bisquick isn't flour!


  16. It could be that bad. If you don't have a definite OMG moment - "what? You thought my gluten-free pancake mix was too runny so you added a little regular Bisquick?" It can be hard to know if it's really gluten you are reacting to. It could be a stomach virus, food poisioning ( not what yours sounds like), a reaction to another food, a combo of different things that you are unlucky enough to have hit at once ( virus, pollen allergies and hormone swing). Just some examples.

    Welcome to the club. We need to work on a secret handshake or something.