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lizzers

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  1. lizzers

    Enough! I Just Need It All To Stop!

    I was in the same position as you - but was feeling bad for more like 15 years, in the end I went and got some antidepressants/ antianxiety meds because being sick was really getting me down. You get to a point where you think that nothing will ever make you feel good again, and to where you are cutting back all of your food to where you eat nothing and still have gut - aches... But with this I'd say - just keep trying and use whatever crutch in the interim to make you feel mentally better - because it might be a while for a diagnosis..
  2. lizzers

    Leg Pain

    I have this as well - i think it comes from a combination of too many carbohydrates (sugar/ etc) and a lower b12 even though your b12 came back "normal" you still may need more and/or an injection every once in a while. I've been told by my doc that I *don't need* b12, but when I stop for more than 6 weeks, I have more inflammation etc. The theory is when I'm gluten free for two years or so, I shouldn't need it by injection any more.. but until then I still get it. The tingling can be diabetic neuropathy, b12 related, magnesium, zinc and/or related to high blood pressure, high levels of plaque/ cholesterol, inflammation generally or heavy metal deposits. So it could be a few things - if you go gluten free for 6 months and aren't noticing a difference, I'd get another opinion... but maybe in the meantime just focus on eating meat/veg/fruit diet and keep all the refined carbs until you know you are feeling better?
  3. lizzers

    Please Help Me With Menstrual And Ab Pain!

    Could be a potassium deficiency too - like a charlie horse - in the uterus? Might also be a sign of something else - maybe you should follow-up with a gyne to make sure you don't have a cyst or something too....?
  4. lizzers

    Not Doing Well Emotionally

    Sandsurfgirl - First of all - big hugs from over here - and I think I can say that I know what you are going through. I have been battling with this - getting diagnosed, getting deglutened, etc - for probably 15 years when I look back? Mood swings, etc. I finally got to the point a while back and got some anti-anxiety/ depressants and decided that, you know, if I need to take these for the rest of my life because I have an emotional problem - or because of celiac or whatever, then that is fine. I decided I needed to feel better right now, I had had it with feeling off. Funny thing was, that about two weeks after that decision, and starting my meds, my diagnosis came in for celiac. So, I would say, if you are down that much - maybe do talk to someone. For me, meds helped like you wouldn't believe.... and I also take vitamin D/ B/ magnesium and I self-administer B12. I figure maybe at one point in the future I might be able to go off the mood drugs, but for now, they are my crutch. And they've gotten me to the point of being able to think ahead and plan. That is an amazing amazing step to be taking. Whatever path you take - know you are on the right one and that whatever you do will lead to better health. And it will be so.. :-)
  5. There are always a lot of other vitamin deficiencies that go along with celiac - vitamin d, b vitamins, magnesium (lost in stress events), zinc, etc. If you drink a lot of water, and you feel it isn't going through your system, it could be you have a b6 deficiency too. Bloating is a fun one though, isn't it? My mom and I both have celiac - she can gain 10lbs overnight literally - and then by morning it is gone. Me, I have a wonderful ring collection, but when I am 'bloating' my fingers can balloon up two or three ring sizes. I think it has been happening less often now, which is nice. Another suggestion, kinda gross maybe, is to have a look at taking a de-bugging/worming mixture too - sometimes us folks with celiacs also have litte critters in our guts eating up all the delicious food that we aren't gaining the benefit from.... so getting rid of those little guys might help w/ the bloating/ digestion too.
  6. The only thing that worked for me was an elimination diet and writing down meticulously what I ate and how I felt. I wasn't super strict on this, but I found out that after I ate eggs, I would get really bad ezcema, and I would get tired - so I was talking with my mom, and she says "Oh, you were allergic to eggs as a kid - you didn't really eat them until you were five or six". So, I went off of them. Then I found out that I had horrid gut aches when I drank regular milk - so I stopped that. I would first go with the foods that you think you should eat - or start with staples that you would rely on say if you were sick, or had a cold or something. Eat that for as long as you can, then start adding things in. It is a long process, but very very productive. Allergy tests, I think, are bunk. I had allergy tests done - none picked up on the eggs, none picked up on my lactose issue (of course). But with gluten, eggs and milk out of my diet, I feel almost normal. Well, as normal as I can feel :-)
  7. My family has a bunch of weird diseases. My dad has the opposite problem - haemochromotosis - too much iron in the blood. When he gets his bloodwork done, he gets ferritin, total iron binding capacity (TIBC) and % saturation (I'm not sure if % saturation is a number worked out between ferritin and the TIBC, or if it is a separate test). The stupid thing is that you could have a low circulating iron count, and still have a high stored iron count, in which case you wouldn't want to be taking any iron at all as it could do more damage. RBC count really has nothing to do with iron. Hemoglobin is a good one to get tested too - this is what they use if you would be donating blood to make sure you were fit for donation. So, yup, I concur with all the rest - get a full iron panel - B12/folate, etc etc. (stick Vit D in there too). Then you can make a better estimation...
  8. From what I understand, gluten intolerance means that your body doesn't have the enzymes or whatnot for digesting - sort of like lactose intolerance- and that it isn't good for you to eat those foods. Celiac, on the other hand - is that when they can test for the specific igA in your blood to determine levels? My situation is this - I'm overweight, have been for a while, probably PCOS. I grew up in a household where we ate no wheat, so a lot of my symptoms disappeared when I was 5, when my dad went on a wheat free diet. Before that I was thin, too thin, and had major problems with alternating diahrea etc. So, I go to one doctor - I had tests for the antibodies done out of the country. Doctor one did a sigmoidscopy and a quick look in my esophagus (*ahem* not the right test *ahem*) and said I was fat and needed to lose weight. So, I was depressed for a bout three years, eating gluten, etc. Recently, I had a redo of the antibody test, from that they assessed that I was 90% likely to have celiac based on the bloodwork. The second opinion I got said that my intestine was sshowing some signs of damage, but not in line with a 34 year old (but she didn't know of my wheat free time, etc)... so she said, with the blood work/ my chronically low B12 and vitamin D levels, and the minimum amount of damage, she was happy to say I had celiac. I think i was very lucky. So, it would be up to you I think - either way, the gluten intolerance or celiac is life-long. For me i appreciated the diagnosis because now I *must* stay on gluten free diet - no more of this back and forth and wondering.
  9. lizzers

    Looking For Good Frozen Pizza

    a gluten-free pizza crust ( a thin crust) is SO easy to make though - seriously - 1/2 tsp instant dry yeast granules About 1 cup warm water (105 - 115F) 1 tsp sugar 2/3 cup rice flour 1/3 cup potato starch flour 1 tbsp potato flour 1 1/2 tsp melted shortening 1 tsp salt In a mixing bowl, dissolve the yeast in 1/2 cup of the warm water with sugar added. let set until yeast bubbles, and the quantity doubles. Add the rest of the ingredients, using enough of the remaining water to get a dough the consistency of cake frosting that will spread not run, when all ingredients are thoroughly beaten. Grease a pan - could be a cookie sheet or a high-edged baking pan. Pour batter onto pan and spread with a spatula. Add sauce and toppings, bake in a preheated 425F oven for 25 to 30 minutes. And done! And - it stands up - once it is cooked and the right consistency, you can pack it up, freeze it, etc and it reheats like a dream. and it is pretty cheap too - this will make about 1/2 a large cookie sheet of pizza.
  10. lizzers

    Harrassment At Work?

    What you need to do is pick out the person who seems to be most into bugging you about this, and, in front of a lot of people, stand up to him. Make him uncomfortable. And then let it go and pretend that everything is okay. But it will continue unless you stand up for yourself; if you go to HR and there is an "edict" about your eating habits, then they will still make fun of you, but just they will be a bit more sneaky about you. You have bullies in your workplace. The best way to deal with a bully is to not take their b.s. But I would say too, as someone with celiac, that having to deal with my own health issues has been difficult and I've also been the target of bullies at work - probably from my intermittent responses to things, my mood swings, etc. So you might be picking up on something else within your work place too - but honestly, just throw it back at them. I like the suggestion about the epi-pen. Or heck, say something like "actually, I don't have celiac, but I can't eat those things because I have <insert horrid disease> here, but I didn't want everyone to know about it".
  11. lizzers

    Hair Loss And Dandruff

    I would recommend to use the gentlest soap possible on your hair - it might not be shampoo, maybe it is handsoap made w/ goat's milk and that's it -but thte goal is to clean the scalp off.. if you use a grater, add the soap to a cheese cloth & then rub that on your scalp it should help a bit. i ahve horrid large flakes on my scalp - the dermatitis they say - and supposedly it gets better the more gluten free you are. i've found that a medicated shampoo with salicylic acid works best for me - but my scalp isnt sensitive at all. also you could try olive oil to help loosen the flakes as well - then use soap to remove the oil.
  12. lizzers

    Could My Dog Make Me Sick

    Sounds almost more to me like you might have other hidden areas of gluten, or you may be sensitive to another food as well (milk and lactose are big ones, eggs, etc). Maybe start up a food diary w/ symptoms to see if patterns develop? RE Dogs - you should get all the wheat and corn out of their diet anyhow - that stuff will tear up their insides...
  13. Something to think about with blue cheese - here: http://www.celiac.ca/bluecheese.php I've just always stayed away from blue cheese - its easier that way. What other things did you have to eat for dinner? Anything else that was processed? Any sauces, etc?
  14. lizzers

    Stress Dreams About Eating Gluten Foods

    I have high levels of anxiety when I'm not on a gluten-free diet, but find it subsides with a few things - making sure my diet is truly free from gluten (I have to be really strict, no bad toothpastes, etc); I have to make sure my B12 is up at the right levels (I get a shot every 3 weeks or so) and I have to make sure I've got my Vitamin D too - for some reason Vit D really affects my ability to handle stress... Plus it could be that your anxiety is more related to celiac generally - maybe you might need to go on an anti-anxiety med or antidepressent for a while until your body fully recovers from celiac?
  15. I would do some testing/ asking - ask your pharmacist (or a couple of them), go on and check on line. But also go to your doctor with your other symptoms... it could be something else entirely.
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