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Mari

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Everything posted by Mari

  1. Mari
    Well you already know that he has the predisposition to develop celiac disease and some symptoms. If the biopsy is negative ( and it is only positive 70% of the time) it may be less distressing to him just to repeat the gliadin antibody and tissue transglutaminase tests at regular intervals. Enterolab has very sensitive fecal tests. This is one way that he...
  2. Mari
    I use the SCD too and have been able to tolerate more foods. A few months ago I started eating goat's milk yogurt and no longer have to take probiotics or betaine to acidify my stomach. The gas and bloating problem has almost gone away after using Candida Herbs and Neem. I've had to flush out my gall bladder (liver flushes) and improve my bile pool by using...
  3. Mari
    Some of us are extremely sensitive to gluten, so much so that we cannot eat from pans and plates which have tiny traces of gluten. Or be in a kitchen which is not gluten free. Also other food allergies and intolerances limit our foods. Some of your symptoms indicate you may have a toxin producing intestinal bacteria or a intestinal Candida problem which...
  4. Mari
    You might want to have tests for anti-gliadin antibodies, tissue transglutaminase and endomysin regularly - maybe once a year or so. It takes some time after being glutened for the tests to become positive and the occasional small amount of gluten may not cause significant damage in fact some of the silent celiacs never have significant intestinal damage...
  5. Mari
    Your Dr is misinformed for there are some very good tests for vitamins and minerals. Consider going dairy free, many of us have a cow's milk allergy - most of us can tolerate goat's milk and yogurt. Have yourself tested for Lyme Disease as it's common among Celiacs. There are now some very good tests for food allergies (elisa tests) which might be part of...
  6. Mari
    The problem as I understand it is that what you ate - maybe the gluten or something else - caused a reaction which slowed down the partly digested food in your small intestine allowing the carbohydrates in the food to ferment producing the gas and bloating. Gluten is a very high carbohydrate food and it seems you have an imbalance of bacteria and yeasts in...
  7. Mari
    I'm aso very sensitive to gluten and had to learn that I couldn't even tolerate a trace of gluten. I use goat's milk yogurt - I'm making a batch tonight and get my probiotics that way. I found this at the Specific Carbohydrate Diet website. I have been using the SCD for quite a while now and have been able to add foods back to my diet and get most of my vitamins...
  8. Mari
    I can't tolerate alleve and use tylenol and take turmeric as an antinflammatory. Years ago I would have episodes of painful swolen ankles and feet. It turned out to be a delayed allergic reaction to cow's milk. I've been gluten-free and casein free for more than 4 years and recently ate some butter cookies and my ankles swelled after 3 days. The swelling...
  9. Mari
    Do you have general swelling or is it in specific areas. When I started the gluten-free diet I had swolen painful knees and wrist. It took months for the swelling to go down and if I stress or injure my knees they still swell but not as much as before. Years ago I had episodes of swolen ankles and feet, sometimes very painful and I realized this was my reaction...
  10. Mari
    People with intestinal Candida or other yeasts do get intensly hungry but it is the yeast which is begging to be fed and not you. Drs can treat for this with antibiotics but people have more success with herbal programs and diet. Curezone.com has a Candida forum and other forums which might help you understand the problem even if you don't choose alternative...
  11. Mari
    The more that people report their Promethus Lab test results and are very confused the more I wonder why this older less specific test is used instead of the more specific and informative test for the DNA markers and the blood tests for antigliaden and tissue transglutaminase. The Dr. I saw who suggested Celiac Disease ordered a Celiac blood panel (not Prometheus...
  12. Mari
    I felt the difference within a few days. My restless legs calmed down after a short while but that proble comes back now and again and with me seems to be set off by other food intolerances or anytime my intestine is reacting to something. If it doesn't go away you may have to start eliminating foods from your diet and you may have to do something to get...
  13. Mari
    If it seems that you have a gall bladder problem - many celiacs do - don't agree to have it out until you read how other people flush them out without surgery. See the Liver Flush Support Forum at Curezone.com. I have been flushing gall stones out for years and used it as a part of a program which improved my digestive system and general health. You might...
  14. Mari
    If you decide to see a Dr you may be advised to stay on gluten until you have the tests done but you can eat less gluten foods. Hopefully your Dr will give you a diet to follow but some people have reported their diets here if he/she doesn't. Your symptoms suggest you may have picked up a toxin producing enteria bacteria which is hanging around in your...
  15. Mari
    He is 12, type 1 diabetic but doesn't complain about typical celiac symptoms. He is high functioning austic. The Prometheus Celiac Plus tests states: Serological markers for celiac disease not detected. HLA DQB1*02 detected. This represents half of the DQ2 heterodier (heterodimer) associated with celiac disease. What would you do in my situation...
  16. Mari
    I knew after just a few days on a gluten-free diet that it was helping, I felt a sense of relief tho it has taken a long time to get my digestive tract working again. I wouldn't wait to go on a strict gluten-free diet as you have had most of the tests and are just waiting for the results. I used Enterolab to do the DNA marker test and they offer fecal...
  17. Mari
    I agree that going on a gluten free diet may prove helpful. If you need help with figuring out a diet look at the Specific Carbohydrate diet which is good for both IBS and gluten intolerance. Problems in the digestive system are caused by many factors. She probably has an unbalanced intestinal flora - the mixture of different bacteria -and the presence...
  18. Mari
    I have had real problems when I did too much physical labor not even hard work. I didn't get any particular pain but the cramping and spasms in my abdomen would keep me awake all night and there was always gas and bloating. I think but can't be sure, that this has gotten better since I took herbal remedies for intestinal candida. I also become dehydrated...
  19. Mari
    I started using goat's milk yogurt after I'd been on the Specific Carbohydrate for several months and tolerate that quite well. My cow's milk allergy causes my ankles to swell but not much intestinal reaction. I ate some gluten-free cookies which had butter a while ago and three days later had fat ankles. I read somewhere recently that casein, the antigenic...
  20. Mari
    Hi - sorry for your problems. When I was younger I use to get weak and shaky after eating sweets, pancakes and syrup really sent me into a downward spiral. I learned that if I ate a high protein food when I had something sweet or hi carbs that helped a lot, ice cream and peanuts was one of my favorites. When craving sweets I found just walking around for...
  21. Mari
    What you have it seems to me is a type of gastroenteritis - enteric bacteria in the gut who carry toxin producing genes from whatever caused your first episode of diarrhea. Those bad guys may be gone but viruses in your gut can transfer the toxin gene into the normal enteric bacteria - (your Dr may not have read this as it is new research). There are some...
  22. Mari
    Microcytic anemia is the usual type of anemia associated with celiac disease. It is much easier to intrepret more specific tests. My first blood test was a Celiac Panel and included tests for anti - glaidin, anti-tissue transglutaminase and nowdays a Celiac Panel includes an endomysin test. What's more important than convincing the DRs that your child...
  23. Mari
    HLA-DQB1 Molecular analysis, Allele 1: 0202 HLA-DQB1 Molecular analysis, Allele 2: 0202 Serologic equivalent: HLA-DQ 2,2 (Subtype 2,2) (eggs, yeast and soy were all <6, i.e. negative) My questions: 1) Can going gluten free make you more sensitive to other foods? 2) Does anyone have similar symptoms? 3) I do not think that I am celiac but
  24. Mari
    It looks like you have one or two HLA DQ 2 markers and that means that you are predisposed to developing Celiac Disease. I can't tell exactly what test they did - they call it a molecular test which may not mean they actually determined which DQ allele(s) you inherited so we can't tell whether you are high risk or low risk. Call the lab which did the test...
  25. Mari
    I found that 14 hours or even a several day fast wasn't enough time to stop gas formation even tho most of the food had come thru. The bacteria which cause fermentation in the gut can produce an amazing amount of gas from a small amount of carbohydrates. Your symptoms suggest to me that your intestinal flora are out of balance and you have toxin producing...
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