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juppygirl

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About juppygirl

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    Lincolnshire UK

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    elliejupp
  1. Make sure you are definitely as gluten free as possible - see other threads about equipment and other changes to make to achieve this.

    I have had lots of neuro problems and continued major lack of energy and can still have bad days or weeks like this last week just gone (which was bad) and feel very demoralised.

    I do have some glimpses of good days which helps keep me going. I had to give up my diploma course, I work as a community Nurse with a large caseload and a lot of information to process and struggle constantly, my boss isn't on my back though so I must be doing something right!!!! :rolleyes:

    I suffer with depression which is an ongoing battle even when I am gluten free, have had (and sometimes still have) problems with paranoia, anxiety and obsessional behaviour and thoughts and am very negative. I will not let this beat me and there is some glimmers of hope that the longer I am Gluten free It will improve.....

    Keep your chin up!! :P

  2. I had something (not sure what) in the last 24 hours, woke up with my rash, dicky tummy. Went to work feeling like hell then got lost and confused going to see a patient!!!! Had to come home as felt horrendous, couldnt concentrate felt steamrollered and went to bed!! :o So you are not on your own. It's one year since diagnosis. Havent been glutened for a couple of months and this happens!! Big reminder not to get complacent!

  3. I have stress and crashing fatigue constantly at the moment - migraine etc :(

    I am fed up and so is my husband. I know my diet isnt perfect - its gluten-free but not healthy at all. I've been working very hard and been very stressed, if I'd had gluten it would be unbearable and uncontrollable. :unsure:

    I cant wait until my new kitchen is done after we gut it next week and then I can have a proper break!!! The gluten area in the new kitchen for hubby will be strictly controlled for my peace of mind too yippee!!! :rolleyes:

  4. OMG - I feel lucky to cope with some of the mild stuff my family throw at me in comparison!! :rolleyes:

    I am impressed that your husband is so well balanced and can help you. Mine is brilliant and copes somehow with me.

    Keep your chin up and dont let her rule the roost - its your life at the end of the day!

    We spend an awful amount on food since diagnosis last sumer but thats the price i pay!

  5. I had skin tests 8 years ago that were 'inconclusive' as I wasnt having stuff I had problems with - they said it was not a problem but I insisted that I had problems with wheat and they said they would give me some stuff on prescription to help me -but later must have decided to put Coeliac on my notes in order to give me the scripts and never told me. I then developed the DH rash last summer and have very sensitive celiac disease as well :(

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