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About sannep77

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  1. uummm yes I would stay away from eel! yuck. I actually only like the vegetarian sushi. preferably avocado roll..yum:)
  2. haha..thankyou! Yeah I'm prolly gonna call and ask to speak to the manager! Go get you some sushi!
  3. One piece of advice would be to not be scared to eat in restaurants! More and more people are hearing about the disease and are making adjustments in there restaurant for us people with special diets...and don't be afraid to ask. I went into TGIFridays one night and wanted to eat with my friends....they dont have a gluten free menu..but they cleaned the grill and made me a steak without seasonings and fresh broccoli without seasonings! I was so excited to get to eat with my friends. So don't let your disease hold you back...I did for the first 6 months of it...I was scared to eat any where...because I didn't trust people! Thats no way to live:) Have fun! But ask lots of questions and be careful. My friends like the special treatment our table gets now that I have to ask so many questions!lol
  4. Thankyou...did you see it in like a regular grocery store? I kind of want to buy some so I can try making my own! Im just gonna try the restaurant and hope it doesn't make me sick...cuz I will be on a date.lol
  5. Ok thanks! Yeah I am very sensitive to alot of foods so I should know!
  6. Thankyou so much! Yeah before I was diagnosed I would eat avocado rolls....which consists of fresh avocado with rice and soy paper instead of seaweed because I hate seaweed! And i actually craved it alot because it was one of the few things that didn't make me sick. Should I be concerned with soy paper?
  7. I am trying to find a good sushi restaurant that I can eat at safely. I have read that the sushi axiom is gluten free friendly...but as usual I got a "What the heck is gluten?" response when I asked the waiter.haha! So has anyone ever eaten there...or know of a place that has gluten free sushi in fort worth, texas?? Thanks!
  8. Oh and a colonscopy does nothing to diagnose someone with celiac disease. You have to have an endoscopy that takes tissue samples from your small intestine. That is how the diagnosis is confirmed after the blood test.
  9. It makes me so sad to hear that your doctor and so many others say these things. I wasn't overweight but I was not super skinny either when I was diagnosed. I had to ask my doctor for the test. Everyone who has celiac disease does not have the same symptoms. Doctors are just not educated in Celiac and it makes me so mad!!! Anyways I guess you could do something called a gluten challenge. Peter H.R. Green, a medical doctor wrote a book called "Celiac disease: a hidden epidemic" this quote is taken directly out of this book. I suggest reading it, it was so helpful to me. " Results of all tests will return normal on a gluten-free diet. Therefore a gluten free challenge- which consists of eating gluten- filled foods for anywhere from one to three months- is often needed in order to confirm a diagnosis of celiac disease. A gluten challenge involves a biopsy, not blood tests, after a period of eating gluten. There are three major reasons to conduct a gluten challenge. 1) Some people go on a gluten-free diet prior to diagnosis. This is one of the biggest hurdles to accurately assessing a patient with celiac disease. Some people are advised by a doctor, dietitian, or friend to do it on a trial basis to see if their symptoms will get better. Other people may live in a household in which family members are gluten-free and thus do not have much gluten in their regular diet. Whatever the reason, people much be ingesting gluten for the tests to be significant. If you have stopped eating gluten before having blood work and or an endoscopy, your doctor should be informed and you should have a gluten challenge before being tested." ( Dr. Peter Green) Hope this helps. If you are had a GIG gluten intolerance group, they probably have a website with a list of doctors that specialize in celiac disease.
  10. Wow gluten is found in so many things, including barley and rye. Your doctor needs to stop talking about stuff he doesn't know about. Its also found in a number of mixed spices, and processed foods. Cross contamination is a big deal to. Genetic testing does not diagnose celiac disease. BUT it will show if you have the genes for it, and if you do, then you are at risk of developing the disease or you might already have it. If you do not have the genes for it, then you do not and will not have celiac disease. check out this website, it is wonderful!!! http://www.celiacdisease.net/ they have so much information for newly diagnosed and for people with a lot of questions. They also sent me a gluten free care package, however you can only get it if you have had a positive biopsy. The reason I strongly recommend being diagnosed is because celiac is way more serious then a gluten intolerance. It is a serious multi-disorder disease and needs monitoring by doctors who know what they are doing. Unfortunatly those doctors are hard to find in america. I had to ask my doctor to test me and even then, she was like " usually celiac patients have more diarreah then constipation" that statement is wrong, in fact studies have shown that more than half of people diagnosed with it have no diarreah at all. So basically she knew enough to diagnose me, but I won't be going back to her. That whole experience angers me, we need doctors who know there stuff, especially with a disease that is so common. Im not sure where you live, but there should be a GLUTEN INTOLERANCE GROUP (GIG) around where you live. Just type it into google, and hopefully you can find one. On the north texas gig webpage they have a list of doctors who specialize in celiac.
  11. I would definitely find another doctor to get a second opinion. It would definitely be hard to diagnose you at this point, since you are gluten free. You would have to do a gluten challenge. Your doctors assessment of Celiac Disease is very outdated. I am 5'8 and at a normal weight, and I was diagnosed with it. It has nothing to do with being short, unless it affected you personally that way. Some people don't even develop full blown celiac until later in life. It will benefit you greatly to know whether you have celiac or a gluten intolerance, because a intolerance MIGHT go away. But celiac disease will never go away, gluten will always be toxic to your body. And if you reintroduced it thinking it was just an intolerance, you could experience no symptoms: Silent celiac, but the damage is still being done to your small intestine. So doing the gluten challenge and finding out for sure if you have it could prevent future disorders!
  12. haha...ok wow...I was like I don't remember typing LAME ADVERTISEMENT,that would be an awful name.lol Why do they do that? If you want me to email you the name of the lab and the website, I can! Just give me your email address.
  13. You didn't feel any better? That stinks! My stomach actually feels calm right now, and is not hurting. I have only been doing it 3 days. My nutritionists told me to get a candida cleanse, is that something you are familiar with?
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