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rmmadden

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About rmmadden

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    rmmadden

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    Playing Baseball, Softball, Golf, Walking, Bicycle Riding, Fishing, Camping, Reading and Travel.
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    Cleveland, Ohio

  1. Posted · Report to Admin

    Not all people react the same......I generally show symptoms the following day and then they last for 7-10 days. It depends on the severity of Celiac and what you've eaten.

    Keeping a food diary is a good idea. I did it for about 2-years and it helped isolate things that didn't sit well with my system. Specifically, I was able to figure out that Soy was keeping me from progressing and I have felt a lot better since I eliminated it.

    Stay the course. Things might not turn-around over-night but, they will get better. Best of luck!

    Cleveland Bob B)

  2. Posted · Report to Admin

    I've found that Pork is harder to digest in general so I pretty much have eliminated it from my diet. I figure that my system has enough problems without making it work harder in digestion. Anyone else???

    But, I do admit, I love the smell of bacon cooking in the morning and crave a good BLT (Or, as Billy Crystal said in the "Princess Bride," Nothing beats a good MLT - Mutton, Lettuce & Tomato Sandwich where the Mutton is nice and lean......Sorry, I digress sometimes).

    Cleveland Bob B)

  3. Posted · Report to Admin

    I've always seen a delay in symptoms as I think the food gets pushed thru your body everytime you eat something. I might even see a good-day where I feel fine followed-up by the bloating / pains / brain-fog / big-D. I also agree that the inflamation lingers even though you are eating gluten-free. It just takes a while for your body to process the offending foods thru your systems and restore itself.

    Best of Luck!

    Cleveland Bob B)

  6. Posted · Report to Admin

    I am curious to know if anyone has done the 23andMe genetic testing kit?

    They sell a kit for $399 which is based on your saliva and can tell you about various diseases and conditions in your genetic makeup.

    With so many associated conditions / problems that Celiac people have I just wondered if anyone did this and/or learned anything worthwhile?

    Bueller? Bueller? Anyone?

    Cleveland Bob B)

  8. Posted · Report to Admin

    This is copied from another Cruise topic I replied-on recently............

    I went on an Alaskan Cruise aboard Norweigan......They sent me a list of gluten-free foods prior to departure and let me pick what items I wanted to have aboard (English Muffins / Pasta / Crackers, etc.). Then, I had a meeting the first night with the Maitre'd who reviewed the menu with me and discussed what items the Chefs could present as gluten-free. They even made me a gluten-free, flourless Chocolate dessert (Which was amazingly rich!).

    Each night at dinner I was able to review the menu for the following night and pre-order my meal (Same went for B-fast).

    Needless to say it was most reassuring that these people took me seriously and were watching-out for my best interests. I made a point of writing a thank-you note and tipping the Maitre'd for his consideration and, I definitely recommend Norweigan to anyone thinking about a cruise.

    Cleveland Bob B)

  11. Posted · Report to Admin

    I went on an Alaskan Cruise aboard Norweigan......They sent me a list of gluten-free foods prior to departure and let me pick what items I wanted to have aboard (English Muffins / Pasta / Crackers, etc.). Then, I had a meeting the first night with the Maitre'd who reviewed the menu with me and discussed what items the Chefs could present as gluten-free. They even made me a gluten-free, flourless Chocolate dessert (Which was amazingly rich!).

    Each night at dinner I was able to review the menu for the following night and pre-order my meal (Same went for B-fast).

    Needless to say it was most reassuring that these people took me seriously and were watching-out for my best interests. I made a point of writing a thank-you note and tipping the Maitre'd for his consideration and, I definitely recommend Norweigan to anyone thinking about a cruise.

    Cleveland Bob B)

  14. Posted · Report to Admin

    I don't live in Pittsburgh but, I travel to the area every 2-weeks to check on the progress of the Benedum Hall project on the Univ. of Pitt campus. I am wondering what celiac friendly restaurants (if any) might be in the area? A little local insight would be most welcome. As it stands now I have been traveling with a home-packed lunch and I eat while on-the-road. If a place exists close by Benedum I would welcome the chance to sit down and have lunch with you to share some celiac war-stories.

    Cleveland Bob B)

  15. Posted · Report to Admin

    Depending on how long you went un-diagnosed can / will determine how long before you're feeling consistently better. The damage done in the intestine doesn't heal itself overnight. For me It was the better part of 3-1/2 years before I started feeling "normal" again (which, of course, could be argued by anyone who knows me ;-).

    I still have bad days after accidentally getting glutened. Someone told me early-on that you can't measure the diet day-by-day but, you must look long-term (6-month evaluations) to see any progress. The key is positive thinking, strict diet adherence and, most of all, patience.

    Hang in there!

    Cleveland Bob B)

  16. Posted · Report to Admin

    Some of you probably already know but for those who don't.....Hershey Park has several foods that are gluten-free. I visited the guest services office and was given a print-out of all the ingredients for foods made in the minetown area of the park (It was 5-pages long). This helped with my planning for the day. They pointed me toward 3-4 places in the park where I could get a gluten-free roll (So I had a 100% Beef Burger). I also found a few places via the ingredients listing such as Boarwalk Fries (which only sells french fries in their stand) and, a chicken wing stand that does not use breading or cook anything else in the oil.

    It was like being a "normal" person where I could enjoy the day without worrying about what am I going to eat, etc.

    Cleveland Bob B)

  17. Posted · Report to Admin

    I don't really suffer from neuro symptoms but, I did eliminate soy from my diet as I tested-out severly sensitive to soy. I don't eat chocolate but I do chew wrigley's spearmint and/or peppermint gum when I'm not feeling the greatest and It ususally helps me. In general I try to avoid all soy but I have been known to eat things that have soy lecthin in it. I feel as if I can eliminate soy for the most part and limit the soy emulsifier items to few and far between then I generally (knock-on-wood) feel okay. I certainly feel a lot better than before I cut soy out of my diet that's for sure!

    Best of Luck,

    Cleveland Bob B)

  19. Posted · Report to Admin

    I recall seeing 2 health food stores on Maui (The first being on the main street as your making your way out of the airport toward the other side of the island and the other in Lahaina). I believe the two stores were of the same chain although the name escapes me. Also, there is a grocery store in Kaanapali that I shopped at as we also stayed in a condo and cooked our own meals (saves a ton of money!). Finally, you'll find several road-side fruit and veg stands around the island which is great for grabbing a quick snack.

    Enjoy your trip!

    Cleveland Bob B)

  20. Posted · Report to Admin

    Lins,

    I'll welcome you in advance to my hometown. Where will you be staying? Depending upon what side of town you will be I can recommend some options for you. We have all the usual restaurant chains and some of them around here offer gluten-free menu's (PF Changs on the East Side / Carrabba's on the West Side). Mostly I eat plain burgers, plain steaks or salads.

    The key is talking to the chef. If you can get the wait staff to pass along your needs and speak directly to chef you'll have no concerns.

    Cleveland Bob B)

  23. Posted · Report to Admin

    I don't remember the stores name but on Maui near the airport is a health food store that was pretty big in size. It's on the main street heading out away from the airport. I recall seeing the same store name in Lahaina although that one was smaller in size. I didn't have Celiac when I was there 5-years ago so I can't say for certain that you'll find what you're looking for but, generally health food stores have a decent selection of gluten-free foods.

    Aloha,

    Cleveland Bob B)

  25. Posted · Report to Admin

    Hey all,

    I just got back from a week long Alaskan Cruise aboard the Norweigan Pearl and wanted to share the positive experience.

    A few weeks before my trip I was contacted by a rep from Norweigan who sent me a list of gluten free foods that I could pick from and they would make sure to have aboard. Once aboard I was contacted by the Maitre'D from the main dining room (first day aboard) who met with me and reviewed the gluten-free selections on each nights menu. He reassured me that all meals would be cooked in seperate pots/pans and that my morning bagels would be made seperate from the regular toasters. If nothing was easily adapted into a gluten-free meal then I could order gluten-free pasta, plain chicken, steak etc. I also was given special gluten-free desserts that were not on the regular menu if nothing else was available. The only thing they didn't bring aboard that I had requested was some Gluten Free beer (Oh well). I was also allowed to pre-arrange for a gluten-free meal ashore during one of my excursions.

    The whole experience led to a great week where I could enjoy myself without worrying about being glutened. Anyone interested in cruising should consider Norweigan. They'll get my business again!

    Cleveland Bob B)