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cap6 last won the day on July 1 2019

cap6 had the most liked content!


About cap6

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    Diagnosed 3/3/2010. Well & loving life with partner of 20 years and 4 furkids.
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  1. Zydeco Kitchen in downtown Bend, Oregon is awesome and yes, Hoos, one of the owners is celiac. The Athletic Club restaurant in Bend is also owned by Zydeco and is gluten free. And my favorite "fast food" place is in Bend, Orgeon called Spork. Almost everything there is g.f. Tell them you are celiac and they are over the top careful. Don't want to confess how many times we have eaten there and I have never had an issue. Also most of their ingredients are organic/local.

  2. We recently moved and various family members are due to visit this summer.  The first group was just   here for over a week, my adopted daughter and her children (9, 15, 17, 18).  We provided all the food and the only problem was there was the expense of all the g.f. bread they consumed!  I did buy separate mayo & mustard for them as we had regular hot dog buns one evening and no one had a problem with keeping the buns outside by the campfire ring. (G.F. hot dog buns for teenage boys with hollow legs are waaaay to expensive)     Next morning the kids were making tuna sandwiches for our picnic lunch when the oldest remembered that they couldn't use the "group" mayo for my tuna.  All four kids came to a halt as they pondered over the dilemma.  What an awesome group of kids.  They dashed for a fresh can of tuna, my special mayo and fresh fork for my fixings!   They wrote my name on the baggie so there would be no mistakes.  Even the 9 yr old "got" it.    I love my family!!!  Thanks for letting me brag a bit.

  3. Although some grains (rice, quinoa etc) are allowed on the celiac diet I, personally, would avoid them and all processed foods, as much as possible, for a few months.  Load up on good cooked veggies, meats (baked chicken, fish....) and fruits.  Even skip the nuts.  Newly diagnosed, your gut is still raw and needs time to heal.  Grains can be hard to digest and can slow down the healing process.  Processed foods (and gluten free breads etc are no exception) are loaded with ingredients that, while safe for celiacs, are not good for us.   Skip corn when you can as it can be really hard to digest.  A handful of popcorn sent me into glutened like symptoms for a week.  Very hard to digest.  Dairy products can cause gluten-type symptons as a lot of celiacs are also lactose intolerant, which in time may pass.   I know it seems over the top but it will help you heal faster.  Then, slowly, slowly reintroduce other foods if you want.   

    Also.... not all gluten free processed foods are ok for your particular self. They might be fine for someone else, but not you.  Case in point.....  We have a piece of Udi's g.f. bread now and then with no gut issues.  We found a new brand in the store and tried it.  omg!  We were both in tummy pain.  I reread the ingredients and this certain brand had bamboo fiber in it.  I checked it out and although bamboo fiber is certainly gluten free it is processed and used as a thickener, not something that digests.  The goats ate that loaf of bread! 

  4. Oats...As said some celiacs can't handle oats, especially in the beginning when your gut is still healing.  If you do eat them make sure that they are certified gluten free, which means that they have been grown, transported and processed separate from other grains.  Bob's Red Mill is one brand to try.  While they have regular gluten products all of their gluten free food products are processed in a separate facility.  Have a small amount and if it doesn't set well try them again in a month or so.  Our body changes as we heal.  As for cost....well,   you are sort of stuck there as any of the gluten free ones are a little pricey.   


    Bagels.....I used to live on those things too (maybe not as passionately as you!) but find that I no longer miss them at all.  That said, you may just have to keep trying different brands until you find one that suits.  Try a natural food store as sometimes they have different brnds.  I found Franz bread that is wonderful (my partner loves loves it) and noticed they also have bagels. 

  5. I have come across that same "how gluten free are you" question myself."  Actually it was a good thing as it alerted me to the fact that a restaurant may not be quite as careful if they thought I was a "fad" gluten free diner.  Now I always just state that I am an extremely sensitive celiac and appreciate the extra care they would give in preventing cross contamination.  I don't like calling attention to myself either so I just try to make my statement all part of my order so to speak.  I believe that as celiacs we must speak up.  We often dine out with friends who are gluten free as they are both gluten intolerant and so can handle a little cross contamination.  I just smile and state my case! 

  6. I am so sorry.  Too many are faced with this issue of having to seek help.  As a former social services employee I say please, apply for food stamps (Snap, calfresh.....depending on where you live).  Depending on your income (unemployment benefits etc) and number in your family you could qualify for some assistance.   Many states now allow you to apply on line and you need only to go into the social services office for an interview.    You will need to provide proof of your income and Id.   When you meet with your worker do ask about additional resources.  Depending of the size of the town where you live there are often more than one or two choices of "food banks". 


    As for food banks...too many of them rely on whatever community donations they can find and most of that comes from the "day old" bakery items.   You  could try speaking to the manager of your local pantry and they may be able to give you some resources or even, as it is a major health issue, call you or set aside any gluten free items.  Also ask if they every receive fresh veggies.  Those are so gluten free!   Your social worker should have a list of all available food banks for your town.  Often churches are a good choice and do speak with the person in charge at the church as they often get donations from their members and you would have a better chance of finding gluten free items.  They can "put out the word" to their members that they have a person in need for health reasons.


    If you live in a fair sized town google and see if there is a CSA (Community Supported Agriculture) nearby.  This is a, usually, organic community supported farm(s) that you buy into for regular weekly deliveries.  Often they have a surplus of fresh organic veggies that they donate to pantries, senior centers etc.  If would be worth your time to call them and find out if they have anything or any place that they donate.  Also, even if you are not in the age group, contact your local senior center and see if they have access to fresh veggies etc. 


    Hang in there.  There are some options and help.  This is not a forever situation but I know that it feels like it right now!