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frieze

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  1. Upvote
    knitty kitty
    frieze got a reaction from knitty kitty in Need some help   
    Having psoriatic arthritis increases the likely hood of celiac.   Reinforces the idea that one auto immune disease dx should  lead to checking for other auto immune diseases.
  2. Upvote
    frieze
    frieze reacted to Wheatwacked in Do my symptoms and their trajectory appear to point to celiac?   
    Yes.  All the prep for the trip and the excitement uses up nutrients. Then a batch of microbes new to you and voila.
    Nutrients Depleted When You Are Stressed
     
  3. Upvote
    frieze
    frieze reacted to Wheatwacked in Do my symptoms and their trajectory appear to point to celiac?   
    Waiting for test results can be excruciating.
    Even anxiety has nutritional roots.  Low D and low Lithium can cause it.
    Many trace their symptoms to an infection as the trigger for acute Celiac.  The bacteria in the UK i...
  4. Upvote
    frieze
    frieze reacted to Barcino in How long does it take to get results back, typically?   
    Thank you. The first nurse practitioner is fabulous and she runs my thyroid panels and does all this extensive bloodwork - thats the first person I saw. She thought it was odd but just suggested retesting in 3 months. The pediatrician...
  5. Upvote
    frieze
    frieze reacted to RMJ in Lost in test results   
    The Anti Gliadin Ab IgA is so high that it is above the range where the test gives a specific value for the answer. It is greater than (>) 150.  It could be 151, it could be 1500. It is not moderately positive, it is a very high po...
  6. Upvote
    frieze
    frieze reacted to Olfy75 in Confusing blood tests results   
    Hi Deb, I am glad you are better, although not completely “cured”. 
    I think the most frustrating part is knowing that “it could have been avoided”. 
    Best of luck!
     
  7. Upvote
    frieze
    frieze reacted to Wheatwacked in Ready for answers for my son   
    Mainstream medicine believes the only treatment for gallbladder is to remove it.  But: 
    Recommended Dietary Allowance (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%)...
  8. Upvote
    frieze
    frieze reacted to Scott Adams in Does my 4yr old need an endoscopy or can we just go gluten free   
    If she is not having any issues staying on her gluten-free diet I see zero reason to go through with a gluten challenge, but of course this is your choice. On the downside of getting an official diagnosis (and for the record none of my...
  9. Like
    knitty kitty
    frieze got a reaction from knitty kitty in Clueless where to start   
    Research Abram Hoffer.  Good luck
  10. Like
    Marianne82
    frieze got a reaction from Marianne82 in Clueless where to start   
    Research Abram Hoffer.  Good luck
  11. Upvote
    frieze
    frieze reacted to trents in Toddler Testing   
    I still would not rule out celiac disease. Young children often just do not exhibit the same physiological response to gluten even though they do have celiac disease. I certainly would trial a gluten free diet at this point. If his symptoms...
  12. Like
    Scott Adams
    frieze got a reaction from Scott Adams in Negative iga doctor said its not gluten?   
    What the heck is going on?  IgE has nothing to do with celiac. Dump the doc in the dust bin, and find one that has brain.
  13. Like
    cnazrael89
    frieze got a reaction from cnazrael89 in Negative iga doctor said its not gluten?   
    What the heck is going on?  IgE has nothing to do with celiac. Dump the doc in the dust bin, and find one that has brain.
  14. Like
    frieze
    frieze reacted to Scott Adams in I’m not sure what is going on   
    It seems odd to me that your "specialist" it trying to talk you out of what seems to be 1) classic celiac symptoms; 2) you carry a gene that give you a 5% chance of having celiac disease; 3) you had villous atrophy consistent with celiac...
  15. Like
    frieze
    frieze reacted to trents in Low Ferritin   
    "When I get out of bed in the morning I’m cripple for the first few steps and then it starts to ease unless I put a lot of weight on my toes (ie. If I squat). "
     
    This sounds like plantar fasciitis to me.
  16. Like
    frieze
    frieze reacted to cristiana in Test results   
    Sorry, Frieze, typo...  Just checking everyone is paying attention!
    Trents... in answer to your question, I have no idea!🤔
    Do you think I should just change my celiac.com profile/signature to "Citizen of the World" be...
  17. Like
    frieze
    frieze reacted to trents in Question about test results   
    I hear you. I think we all hate grey areas. Unfortunately, life is full of them.
  18. Like
    frieze
    frieze reacted to KittenPA in Endoscopy Tomorrow   
    Well, my chart just updated even though it’s Saturday. 
     
    “Duodenal mucosa with markedly increased intraepithelial lymphocytes and villous blunting, consistent with celiac disease.”
    So it looks like I’m sticking ...
  19. Like
    frieze
    frieze reacted to knitty kitty in Getting diagnosis   
    Sirenna,
    Yes, they can all be related to Celiac Disease.  
     
    Reflux oesophagitis in adult coeliac disease: beneficial effect of a gluten free diet
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1773586/ ...
  20. Like
    t1diabeticuk
    frieze got a reaction from t1diabeticuk in How likely is it that my blood test was a false negative?   
    Be VERY careful to track you blood sugars, they may fall, sanding you done the rabbit hole of  hypo
  21. Like
    frieze
    frieze reacted to knitty kitty in Was I misdiagnosed?   
    Welcome back, @celiacker,
    There are more than just two genetic markers for Celiac Disease.  The most common are HLA DQ 2 and HLA DQ 8.  
    This article examines another genetic marker....
    "Evidence that HLA-DQ9 c...
  22. Like
    frieze
    frieze reacted to Wheatwacked in Dr hasn’t called me back, but what do you think?   
    Not to be confrontational, but you've also always eaten gluten. I could never breath through my nose, always snored. According to doctors it is just my norm. It had an advantage though, noxious odors that had others scringing did not...
  23. Like
    frieze
    frieze reacted to trents in Quest Diagnostics HLA-typing... confusing to read   
    I would agree with your conclusion. I think we don't yet know all there is to know about the genetics involved in celiac disease.
  24. Like
    frieze
    frieze reacted to knitty kitty in Need help with son's blood test results   
    No, get the itchy rash biopsied.  It may be Dermatitis Herpetiformis, a skin rash the occurs with Celiac Disease.
    Sores around the mouth can indicate deficiencies in several B vitamins.  Get his B vitamins and his Vitamin D l...
  25. Like
    frieze
    frieze reacted to RMJ in Combination of results and issues   
    You could go gluten free for 6 to 12months and have the deamidated gliadin IgG retested.  If it was lower or normal it would certainly indicate that your body has a problem with gluten.  Also you could see if you feel better when gluten f...
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