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About sahm-i-am

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  1. From what I understand from someone who runs a very successful restaurant, they have 2 separate areas.

    Since most food is naturally gluten free and they don't want to contaminate it, rather than marking a space for the gluten free food, they actually mark the space for the gluten containing foods. Essentially, a particular area of the kitchen is for food foods containing gluten so that the entire kitchen isn't compromised. They have a smaller room they use for this while the rest of the kitchen is considered gluten free. Whenever they need to make pizza dough, they just ensure the door is shut through the process and clean everything throughly. Same with any ingredient that contains gluten, always prep it in the smaller room.

    This is a very great idea - one to really consider. Thank you! I am going to her kitchen at the sorority house Tuesday to help her.

  2. Hi everyone! I have a friend that is a chef for a sorority house at a university and cooks meals for up to 75 girls every weeknight. One of her girls just came back from Christmas break with a Celiac diagnosis. My chef friend (Rachel) is freaking out! Do you have any links, resources for her on how to set up her very large kitchen and how not to cross contaminate? Wow! I couldn't imagine.

  3. After gluten free, I have had A LOT less cravings for carbs. I am really convinced that the gluten makes you crave gluten. My cravings for any foods have gone down so much.

    I and my daughter can totally agree with this. It bewilders my family and friends when I say I don't crave breads or gluten anymore. They think I'm just saying that because I have no choice. Well, whatever the reason my body doesn't want it anymore. The only thing I miss about my pre-Celiac life was the ease in which I could go about my life. Now, I have to analyze everything about what I and my daughter eat and do. More prep to go out, more research, not spur-of-the-moment.

    And I also agree with the poster that said this is the hardest time of the year - holidays are totally food driven! You will find your new normal - it will take a while and you will go through the stages of grief, but you will get there. I have been gluten-free for 1.5 years and I am finally at peace with the entire thing.

  4. I get nausea and vomiting when glutened - that usually lasts 2 - 4 hours and then I am just wiped out until the next morning. It takes a day or two before I can eat much. Very much like the flu without the fever. Hope you feel better soon and stay away from the poison!!!

  5. Well, Celiac is definitely a genetic disease and can certainly pass from parent to child. My daughter had gastro symptoms and failure to thrive all her life. We had her tested and her bloodwork came back negative, but her Genetic testing told us she had 2 markers for it. She decided to go gluten free (she was 10 at the time and ready to feel better) and has never felt better! So, even though her bloodwork was negative, she felt better gluten-free. Your son is too young to tell you, but his skin is definitely screaming at you! I would listen to it. And sure, gluten is so mainstream, but I guarantee you that when he is older more and more people will be intolerant of it and it won't be as difficult. Actually, my daughter has an easier time avoiding gluten because she doesn't really remember or miss it. I, on the other hand, had gluten in my life for 42 years before I had to get rid of it and it is harder to let the memories go.

  6. Yes, I have read that there are other things that can cause the intestinal villi to flatten. Cow milk being one that I can think of immediately. I read somewhere that corn is starting to do that to patients because food manufacturers are using so much of it in our foods, but I can't stand behind that until I find some more information. There are a few other diseases that cause villi blunting, too. If you Google it I'm sure some information will pop up.

  7. Before I was diagnosed with Celiacs I had no clue how much food affects all different parts of our bodies, not just our weight. I was a typical ignorant American. Now I know more about gluten and GMOs and the history of food; more than many doctors. So it seems so obvious to me. And you would think that information would be absorbed by our family. But no! They let it go in one ear and out the other. They don't care and can't believe that could be their problem.

    My husband tested positive for celiac disease and still refuses to go gluten free. Huh? His brother and aunt have it. He has seen me and my daughter live and heal gluten free. He knows that other auto immune diseases and even cancer can result from untreated celiac disease. He totally believes and supports my gluten-free lifestyle. But his aches and pains, issues, absolutely can not be attributed to gluten - such a twerp! <_< Want to bash him in the head if I think about it hard enough. :P But I don't - I let him gripe about his problems and I suggest he keep an eye on it. That is it. He is a big boy and knows what he needs to do. Me nagging him won't change a thing in a positive direction.

    This is another unfortunate side effect of Celiac Disease - idiot family members! :lol:

  8. I hear ya Donna! It took a long time to find my new normal and I was all sorts of angry and resentful. Now I am at peace with the whole thing. Of course, as far as problems with Celiac, I've had it easy compared to so many on this forum. I think that if my undiagnosed Celiacs causes future health problems like Diabetes or lymphoma I may cry and be angry at it all over again. Baby steps I guess...

    Hugs to you Donna. This place is full of people that know and feel your frustration.

  9. I am healthy as a horse Sahm-i-am (I believe Celiac's is coming from my husband's side, he has Type 1 diabetes), and I had trouble gaining weight during her pregnancy. She is my third child and I could not gain weight in the third trimester, no matter how much I ate. It is so strange to me that you had that problem with your child with Celiac's too. I am probably reading way into this, but I wonder if there is something to that?

    They aren't sure when my celiac disease kicked in - I think when I had emergency surgery with DD#1 a year before DD#2. I didn't have significant signs, just slight anemia. It gradually got worse over the years but nothing significant and finally I started showing obvious signs of malnutrition/malabsorption last year. Other than that I didn't have any complaints - always very healthy. It came as a complete shock when I was diagnosed. I am sure there is some connection - auto immune diseases can do crazy things.

  10. There are over 300 symptoms of Celiacs. Mine was anemia that couldn't be reversed no matter how many iron infusions I had. I also had enlarged lymph nodes in my abdomen. They found my Celiacs while trying to rule out lymphoma. I never had any GI issues. I like to believe that I am lucky they caught it quickly before much damage to my immune system could take place. But there are many different symptoms, even unorthodox ones.

  11. My daughter had tons of symptoms and yet her bloodwork came back negative. She did have the two genes for Celiac (forgot which ones) and both her dad and I tested positive for celiac disease. So, even though her tests came back negative she wanted to try the diet to see if it helped with her GI issues. A few weeks later she was right as rain! :D So, sometimes test results can be wacky, but listening to how your body responds is always a good way to go!

  12. My baby girl was failure to thrive. Heck, I even had trouble gaining weight when I was pregnant with her! (But that was my undiagnosed Celiacs, not hers ;) ). We didn't discover our Celiacs until last year and she was 10, almost 11 years old. She was always small, but I tell ya - it may be that she has been gluten free for 18 months or just her time to grow, but she has shot up this year! Her buddah-belly is finally gone and she is tall and lean. Her older sister always calls her "midget" (with love) but I have a feeling that name won't stick for long, she will grow taller than her older sister. :lol:

  13. It is actually crazy how people avoid the Celiac test. I have finally stopped asking and talking about it. I sit and listen to them complain about ailments, trying this or doing that, nothing is helping. I roll my eyes and say to myself "Idiot!". If I (who never had one GI problem ever before diagnosis) can have Celiac why in the world would someone who has tons of classic symptoms AND be a direct blood family member think they don't have it? It is pure ignorance - they don't want to have to change their lifestyle. They have seen the pains and isolation that being gluten free has caused us (it is hard at first, but does get easier) so why would they want that? I NEVER complain anymore about being gluten-free. I make it out to be like a carnival event if I have to. I don't want my negativity to sway their view anymore. And it helps me stay at peace with the entire thing. Cause if I really think about it too much I will want to strangle my extended family!! (Totally love them, but geesh!)

    NOW, my husband??? Who tested POSITIVE for Celiacs last year? Will he go for an endo or try gluten free like me and my daughter? NO! :blink: (His brother and aunt has Celiac).

    Don't even get me started there! I have to accept that it is his body and he is setting a bad example for our daughters, but I can't make him do it. He is a big boy - he can die early of horrible autoimmune diseases if he wants to. He knows this. But all I can do not nag and isolate him. He is totally supportive of me and my daughter's lifestyle and I have complete trust that he will not ever be careless. He knows Celiacs is real. Just not in his body! :rolleyes: Denial is a stong thing!

  14. Katie - here is a link to a resource you might find useful: https://www.celiac.com/categories/Celiac-Disease-%26amp%3B-Kids-by-Danna-Korn/

    Danna Korn started a group called R.O.C.K. (Raising our Celiac Kids) and they have support groups/websites in alot of states, too. She has a wealth of information

    that helped me. An adult living a gluten free lifestyle is very different than a child growing up in a gluten free lifestyle. There are so many more pitfalls to be aware

    of for kids. And how many of us were learning to read labels as kids??? But our kids have to learn in order to stay healthy. We have to teach our kids to ask about ingredients

    before they eat a treat offered by a friend. We have to train them to be aware of crumbs and cross contamination before they go to sleepovers. If they go out to eat with friends they have to learn how to ask the right questions before ordering a meal. These are some of the things I have learned from Danna and others. At least you have alot of time before these scenarios happen for your daughter! :) But you do have to deal with things that I didn't, like playdough. And making sure she doesn't impulsively share a snack of a friend. But this board is also filled with parents that have been in your shoes - such a nice place. Don't be afraid to ask.

  15. I know that casein and lactose can be hard on Celiac's systems, especially when healing. Take out dairy while your child is healing. If she has had Celiac since birth there is alot of healing that needs to take place. It will take a while. Maybe in a few months you can add diary back in and see how she tolerates it. My daughter has been gluten free for 18 months (she is 12 yo) and still drinks lactose free milk, but even if she drinks too much she will get a stomach ache. There are cow milk alternatives.

    If you are new to the entire gluten free lifestyle you may want to look at cross-contamination with gluten in the house. Also, playdough has gluten, look at art supplies, etc that may get on her fingers and then gets transferred to her mouth. Does she go to preschool/Kindergarten? She may be getting gluten there.

  16. It sounds very much like Post Traumatic Stress Disorder. For years, decades even, you have been battling an unknown enemy. Journaling, reading, researching, testing, probing, all while you are suffering debilitating side effects; it is enough to cause PTSD-like symptoms. You have been your own health warrior, advocating and even questioning your doctors and your self. It is no wonder that you are startled at every bump in the road. Totally understandable.

    I have finally relaxed a bit but it is a challenge at times. We have developed a special relationship with doctors, all doctors no matter how good they are - they have to prove themselves to us. For so long doctors have told us what they think and many times they are wrong. We have had to rely on ourselves. So, even when we find a doctor that understands or even diagnoses us, we don't trust that they know everything. We are skeptical. When someone is diagnosed with a broken leg or even the flu, you don't question the doctor. You are given a remedy/prescription and off you go. Complete trust. But celiac disease is tricky and we are finding that doctors, even the knowledgeable ones, don't know the nuances of how it affects everyone. The fact that it is an autoimmune disease makes it even harder. There is so much gray and not much black and white. All this makes us question everything about our health and our bodies. We are waiting for the next shoe to drop. Our bodies have abused us and we are waiting for the next blow. Man, I am just Little Miss Sunshine this morning, huh? :huh: Just trying to say that 'I hear ya!'

    Chin up, sandsurfgirl - you are not in this alone! We totally get where you are in your journey.