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About sillyken

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  1. :( Hi guys,


    last night I went to a Christmas party and thought I had covered my tracks. They had turkey and I asked if they had made it with any breading. She told all she used was seasoning. That all sounded safe. I later found out that she had soaked it in beer the night before. I immediately felt that pain you feel in the abdomen that says "trouble is coming". Although I have not had any DH or throwing up, I have had a few Neurological symptoms and am curious if any have experienced the same reaction. I have Functional Neurological Disorder. I have events look like Neurological symptoms but are not picked up be an EEG. Last night about a half hour after my gluttening, I began to have muscle spasms all over my arms and legs. It would later turn into a full shaking of the body where i was thrown to the group shaking wildly. I finally went to the ER. Does anyone else have neuro symptoms after they have been glutened? 



  2. Hi Gang,


    I went to a Perkins in Fredericksburg VA this week and asked what they would suggest for gluten free meals. The waitress enthusiastically said they had a "gluten free" menu. I started to read over the selections and just before I was about to order, I saw this note that said "they do NOT recommend this menu for people with Celiac disease as they cannot promise no cross contamination." I have never read anything like this from any restaurant claiming to have a gluten free menu. I suggest that we send a strong message to the management of this national chain that we have a voice. I say don't patronize this establishment until they revise their approach to this solvable problem. Was it this hard to get places to serve people with diabetes? 



  3. For those that might be interested to know the answer to my last question of how to make a chicken so it doesn't come out to dry please refer to the following article:


    It says that you should soak the chicken in salt and sugar water. How long depends on how thawed the chicken is.

    I know it's a silly question but hey that's just me.


  4. Hello all,

    I know this has been discussed so forgive the repeat. I love the way this recipe smells when making it.

    6 Boneless chicken breasts halves

    Salt and pepper

    1 cup of maple flavored syrup

    1/2 cup of fruit or white vinegar

    1/2 cup of ketchup

    1/4 cup of brown sugar.

    The problem: she calls for it to bake for 1 1/2 hours covered and baste for a half hour uncovered. The chicken always comes out tough and dry. What advice would you have to make the chicken more moist.


  5. Yes, I agree that your thyroid might be out of whack, which is really common with celiac. It comes with brain fog, fatigue, sleep problems, and failure to lose weight. Personally, I also get sore joints.

    However, you may also have a manganese (not magnesium) deficiency or other deficiency that is affecting your muscles, and possibly your tendons and ligaments.

    Lastly, although your diet sounds fairly close to the primal/paleo diet, I didn't see a lot of healthy saturated fats (except coconut oil). From the book, "Primal Body, Primal Mind," I learned that healthy saturated fats are absolutely essential for losing weight and maintaining a healthy weight. Before then, my life sounded just like yours--no matter what I did, I couldn't lose weight. I was even a lifelong runner! Anyway, after reading the aforementioned book, I discovered that if I added in lots of healthy saturated fats, my weight just melted away effortlessly. I eat a lot of avocados, nuts and nut butters, olives, and organic butter. Like you, I eat very little fruit (just berries) and avoid soy, legumes, and potatoes.

    I hope you'll read the book--it's hands down the best book on nutrition and diet that I've ever read.

    I just watch an hour long lecture by the author of this book. I had never heard of this diet before. It sounds like it's right on the money. How fast do you lost the weight? Thanks for the heads up.

  6. I too would be more than happy to send you food or gift certificates, gluten-free soaps, shampoos, vitamins, whatever you need to stay healthy. Do you have means to cook or prepare food? Please send me a personal message on where I can send the shipment.

    I also encourage you to reach out to a local church. My church would jump at the chance to help someone in your situation.

    Take care, and know that there are people who care and want to help.


    Thank you for the offer. I will gladly recieve and pay it forward. Here is where you can send things

    Ken Ritter

    110 Buchannan Dr.

    Stephens City, VA 22655


    God Bless You!!

  7. Thank you for all you comments. To answer your questions:

    1) I went to the salvation army the other day and was spoken to quite rudely by the people there who said "They were not a medical facility". IE take what you are given.

    2) I was only given a few weeks of food stamps due to a recent emloyer who said I would be working full time by the 3rd. Unfortunatley, I won't start until the 21st of this month.

    3) I am in the Winchester, VA area.

    any other advice would be greatly appreciated.

    Hungry Ken

  8. Greetings,

    :( I'm sure someone has had to deal with this before. I have no job, I was put out of my house, and I'm subsisting off of social services, food pantries and soup kitchens. I do have a rood over my head. Unfortunately there is not a book that tells a person with celiacs how to cope in these dire circumstances. How can I get the food that I need when all the foods that are offered have gluten in them? The first place that I went gave me the attitude that I shouldn't be asking for anything special under these conditions. I have gluten-free food that will last the next few days. After that, it will be by faith.

    Sillyken :)

    (read a sign that said "keep smiling! Its the law!)

  9. I few days ago , I went to an IHOP where I careully explained my condition and that I wanted an omlette without pancake mix. We talked about making it on a different grill and I was assured that all steps had been taken. That night I started experiencing the symptoms. Today, 3 days later, the pain is excruciating. Is there such a thing as a gluten emergency? I mean I'm breaking out now with DH and my gut feels like it's exploding. I mean can the emergency room do anything or should I just wait it out? Haven't felt this bad in a long time.

  10. I am glad that I am not the only one who believes that there is a connection with some strange experiences I've been having since May of 06. I wasn't diagnosed with celiac disease until 04. I have been reading that neurological damage can take place even though people have switched to a gluten free diet. I believe that due to some psychotic meds that i've taken in the past and due to the celiac disease I may have a form of dystonia or dyskinesia. I have facial tics that move across from right to left that effect my speech. I also have uncontrolable arm and shoulder movements. Since these do not read on the EEG the Dr's have passed them off as pschogenic.


    Hi! I see I am not the only one with neurological issues. I am turning 30 and I have had these vertigo attacks since I was 20, thinking it was low blood pressure or something, because they were not too violent. Now I have been having headaches and migraines for the last 5 or 6 years also.

    I just got an MRI/A done and it came up clear, but the EEG that I had last week was not. I still don't have the results but I experienced what I think it might be a seizure, but the Technician did not want to tell me and the Dr. wasn't there, he still has to review the record of the EEG. I had a 3 week headache and when it did not hurt as much, I would feel "whoozy", lethargic, I still do. I almost fainted last week, but my appt. is not until the 12th. of May and the Dr. is not in the state until then, so I am very anxious. I had twitches and I started getting them at night, before I fall asleep or when I wake up at night to get some water or something. It's freaky.

    If anybody has anything like this please let me know, so we can "compare notes" or give each other support. I know I need it.


  11. Maybe your finished result was the way it was supposed to be? I don't know about that particular recipe since I didn't see the show and you didn't give details, but I make a flourless chocolate mousse cake that has undivided eggs in it. If you want fluffiness, you separate the eggs and whip the egg whites, then carefully fold them into the other ingredients. My recipe with the whole eggs turns out more like barely baked brownies or fudge - the eggs kind of thicken it but don't make it poofy like a typical mousse. I have already posted my chocolate mousse cake/pie recipe here before so you could probably find it if you search. Just eggs, chocolate, butter, and sugar for the most part.

    Thanks for the tip. It did taste more like sweetened tapioca which was good but it just didn't rise like I thought it should. Next time I'll seperate the eggs and see how that works.